So…….ya ready for this?
I am sure it will seem like I am just over reacting, but this is how I feel, or how this situation makes me feel.
Apparently – I am incapable of “relaxing” or “chilling out” according to Ill Husband.
I try to work on it, but it seems it is impossible?
Last week I come home and already shared about the “Spontaneous” thing, well the same week, just a different day, I come home and he was aggravated, needs to deal with something on the phone, I get kids settled, so they aren’t bothering him with noise, and go from walking in door from work, saying hello to kids, to directly into the kitchen, work dress, panty hose and high heals still on and everything, I start making dinner.
He gets off the phone, comes in kitchen and gets mad cause I started dinner and because I didn’t change clothes?
(Fine if any other husband did that, it would be sweet and he cared, but it is how you say it, that makes the difference.)
Later he says, “Let me give you a tip on how to put the milk in the mashed potatoes”
or has a problem with how much fruit I put on the kids’ plates, saying I put too much, they won’t eat it all.
This is all the same night.
Well, ok, thanks, I understand he is with the kids more for meal times for lunch since it is summer, but I know what the kids want and low and behold they asked for seconds and thirds of the fruit, which is what I originally did put in quantity.
I was so ready to walk out the door if he said one more thing, and tell him I am leaving till you can actually treat me with respect, and was just going to go get plastered or drunk and stay there till I was sober.
But – of course, wimpy ole me, didn’t, but also he didn’t do anything more that night.
Few days later I just have had it, I said, When did I become your child, I am supposed to be your wife, can you not ever tell me anything positive that I do, can you not ever tell me thank you for all I do.
He says I am never home, the kids ask him where Mommy is, he says I am too busy when I am home and take the kids everywhere to do things on weekends, but that doesn’t signify spending quality time with them.
I need to come home and sit down and talk to them, not come in the door and go directly to start dinner, homework, tidy up the mess that might be there.
How easy is it for him to see so much of what I am not doing when he doesn’t know what my body is like. I cannot handle so much going on so have become accustomed to doing so many things at once that I am not able to shut down or “chill out.”
I am tired of hearing from him what I need to do with the kids.
Tired of hearing “you are too stressed and get too short with the kids” and he thinks “I am always “nagging” with them needing to do something.”
Or, I yell too much.
He says he is not saying I am a bad mom, but that is how it comes across to me.
I don’t want to hear his “suggestions” anymore.
I want him to shut up and see something/anything positive.
He thinks because I get upset or emotional when he starts these talks that he has to shut his mouth and never say how he feels, well, he can say how he feels, but does it always have to be about me and what I am doing wrong?
This week his eyes are swollen, chronic fevers, and Tuesday he couldn’t get off the couch and kept going in and out of sleep.
Amber’s birthday evening on Tuesday was all of us at home, and IS with his cane to stand against the wall to sing her happy birthday at the table.
Thankfully Amber was home with Keira and could tell me how the day went, and what Daddy did during the day, or the lack of.
Last week he was fatigued, but did a few things around the house, but was on my case, as I described above.
I am not a child, not his at least, just because he is six years older than me doesn’t give anyone reign to act that way.
I am mad at him, or should I be mad at what is making him sick, but also frustrated because his personality is changing so much with his symptoms and decline.
ahhhhhhhhhhhhhhhhhhhhhhhhhhhhh
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I apologize if my outlook on my marriage and the mindset I am in right now with being a spousal caregiver offends anyone.
I know we all will look on our situations differently but lately I guess people will call me being “selfish.”
I took the vows for sickness and in health, I am loyal and have upheld my vows, but husbands and wives, no matter if they are sick, they still have a life and position to fill and uphold, but so many times the Ill Spouse thinks it is all about them.
I love my husband, but I am still human and have feelings, wants, needs, etc.








You are a disruptor. The delivery of health care starts with you, continues because of you, and ends with you. Let's disrupt together to make the world better for family caregivers. 




G-J
Oh, my, gosh, Debbie! I can completely relate! It’s like when you’re a caregiver, but still a spouse, you’re supposed to be only wonderful and caring, because your spouse is ill. However, they are still your spouse and as such you still have the spouse issues and annoyance that sometimes crop up. How do you separate the two, yet meld them, without the guilt that comes?
Denise, this would be a great topic to explore sometime!
Denise
Hi Debbie–I’m so sorry for the frustration. You’re doing your very best under such trying circumstances. A “thank you” and a “I love you” and a “We’re so lucky for all you do” would be like manna from heaven.
I wonder if I could offer a perspective? It sounds like your husband is asking for you to let go of the “To Do” list and to just be. I understand this is hard to do because there’s so much to do. I wonder if you could arrive home and just spend a few moments getting love from everyone and catching up, sharing your day and hearing about their day?
I think they’re anxious to show their love to you but they can’t quite catch up to you. Could dinner wait for the love to take place?
Hope this helps!
Bette
Hi Debbie,
I’m so sorry – sometimes it is just so hard…I continue to struggle with communication with my husband, particularly if it has been a long day here, and I feel as though he does not grasp what my day has entailed.
I often rush around as you do, thinking if I can “keep up”, that this will keep everything running smoothly. I often overdue the clean-ups…
So…everything at times seems to require more bending on my part: all the bending seems to outweigh the alternatives though (:
Something I’ve been struggling with is that of “talking time” with Greg. I can’t tell you (I’m sure you know) the times I begin to talk about the day and am interrupted!(we have three kids as well) I’m getting better at “announcing” the conversation that is going to take place, and that everyone else needs to find something to do for 20 min. or so. Just an idea Debbie.
It seems like a complete circle though. I don’t want to communicate when there’s any friction, and yet the communication will alleviate the friction…
Thinking of you and hoping for some “talking time” for you and your husband this week-end.
You do a wonderful job at all you manage Debbie, including the amount of milk you put in the mashed potatoes…by the way: I can’t make mashed potatoes…and don’t even try (:
Debbie
Thank you all.
I understand that he might be trying to say, “come home and just sit and soak in what has happened in the home”, then start the night routine, any other guy it would seem as him being sweet or caring.
But he is not romantic, affectionate, doesn’t care about the love stuff, or the mushy cute stuff.
He might say I love you sometimes, but expects me to already know it and believe it.
Doesn’t like hugs or cuddles or kisses.
He is very forward, blunt, and wont sugar coat tings, which is not bad, that is who he is, but it causes hurtful feelings for me because in a way it feels controlling and verbally abusive.
When i am giving all i can and not getting anything back and then be treated like that when he has a bad week, I just get angry.
When we first met he did do the romantic thing he “courted me”,
I am the romantic love dovey type and I thought he was the one for me, but I was 18, you get blinded by love.
Years went by and i saw he changed, I asked him about ti, and that’s when he used the “courting” word.
It was too late by that time to try and see if I wanted to stay married because the illnesses and disease and sickness had set in quickly and the “good wife” thing to do is stay, thick and thin, through sickness and in health. Plus we had three children.
My life had been a joke or a lie, but I had to ignore my true love romance day dream of a life dream cause it wasn’t possible, can’t be obtained, not reality.
So here I sit 10 yrs married, 6yrs care giving and i still feel invisible and unloved, i guess the pain is better than not feeling anything at all, and at least I tried and was maybe loved for a little while.
I have to ignore the friends and couples who have the fun, loving and romantic partnership, they enjoy doing things together, have things in common. The wives feel like queens and treat their husbands like their knights, I dreamed of that growing up, but yo can’t envy what you cannot ever have.
So i just live, the kids have to be happy and cared for, and need a happy mommy, so i put on the happy face, but am dying inside.
Denise
Hi Debbie–That is very, very painful. It’s awful to feel that you give and struggle so much to get. You absolutely deserve to be happy, on the inside and outside.
Jennifer
Oh, Debbie!!! There is SO much going on here . . . and you’re doing everything anyone could possibly think of doing.
You are carrying the entire load here – and I know how you feel. It would be a very long story to tell, and this isn’t about me.
A single friend once gave me the best advice I think I ever got, with was to make sure to do something selfish AT LEAST once a month. Get a pedicure, go sit in a park, go to the library, take an exercise or meditation class and GO ALONE. Treat yourself to what you deserve, and it actually happened that when I did this others started to treat me better as well.
Don’t give up – I think you’re amazing to be handling what you are handling.
Trish
Debbie, There is so much good things to listen to here. Jennifer’s advice to do something selfish — to treat yourself well — is great. You deserve to have happiness and to be treated with respect. I know it’s difficult to look at other people and think how blissfully happy they are but you don’t really know what’s going on inside.
With caregiving, we have our normal married selves and relationship but then we have that added layer of “stuff.” My husband is as understanding and supportive of my care for Robert as I could expect but there are times he feels neglected (which doesn’t always come out in direct communication, unfortunately) and I feel as if there isn’t enough of me to go around.
Take care of yourself. Give yourself some love and know that you have us to vent to at any time. You have taken on so much at such a young age. We’re here for you. Take care.
Kathy
Wow Debbie!
Girl, take a breath. I can so relate to the frustation of a needy, demanding husband and a needy demanding careehusband. The line is thin and murky some times to separate the illness from the person especially when their ‘normal’ behaviors look like their ill ones.
Seems like you are trying to keep all the plates spinning and wearing out.
Hope just getting that out helped relieve a little pressure.
{{{hugs}}}
Debbie
Thank you all for hearing me and reading my words/feelings.
I really am not whining.
Jo
You’re allowed to whine!