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Nicole’s Narrative…

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I had asked Nicole to try and find one positive thing to add to her narrative and several people who read my blog had said if she adds to it let us know.

Nicole didn’t change anything to the paper but did add this to it.

4
Sometimes you gotta fight.
Fight for what you need.
A lot of people don’t fight. It could be because they’re afraid to, or simply because they don’t want to.
But if you do fight, you have a good chance of getting more than if you don’t fight.
My mom always fights for me. For medication, authorization, insurance, doctors and a lot of other things.
She did hit obstacles along the way, but that didn’t stop her.
She just kept going.
And sometimes, we get more than we expect.
Like that one time we got a trip to Hawaii because my mom fought for payment help with a new medication.
She was able to single-handedly change the distributor’s policy, and I was honored to be patient of the year. With that, we got to go to the Global Sales Meeting in Honolulu, Hawaii.
That was pretty rewarding. I’m sure it especially was for her.
So sometimes, when you fight, you not only get what you want, you get much, much more.
And plus, somebody’s gotta give those stubborn people a challenge.

5
Friends are amazing.
They care about you and love you.
They help you, listen to you, and encourage you.
Or at least that’s what they should do.

Friends that are in similar situations than you are also amazing.
They have more understanding of what you are going through so they can help you better.
They might even be able to fight with you.

Lessons
People are prejudiced
Doctors are morons
People are ignorant
Determination is a virtue
Friends are amazing

I guess the fourth point offsets the first three because fighting can turn all of those people and doctors into smart people.
And the fifth one is special in that it encourages the fourth point.

Of course, I don’t speak for everyone on this.
Being prejudice and ignorant is just part of human nature.
Be idiotic might be too. Sometimes it seems that way.
Not all friends are helpful and good listeners.
But I think the fourth point is true in pretty much all situations. That point is probably the best point of the series.

I am so proud of Nicole for writing this paper. I am even more proud that she believes number four outweighed all the negative things. I have tried to impress this upon her. Yes, I know we have been through a lot of negative and bad things but there are good things and good people that we wouldn’t have if it wasn’t for those bad things.

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Comments

  1. G-J

    February 22, 2012

    Loved all of Nicole’s paper, even if I forgot to comment on the first part! Jane, I recommend that you ask Nicole to type up the 4th section in a cool font. After that, enlarge the font and frame what Nicole wrote so on the tough days, you can look at what Nicole said and realize it’s worth while and that you are setting a positive example for your daughter!

    • Jane

      February 25, 2012

      G-J:

      That is probably a very good idea… except for the fact it will never get done… you know how many things I ask Nicole to do … email me pictures, drawings etc. and I never get them.

      I will do it myself …

      Hugs:o)
      Jane~mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
      BHJS (dx 2/4/11)
      “You’re braver than you believe, and stronger than you seem, and smarter than you think.”

  2. Trish

    February 22, 2012

    Great idea, G-J! Jane, thank you for sharing the positive that Nicole has found. The two of you take my breath away with what you’ve been through and how you are growing and handling it. Have a great night (or day, depending when you read this). :-)

    • Jane

      February 25, 2012

      Trish:

      You are way too kind…

      Hugs:o)
      Jane ~ mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
      BHJS (dx 2/4/11)
      “You’re braver than you believe, and stronger than you seem, and smarter than you think.”

    • Jane

      February 25, 2012

      Hi Teri:

      Thank you…

      Hugs:o)
      Jane ~ mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
      BHJS (dx 2/4/11)
      “You’re braver than you believe, and stronger than you seem, and smarter than you think.”

  3. Meryl

    February 23, 2012

    Jane, Nicole is so amazing and she gives you so much credit for all you have done for her! You are a wonderful mom and Nicole is very blessed!

  4. kristin

    February 23, 2012

    I am more impressed with Nicole all the time. She is so articulate and honest, and doesn’t pull punches. I just love this. Both parts. Brava!

  5. Kathy

    February 24, 2012

    I’m glad Nicole was able to find a positive. :)
    One of my favorite words is seek, meaning to look for diligently. Sometimes when we are overwhelmed with the negatives of life it’s difficult to see any positives, that’s when we have to seek them.
    I am glad for her find :)
    Thank you and Nicole for sharing

  6. Tom

    February 24, 2012

    LOVE IT !!!!!

    YAY Nicole !!!

  7. Jane

    February 25, 2012

    Thank you all so much for your kind words. If only Nicole could see herself like others see her… I guess that would work for me too right :) .

    I am very proud of her for the paper. I hope that the person that ends up reading it at Abeka Academy will get an education.

    Hugs:o)
    Jane ~ mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
    BHJS (dx 2/4/11)
    “You’re braver than you believe, and stronger than you seem, and smarter than you think.”

  8. G-J

    February 25, 2012

    Jane, remember that Nicole is a teenager. They do not tend to see themselves positively, or as others see them if it is positive. Add to it that Nicole is female, and you know how we women are! Sounds like this is one area where Nicole is a “typical” teen and woman!

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