Hi, I’m JoAnn. I am a Caregiver for my Mother-in-law with my husband at my side helping me. We make a great team. He is a lot of help. She is his Step-Mom, the only Mom he has right now. She has Lung Cancer. She was diagnosed with in at the end of May of 2014. She went through the radiation treatments for five weeks and it really did…[Read more]
I am a little frustrated right now. How can I get my mother-in-law to eat? It seems as though everything she eats bothers her to swallow. How do I puree her food? I had to give her a small cup of her boost/ensure ice cream to eat. She only had two more bites of that and she didn’t want any more. What do I do? I was reminded that steriods are on…[Read more]
Coommunication is such the worst place to be messy as a caregiver!! I hear your frustration! Elly and I went around the bend yesterday about the thermostat which she turned off but was convinced it needed new batteries. She got mad at me in the afternoon and we weren’t home for dinner to eat with her so I have no idea if she got over it. Now, I…[Read more]
Hello, my name is EllysGdaughter. My husband and I moved in with my mother’s Mom 5 years ago this April. We have two amazing grown sons, married with wonderful wives. We have minor caregiving responsibilities, in the personal care area. Grandma can take care of her personal needs and walks with a cane inside or walker outside. At 94.5 years young,…[Read more]
Yesterday we went to the nephrologist. My husbands Gfr has dropped 5 points in two months. The Dr. suggested that the dialysis nurse call him to start discussion about what things happen next. Now we are watching the potassium in his diet and next month we start with phosphorus. So, I guess we are closer to dialysis. On a good note, his A1c…[Read more]
Jan, your post really touched me. It’s clear that she has great quality of life due to your 24/7 watchfulness and work. You are amazing. I am very happy that you have a new baby in the family…pictures and stories of her will lift your spirits and make you smile and laugh. I am glad you will have that in your life as you face the days ahead.
Denise started the topic Paid in-person study for patients and caregivers of patients with mild to modera in the forum Research Opportunities 11 hours, 12 minutes ago
Schlesinger Associates is currently conducting a paid in-person study for patients and caregivers of patients with mild to moderate Alzheimer’s. Anyone that calls and qualifies will be paid $125 for spending only 60 minutes of their time (30 minutes for the patient and 30 for the caregiver) for an in-person survey of their opinions. This study…[Read more]
I can completely relate to your frustration. My husband can be like this at times if he’s feeling particularly unwell and it drives me crazy. I’ll find out after the fact that he was upset about something but didn’t want to worry me. Or he’ll be passive aggressive about something he wants, leaving me to figure out what it is and if he really…[Read more]
Denise was joined by Claire Day, our dementia care expert, on Tuesday, Feb. 24th. Claire continued the conversation about helping her parents from a distance since her mom’s cancer diagnosis. I could so totally […]
I am struck by the thought today that I am more than a caregiver, and my husband is far more than a caree. And yet, I have trouble sharing things about myself that have nothing to do with careiving. So I would love to hear “other things about you” and “other things about your caree” — i’ll start — I am a Gramma to two beautiful ones — a girl…[Read more]
I love this!! It’s a also a great blog post, if you feel up to it.
Great idea, Mar, and a good reminder. I am a stepmom to a wonderful young woman. She is 24 and a teacher, working outside of Boston. I am a furbaby mom to two rescue dogs and four (formerly) stray cats. (Well, actually two stray cats. When I found kitten Mia last fall, I didn’t realize she was pregnant. She was all of 5 lbs. full-term! She…[Read more]
My name is Jane. I live in Orlando, FL and I care for my 20 year old daughter, Nicole.
Nicole was diagnosed in Jan. 2010 when she was 15 years old with several congenital heart defects and because these weren’t diagnosed in a timely matter it led to a rare heart condition called Eisenmenger’s Syndrome which is basically reverse shunting of the…[Read more]
(Editor’s Note: Today we welcome Chaya, who cares for her husband, to our blogging team. You can connect with Chaya on her profile page: @lily.)
Sam and I fell in love 32 years ago. Then we broke up, got back […]
Oh, my, Chaya, your story is so touching! I’m so glad you are blogging although I’m so sorry for that sudden change.
We seem to prepare for years and yet how do we prepare?
I hope blogging will help you hold the good moments even tighter.
Thank you so much for sharing your precious days with us.
thank you so much for sharing this — it was an honor to read it. I would love to know more about his memoir and the play you two wrote and the one that got produced. PM me if you want.
So glad you decided to honor us with your story.
Chaya, thank you for sharing your and Sam’s story with us. I look forward to reading your next blog post.
Thank you for sharing with us. It has to be hard on you taking care of your beloved husband. Do you do any kind of work or college online since you are home taking care of your husband? or Does taking care of your husband take all your time? You are a very strong woman from what I see in your blog. I hope you don’t mind, I will keep you and your…[Read more]
Thank you for sharing your life story with us. You definitely have a strength and positive coping skills I would love to have too! I look forward to hearing more as you go through this journey of life.
Thank you, everyone. I have to admit, I logged in a million times today to read your comments. They’re so validating.
Mar, what’s PM?
I meant you could send me a message with details if you want, but I’m sure other people wouldn’t mind having the info too
Beautiful……choosing life seems to be the right thing for you guys and I applaud the decision both of you made! The love and commitment to share life by any means is so fantastic and I’m sure you know how blessed you are to have eachother! So glad you’ve started blogging…I know it helps me!
I am thrilled beyond words to see the long list of new members to this website every week when Denise posts them. So welcome to all of you and I’ll make no assumptions that you might know me, altho I feel like a Old Dog from being here for a year.
I hope all new members find the support, understanding, and comfort that I have felt.
I am into my…[Read more]
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