Update: Our survey is now closed. Thanks to all for sharing!
We want to know what’s it like for you!
Our 2011 Family Caregiver Survey asks you about your experiences: What’s hard, what help you wish you had, what changes you’ve made because of your role. The survey may take as long as 30 minutes, so feel free to save and restart your survey as needed. We’ll share the results of our survey the second week of June. We’ll also schedule a webinar to discuss the survey results.
Once you complete our survey, you’ll receive a free, 30-minute phone coaching call with Denise AND have a chance to win a $100 Amazon.com Gift Card.
During your coaching call with Denise, you can choose to accomplish one of the following goals:
- Create coping strategies to use on your bad days;
- Develop communication skills to use with difficult family members;
- Find more time in your day to invest in your needs and interests;
- Gain a healthy perspective on a challenging issue.
After completing the survey, you’ll receive instructions as to how to schedule your coaching session. You’ll find the survey, below. Questions? Please email Denise.
You are a disruptor. The delivery of health care starts with you, continues because of you, and ends with you. Let's disrupt together to make the world better for family caregivers. 
Rober Morgan
I’ve been a TBI caregiver to my wife for 16 years. An anesthesia mistake left her anoxic for at least 10 minutes during my son’s c-section birth. I raised my son from infancy and my daughter since 9-yrs-old as a single dad. Society does not look kindly upon single dads.
Amy Bernstein
I’ve been a caregiver for my husband for 5+ years. My husband was diagnosed with MCI about 6 years ago. The first Doctor told us to enjoy the time we had together. The second Doctor pretty much told him the same but he is now getting better care with a proactive Doctor. I have two teenagers that are great but its hard taking care of my family, bills, and trying to maintain a job and some me time.
tom
I have been taking care of my partner who has bipolar/ schizo affective disorder for 11 years. When he was able, my life was chaotic, hospitals , non compliance etc. The past year I have used vna, and he is slowly deteriorating to where he needs more care than I can give. He has gait instability and a self care deficit. …I work, own a home, have pets, and help oversee my aging mother. I am stretched past my limits. Letting go is a huge struggle. I am really afraid to do what I know is needed for his sake and for mine.
Denise
Hi Tom–I’m glad you’ve found us and that you took the time to share your story. The letting go is really hard.
We did two webinars this past spring, which may be helpful:
Surviving Caregiving By Letting Go
Surviving Caregiving: The Power of Acceptance
Both are about 45 minutes in length and include exercises you do during the webinar. The exercise help you work through the horrible feelings that come with difficult decisions.
And, if you’d like to join us on the site as a blogger, please let me know.
Please keep us posted. I’m glad to meet you.
laura
i am not sure if u want me to this survey i gave up caregiver status due my mom pass way last saturday