Research Opportunity for Family Caregivers of Persons with Dementia
Jul 14 2011 in Denise's Blog, In The News by Denise
A new website needs family caregivers of individuals with Alzheimer’s Disease or other dementia to participate a research study funded by the National Institute on Aging (part of the National Institutes of Health).
The site, iCarefamily.com, is being developed by Photozig (at the NASA Research Park) and Stanford University, in collaboration with the Alzheimer’s Association and other organizations.
The goal of iCare is to evaluate and develop materials to help caregivers cope with caregiving, alleviate related distress, and improve their quality of life. Family caregivers who participate in the study receive compensation of $50, free access to online resources and will be asked to share their opinions about the site’s materials and programs. Initial participation is limited to the first 120 family caregivers over the age 21 who care for for persons with Alzheimer’s disease or another dementia.
For more information, go to www.icarefamily.com.
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Unit Known as Shandi said on July 14, 2011
Ouch. Went to sign up after reading their website. Sounds like a great study. One of the requirements, though, is that your caree cannot be diagnosed with less than 6 months to live. Somehow, that hit home. It doesn’t invalidate my experiences of the past 5 years, but I can understand where they are coming from.
iCare Team Member said on July 14, 2011
Hi, I am really sorry that it hit home. The reason for the 6 months is that the study does not cover Hospice Care or Palliative Care. It is more appropriate for early/mid/late stages, when coping with caregiving may be the main issue (e.g. related stress). As we are testing specific research hypotheses and materials related to dealing with caregiving, access is somewhat restricted now. However, the website will be open to all caregivers, after the study is completed. Thank you for your interest and nice words.