The Real Deal
Dec 30 2012 in Community Caregiving Journal by Bob
I can’t pretend that what is happening is not real. Or that it is a nightmare from which I will awaken and breathe a sigh of relief. No, this is the real deal. It’s something I thought would never happen. But why should I be immune.
I hear your voice, my beautiful bride, when you used to say, “Life can change in an instant.” Naaaaahhhh… that happens to other people not me. Remember when we used to get into these deep, sometimes silly conversations about which one of us would be better dying first. “Yeah,” you would say, “You’ll hook up with the first woman that brings you a meatloaf.” “God, don’t I get any credit,” I would reply. I’ll probably go to a Trappist Monastery, I would say.
Fast forward.
We’re here facing death in the eyes. How do you practice for this. No defenses to hide behind. When you seemed to be at death’s door, so was I. How would I go on. I wanted to run away because I couldn’t take the pain. I had to promise myself that despite being overwhelmed and mentally, emotionally, physically and spiritually sick, that I would show up every day for you and for what needed doing.
It’s gotten better. I feel stronger in my being from “having been” thus far on this journey. Thank God that God is there like He promised to be there with a soothing balm when I’m feeling out of control, angry, depressed, anxious, fearful, immobile; paralyzed and not a clue what to do next with a multitude of tasks–most of which don’t need to be done today.
Well, I’m beginning to practice what I’m learning from my new friends at Caregiving.com You’re by my side. You are still contributing. We’re both scared. I promise that I’ll be with you until the end, God willing.
I always wanted to go first but I guess God had other plans. 50-50 buddy, my wedding ring says, engraved inside–our little joke. It’s still 50-50 because giving is receiving.
Good night love, Robert

Sunshine=Sometimes said on December 30, 2012
Hi Bob,
I’ve got to tell you? Your words are like prose upon a page of a song/poem. You speak so eloquently. I know you may think that you cannot go on when Adele passes on? But that is the way I think about my Mom? And I will most probably go on too. With a broken heart, yes? But go on anyway. Maybe like you said, Bob, this is the website we need to get through it. I think it just might be.
ejourneys said on December 30, 2012
Bob, this takes hold of my heart and doesn’t let go. I draw strength and healing from your words.
Courage is not absence of fear. Courage is being afraid and going ahead anyway. You go ahead anyway, and you do so with tremendous heart and soul.
Trish said on December 31, 2012
Such beautiful honesty and openness, Bob. Thank you for sharing here and as it helps us both send you more courage and strength to continue and gives us strength to help you. You have the caregiving.com team with you and your bride. Wishing you a peaceful day.
Denise said on December 31, 2012
Bob–I love this. I love that you write of what many feel.
Will you share with Adele?
Wishing you both peace today and always.
Sunshine=Sometimes said on December 31, 2012
Hi Bob, how was your day? A good one I hope!
I have a funny story which I hope will bring a smile to your lips and maybe a thought of some funny story which might have happened between you and Adele like this too.
My Mom and Dad were married over thirty years. My Mom adores meatloaf. She made it at least once every week. We were all raised on meatloaf. (I still like it!)
Well? One day my Mom told my Dad that meatloaf was for dinner – yep! near the end of the 30 years – and my Dad said to her, “You know Vi? I really don’t like meatloaf.” My Mom couldnd’t stop laughing and nor could we!
Bob said on January 1, 2013
Hey Sunshine: I wanted to be a writer/poet when I went to college back in 1970. Mom said I’d starve. Dad said I should major in business. I didn’t have what it took at the time to follow my heart somehow with or without their help. I did manage to talk them into becoming a psychology major. I continued to write and still do to this day. I love to write. It’s very therapeutic to me. I feel in so many ways that when I have written something that pleases me or someone else, that it has been inspired by the Muse flowing through my being. So your compliment means a lot to me. Adele and I were talking about it yesterday about when she passes away. I told her things won’t be the same. I said I have no idea what things will be like. I told her hwatever work I do, especially if it is caring for others as a Social Worker; etc, I would dedicate the work in her name. We then talked deeply about how she feels she has no quality of life anymore. I was heart-broken when she said this because I could feel her pain as well as my own. I said our immediate goal this year is that we have to find a doctor or doctors that will discover more specifically was her diagnoses are; her treatment options and her prognosis. In the the last appointment with her neurologist, with which I was very disappointed as was Adele, he said that she likely has brain changes and serios neurological issues with her spine and referred us to see a specialist at a momenet disorders clinic ina local university hospital. that hasn’t happened yet because Adele has had bacterial infections now for the second time for which she has had to be in isolation. Yes, Sunshine, this website helps me get through and I’ll definitely need it when Adele psses away. I have a call out to a therapist who deals with caregiving issues and “losing” a loved one to serious illness. I can’t wait to start. Blessings to you…Bob
Sunshine=Sometimes said on January 1, 2013
Oh Bob! I’m so very sorry! How sad that is! I am so glad that I have a psychologist and a psychiatrist (and meds) all which help me cope with life. I don’t think I could without them all. I hope your therapist phones soon and you and they work together well. As for Adele? I know she knows no matter what how much you love her and how much she means to you! Yes! Do continue to talk with her as long as you can so that you can remember things after she is gone. You need it as much as she does! And yes!!! You write beautifully!!!!
Bob said on January 1, 2013
Thank you so much EJ and I am glad that what I wrote was something with which you could resonate. The members here at this beautiful site have helped me regain my courage and nourished my heart and soul. I draw strenght from you and everyone here. Best wihes in the New Year and always. Bob
Bob said on January 1, 2013
Thanks Trish!!! It is the members and this site which creates a sacred space to feel safe to be open and honest. Yes, we so give courage and strenght to each other here. Peace be with you today and always…..Bob
Bob said on January 1, 2013
Thank you so much Denise. I’m very happy if what I write helps give words to theri experience. Yes, I want to print the two most recent blogs and read them to her. She really wants to hear and see what I wrote. I think it helps her feel like she can still contribute to the world around her and feel a sense of meaning and purpose. Thank you for your wishes. Adele is so grateful I have a place to go for support and thanks you from the bottom of her heart. Peace be with you always also……Bob
Bob said on January 1, 2013
Funny story abou the meatloaf Sunshine. Reminds me that Adele would often ask me how she looked with what she put on when we went out. Well, she always looked beautiful to me with what she wore. One time, though, she put something on that I felt did not do her justice and I told her. She laughed and said, “do you really mean it.” I said, “well, you wouldn’t want me to say yes and mean no just to please you.” Well, it was funny at the time….she thought I would just say it looked great like a lot of guys so they don’t get in touble and end up in the doghouse. Heeee-heeeee
Bob said on January 1, 2013
Yes Sunshine, I see a psychiatrist for meds also andsince I have Bipolar Disorder II siagnosed sevral years ago, I will be on thme the rest of my life. Thank god for psychopharmacolgy and good psychiatrists like the one I have had since 1981 whose been with me through thick and thin. However, I need to see someone more often to address caregivng issues etc. Ys, I’m talking and reminiscing with her as much as I can to help in hers and my grief process and for the memories I will be able to treasure.
Bob said on January 1, 2013
Sorry for the typos everyone….
Sunshine=Sometimes said on January 2, 2013
Dear Bob, don’t worry about the typos!!! We all love your posts! In my opinion you are a very popular guy! For me too! Yes, I have several mental disorders diagnoses. I take many meds. Thank God for all of those. I see a psychologist – I don’t know the therapist you will connect with – but ironically enough she too is going through a time of transition with her caregiving of her parents. That will help us both while we talk in session I believe. She is very nice. I hope you find someone to talk to about Adele. Oh yes! I believe Adele would really love to hear about your contributions to our site! She seems like such a lovely lady and smart as a whip! Maybe she could ask you a question to post for her? That would help her to participate here too. Bob, you write beautifully – yes! honestly with or without typos!!! *grin!* – maybe you could start a journal for your pathway of caregiving and write a book about it with Adele’s participation now she is still cognisant. What do you think? Maybe a poem or two which – like I did for the 3 journaling words – you could post here on this site too? You are a really gifted guy and a sweetheart! Oh yes! I loved your dress okay answer to my meatloaf story! What fun it is to really love our family whom we take care of no? Talk again to you soon!
Jan said on January 2, 2013
Bob, you’re doing all the right things. I’m so sorry to learn that Adele has taken a turn for the worse. I pray that you will both keep believing for the best, and making peace with each day as it comes. Know that through your efforts you are creating a solid “bridge” for your wife, and your posts are also making a difference in the lives of everyone who reads them.
Blessings to you both.