10 Tips for Caregivers

Here are my general tips for caregivers and not necessarily in the order of importance. I am sorry that there is a little bit of a negative spin on mine as we have had some major shake ups in Nicole’s care and I am still trying to process it all. Actually, I have 13 tips that I thought of.

1. This is a wonderful tip from Holly… always keep something that is just for you outside of being a caregiver. This I suppose could be a hobby, a volunteer position, a home business etc. I am still trying to find my way in this area.

2. Always, always listen to and go with your gut because 98% of the time it will be right. If I had done this life would’ve been so much different for Nicole.

3. I know this is negative but at least in my case it is a reality… do not just trust the medical professionals and/or take their word for it without finding the same to be true yourself.

4. Organization is a key… keeping updated records for prescriptions, phone calls, etc. Have a binder, notebook, accordion file, smartphone etc., anything that will keep you organized when it comes to caregiving and your caree. For me, personally, I try to scan any records pertaining to Nicole into my computer but I always keep a paper copy. I also have pay an annual fee to have a backup of everything on my computer if something were to happen to it so I can access to this information from any computer.

5. Tape all appointments and phone calls if you can either with a tape recorder or your smartphone/iPad etc. I either tape all appointments on my phone or iPad and then later at some point I transcribe these notes. It has been a life-saver for me.

6. Write everything down. For me this includes all areas of my life. I have a daily calendar I use to write notes pertaining to Nicole in and then I have my planner where I write down everything else outside of Nicole. I try very hard not to write things on slips of paper etc.

7. Never assume anything.

8. No matter how difficult a setback find a way to regroup and bounce back. Find a way to dig down deep and find whatever faith you have to believe in that there will be something better than where you were at.

9. Always find some humor and learn how to laugh at yourself.

10. Take care of you… eat right, exercise, get enough rest, drink plenty of water. I have not arrived here but am working on it.

11. Get rid of clutter in your home, mind and body. Try to simplify as much as possible.

12. Never, never, never, no matter how bad things seem…have hope.

13. Do not take things personally.

Avatar of Jane

About Jane

My name is Jane and I care for my 19 year old daughter, Nicole, who has several congenital heart defects, Eisenmenger's syndrome and pulmonary hypertension which is a rare, life-threatening, incurable and progressive lung disease that causes blood pressure within the pulmonary arteries to become higher than normal. She also has several other health issues that are not as severe.I have two blogs one is "A Day in the Life" which chronicles Nicole's diagnosis and our everyday life. My other blog is "Let's Get Organized" which chronicles my struggle to get the clutter out of my house and get organized.

4 thoughts on “10 Tips for Caregivers

  1. Cathy Mitchell

    Jane, firstly, I am so sorry to hear that things have changed with Nicole. My heart goes out to you. Secondly, I didn’t find your list negative at all. You have learned these tips through experience. I especially agree with what you had to say about the medical profession. Question, question, question! And research. And talk too others. I am finally understanding your tip about getting organized. It takes work but once it is done it is so freeing. I am about halfway there with my house. But totally there with my aunt.

  2. Avatar of RichardRichard

    Jane, great tips and how everyone keeps coming up with new ones that have not been covered in the last 100 +/- is impressive. Excellent choices

  3. Kaye Swain

    Good tips for caregivers. I so agree with #4 especially. My family and I have put this into practice on more than one occasion with long-term caregiving situations and you are right. It is a very vital key. And what a smart idea to have your computer backed up off-site. That not only protects the information from a computer crash but also, heaven forbid, fire or theft. As traumatic as those events would be, losing years of vital medical documents would make it way even more awful. Thank you for a very informative visit from Caregiving’s Holiday Progressive Blog Party.


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