Jul 22 2011 in The Unit Known As Shandi's blog by The Unit Known as Shandi
A few things have improved around here this week.
1) We have a new nurse case manager with Hospice. She is amazing and supportive. She’s helped me with the fine line of keeping Mom comfortable, but also able to respond. Mom is drinking small amounts this morning (no fluids since Monday until today), but is also lucid and comfortable. I feel like we’ve found that “happy medium.” I feel supported rather than on the defensive like I was with our old case manager.
2) One of my brothers is coming this weekend for moral support and respite. The other brother had a vacation planned with his wife and grandchildren, but told me last night that he would stay home to support me. With the way I felt yesterday (at a critical point with the meds and Mom’s fluid intake, and trying to figure out which way to go), I needed him. This morning, after finding that balance, I called him back and told him that I’d be fine, and to go and have a great time. Just the fact that he was willing to stay home with me gave me much moral support!
3) My sister is having a hip replacement in August, and she’s putting together the care she needs to recover from that. I’ve been concerned about her, so this is a relief.
4) The sun is out. I know that for those of you enduring a heat wave, that might not seem like a great thing. We have had 78 minutes of weather over 80 degrees the whole summer, and tons of rain. It’s been a very depressing month, and the weather has added to it!
5) I’m at peace about Mom’s care and the decisions we’ve made this week. I know I’ve done everything that she asked. She’ll either improve or she won’t. Either way, I can live with myself after she’s gone. I’ve honored her wishes and she knows she’s loved.
6) The Infectious Disease doctor and his nurse have been amazing, and I am so glad we’ve got them “on board.” They’ve been available, caring and have had the answers to the questions I’ve been trying to get answered all year.
I think that’s it!