My Grandma Elly
Mar 28 2012 in Caring for Grandparents, Elly's Granddaughter by EllysGdaughter
My Grandma was born in the Ukraine to German Mennonite Farmers. They were a colony of folks from Germany who had been persecuted and moved to the Ukraine under Catherine the Great’s rule until she died. When my Grandma was small, they were persecuted again and fled to Canada by ship.
Family has always been important to Elly. I have been privileged to have known my Great-Grandparents and Great-Uncles and Aunts as if they were regular Uncles and Aunts. German was Elly’s first language along with Low-German. She attended school until 8th grade, in Canada. Elly has been the Matriarch of the family – she had nine siblings.
We had large family gatherings when most of them lived in California. Now, there are seven siblings left and Elly is still one of the healthiest ones! Elly’s hobbies have been reading, gardening, sewing, knitting/crochet/embroidery and grand/great grandkids. The house we live in is the one I was brought home from the hospital – my parents were living with my Grandparents when me and my sister were born (for two years).
The flower beds are just a shadow of what was there 40 years ago, still nice but not with all the bulbs and care that she put into them. I spent a week or so in the summers here learning to be quiet around my Great-grands while my grandparents were at work. Elly taught me how to embroider and I have many unfinished projects that I would love to finish some day. She never drove but she would take my sister and me downtown to buy summer sandals and sometimes we’d see a movie. Grandpa would drive us for the “Herbie, the Love Bug” drive-in movies. My grandma did have to spank me once but most of the time I was given everything I could imagine and sometimes more. I have travelled across the country, from California to Niagara Falls, Canada twice with my family AND my grandparents in one car and survived.
My Grandma Elly always had tea and cookies for us when we’d come for a weekend visit, no matter what time of night. She would also always stand on the porch to wave us goodbye, no matter what time we left. Everything was on a schedule, especially meal times! Sunday lunch had to be at noon and hopefully the pastor wouldn’t preach too long.
Today, she still has to eat on a schedule as if Grandpa was coming home for lunch or dinner. She says her father insisted on that kind of schedule too. The traffic was always on Grandma’s schedule as she never wanted to go out at 4 p.m. since the traffic would “just be horrible”. The mailman was expected to be on schedule AND bring lots of mail on Monday because of the weekend.
Elly still dresses “up” to go out, never wears pants and always puts on pantyhose too. I found out that when we have folks over for dinner, my husband is expected to sit in a particular place and make sure dishes get passed. There’s usually some critique about how we did something “un-hostess-like.” She likes proper.
Healthwise, Elly is doing well. She never took anything but Thyroid until about four years ago. She only takes four prescription drugs and a bunch of vitamins. At 91.5 years old, that’s great! Her kidneys are not functioning as well anymore due to high blood pressure. She wears hearing aids most of the time. She has a very healthy heart, strong bones and strong will! She canceled her doctor appointments (general doctor and kidney doctor) last year saying that she felt fine and didn’t know why she needed to come in. I thought they wouldn’t renew her RX which would force us to go in.
When the letters from the doctors arrived stating they were dropping her as a patient, I intervened and we had two Dr. appointments last week. I did negotiate a return visit in six months rather than three. The one Dr. wanted to take her off an RX because it supposedly causes heart disease. I told him that at 91, we weren’t worried about anything causing heart disease, she was doing well with her blood pressure and any change is hard on her body!
Elly’s mind is experiencing some dementia which is normal, I suppose. Her health is pretty good, generally. She sleeps in her chair quite a bit during the day but “doesn’t nap”. She will faint if she gets too warm under the hair dryer. She has a bad knee that is bent and causes her pain but she rarely complains. She’s achey and takes a bit of effort to go from standing to sitting, but doesn’t complain. Her toe is bent and when it hurts she uses some BenGay-type cream, she’ll tell me when it hurts. I know she has a headache or allergies when she sits with her hand over her face, but she doesn’t complain. She likes to treat her nausea with candied ginger pieces or ginger ale that I keep stocked up in the refrigerator.
She uses a cane to get around and does have a fear of falling but only uses her walker to transport dishes when she sets the table or for the watering can to water plants. She still makes bread – usually oatmeal bread but forgets to put in the oatmeal sometimes. She makes far too many buns and then toasts them so we have a crisper full of toasted buns and lots of bread crumbs. She’ll make cookies but they don’t always turn out the way she wants and she says she follows the recipe – I don’t think she does.
So, today some of my frustration comes from the rub of her expectations and some of my relief had been from her consistency. Until today, I was pretty sure she wouldn’t leave the stove or oven on and forget it. I was pretty sure that she would turn off the lights or lock the doors and put the shades down/up. Today, she left the stove burner on and it had been on a while before I got home. She has not been as consistent in her routines the last few weeks. My frustration will be less when I can be in charge of the timing of some of those “routines”. Most people wouldn’t notice, but I do.
This is why when my sister comes to stay while we go on vacation that I make a specific list of what to watch for. Well, this weekend, this list will be longer for Sis. Elly takes care of my hubby and me as if we are guests most of the time. We get reminded to wear a jacket, close the door, eat this or that, time to eat now and asked “what do you have?”. After two years, I am not sure that this will change.
I know there will be change but I can’t be prepared ahead of time for what it will look like. I thought I knew what this caregiving would be like but I wasn’t prepared to be treated like a guest, working hard to give care while allowing Elly to do everything she really can do for herself. She still needs us here and improved physically/emotionally when we moved in. She deserves our care and attention. I feel privileged to be able to give back to her.
We leave on Sunday for a camping vacation to Big Sur, just three to four hours away depending on traffic. We’ll be back on Thursday, refreshed and ready to celebrate Easter. We are definitely overdue for this getaway. We are so grateful for my little sister who comes and stays with Grandma.

Trish said on March 28, 2012
EG, Your grandmother sounds absolutely delightful! I love the stories of how she wants everything on a schedule and “proper.” It sounds like you’re doing a great job at negotiating and managing her care to the satisfaction of you both, noticing the changes in her and making the necessary adjustments to tackle them. It’s terrific you have your sister to care for her while you get away. What a wonderful and beautiful trip – enjoy!
kristin said on March 28, 2012
Hi, EllysGdaughter,
I loved reading about your great-grandmother’s history. What stories she must have to tell!
Because you mention that she is starting to forget to turn the stove off, I thought I would pass on some handy hints in this regard. You cannot take measures too soon to prevent the house from going up in flames and someone getting harmed. When Mary was at the stage of dementia your ggmother is, we still let her do some cooking, but only under supervision. We turned off the gas valve at the stove (under the stovetop) when we were not with her. We fill a 24-hour thermos with boiling water so she can make tea throughout the day (these thermoses are expensive, but really work – the water stays HOT). She has sandwich fixings in the fridge, so that she can have something to eat for lunch. Later, when we realized Mary was catching on to the gas valve on the stove, we put one in the cellar, where she never goes. We still use both, and there are still times when we have near catastrophes because she will have turned on a burner (that wouldn’t light, of course) and left it on. Then someone opens the gas valves, turns on a burner and doesn’t notice the other open burner, which isn’t lit but is pouring out gas…you get the picture. I was burned slightly today even though I was standing 4 feet from the stove. We also turn off the breaker that controls the ignition for the burners. And the breaker to the microwave, since Mary doesn’t understand numbers anymore and burned up two microwaves. At her current level of functioning, Mary can no longer participate in any cooking activity, but will still try to use the stove to heat water for tea when she forgets she has it available in the Thermos. Keeping the stove inoperable is necessary.
There are a lot of things that you will have to adapt to (in my experience, that’s a major characteristic of caregiving a person with dementia) as time goes on, and I think you are loving and courageous to begin this journey with Elly. I strongly, strongly recommend that you contact your local Alzheimer’s Association for assistance in preparing for your journey. They have information for you on all the dementias, will provide you with an 800 number to call for immediate assistance in a crisis or just some situation or behavior you are not comfortable dealing with. They also have free 1-2 hour classes where you will learn what the course of dementia can look like, and where you can ask questions about issues you have at home. They can ease your frustration a lot by preparing you for what to expect and how to roll with the punches – and there will be lots of those. Change and adaptation is what dementia is all about.
Sorry – I didn’t mean for this to sound like a classroom lecture. Two years ago I was standing right where you are. I look forward to you sharing your journey with us.
Have a wonderful time camping!
EllysGdaughter said on March 28, 2012
Thanks Kristin, I will keep all that in mind, you’ve given me more resources. Fortunately we have an electric stove – gas would be way too dangerous for sure! She does have an electric tea kettle to heat water
I don’t have a diagnosis of dementia for her yet but you all have helped me discern the signs. I now know that my Grandpa had lewy body dementia after reading about it here too! I’ve learned so much and still know very little and every comment is helpful!!
Jan said on March 28, 2012
What a sweet story! Your grandma sounds lovely and I’m so glad she has so many loving people around to care for her… even if she does think of you as her guests!
Kathy said on March 28, 2012
Oh I just love your grandmother!!
The most memorable and special times of my life were spent under the wing of my own grandmother
I’m going to echo lots of what Kristin said.
Even though you may not have a diagnosis of dementia, doesn’t mean you can’t be proactive in caring for it when you feel it’s presence.
Most times dementia isn’t diagnosed until something terrible happens.
I’m not trying to scare you for sure just wanted to make you aware
How wonderful that your sister is going to step in for you to take your vacation!
I have family that lives very close to Big Sur and she shares the most awesome pictures!
Enjoy it
Sharon said on March 29, 2012
Your telling of your Grandma’s story was delightful, because it is just that-her story. Thank you for sharing it with us. Enjoy your time away.
Denise said on March 29, 2012
Hi EG–I love that you introduce us to Elly. I’m always fascinated by personal histories and Elly seems to have a very interesting one. Have you had a chance to document her story, either in a journal or recording or video? It would be wonderful to pass on her history to future generations.
Please let us know how we can be a resource for you. We’re always here to offer suggestions.
Have a wonderful, wonderful trip. Be sure to post a recap and photo of your trip when you get back.
Bette said on March 29, 2012
Hi EllysGdaughter,
Thank you for introducing us to your grandmother.
I think her love for family, spilled over to you – she is so fortunate to have you and your husband’s love and care.
I look forward to getting to know each of you better – enjoy your trip. I’m so glad your sister can help, so that you may have some peace of mind to enjoy your time away.
ejourneys said on April 1, 2012
Hi, EG — What a wonderful portrait of your grandmother! Our stove is electric — we have a diagram of what circuit breaker controls what, including outlets and lights.
I love that your sister is involved as well and that you are proactive with the list of things for her to watch out for. And I love that you balance what you do for Elly and what you let her do herself. That balance is a constantly moving target. Have a wonderful trip!