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Caring for Three

Our bloggers write about caring for three.

Life: A Laundry List of Health Issues

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Long time no type. It has been more of the same for the past few months and I’ve just been trying to keep up with the holidays, etc. But, the start to the new year has been less than stellar. My dad is still hanging on – predicted not to make it through the week each and every week since around Thanksgiving, but still he hangs on. No cognitive interaction, barely awake each day for ... Read More »

Research Survey for Parents of Chronically Ill Children

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I thought someone on here may be interested in completing this survey for parents of chronically ill children. It is looking at the communication between parent and physician for a health communication study. You can request findings from the study or get more information by contacting the researchers. Daniel Hans Mansson, dhm14@psu.edu Dear CRTNET subscribers: Ms. Michaeleen Farley, who is an undergraduate student at The Pennsylvania State University-Hazleton, is conducting a study in which she ... Read More »

Dad’s Time Coming to an End…

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The hospice nurse told my mom today that my Dad has days, at best a couple of weeks left. He ran a fever of 102 last night (this morning) and they had to call a nurse out at 4 a.m. (Thank goodness my mom has the 24/7 caregiver there.) She was able to get the temperature down, but he was twitching violently (he has Parkinson’s-like twitching all the time, but this was much worse and ... Read More »

#%$*ty Weekend…

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Wow…so much crap in so little time. This weekend was a complete storm of it. I lost my phone (or it got stolen – not completely sure which happened, but it is gone) while at my in-laws.  Found out that my mother-in-law (who I love dearly) had endometrial cancer – it was all removed with a hysterectomy they think, but we had to go to a two-hour genetic counseling appointment because it is possibly a ... Read More »

Dealing with (Someone Else’s) Depression

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Spending another weekend with my mom and, although I really, really try to be supportive, the negativity and depression is really getting to me this time. In a way, part of it is that I am feeling sorry for myself. I have a limited number of days off for summer and I work a lot of weekends during the school year and I have spent a majority of my weekends here since getting off for ... Read More »

Celebration and RAOK Challenge

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Today is the fourth anniversary of my daughter’s heart transplant. Four years ago today, she was wheeled away from us with a failing heart that had no hopes of recovery and wheeled back with a working heart and pink lips. Somewhere else in the world, relatively close by, another family was suffering the loss of their child as we were celebrating ours being saved. It is a difficult thing, this world of transplant. I am ... Read More »

When It’s Not a Giving Fest

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Well, the weekend wasn’t exactly the giving fest I envisioned in that earlier post. We did do a ”fireworks” craft for both my mom and my sister (and my husband, who is working away from home for seven weeks – we saw him fleetingly last night and this morning and forgot to give him the painting). I didn’t do the meal because my mom said her stomach has been bothering her – dry heaves two ... Read More »

Who Speaks for the Speechless?

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(Originally published on Voice Space.) That was my dad only two short years ago. Today, he lies in a hospital bed in a room outside of my parents’ home, unable to communicate, enjoy life or the company of his granddaughter, unable to walk around or sit in “his spot” on the couch. These two years have brought many changes, but the most difficult has been his inability to tell us what is going on. It is ... Read More »

Frustrating Night

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(Editor’s Note: Today, Sue, who cares for her parents and her daughter, begins her blog. You can connect with her at her profile: @2ndheartmom.) I don’t know if it is just me or if finding good care for dementia sufferers is just really difficult. I am staying with my mom for the next five days while her caregiver is on vacation and we went to see my dad in the board and care facility he ... Read More »

I Know Where to Turn for Support…

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Hello everyone, I know that it has been a long time since I’ve posted anything.  A few of you know me, but many blogs are new since I was taking care of my mom, who passed away in July of 2011. I feel like I could write a book about the what has happened since then, but I will try to keep it brief! For those of you who don’t know my story, I cared ... Read More »

Happy New Year

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Hi everybody, I’ve been stopping in at caregiving.com because I think of all of you often, and want to know what is going on in your lives, but I haven’t posted in quite a while. I want to think all of you again for being such an amazing support system this past year. We got through the holiday season, although it was very strange and empty without Mom being with us. On the 29th of ... Read More »

Thank You, Denise and Caregiving.com

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Weekend before last, my husband and I went to the ocean, along with our grandson and my mother-in-law. It was a wonderful trip. We were there for just two nights. The first day, a major storm blew in and we were able to watch the huge waves crash on the shore. The second day, the sun was out and it was warm enough that we spent the day on the beach in short sleeves. It ... Read More »

Hang in There-It’s Worth It!

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We’ve been crazy busy for the past few days trying to pull together a Southern-themed Memorial service up North. Spanish moss, check. Boiled peanuts, check. Green tomato pie, check. Sunshine, not so much (but we scrambled to purchase two big canopies at a reasonable rate and get them up as there’s a chance of rain tomorrow). Again, my family and church have just blown me away with their thoughtfulness and willingness to help. I am ... Read More »

Not Sleeping

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Hi everybody, I’m sorry that I haven’t posted since Mom died. To say that it’s been overwhelming would be an understatement. The graveside services were Thursday the 4th. It was a beautiful sunny day, and things went as well as they could have under the circumstances. It was tough. My 7-year-old grandson sobbed in my arms through the ceremony. That was heart-breaking, and yet, I find comfort in the fact that he knew his great-grandma ... Read More »

Mumsy

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My beautiful Mumsy went home to be with the Lord, and my Daddy, today around noon. Thank you, all, for all the love and support you’ve shown Mom and I. I’ll write more later, but right now, I think I may sleep for a week straight. I wanted to let you know, though.   Read More »

Very Soon…

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Yesterday afternoon about 2:00, Mom’s breathing changed drastically. The nurse was there within half an hour, and said that Mom was in her last hour or two. Mom is still here, but we are very close. She seems comfortable. The evening was filled with lots of family (all four kids and most of the grandchildren, even the oldest great-grandchild), our pastor and his wife, and a harpist. I slept (?) holding her close last night. ... Read More »

Waiting for Freedom

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Mom is very close to the end. She quit eating and drinking a few days ago, which means no more antibiotics. Our focus has shifted to keeping her comfortable and surrounded by love. We are waiting. And waiting. And waiting. Now that we have no chance of recovery for her, I want it to be over. She hasn’t spoken for over a week now, and is not responding to things around her any more. I ... Read More »

Things Are Going a Bit Better Here

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A few things have improved around here this week. 1) We have a new nurse case manager with Hospice. She is amazing and supportive. She’s helped me with the fine line of keeping Mom comfortable, but also able to respond. Mom is drinking small amounts this morning (no fluids since Monday until today), but is also lucid and comfortable. I feel like we’ve found that “happy medium.” I feel supported rather than on the defensive ... Read More »

Don’t Even Know Where to Begin…

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Not even sure where to start this post, so I guess I’ll just dive in. On Monday, we went to see the Infectious Disease doctor in the big city. We’ve been waiting for this appointment for 3 months now. There wasn’t a doctor that specializes in this locally. We left home at 10:00 AM, and got home at 4:30. Long, long day for Mom, who hadn’t been out of the house since July 2nd (when ... Read More »

Mom Continuing to Improve

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I hope you all had a great weekend. Mom is continuing to improve. She woke up this morning with a clear mind, and asked to go outside for some fresh air after breakfast. The twinkle in her eye is back, and she’s smiling again. She’s very weak, but each day has been a bit better for the past 4 days. Her mobility is gone, and she’s probably lost 10 pounds. But, she said grace at ... Read More »

Diarrhea-Free Day!

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That’s it. That’s my post. Ground-breaking stuff! And, mom ate a full dinner tonight. Probably one of those posts that only someone who has cared for a person with two weeks of 11-20 diaper changes a day could appreciate, but in my little world, today is a good day! Nurse said everything looking better, except she’s hearing “crackles” in both of Mom’s lungs. We’ve had her up a bit the past few days. Hopefully, they ... Read More »

Physically, Better. Mentally, Not So Much

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Physically, I think Mom is improving. However, her mind is another matter. She was perfectly lucid through all of this, until four days ago. Now, she’s very agitated and hallucinating. It’s tough. She’s eating and drinking, talking up a storm…but her mind is all over the place. Difficult in a whole different way. They tested for UTI and did blood work and both were fine. So, no explanation at this point. Much more stable physically, ... Read More »