Sometimes I feel like Marah looks in this picture! Experiencing times when things just don’t feel right at all.
Someone I love looks, talks, and eats differently; dresses, thinks, and acts differently. It’s not right. It’s upside down. It turns emotions upside down as well, ours as well as my mother’s. How do we turn it back around?
I was very proud of Marah on Christmas. She helped my mother several times: “They’re presents, Nah-nah, you open them.” We can learn so much from children. They take things as they come, one change, and one bit of newness at a time…and they never look too far ahead. (: That could begin to “right” the changes.
I love music. Yesterday, I heard a song I hadn’t heard in a long time. It is a song by Point of Grace: “Turn Up the Music” (http://www.youtube.com/watch?v=_qQm8283qsg). The lyrics are all about the importance of how we live, to not run from our truths, but to face them and all will be okay. The song goes on to say “have what you want, but want what you have”, and to “take a few chances.”
The words were very meaningful because dementia brings such change…to everyone in our house. And, each day, we take chances in trying new ways to better help each other and to better help my mother. My mother has been feeling lonely more than she has in the past. She is not as content to sit in her living room, but wanders to find where we are or where I am more often. She has been sharing more dinners with us, where as before the noise level at our table outweighed the visit. Eating together has been a bit of a challenge, specifically for Rees.
My mother needs help with eating and is not always the way she once was at the table. Tonight, I tried something a little different. We had music playing in the background. Rees sat in a position where he could see Greg and Abrah better than the other end of the table and I placed salad dressing bottles just where they should be, to shield any other struggles Rees was experiencing with the adjustment. It was a wonderful dinner together! I was so grateful and the planning was a success. The next few dinners (for a while anyway) should be a little easier all around. (:
Our communication is growing. Today the kids asked for a family meeting to “talk about Nah-nah’s sickness.” I was so touched to hear that they were willing and wanted to work all of this out.
Marah asked me a couple of nights ago: “Is being married difficult?,” she said, “You know with all the tasks, like having us?” Things that are important are sometimes difficult. I think I got my answer, too.
Change with the kids is all about newness and growth in a positive way. They become more independent and show what they’ve learned.
In caregiving, we are the ones growing – and becoming more confident in what we do. Our carees depend on our strength and our growth, too.
So…how do I “right” all these changes and the newness that seems so uncomfortable? One change at a time…not jumping too far ahead…and leaning on the support I receive here and in our home.








You are a disruptor. The delivery of health care starts with you, continues because of you, and ends with you. Let's disrupt together to make the world better for family caregivers. 




Sharon
Beautiful post, Bette! I loved how your Marah helped her Grandma with her presents. Children indeed are so precious and so accepting. My grandkids are so accepting of their Grandpa they way he is also.
I loved your insight also about how we raise our children to grow and become independent. Caregiving is really the process in reverse for our carees, but as you said we as caregivers are the ones growing.
G-J
Lovely post, Bette! I like how you were able to work out a dinner environment that worked for everyone. It’s great that the children asked to sit down together and discuss your mother’s situation as a family.
Denise
Hurray, Bette! Solutions abound in your house! Isn’t that awesome to know that you can manage what comes. And, most important, you manage with a team of love and support.
Karen
Bette,
Thank you for sharing this. Dementia certainly does bring so much change to our lives. Each change brings new challenges. All we can do is to try to meet each one with as much grace, understanding, and kindness as possible. As we deal with each challenge, I think we become stronger. You show your love and concern for all of your family members in each post.
Meryl
Bette, that truly is a great post and I am glad that you had a wonderful dinner which I hope you will have many more.
Your children are very blessed to have a mom like you who takes the time out to share with them about life and that it’s not always easy. As they get older they will understand more and not be shielded from the hardships which personally I believe is a good thing. Your mother is also very blessed to have a daughter like you who is very caring and there for her.
I wish you and your family a wonderful New Year filled with health and happiness.