This Week On Caregiving.com…

Welcome! Here’s what’s happening:

Hurray! We’ve partnered with Gilbert Guide to  add a directory of services to our site. Now, you can search for facilities, home care, adult day services, geriatric care managers, even home remodelers.

Did you miss our shows last week on Your Caregiving Journey? No worries—you can listen to our most recent shows on the player, below. Short on time? We understand! You can download our shows to listen on your iPod or mp3 player at your convenience.  Don’t miss our show on creating your emergency personal care kit. We’re taking the week of June 28 off; see our July schedule of shows here.

We take a closer look at the role of shame in your caregiving experience in our three-part series. Be sure to share how shame has touched you.

We would love to stay connected with you: Fan us on Facebook and follow us on Twitter.

What does caregiving look like to you? Share your Portrait of Caregiving with us.

We’ve added our fifth and sixth online support groups (members communicate via e-mail messages) is up, with more to come over the next few weeks. Our fifth group helps gays and lesbians in a caregiving role; our sixth group supports those caring for kids and aging relatives. Our other groups help caregiving spouses, long-distance caregivers and those who are grieving. Finally, we have a general group for everyone. We’d love for you to join and share. Our group’s members know what it’s like…

Wondering: Why me? Why now? What now? Our workbook, The Caregiving Years, Six Stages to a Meaningful Journey, maps your journey. At a loss for words with all that’s happened? Our book, Take Comfort, Reflections of Hope, gives you back your words.

For information about the swine flu outbreak and tips to stay healthy, please visit the Centers for Disease Control.

Thanks so much for visiting us—be sure to share a comment, join a group, and come back. :)

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Simple

At  f/   5.6, the flowers are isolated from th...
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Life has thrown you complex and complicated experiences; it’s natural to consider that complex and complicated answers are needed.

Keep it mind that simple often works best:

–Simple statements that explain your feelings and reflect your goals.

–Simple solutions that meet your care recipient’s needs and respect your boundaries.

–Simple steps that keep you on your path that leads to your goals.

When faced with stressful discussions and decisions, rely on simplicity; it has an amazing ability to cut through complications.

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New Caregiving Book

Hi, Everybody. I wanted to post about a great new caregiving support book that I picked up at Barnes & Noble. I don’t think I’ve posted about it before…but I can’t remember my name some days! ;)

It’s a large softcover thing entitled “The Everything Guide to Caring for Aging Parents: Reassuring Advice to Help You Support Your Loved Ones”; Kathy Quan, RN, BSN, PHN; 2009; Adams Media.

To quote the book’s cover, its contents summarize:

- Learn how to take charge without taking over
- Provide help with medications, treatments, and emergency situations
- Handle legal issues and avoid scams
- Help preserve independence for as long as possible
- Find and use community resources

It’s 275 pages, excluding index. Very nicely laid-out visually, and information in all helpful bits and pieces — including offering a study of and a help to all — including the parent — in dealing and interacting with the process of dying, death, and grieving.

But its main purpose is to help us caregivers and our caregiven how to live — and to deal and live as happily and best as we personally can.

PS: I got accepted to my graduate program for Fall 2009, in Gerontology with Management of Aging Services Track. Maybe I can help own and make a difference someday in all this, to a greater degree.

I wish everybody here a chance to find time for yourselves, too, over this upcoming Fourth Holiday Weekend! We all freakin’ have earned it.

Hugs,
Gary ;)

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Call for Submissions: End of Life Stories

Creative Nonfiction is seeking new essays that explore death, dying, and end-of-life care, for a collection to be published by Southern Methodist University Press. The organization is looking for stories that transcend the “I” and find universal meaning in personal experiences. The hope is to include stories representing a wide variety of perspectives—from physicians, nurses, hospice workers, social workers, counselors, clergy, funeral directors, family members, and others. The organization wants narratives that capture, illustrate and/or explain the best way to approach the end of life, as well as stories that highlight current features, flaws, and advances in the healthcare system and their impact on professionals, patients, and families.

Essays must be vivid and dramatic; they should combine a strong and compelling narrative with a significant element of research or information. The editors are looking for well-written prose, rich with detail and a distinctive voice.

Creative Nonfiction editors will award one $1500 prize for Best Essay, and two $500 prizes for runners-up.

Guidelines: Essays must be: unpublished, 5,000 words or less, postmarked by December 31, 2009, and clearly marked “End of Life” on both the essay and the outside of the envelope. There is a $20 reading fee (or send a reading fee of $25 to include a 4-issue CNF subscription); multiple entries are welcome ($20/essay) as are entries from outside the U.S.
(though subscription shipping costs do apply). Please send manuscript, accompanied by a cover letter with complete contact information, SASE and payment to:

Creative Nonfiction
Attn: End of Life Stories
5501 Walnut Street, Suite 202
Pittsburgh, PA 15232

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On Primetime: Looking for the Love in the Love Triangle

Last night, ABC’s Primetime aired an intriguing story (“Ultimate Love Triangle: Mother-in-Law’s Alzheimer’s Disease Strains Marriage”). A newly-married couple move his mother, recently diagnosed with Alzheimer’s, into their home. And, by newly-married, I mean married just five weeks. Even more interesting, they allowed ABC to place cameras in their home to film their experience caring for his mother. 

Blane, the husband, didn’t discuss his decision to move his mother, Lawanda, into the home he shared with Georgia, his bride. It all went down hill from there.

The show was often difficult to watch. Blane worried about losing his wife, who regularly expressed her displeasure over Lawanda’s presence in their home. About nine months after Lawanda’s arrival, Georgia leaves Blane. After they reconcile, Blane builds a small apartment behind their home to accommodate Lawanda, so he can help her but still provide privacy for himself and Georgia.

That didn’t work.

Georgia and Blane take battle positions; Georgia, on the couch, Blane, in his recliner. They argue. Then, in what seems to be a play to keep Georgia on his side, Blane mocks Lawanda, who often shows the symptoms of Alzheimer’s disease. Lawanda, a witness to the mocking, is heart-broken.

As the situation’s stress escalates, so does the number of cigarettes smoked by all three. Lawanda’s smoking poses a problem, but Blane and Georgia can only think of one solution: To tell Lawanda, descending further and further into forgetfulness, not to smoke.

Obviously, that didn’t work, either.

Finally, the three move to be closer to Georgia’s family. Blane and Georgia buy their own home; they move Lawanda into her own apartment. She attends an adult day center, but must fend for herself when she’s home alone. At some point, Georgia yells at Blane to hire help—that his mother needs help. Blane replies that he’ll hire help when they can afford to. Finally, Adult Protective Services is notified.

The smoking, now accompanied by almost constant cursing, really gains steam.

When Wyvonna, Lawanda’s sister, recovers from her own health issues, she moves Lawanda into her own home. Wyvonna’s husband supports the decision; “There but for the Grace of God go us,” he tells her.

Lawanda thrives once she moves to Wyvonna’s home. She looks healthy. She’s also a happy and constant companion for her sister and brother-in-law. She says she would love to see her sons (Blane and his brother, Scott). They say they’ll visit, but they don’t.

In the show’s closing minutes, we learn that Blane wrote checks from Lawanda’s checking account, including monthly checks to himself for $2,000 (to cover Lawanda’s living expenses, he notes on the cancelled checks). He admits he neglected his mother, although not intentionally. “Neglect is neglect,” he says.

It’s hard to forget Blane, Georgia and Lawanda. Blane and Georgia are now divorcing. Blane remains distant from his mother. Blane and Georgia were obviously overwhelmed and confused by Lawanda’s care needs. Now, does their guilt overwhelm them? Did they divorce because they saw each other’s worst? Or, because the other’s worst is a self-reflection and they can’t stand the reminder?

I wonder about Blane and Georgia—their courtship, why and how they fell in love. Blane often expressed his love for Georgia (“I’m 52 years old. I’m in love for the first time in my life.”) but Georgia seemed only able to verbalize her anger at the situation. She admits to feeling jealous of Blane’s attention to his mother.

Blane must have felt he had to choose between the two. He chose Georgia. Interesting that both seem lost to him now.

We all know that caregiving has many moments of rawness—when the anger, frustration and exhaustion take hold and the only relief seems to come from yelling, smoking and cursing. But, caregiving can have some good moments. We saw moments of love between Blane and Georgia. The truly touching moments of love took place between Blane and Lawanda. Blane, when given the opportunity, genuinely doted on his mother.

Which made me wonder: Does love have a limit? Did Blane feel he just didn’t seem to have enough love to go around? I wonder if, ultimately, he feels that is his failure. He couldn’t find enough love. When he struggled to be enough, did he reach for Lawanda’s checkbook, looking for another way to be full?

Or, was Georgia just too unwilling to forgive, so that there never could be enough love?

The suffering of the three is haunting. Lawanda has found parts of her happy ending. Regular visits from her son would start the credits rolling for her story. But, Blane and Georgia? Will they find their happy endings?

What did you think?

Read more and watch the show here.

Resources

Three’s Company: You, Your Spouse and Your Care Recipient

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This Week, Make Time for You

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(Editor’s Note: On Wednesdays, we share a journaling tip as part of our series, Journaling 101. This is our eleventh tip.)

The aches of caregiving can seem to permeate your body: Your heart aches, your head aches, you bones ache. Even worse, your heart and spirit seem to be filled with pain.

Just as you bathe your body’s aches and pains, consider how you can bathe your spirit’s aches.

This week, as you journal, consider what your bath oils are–what you have that seems to calm and comfort. Your bath oils may be your support group, your journal, your best friend, your quiet time in the evening. As you discover your bath oils, be sure to create time for you to use your bath oils on a regular basis.

With regular use, your bath oils will keep you spirit healthy.

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Finding the Right Words to Ask for the Help You Need

help wanted

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You want help. You’ve been waiting for your siblings, your kids, your in-laws, your friends, anyone! to offer their help.

Unfortunately, you’ll wait forever if you’re waiting for others to offer help.

So, how do you ask?

Tell family and friends specifically how they can help. Often, other family members want to help, but just don’t understand how. Some ideas:

–Ask your brother to call your mother on a regular basis (but let him tell you what he can commit to. If it’s only every-other-week for 15 minutes, then that’s okay. Accepting his limitations will avoid disappointment–for your mother and for you.)

–Ask your daughter to help out with grocery shopping every week. Let her know you’ll e-mail her a list of groceries that your and your husband need.

–Ask your cousin to send your aunt a letter every week; explain to her how much your aunt looks forward to hearing from her.

–Ask your sister to provide respite care two days a month—her choice of days. If she feels uncomfortable providing the care herself, then let her know that an agency can provide the service—and tell her how much the service costs. Let her pay for the service and let the agency know that she is financially responsible. Then, let her know how much it means to you that you know she support you.

–Ask your son to research community options. Tell him you are looking for help to offset the costs of medications, provide transportation to the doctor and manage the insurance bills. Then, let him do the leg work for you.

–Ask your brother-in-law to spring for the cost of a monthly cleaning service. If you can keep your house in order, you may feel better about being in the house.

And, once you ask for help, be sure to receive, in whatever form it is delivered to you. Meaning, if someone completes a task or chore for you, and it’s not the way you would have done it—but it’s still done—let then it go. And, enjoy the time you have gained for yourself. That’s the most important benefit of having others help you.

What’s work for you? We’d love to know the words you use to ask for help.

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