Site-Wide Activity

  • Lillie posted an update 8 minutes ago

    @stephenedmonds Hello ! Welcome to the group. I look forward to getting to know you.

  • Lillie posted an update 9 minutes ago

    @anne7047233803 Hi Anne! Welcome to the group. I look forward to getting to know you, if you have any questions about getting around the site, just ask.

  • Stephen Edmonds became a registered member 1 hour, 52 minutes ago

  • Stephen Edmonds became a registered member 1 hour, 52 minutes ago

  • Thank you so much for your sweet note, @moviegoer. I am so enjoying using what I built. :)

    And, my sister still chooses to stay in the dark. It’s her choice.

    And, it’s good to see you!!

  • Denise, I hear you LOUDLY AND CLEARLY. Yep. Been in a very similar situation myself the last few weeks.

    I think what probably wears you out the most is your sister’s lack of TRUE support and buy-in. I get that. Completely. Yep. The ones who aren’t the primary caregiver simply refuse to cooperate in the way we desperately need them to.

    But…[Read more]

  • Jep, Now that you mention it… I do have to remind my husband to eat and he is 99% more likely if I prepare his food. But in his case, his body doesn’t always send hunger signals. And we do fall into patterns after a setback when I have to do more and we have to break out of it as he improves. He really knows how to milk it! One day, he…[Read more]

  • (Editor’s Note: We welcome Amy, who cared for her parents, to our blogging team today. You can connect with her on her profile page: @amadge.)

    On July 7, 2015, I received word that a friend of mine passed away. […]

    • Dear Amy, I am so sorry for your loss. Sometimes it seems these losses come in like ocean waves and just as you get your head above water and think you can ride it out, another one hits. Times like this are so challenging. You had a difficult, but beautiful experience with your mom. I’m glad of that!
      My mother-in-law and her two brothers (her only siblings) died within 11 weeks of each other. That year, we lost a number of family members and friends – and one of my former kindergarten students who was brutally murdered. Not too long after this wave, I had to go in for surgery. This prompted a couple of my friends to tell me their stories… after I had come through okay. I think they were both very relieved and, almost without wanting to, their stories came out. Both had more losses in their lives than is possible to imagine. To say I had a crisis in faith is a gross understatement. I’m still working on it.
      Thanks for joining us here! I just found your facebook page and “liked” it.

  • I just love reading all you are sharing with us. :)

    It feels like such a grind, doesn’t it? I love that you are giving yourself Saturdays. I think it helps to have something to look forward to that reminds you that you still have a choice.

  • I get up & do my ‘toilette’, walk the dog, feed the dog, give husb his pills, & leave for my office. I get off work & walk two other dogs (my side-job), go home, walk my dog, eat my supper, pick up husb from dialysis, feed him supper, give him meds, & go to bed. And the evening & the morning are the first day … & the second day … & the third…[Read more]

  • PshYesICan – my husb is just the opposite. He will wait alllll day until somebody else gets up & then asks “will you make me a sandwich?” Sometimes I just keep walking in the opposite direction of the kitchen like I didn’t hear him. I know I’ll have to do it eventually so I usually give in. Yes, he CAN make his own sandwich. No, he won’t do it. OR…[Read more]

  • JEP changed their profile picture 11 hours, 39 minutes ago

  • If I didn’t work (away from home & my “patient” husb) I think I’d lose my mind. I’m usually pretty much a sally-freakin-sunshine (aka sarcastically optimistic) but after spending a couple days with my husb who is always negative I just feel drained.

    • How do ya’ll cope with that negativity??

    • I have a difficult time coping with how much my dad worries and focuses on the problems. The anxiety gets the best of me. :( This summer, I’ve been going to the community pool which feels like going to heaven. I also find it incredibly helpful to blog–I think of it as write and release.

      I’d love to know how others cope. I’m wondering if @kaz @hus…[Read more]

      • Oh My Gosh YES – my husb makes UP stuff to worry about!!!

        • We’ve been working really hard this summer to get Michael’s anxiety under control. The goal has been to show him that ER/hospital visits and overmedicating are band-aids, not true solutions to the problem, and that there are other tools he can acquire and put in his proverbial toolbox so that he has more and better options for both mitigating and…[Read more]

          • Thanks for such a detailed list of ideas, @hussy! I had just posted today that I wanted to do better at having healthy things in the “grab zone.” Those ideas are helpful! I love that you’re intentional about caring for yourself, and encouraging Michael to be part of his own self-care as well.

  • JEP posted an update in the group Group logo of GeneralGeneral 11 hours, 49 minutes ago

    Newbie question – is there a way to see only the latest posts/list them first somewhere?

    • On every page (except the home page), look to your right and you’ll see “Latest Posts,” which is the list of the latest blog posts. Under that, you’ll see the list of the latest comments. Does that help? If I didn’t answer your question, just let me know. :)

  • Amy changed their profile picture 12 hours, 5 minutes ago

  • Amy changed their profile picture 12 hours, 6 minutes ago

  • Amy changed their profile picture 12 hours, 7 minutes ago

  • Lillie and Profile picture of JEPJEP are now friends 12 hours, 16 minutes ago

  • Denise and Profile picture of JEPJEP are now friends 12 hours, 16 minutes ago

  • Yesterday morning, I listened to a discussion on one of our local radio stations about a survey of moms. The survey asked mothers, “What do you think you should do but don’t?”

    The moms responded that they think […]

    • I should do a better job of staying on top of my own self-care. I should do a better job of organizing our paperwork. I have made recent improvements on both fronts, but there is still room for improvement. :)

    • I should do better about getting my folks out of their apartment and over for family dinners.

    • I should fix healthier meals
      I should make my husband do more.
      I should think.more of myself.
      I think I should make more time for my sisters .

    • I should make my checkups a priority. I made an important appt in that regard. I should have more nutritious things in an “easy to grab” format.

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