Robert’s Very Good Day

It has been seven weeks since Robert left his Old Home which filled his days with movies, music, reading circle and bingo (and filled his fridge with Milky Way candy bars with every bingo win!).

Nothing was going to prevent me from getting Robert to Day Program today. Not a visit to the ER, not a bandage still wrapped around his head, not the van transport not being set up.

I arrived early to Robert’s New Home to be sure he was ready to go just in case the van transport arrived at 8:00 a.m. (their arrival was still unconfirmed as of 7:00 this morning). I knew we had a two hour window of time to check into the Day Program so decided to allow them time to show up but still allow me time to take Robert if they didn’t show up. (I secretly hoped they wouldn’t show so I could take Robert on his first day).

Robert was finishing up in the bathroom when I arrived. The Aide said he had already eaten breakfast, taken his medication and had a lunch packed and ready for him in the fridge. Oops – I don’t have a lunch bag for him! (Add that to my list along with soda and razors).

I packed a “just in case” bag (protective underwear and a change of clothes) and waited for him to get out of the bathroom. Robert finished up and walked out to greet me. His smile was enormous.

Are you ready for Day Program, Robert?

“Yes, I am.” The grin got bigger.

I explained that we had to wait a few minutes to see if the van would show up. He stared at me like he was considering if this was a good idea or not. I suggested we play one game of cards and then we would go. He continued to mull over what I was telling him. I assured him we wouldn’t be late.

“Okay.” Sheesh. I’ve never had to talk him into playing cards before!

We finished the game in record time and Robert stood up. He’s ready to go.

Robert got into the car and asked “How long till we get there?” Someone is excited!

We arrived at the Day Program and I walked Robert inside. He was still grinning and I was going over the essentials: here’s your lunch, wear your helmet, House Manager will bring you your meds, I will pick you up at 2:30.  We walked in the door while I worried that the New Home hadn’t communicated his starting today. The worry was short-lived as Robert was greeted by name by two staff members.

I didn’t think his grin could get any bigger but it did (his cheeks are going to hurt!). Do you need any paperwork from me (hopefully not since New Home didn’t send any with me)?

“No, we have a binder on him.” Oh my god, I’m in love.

All of a sudden, it felt like the first day I took my daughter to kindergarten. I teared up and gave Robert a hug and told him to have a good day. He said his usual goodbyes (“I love you” and “God Bless You”) and walked off with the staff.

I almost cried when I picked him up too. How was your day Robert?

“It was very good.” His grin was still there. He was bursting with excitement and told me all about his day (“I saw a movie, we had lunch, and then saw another movie but didn’t see all of that because you came to get me.”).  As we left, the staff asked him how he liked it and, still grinning, told them “it was very good.”

On the car ride home he told me about a person he met and about the “prom” coming up on Friday. “I have to wear my Sunday best.”

“I want to wear my black pants and a nice shirt.” (I thought I was the only one who planned my outfits days in advance). I assured him I would find his black pants and a shirt for him and he would look very nice.

Before getting to the New Home, we stopped for a chocolate shake and a lunch bag.

Robert had a very good day.

Avatar of Trish

About Trish

I am Robert’s older sister and a freelance writer and am also a full-time Legal Administrator for a wonderful law firm (no, that is not an oxymoron). I am the caregiver for my youngest brother, Robert, who has suffered from uncontrolled epilepsy his entire life. In his late-40s now, he lives with me and my husband. I have somehow managed to navigate the maze of social services and government programs available to help Robert and continue to be amazed at the amount of time and persistence that is needed to do so. Robert finds happiness in simple pleasures like doing word search puzzles and watching his favorite shows (Family Feud and Jeopardy, of course!)

8 thoughts on “Robert’s Very Good Day

  1. Avatar of DeniseDenise

    Oh, this has started my day off just right. How wonderful! It sounds like Robert has found his home away from home. :) I hope the good days continue. Thanks so much for letting us know.

  2. Sharon

    That is so wonderful to hear, Trish! I am so glad Robert had a great day. I am so glad he has such a caring sister. Your love for him just shouted out of the screen as I read you blog post.

  3. Bette

    Hi Trish,

    I’m so glad everything went well on Robert’s first day – that will make the ones that follow that much easier…for both of you.

    Your stop on the way home was very sweet. You and Robert have a very special relationship.

    Thank you for the update!

  4. Trish

    Thanks everyone for being so supportive and caring! I’m happy to report that Day 2 went just as well and he even had the van transport (to and from!). He told me yesterday he had met an “Eric” who was very nice and polite and told me today he met an “Eric” in the van today (who also was nice and polite). I don’t know if there are two Erics or if Eric just made a big impression on Robert (twice). :-) Either way, it’s a win. :-)

    • Avatar of DeniseDenise

      Oh, these good updates are so exciting to read. I’m so glad that you both have two good days under your belts. And, you’ll have to let us know if there are two Erics or just one Super Eric. :)


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