Long time… I’ve been carrying elephants lately…
It’s been so, so difficult back here, in not so sunny Portugal… Me, Mum, Dad, Kids, Boyfriend… Sometimes it all seems to happen at the same time.
We’ve been living on a roller coaster, lately:
- I haven’t had time to take care of my own health (the breast lumps and the whatever in my uterus; I have a mammography to do at the end of this month);
- Boyfriend (Rui) has been having chest pains and has high cholesterol.
- My daughter (17 years old), we don’t know what causes it, but she’s been losing alot of hair and she has some cysts in her ovaries.
- My son (15 years old) has been having it worse with his mouth ulcers. The doctor wants him to do an endoscopy and a colonoscopy.
- Mum had a terrible kidney infection. She’s been in and out of hospital, now has a cyst in one of her kidneys, and had a small stroke, leaving her left leg quite numb.
- Dad – well, besides the heart condition, the dementia, the respiratory insufficiency and the blindness, he’s been having small strokes, rendering more and more dependent.
Countless sleepless nights, hospitals, doctors, taking care of everyone – Rui and the Kids help as much as possíble – well, it’s been hard!
“Things” don’t really work in Portugal; help is getting rare. More and more things are paid for; I’m not working; just taking care of everyone; making and selling some cookies, craftswork. The problem is that people buy less and less, and life is getting so expensive.
Still, I have help from the home nursing service, both for Mum and Dad. Dad’s been “given” an articulated bed by the social services. He’s not always in bed, just during the night and around two hours after lunch.
It’s just that most people think my life is empty. Really?! I wish it was a bit more. There’s always so much to do, and so little time. I mean, helping Mum and Dad with their meals, alone takes over an hour each time.
I prefer it to catheter, which brings around infections. Me or the ladies from home nursing change it every day. Dad no longer asks to use the toilet. Just the Penrose and diapers.
Some eschars have been trying to creep in on him, but we’ve managed to control them: protein supplements, skin hydration, a good daily hygiene (morning and night).
He really missed Mum while she was in the hospital. He had several small strokes then. His medication was changed, and the strokes seemed to calm down, a bit. Last stroke was last Sunday. But the hospital always sends him home the next day after putting him on a drip for a few hours, and doing some exams and analyses.
Mum, its her shakes that drag her down, most. She wants to take care of her “things”, but it’s difficult. She drops a lot of things and gets really tired. But she’s determined to make her life go on, and still likes to take care of Dad. She doesn’t really like me to take care of her things. Anyway, it’s good for her!
Now, with the kids and Rui also having health problems, well it’s became a little more complicated.
I wish I did have a brother or sister…
Dropped by, just to get it all off my chest.
Sincerely hope all of you are doing better!
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