And I Thought Monday Was Hard
Late in the afternoon he was dozing in his wheelchair, as he tends to do. I was in the other room. Normally, when he is out of sight and I hear any moans or groans, I shout out “Are you okay?” He shouts back, “I’m fine, quit asking”. So in an attempt to quit hovering, I heard moans and groans and continued on with what I was doing. Within seconds he shouts out my name. I ran to where he was and he was slouched down in his chair. He proceeded to tell me when he opened his eyes everything was black, he closed his eyes and opened them again and everything was yellow. This went on with a few other colors. With this he felt himself start to slide and his arms went numb.
I got him straightened out and safe and proceeded to grill him on exactly what happened and any other symptoms. I wanted to take him to the ER immediately, but he insisted he was fine now and proceeded to go out on the porch. Against his wishes, I called his PCP; it was just at the end of office hours.She told me the final results of culture were in and he needed to be hospitalized. She felt that the “visions” may be due to the infection. I told her I was ready to take him to the ER but he wouldn’t go. She had me go to him, put her on speaker phone and she told him to go to the hospital! He wasn’t at all happy to put it mildly, but he does listen to her. She was going to call ahead and give instructions for tests she wanted run. We knew he would be admitted.
So here it is Friday, they ran a barrage of tests on him, and once again we have a parade of specialists. The good news is the neurologist ruled out and signs of stroke or TIA with MRI’s. He is also running another MRI to see if there is any change in the syrinx since his last MRI in December; they have contacted our old hospital for those results. The Infectious Disease doctor has isolated the exact bacteria causing the infection. This bacteria requires an IV antibiotic. The not so good news is once again the infection is making his kidney creatinines sky rocket but he is taking more of a wait and see approach this time.
He’s in good hands and they’re doing their best to try and find the cause of the re-occurrence of these infections. His spirits are much better then I had anticipated, this being the third hospitalization since July. But he will be there at least through the weekend, and I fear a bit longer. Because his immune system is so compromised they cannot send him home with a pic line. He will have to stay in the hospital until the IV is no longer needed.
We go through these ordeals pretty much alone as all our family is out of state. But I wanted to thank all of you fellow family caregivers who have reached out to me in the past few days. You have no idea how much it means to me, to us. This is the first hospitalization that I have not felt so isolated. I do have family nearby, it’s my “cyber family” and you all mean the world to me. Again, thank you and God Bless you and your carees.
- Why Can’t I Be Superwoman? (caregiving.com)
- The Checklist (caregiving.com)
- Robert’s Turn in the Hospital (caregiving.com)
- Seven Ways to Manage Stress (caregiving.com)
- My Own Worst Enemy (caregiving.com)
- Just Don’t Know What To Do…. (caregiving.com)
- Update on Robert; Yes, Robert (caregiving.com)
- Slices of Life (caregiving.com)
- Taking Vacations, Hallucinations, Dealing in General (caregiving.com)
- On Pneumonia Watch (caregiving.com)