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November: Epilepsy Awareness Month

Affected by Epilepsy? I want to know your story.

Everyone has a story and in honor of November Epilepsy Awareness Month, I want to help you tell it.

(November is also National Family Caregivers Month and Denise has some exciting events planned).

What Robert’s Sister will be doing in November is posting interviews of people who have Epilepsy or who have been affected by Epilepsy in some way.

(In case you’re wondering, October around my house is “Getting Ready for November Epilepsy Awareness Month.”  Oh and “Decorate Your House For Halloween Month.”)

Halloween at Robert’s Sister House

The stories people have to tell about Epilepsy include being terrified when a sibling has a seizure (as one woman recently shared with me) or trying to find that one combination of medications or surgeries or medical devices to stop seizures or how to cope when the seizures are not controlled.

These stories are critical in raising awareness.

Robert has told me more than once that his purpose is to help educate people about Epilepsy and I believe it’s my mission to help him.

November is going to be about raising awareness of the third most common neurological disorder.

November is going to be about sharing the stories of some of the close to three million people in the United States and 50 million worldwide living with Epilepsy.

November is going to be about sharing the stories of those who care for those with Epilepsy.

If you have Epilepsy or have been affected by Epilepsy in some way, I want to tell your story.

If you work with people who have Epilepsy, I’d love to hear your story too.  Are you an advocate for those living with Epilepsy?  Your story is very important too.

If you have a website of your own, you can include that in the interview.  If you have a favorite organization you’d like to tell us about, you can do that in the interview too.  If you want to post a picture of you and your loved one with Epilepsy, that can be arranged.  Robert’s Sister is pretty flexible!

Please email me at and I will send you a few questions about your experience.

I want to know your story.

About Trish

Profile photo of Trish
I am Robert’s older sister and a freelance writer and am also a full-time Legal Administrator for a wonderful law firm (no, that is not an oxymoron). I am the caregiver for my youngest brother, Robert, who has suffered from uncontrolled epilepsy his entire life. In his late-40s now, he lives with me and my husband. I have somehow managed to navigate the maze of social services and government programs available to help Robert and continue to be amazed at the amount of time and persistence that is needed to do so. Robert finds happiness in simple pleasures like doing word search puzzles and watching his favorite shows (Family Feud and Jeopardy, of course!)

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  1. Trish,

    I just e-mailed a link to this to a friend of mine who has a daughter with epilepsy.

  2. Profile photo of ejourneys

    Trish, thanks to you and Robert for your advocacy and for your education!


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