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Caring for Difficult Carees

EXTREME Caregiving: Holding Pattern

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It has come to the point in my SIL’s care that this time she will not bounce back as we had hoped. Hospice has increased to daily This is comfort care and we have decided we will keep her home, where she is safe and surrounded by people who love her. Each moment is an eternity. When minutes have passed it seems like hours. She is comfortable, I have wax melts burning in her room, ...

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EXTREME Caregiving: Balance? HA!

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Ah the joys of blogging. Once I publish, again there is a drastic change. At times I feel as if my sanity has left the building. If I did not have this blog to see the constant change I think I would remember nothing of this time as every single day there seems a complete change in circumstance. SIL has again gone semi-comatose. This has happened before, but one of these times she won’t come ...

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EXTREME Caregiving: Finding Balance

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We’ve had an action packed few days. Again I see how profoundly a change in how you think about things can affect EVERYTHING. Friday morning we had many visitors. I hadn’t REALLY realized it’s been three months since the EXTREME part of our journey began. My days go by, it’s all about medication times and school days, what days nurses are coming, and in between all the little fires it seems I’m always putting out. ...

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EXTREME Caregiving: I’ve Stopped Being Polite, Started Being Real

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Totally stole that line from an old TV show, but it fits so well. I had been on this little upswing…A window of enlightenment, feeling good. Writing this in between doing some chores. Taking care of SIL with a new approach. Went in her room earlier and boy, did she have a whoopsie. Good God, a happy day those dogs were out! The stench woulda knocked them little dogs out cold for a week! It ...

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EXTREME Caregiving: Minutes Count and Stop Being Ridiculous

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My husband looked at my face today and said its the first time he’s seen ME in months. My face isn’t the mask of worry as it has been. As mentioned in my last blog, I found a bracelet. Proverbs 3:6: “It in all thy ways, acknowledge HIM, and He shall direct thy path.” I’m a believer, raised Catholic and am a Christian/Cathloic (as all Catholics are). I’ve taught Sunday school too. lol But I’m ...

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EXTREME Caregiving: The Ever Changing Drama

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Every week, sometimes every day, there is a new facet of change occurring with SIL. NO ONE HAS ANSWERS. Hospice doesn’t know. The new RN is newly out of school, but luckily is on her game and not yet jaded. Her LVN is a sweetheart and has many years in this business, but still doesn’t know what’s going on with SIL. I don’t blame them. Everything is WEIRD. This part is not new at all. ...

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EXTREME Caregiving: A New Approach

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magA few days ago I was at such a low point. SIL (as shared previously) was falling and we figured out it was attention seeking. I got so hurt and confused. I usually take things in stride, but I’m sorry to say I didn’t this time. The pressures of the situation caught up I guess. I was so sad, so disheartened by that. Just WHY when I do everything I can to help her? SIL ...

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EXTREME Caregiving: Epiphany

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SIL has been falling a lot. She falls two to three times a week anyway but she’s been falling every day this week. Strange falls. I’ve been talking to people on here and to my mom and everyone in the house here about why she’s falling. What could be the answer? these falls are strange. She is not walking when they happen, she is either standing still or sitting. They are in slow motion. She ...

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EXTREME Caregiving: Another Day

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Oh lord…the antics continue. Today she’s worried “the guy” is going to force Mom and SIL into prostitution. lol Mom’s 64 and SIL looks 84. lol Whomever “the guy” is, he’s an idiot and quite obviously I’m going to have to change the channel in her room! Haha She’s always watched crime shows so I’d keep the tv on her shows. Looks like I’m putting on Nickelodeon,Law & Order SVU is out! I hate to ...

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Doctors, Doctors and More Doctors

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I don’t know if anyone else had such harrowing experiences dealing with healthcare for the chronically Ill with several serious illnesses at the same time. As i have a few days to think and re-assess my caregiving responsibilities I’m reflecting on the past few months. Did you ever want to drop-kick a doctor? Or perhaps the whole team? Did you ever look at the team of 12-year-old med students and think to yourself how can ...

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