Comments on: Tell Us: What Advice Drives You Nuts?

By: Donna Webb

Donna Webb — Fri, 30 Jul 2010 00:27:50 +0000

I find it is often better to say nothing to friends and relatives, but only to other caregivers, who “get it”

By: Sharon

Sharon — Thu, 29 Jul 2010 22:49:31 +0000

About two weeks ago I was pouring out my heart to a close relative my frustration and heartache with one of my husband’s symptoms, namely extreme fatigue some days so that he wants to sleep away the day. (This symptom is part of my husband’s disease.)

Instead of listening with compassion to my heart this individual asked me, “Did you ever think of asking the dr. about that?”

By: Debbie

Debbie — Thu, 29 Jul 2010 20:59:37 +0000

“you really need to get someone to help you” and “you need to get out more” AND “your mom needs to be placed”…..argh!!! So tired of all the supposedly well-meaning “friends”.

By: Donna Webb

Donna Webb — Thu, 29 Jul 2010 20:17:48 +0000

yup, that would be a good one too!

By: Karen

Karen — Thu, 29 Jul 2010 19:44:11 +0000

“You need to get your family to help out.” That’s the one that makes me see red, scream and throw things! Literally.

By: Donna Webb

Donna Webb — Thu, 29 Jul 2010 17:55:27 +0000

hhhmmm, how bout, “You really need to get out of that house!” yeah…ok, so who will come and sit with mom so I can do that, oh yes and I like don’t have an extra car right now to go someplace…and if I could get out, where do I go and what do I do, since I hate going anywhere by myself… Yeah that is one of “those” questions I think!