Tonight our live call-in show airs on Your Caregiving Journey. We’ll take your answer to this question: What’s your caregiving rant?
Call in tonight and share a rant. It could be a rant about a part of your day that makes you crazy. It could be a rant about a family member who seems determined to test your patience. It could be a rant about our health care system. It could be a rant about trying to find help.
Whatever your rant, we want to hear it. At 7:30 p.m. ET (6:30 p.m. CT, 4:30 p.m. PT), call our show at (646) 652-4944. First caller will win!
Can’t make our show tonight? Feel free to share your rant in our comments section, below.
Update: Elizabeth Lombardo, our happiness expert, joins us on Your Caregiving Journey today at 12:30 p.m. (11:30 a.m. CT, 9:30 a.m. PT). She’ll offer tips on how to stay motivated in caregiving. Listen live and download the podcast here.
Related Articles
- Help on Table Talk (caregiving.com)
- What Do You Know About Caregiving That the World Doesn’t? (caregiving.com)
- What Change Will Help You? (caregiving.com)
- $153,000,000 for 600,000? (caregiving.com)
- Look Up (caregiving.com)
- Who Can Help the Family Caregiver? The Former Family Caregiver (caregiving.com)
- A Family Caregiver Care Plan (carepassprogram.com)
- Explaining Dementia’s Behavior to Family Members (caregiving.com)
- Stepping Into the Caregiving Size that Fits (caregiving.com)
You are a disruptor. The delivery of health care starts with you, continues because of you, and ends with you. Let's disrupt together to make the world better for family caregivers. 
roaringmouse
Denise, I promise I’ll try to join in the chat tonight!
Jane
How many rants do we get? I have several.
I will be in the chat room tonight!
Hugs:o)
Jane ~ mom to Nicole, 17 yo, VSD, PAH, Eisenmengers (dx 1/22/10)
BHJS (2/4/11)
“You’re braver than you believe, and stronger than you seem, and smarter than you think.”
roaringmouse
This was a great show. I’m glad I was able to attend. Thanks for egging me on!
Below are my rough notes (as I went back and started from the beginning to listen to the whole show):
Bette re: not qualifying for programs due to income… This is a common problem starting to turn heads in the disability community. Choice Centered Medicaid has started on baby steps towards this. Currently you have to make yourself broke wait for a period of time and then get assistance. Follow the issues on Olmstead, choice Centered Medicaid, Dora’s Hope & Unlock the Waiting List..as they are working towards change…
Denise: Shopping in retail stores…Shopping in stores are hard as a caregiver because I don’t have assistance to help push hubby in his wheelchair while I push shopping cart with child. This is anywhere.
Trish: Yeah! on the issue of trying to get medical to treat patient as human. The frustration I hear is that you are an involved caregiver and they don’t know what to do with you. They feel threatened by you because you might see something wrong that they do. Sadly the medical industry as Denise points out doesn’t advocate embracing caregivers. Notify the top person and the bottom person and if you have to write it out in paper on what you are going to do and this is the policy you will follow.
Yes..there’s pushback…hospital didn’t want to do hubby’s bowel program. So I was required to be at the hospital every day to do it as the staff wouldn’t…until one of the doctor’s got upset that I was doing the work of a hospital employee and told the nurses they would be doing otherwise. They decided they would only do it once per 4 days. Of course..until I compared it to his current state of health and how it would create autonomic dysreflexia (AD)..to which he had only two days later because they didn’t do his bowel program. AD can be life threatening and cause complete body shutdown. Hubby has escaped this 4 times.
Re: Handing out info that would be helpful to caregivers….Yes!!! This is why my hubby and I started our website. When I get the new “skin” I hope to add lots more. Re: reaching caregivers..we don’t know how to? I agree with Denise about balling up fists!..My dream project is to create bags with info that go directly to caregivers/newly disabled at hospitals, drivers’ license office, etc. (a requirement!) that give them basics how go about life…where to get basic supplies, caregiver support, how to vote, major community resources (like the ILC/CILs)…
Hugs! To everyone! Night!
Bette
Hi Roaringmouse,
So good to see you in the chat room tonight! Thank you for your comment. I guess my “rant” is that it’s sad people have to reach a such a hard spot to receive any help from a particular program.
My Dad was in WWII and at one point I thought my mother might be able to have some assistance because of that – not so. We thought we would be able to receive respite – but because of her one on one needs, we weren’t eligible.
Very very sad that there can’t be some type of help before help is beyond needed – financially or physically/mentally for a caregiver.
So, not only do caregivers struggle in finding resources, but then may struggle in how those resources might apply to their situation – if at all.