Caregiving is like riding a roller coaster. The ups, the downs, the quick turns; you ascend slowly to the top of the hill, and then for added excitement, go down the hill with you arms up in the air. Feeling the wind in your face and being tossed to and fro, ah the exhilaration of it all. Maybe that’s when it happens, when you’re not holding onto the bar. All I know is it appears nothing is ever the same for more than a couple of days.
After a week in the hospital I brought my husband home late Tuesday. In my last post I talked about all the wonderful things the new doctors and hospital were doing for him. Now it seems not so much, at least that’s how it feels today.
His legs were so swollen with fluid that it actually turned into large water blisters that proceeded to become nasty, open wounds. I just changed his footies for him and his feet are severely discolored. He is diabetic. I try not to let him see how scared I am about the unhealthy sight of his feet. He gets home health wound care every three days and they wrap him from ankle to knee in gauze.
Big changes were made to his meds; many discontinued; some new ones. This includes two oral antibiotics which are giving him severe muscle aches and gastro intestinal issues. Always a good time when he’s in a wheelchair and cannot even stand to transfer to commode but rather has to slide onto it.
We start up, once again, with another plethora of doctor follow up visits. As all these medical issues keep surfacing, he continues to lose more and more strength. We’re rapidly approaching the one-year mark since his spinal cord surgery and rehab. He now only occasionally mentions that he intends to walk again. More and more, we are accommodating the house to suit his wheelchair needs, he no longer resists. He (we) have briefly discussed the possibility that this could be our new life. That’s for another day. I should have held onto the bar!