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Waiting_Room_First_FloorThe waiting starts long before you’re in an actual waiting room. I started waiting the moment we learned there’d be a surgery number four. I started waiting this weekend, the closer it got to the day he’d be going under. And, instead of sleeping, I am waiting to drive him to the hospital, see them roll him back into the operating room, at which point I will again be waiting for them to tell me everything went as planned and he is fine.

And, yet again, I will be sitting in that waiting room for the fourth time, by myself in full on panic mode. You would think having three surgeries before would ease my mind a little about the competence of his doctors and the fact that he made it through all three previous surgeries just fine, but it doesn’t. In fact, thinking about the fact that each time they go into his head they have to remove more and more dead tissue/cells and that each entry into his head puts him at risk for a myriad difficulties during and following the surgery only makes me more stressed.

I want to believe everything is alright. But, it would have been really great that despite ALL of these things that I had a hand to hold and a shoulder to lean on while I am waiting.

About Casandra

Profile photo of Casandra
Hi! My name is Casandra Porter. I am the wife of, Marc, whom I care for. He suffers from a potential fatal infection that has spread to his brain. Something that is extremely rare. He is a patient of both Mayo Clinic AZ and Stanford University and has many other doctors on consult worldwide. We are a young-ish couple, in our early 30s. Marc is an avid video gamer and the resident comic relief. I am an amateur writer but my main focus is on working with independent artists and writers helping them gain following through social media outlets. I run several blogs. My current project with Marc is a blog called, Running With Sharp ObjectsIt is a blog dedicated to our marital conversations about the most wacky and hilarious topics, mostly pertaining to pop culture. It's a way to keep humor in our lives and bring a little bit to others. We are also setting up a Facebook page for this site where we share inspirational stories, quotes, etc. But, you can always find me right here on blogging about my life as a Caregiver.

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Entry 1: May 21, 2015

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  1. Profile photo of Richard

    Casandra, I know it’s hard waiting and even harder when your waiting alone. When you next get into that position know this, you have everyone (I believe it’s OK to say that) at sitting right beside you in your smartphone (if you have one). We are only a few buttons away so you can express you worries, joys, thoughts or just need to bend a keyboard to talk to someone. Feel free to contact us anytime. If I’ve learned anything in my short time on is that if you need something someone here will be there. I wish for the best for you and your husband and will by praying for both of you. Good Luck. -Richard

    • Profile photo of Denise

      Hi–I just want to echo what Richard said. Please feel free to post updates as you can. You can lean on us while you wait. :)

      • Profile photo of Casandra

        Thank you, Denise!

    • Profile photo of Casandra

      Thank you, Richard. He made it through just fine and is even up and talking which is wonderful considering the amount of time it took him to do it the last few surgeries. I appreciate your kind words. It is great knowing I have you all here if and when I need the support.

  2. Profile photo of Pegi

    Bless you, Casandra. I too, have spent too many times sitting alone in a waiting room while life threatening surgeries were performed on my husband. It is the lonelist place in the world. Take my hand and lean on my shoulder. I honestly wish I could be there with you. Richard spoke well for all of us. We’re here.

    • Profile photo of Casandra

      Thank you for your support :)It means a lot, Pegi.

  3. Profile photo of Casandra

    Thank you all so much! I appreciate each of you and your kindness. He has made it okay and everything went better than planned. I am truly grateful for all your support :)

  4. Profile photo of ejourneys

    Chiming in late — Casandra, I am glad and relieved the surgery went well! I had my laptop with me when my partner was in surgery (hospital had free WiFi) and it helped tremendously. I echo Richard’s suggestion — wherever you are and whatever is happening, if you can get online, we are here. I hadn’t yet discovered this site, so I was on email and Facebook at the time. But the bottom line is that I wasn’t alone. It made a big difference.

    • Profile photo of Casandra


  5. Profile photo of Cathy

    Wonderful news, Cassandra. I had you in my thoughts all day. So glad that things are good. Still sad that you were alone.

    • Profile photo of Casandra

      Thank you, Cathy.
      I appreciate the thoughts.

  6. Profile photo of Denise

    I’m so glad all went okay yesterday.

    How are you doing today?

    • Profile photo of Casandra

      I am doing surprisingly good. I got some rest last night after I was able to talk to my husband. It was actually the first night in 9 years that I’ve spent without him, so I was a little freaked out. I know, very silly. He is home now and he is resting. He seems to be doing okay. Depending on how good he does tonight will determine if I can go to work tomorrow. My friend won’t be here until the weekend, since we assumed he’d be in the hospital longer.

      Thank you so much, Denise. For everything :)
      I absolutely adore this group and the support I’ve received.

  7. Profile photo of Cathy

    Great news. So glad he is home!

  8. Profile photo of Pegi

    So glad to see your husband’s surgery went well and they you,too, are feeling better. Sending positives thoughts your way.

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