Physically, Better. Mentally, Not So Much

Physically, I think Mom is improving. However, her mind is another matter. She was perfectly lucid through all of this, until four days ago. Now, she’s very agitated and hallucinating. It’s tough. She’s eating and drinking, talking up a storm…but her mind is all over the place. Difficult in a whole different way. They tested for UTI and did blood work and both were fine. So, no explanation at this point.

Much more stable physically, not mentally. We’ll do a stool test on Monday (2nd round of antibiotics done tomorrow) to see if the bacteria has cleared. She’s had two nasty bacteria in her colon, both very serious. Diarrhea since July 2nd, although it is slowing now.

Last week, the Hospice nurses were saying we were in her last 72 hours. Physically, she’s out of that stage.

Tired, feel like I’ve been through the emotional wringer! The amount of support and love that we’ve been shown amazes me.


6 thoughts on “Physically, Better. Mentally, Not So Much

  1. Avatar of DeniseDenise

    Hi–I can only imagine how exhausting this has been. It must feel like you must always be ready for what may come next. It’s like waiting to cross a busy street but the green light only flashes for a few seconds. Hard to know when to go (i.e., what to do next).

    I’m so glad you continue to be surrounded by love and support. We’re so grateful for your updates and for keeping us involved. We’re thinking of you and always wishing you, your mom and your family much peace and comfort.

  2. Avatar of KathyKathy


    Thank you for taking the time to share with us. I know it can’t be easy for you.

    If you are interested I have a link to a video from the woman who wrote the Hospice booklet, Gone From My Sight. I would be happy to share it with you if you think it may bring you some comfort.

    Always thinking of you and holding you in prayer.

  3. Jane

    Hi Shandi:

    I can’t imagine going through this. You and your family remain in my thoughts and prayers.

    Jane ~ mom to Nicole, 16 yo, VSD, PAH, Eisenmengers, EDS
    Troubles are often the tools by which God fashions us for better things.

  4. Trish

    Shandi, You must be completely drained! The ups and downs are so exhausting. I’m very happy you have been getting love & support and hope that continues for you. Wishing you peace and comfort (and maybe a little sleep) right now. Take care.

  5. Sharon

    Shandi, I can’t imagine how emotionally and physically drained you must be by now. I am glad to hear that you have some loving support around you.

    Thanks so much for your updates. We are concerned about you.

  6. Avatar of The Unit Known as ShandiThe Unit Known as Shandi Post author

    I am drained. My husband came home today, took one look at me, and told me to go take a nap. I woke up 3 hours later. Meanwhile, Mom had eaten a full dinner with lemon meringue pie for dessert. And we’ve been measuring food intake in tablespoons for weeks. She just hasn’t wanted food. We’ll see what happens a few hours from now…today was the first day with no diahrrea!


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