Jul 13 2011 in The Unit Known As Shandi's blog by The Unit Known as Shandi
I didn’t post a photo of the day yesterday, and I didn’t mean to make you worry. There was just no time to do it! On the plus side (I think), Mom’s vital signs are more stable and she’s eating and drinking, and talking like crazy. However, her mind is doing some very unusual things.
She told me that her water broke, and she was in labor, and to go get the wheelbarrow to take her to the hospital. She said she was 27 years old. This morning, she thinks she’s had the baby, and we’re taking turns holding it. She got mad at my husband (who has been amazing through this) because he left the baby on the bed.
There was a boat full of people (all of whom are now in heaven, including my dad) in the room, and she kept saying that I couldn’t go on this boat ride, and that she was leaving earth at dawn. Both her weekday caregiver and I were awake from dawn on this morning. Mom is still here.
My love affair with Hospice is going through some relational issues right now. Our best guess is that, because of the C Diff, we are being passed from one to another. (I know that I can be “that-daughter” when it comes to my Mom’s needs not being met, but since I’ve been thrilled with Hospice, they haven’t seen that side of me, so I don’t think that’s it). The team that we were assigned to at the beginning are all new now. Two bath aides have backed out now, and the third bath aide came yesterday. We also got a new nurse manager, who returned from vacation yesterday and is new to Mom’s case. She arrived yesterday without reading any of the notes from the past week and a half, so I spent an hour trying to bring her “up to speed” on what has happened.
She is questioning continuing treatment. I am trying to honor what Mom told me she wanted to do. The new nurse manager suggested Home Health (even though antibiotic therapy is supposed to be considered part of comfort care). Home Health said Mom had used up her benefits back in March, and told me that I really needed Hospice. So, I’m feeling like we’re back in the gray zone here. I hope that will be resolved today. I requested a urinalysis and blood draw to check for UTI or dehydration, based on the change in Mom’s mental status.
We’ve been surrounded by love and support. An old friend of mine played piano and sang hymns for Mom last night for almost and hour. Our pastor and his wife came and prayed with her before bed last night.
I’m going to stop the photos each day. They’ve been good for me, but when I didn’t get one posted yesterday, I realized that they are becoming one more thing on my “to-do” list. I’ll post them from time to time, though.
Hope you are having a relatively “normal” caregiving day today!
My current “in-a-perfect-world” wish is that there was a team, like Hospice, that was there to support caregivers…whether or not we decided to fight our caree’s conditions aggressively, moderately, or at the end of life. Wouldn’t it be nice? Still would save Medicare many millions per year over nursing home costs and would provide us with the support and respite we need.
The photo was taken at Mom’s granddaughter’s wedding (my brother’s daughter) last summer.