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Caregiving
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Throughout Your Caregiving Years

 

 

2003 Family Caregiver Survey Results

Your Experiences in Your Words

 

If you could change anything about your home,

or your care recipient's, to enhance your ability to provide care, what would those changes be?

 

It would have been to give her a room with a door and to have a bath tub or shower downstairs, so that she could have a real bath/shower.

 

Larger bathroom in the apartment with a shower that you can push a wheelchair right into.

 

I would have a much larger bathroom.

 

Larger door opening for wheelchair.

 

Afraid for her safety when working; would like gated community so that people had to call before they could get in.

 

I would put a ramp at her house.

 

We are limited on space; would change home so everyone could have privacy.

 

Wider doors.

 

I wish my mother-in-law would downsize to an apartment – too much yard work and other maintenance.

 

Everything on ground floor; all doors wider; at least two exits. Carpet not so thick--difficult to move wheelchair.

 

Add a ramp.

 

A larger place with railings; counters reachable from her wheelchair.

 

Completely accessible bathroom. 

 

Larger rooms.

 

Walk-in shower; lower, more accessible bathtub.

 

Larger doorways, enlarge bathroom and shower area.

 

More room, another bathroom and toilet.

 

Provide fourth bedroom for my son (living in family room on futon).

 

Master bedroom on 1st floor with large bath.

 

Remodel kitchen to be better accessible; wheelchair ramps at each outside door.

 

Remodel bedroom and bathroom; adjustable facilities for different heights.

 

A larger house with carpet, warmer, cleaner.

 

I would have a separate bedroom/bath/kitchen facility just for him.

 

Make bathroom bigger; put in a shower.

 

Walk-in shower, lower bathtub.

 

More room to store wheelchair, boxes of diapers, etc.

 

Sell current home and have parents move closer to me; one-floor home, no basement, no yard upkeep.

 

Take out bathtub.

 

Keeping the yard, raking, bagging leaves a big job.

 

Wish we had a generous-sized bathroom connected to her bedroom.

 


Activities Index of Articles

If you could make any changes in your community that would help caregivers, what would they be?

What advice would you give to a new caregiver?

What advice would you give to a health care professional who helps family caregivers?

What has been your greatest lesson learned as a result of your caregiving experience?

 

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