On a Serious Note (Hug a Loved One), Part III

On a Serious Note (Hug a Loved One) III:

Taffy After a Bath         101213

Taffy After a Bath
101213

Mom’s little Princess Taffy decided that 3:30 (a.m.) was the perfect time to need to go out and patrol the perimeter of the backyard, after she had already used my office/spare bedroom. I received an update on Vincent and they were correct in determining that Vincent does have a defect with his heart that when he exerts himself it can cause the heart tissues to expand and separate, then cause the heart to go into V-Fib or Heart Failure. It is genetic. He will have to monitor his exertion so as not to have this happen again, go on a “Heart Diet” or low/no salt.

On Thursday the team at UC San Francisco Med Center will be going into his heart. They will do a Heart Maze and will also install a pacemaker. The maze traces the electrical patterns in the heart to determine that they are firing from “Point A” and making to “Point B.” If not, they will repair the signal or block it. With the pacemaker they will be turning off the “Pace” part of it and only have the “Zap” part active, so when it notes his heart has stopped (or going to) and will V-Fib or jump start his heart.

In reality it could never be needed but as the doctors mentioned, “We don’t want to take that risk. Better to have it and live then to not have it and…” You get the point.

They are still trying to get him to understand just how lucky he was to be around that many doctors, that close to one of the best hospital on the West Coast and to make it to the hospital as quick as he did. They’ve told Mark (my brother) and Susan (Mark’s wife) as well as Vincent that is one minor thing had been different, he would either not be with us or he would be breathing through a tube the rest of his life. Apparently in his culture, well his mom’s culture, it’s not normal for the family to tell the sick just how bad off they are so she was trying to keep a lot from Vincent. I give this one to Mark, when she told him to not tell him anything, Mark stepped up and said, “No, he’s 24 years old and if he asks me anything I will be giving him the answer. If a decision needs to be made I will involve him.”

How could you not involve a fully competent adult of his own medical treatment? How could the doctors not require it?  Well, that’s a question for another time. Hug your loved one’s (A Lot), share a minute or two with your kids, sit down to dinner and talk, discuss your days.

– Richard  / : ^{ )>

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About Richard

My name is Richard (@kreisr1), I am a Tri-Fecta caregiver, for my mother who has COPD among other health issues. I co-care for my brother in-law who has epilepsy and co-care with my wife's for myself, I deal with Chronic Back Pain. entire life and now after living alone, in a care facility and a group home setting we had to move him in with us to provide him with the care he needs.  Finally, with my wife who is also my co-caregiver I care for myself, I have had chronic pain (mid-low back) for 21-1/2 years thanks to a drunk driver.  I write my own blog, pickyourpain.org where I share my pain with humor, as I see thing, "Pain Without Humor is Just Painful."  I am involved with caregiving.com in several ways, as well as participating in several of the weekly caregiving.com blogs, I also am involved in their Twitter chats, I also host the following groups, SPOT (Stamp Procrastination Out Today), A Task A Day, The Men's Group, Healthy Caregiver and several others.  I am also the moderator for the Caregiving.com Quiz Show and have a seat on the bi-monthly Hot Topic's show. I'm here to not only improve Roberts life, the lives of those I touch on caregiving.com and pickyourpain.org but to find a way to improve my own live.

One thought on “On a Serious Note (Hug a Loved One), Part III

  1. Profile photo of ejourneysejourneys

    Good for Mark for stepping up in Vincent’s defense! Sounds as though he is getting wonderful care. A friend of mine owes his life to — I think he has an implantable cardioverter defibrillator (ICD). (((Hugs)))

    Reply

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