On a Serious Note (Hug a Loved One), Part III

On a Serious Note (Hug a Loved One) III:

Taffy After a Bath         101213
Taffy After a Bath
101213

Mom’s little Princess Taffy decided that 3:30 (a.m.) was the perfect time to need to go out and patrol the perimeter of the backyard, after she had already used my office/spare bedroom. I received an update on Vincent and they were correct in determining that Vincent does have a defect with his heart that when he exerts himself it can cause the heart tissues to expand and separate, then cause the heart to go into V-Fib or Heart Failure. It is genetic. He will have to monitor his exertion so as not to have this happen again, go on a “Heart Diet” or low/no salt.

On Thursday the team at UC San Francisco Med Center will be going into his heart. They will do a Heart Maze and will also install a pacemaker. The maze traces the electrical patterns in the heart to determine that they are firing from “Point A” and making to “Point B.” If not, they will repair the signal or block it. With the pacemaker they will be turning off the “Pace” part of it and only have the “Zap” part active, so when it notes his heart has stopped (or going to) and will V-Fib or jump start his heart.

In reality it could never be needed but as the doctors mentioned, “We don’t want to take that risk. Better to have it and live then to not have it and…” You get the point.

They are still trying to get him to understand just how lucky he was to be around that many doctors, that close to one of the best hospital on the West Coast and to make it to the hospital as quick as he did. They’ve told Mark (my brother) and Susan (Mark’s wife) as well as Vincent that is one minor thing had been different, he would either not be with us or he would be breathing through a tube the rest of his life. Apparently in his culture, well his mom’s culture, it’s not normal for the family to tell the sick just how bad off they are so she was trying to keep a lot from Vincent. I give this one to Mark, when she told him to not tell him anything, Mark stepped up and said, “No, he’s 24 years old and if he asks me anything I will be giving him the answer. If a decision needs to be made I will involve him.”

How could you not involve a fully competent adult of his own medical treatment? How could the doctors not require it?  Well, that’s a question for another time. Hug your loved one’s (A Lot), share a minute or two with your kids, sit down to dinner and talk, discuss your days.

– Richard  / : ^{ )>

Categories: Caring for Parents,Richard's Blog

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1 Comment

  1. Profile photo of ejourneys

    Good for Mark for stepping up in Vincent’s defense! Sounds as though he is getting wonderful care. A friend of mine owes his life to — I think he has an implantable cardioverter defibrillator (ICD). (((Hugs)))

    Reply

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