I was born into a family of readers. My mom and dad were both avid readers as are my two brothers. My son would rather read than play on his iPad. Barnes and Noble or Amazon gift cards are always perfect gifts. None of us are without books. We take multiple books on vacation because we fear finishing all the reading material we have with us and being without a book. We have all been known to purchase at least one book while on vacation.
I am also a caregiver for my husband, Steve, who has been diagnosed with Mild Cognitive Impairment (MCI), which may or may not be a precursor to Alzheimer’s. I am a wife, mother, sister, daughter, friend, niece, cousin, volunteer, caregiver, chocolate lover, avid reader, and can be described by many adjectives.
Over the two plus years since Steve’s diagnosis, I have read and read and read some more about MCI, the brain, nutrition, and anything I’ve thought might help us. I have read so much about the brain that since November 2010, I have taught a class at the senior center. I have read so much about MCI and dementia related subjects that I have maxed out at times and found myself overwhelmed. The 36 Hour Day takes up space on a bookshelf, but does not receive much attention.
When I have time, I love to read for fun and relaxation. Fun and relaxation means that I want to escape from my life and go somewhere else in my mind. I enjoy reading mysteries, but “nice” mysteries as I call them. Nothing too gruesome or scary. I want to get so involved in a book I hate to put it down. I want to be disappointed about finishing a book and excited when I see an author’s next book is about to be published. For example, through Twitter, I recently discovered the author Mollie Cox Bryan. She has a new book coming out called Scrapbook of Secrets: A Cumberland Creek Mystery. www.molliecoxbryan.com Frankly, I can hardly wait to read it! It sounds perfect.
If you are caregiver for someone with an illness under the dementia umbrella, you’ve probably been told to read Still Alice. While this was a well-written book, if you are living the life of a caregiver for someone with an Alzheimer’s related diagnosis, I’d tell you to skip it. It isn’t a fun book when it’s your life. People have told me that the author really lets you know what it’s like to have Alzheimer’s. My opinion is that she’s writing what she thinks it’s like. No matter what her work experience is or has been, she’s never had Alzheimer’s herself, and frankly, I don’t think she crawled into someone’s head to experience it. And my comment to the book club members who thought it had a positive ending, “You’re nuts!”
There is a series of books with a character named Lisa who is in her 20’s and caregiver for her father with Alzheimer’s. Lisa isn’t the main character in Joanne Fluke’s Hannah Swenson mysteries, but her role as a caregiver to someone with Alzheimer’s is handled very well and very realistically. Much to my delight, while writing this, I discovered the next book in the series, Cinnamon Roll Murder, comes out later this month. www.murdershebaked.com Oh, goodie!!
And I’m sure The Notebook is an excellent book. However, when someone says to me, “You’ll like it. The woman has Alzheimer’s and doesn’t remember her husband” I simply say, “Thank you”, figure they mean well, and hope my face does not reveal what I’m thinking.
My life has enough mysteries I can’t solve and try not to spend much time considering such as why my husband has this or what’s going to happen. Hand me a good mystery book any time and let me really take a break! So in the meantime, until Scrapbook of Secrets and Cinnamon Roll Murder are released this month, I think I’ll grab In Harm’s Way by Ridley Pearson. www.ridleypearson.com I would definitely describe his books as “edge of your seat” rather than “nice”. But what is “nice” about all of these books is that at the end the mystery is solved and I’ve had a wonderful escape! Now excuse me while I go read a book.







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Tom
Right on! How refreshing to hear someone wax poetically about reading.
Even more amazing to hear your entire family have the book worm gene. I’ve become a reader more since my life has passed the 50 year mark. I”ve never looked back, and in fact come to avoid Hollywood except for some favorite (and I must say a very few) writer/directors.
Relatives sent me “The 36 Hour Day” and I find it more like a college textbook – quite comprehensive and quite cold. I’d rather follow the adventures of some hero/heroine with an engaging personality. For all you female readers out there, it may surprise you that this male has even willingly read the odd romance novel. I liked Eat, Pray, Love among others. I’ve learned a lot by following some of the popular current events authors and foreign affairs scholars. I’ve become much more interesting at work when I find myself sharing some cool fact I discovered the night before. The iPad is quickly becoming the medium of choice, which surprises me, as I like to underline and mark up my books for return visits. Not sure how to get around that with the digital versions – short of keeping a digital journal of “cool stuff” I find while reading.
I fear falling into the void of not having a book to pull me out of the lifeless pit of self pity or mindless, undirected surfing the news stories on USA Today, The Guardian, WSJ, etc. I’m trying to organize my time to truly “listen” to more music and not insult the artists by having it on as background ear candy. Finding book clubs seems to be easier than finding music clubs. Anybody know of where to find similar clubs – online? That makes a lot of sense to me, but I don’t have a clue where to begin looking for such a group.
But I digress. Thanks for giving the reading life a shot in the arm! I need that to keep me focused on reinforcing that great activity in life – and for me one that still takes a little discipline! Ah, reading…now where’s my iPad?
Tom
Denise
G-J–I love your reviews and recommendations. There’s nothing like a good book!! And, interesting how Twitter led you to a new author. You never know where we’ll find our next good read.
kristin
G-J: to start, may I recommend all of Louise Penny’s books (must be read in order to appreciate character development) and Donna Leon’s books. Second, I agree with you that Still Alice ain’t it. I just spent that last 7 hours with an Alzheimer’s patient in a psychotic break.She wasn’t Still Alice.
As a human being, but especially as a caregiver, I cannot imagine what life would be like without books. I have read since I was 3 y.o. and understand the book as breath of life. I appreciate your recommendations.
Tom, why don’t you start a music club online? I do not think I could survive this caregiving thing without music to refresh my spirit every day. Obviously there are others like me. We should share our music experiences.
Jane
Hi GJ:
As always I love your blogs. When I was a kid I would read for hours and hours and hours. Unfortunately, these days I don’t have time to read (other than pharmacy tech and medical things). I have been reading a book about Richard Cohen who’s Meridith Viera’s husband. He has MS and has had colon cancer twice.
I really like Christian fiction particularly about the Amish like Beverly Lewis and have read almost all of her books.
I was reading every evening for about 20 mins. with my tea and then have gotten out of the habit of it and need to get back into it.
Hugs:o)
Jane ~ mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
BHJS (dx 2/4/11)
“You’re braver than you believe, and stronger than you seem, and smarter than you think.”
ejourneys
I also love reading — I don’t do as much of it as I’d like. Recent reads have included A.S. Byatt’s Babel Tower and Sena Jeter Naslund’s Four Spirits (I’ve loved other books by these authors as well). Most recent read was Cory Doctorow’s Little Brother. My TBR (to be read) pile is frightening. My next read is a psychology book I’ll be reviewing.
I’m also a music lover — grew up on modern classical and have branched out from there (rock, jazz, etc.). (I’m listening to Jean-Luc Ponty’s music as I type this.)