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May 24, 2013 5:47 am

You are browsing the archive for Caring for Partners.

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Time to Use My Right Brain, Too!

May 23 2013 in , by Chris

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The other day I had a conversation with my friend Ben Azevedo who owns New Orleans Bow Ties. Our conversation was more than just about the making of beautiful Bow Ties; our conversation centered on the importance of having an equal balance in life. Ben recently graduated from Tulane Medical School in New Orleans and will be [...]

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Smooth Sailing

May 21 2013 in , by ejourneys

Relatively speaking, Monday’s follow-up MRI was a breeze, for which I am very thankful. We do not have a report yet, but the procedure and the travel both went well. Last year my partner had been in some distress (as reported in this entry). Among other things, she had trouble remaining still and had been [...]

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Presenting My Claim Ticket

May 1 2013 in , , by ejourneys

(From the Community Caregiving Journal 3-word prompt Martyr, Baggage, Claim.) The time was about 30 years ago, and I was in my mid-20s. I was living alone and self-sufficient for the first time, on my way toward getting a divorce. I had good friends and good neighbors, day job and freelance work. My mother had [...]

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The Week In Review

Apr 14 2013 in , by ejourneys

(From the Community Caregiving Journal 3-word prompt $#&!, Take, Shadow.) As she does frequently lately, my partner asked me what emotions I was feeling. I told her I felt very thankful that I had my eReader with me during her five hours of prep time prior to her 20-minute foot soak on Saturday. She told [...]

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“He’s MY Miracle Patient!”

Apr 1 2013 in by Chris

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Today as we visited Richard’s primary care physician for his quarterly check-up. This is no April Fools joke, reality before our eyes, a miracle in the works! After reviewing all the blood work, checking in on recent history with his health, then receiving updates from both of us she just uttered these words: “He Is [...]

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Caregiving and Those Silly Hats

Mar 6 2013 in by Chris

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I will be the first to admit that I have hit a dry spell recently in my writing. When chatting with other bloggers about this, I have learned that hitting a dry spell, or ‘The Wall’ as it has been described to me, is not uncommon. When you are a working family caregiver, there is often [...]

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Contact With the Firehouse

Feb 21 2013 in by ejourneys

Two vehicles were in front of the firehouse when I drove up at a bit after noon. I explained our situation to a firehouse captain and showed her my photos, which I left with her along with my contact information. She said no one from the firehouse can come to the house, but she will [...]

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Tuesday and Wednesday

Feb 20 2013 in , by ejourneys

Tuesday was errand day. My partner wanted to drive her truck, which she does about once a month. Her driving itself is still competent and, as I told the neuro, instinctual. How instinctual? She had grown up in California. She had built her first car from junk yard components when she was 15-16 and had [...]

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The Dilemma

Feb 18 2013 in , by ejourneys

This is a follow-up to “One Of Those Weekends.” First, thank you for your responses and concerns — and validation for how much this coil business bothers and worries me. Advance warning: This is a rant. And I am consciously using what my partner’s Therapist #2 referred to as “kitchen sinking” — i.e., throwing everything [...]

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One Of Those Weekends

Feb 17 2013 in , by ejourneys

This weekend started out quite differently. It started out cozy, with me reclining on the couch, under a comforter, reading. (I’m thankful that the couch has stayed clear of my partner’s encroaching clutter. The coffee table and surrounding floor space, not so much.) My partner, half a room away, lay on her preferred floor mat [...]

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Two Sides of the Coin

Feb 7 2013 in by ejourneys

G-J’s comment about sainthood on “Monitoring” started me thinking. Then Denise’s question about how we learn to live with the fear of loss during Wednesday’s “Hot Topics” show also dovetailed into my thought process. On an earlier podcast I said that I am an “optimistic fatalist,” which sounds oxymoronic. But it’s oxymoronic only if “optimistic” [...]

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Cribbed from an MSF Flyer

Feb 4 2013 in , by ejourneys

My partner and I arrived fashionably late to Saturday’s MS support group meeting. Not only was that okay, it was completely understood. She had needed to sleep — but once she was awake, she was rarin’ to go. I am thrilled that she likes this group and wants to go to meetings! We each got [...]

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Medical Line-Up!

Jan 29 2013 in by ejourneys

This entry is a follow-up to “Adventures in Self-Care.” First — I’ll get a printout of my blood work results in a day or two from the local collection center, but basically my numbers are golden. GP was very happy (me, too). The day after my eye exam next week, I’ll go a bit farther [...]

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Adventures in Self-Care

Jan 28 2013 in by ejourneys

My partner met me as I walked in the door, shortly before noon. She wanted me to make a separate recording of a telephone message that our answering machine had picked up. The incoming message had awakened her. She was suspicious, she said, because she had also heard voices outside the house, saying things like, [...]

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82: Who Would Have Known?

Jan 24 2013 in by Chris

Love is composed of a single soul inhabiting two bodies. ~ Aristotle Today, ‘The Little One’ turns 82! It is a feat to recognize considering we are now 16 months past the oncologist’s original  estimation of 3-4 months to live after the completion of his radiation and chemotherapy treatments in October of 2011.      We all [...]

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Cherish Every Day

Dec 25 2012 in by Chris

It is our hope that lets us withstand problems; It is our beliefs that let us find solutions. Yesterday is gone, We celebrate today, We hope for tomorrow! No matter how difficult your caregiving experience might be, Cherish every day. Your love and support inspires us!

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Blessings and Thanks

Dec 24 2012 in by ejourneys

Thank you all for being blessings in my life! Thank you for your wisdom, Your strength, Your kindness, Your patience, Your advocacy, Your perseverance, Your support, Your open hearts, Your nurturing souls, Your compassion, Your honesty, Your candor, Your presence, Your care. May we all have comfort, hope, and joy! Love and Hugs from ejourneys

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The Perfect Sunset

Dec 21 2012 in by Chris

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We Don’t Have Secrets: Secrets Have Us!  Many of you who have followed my blog over the past year or so  know that my blog is a heartfelt  account of my caregiving experience with my partner Richard Schiffer, otherwise known as ‘The Little One’.  Diagnosed with esophagus cancer in August of 2011, Richard was given three to four months to live [...]

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New Group — Unblocking Ourselves

Dec 12 2012 in , by ejourneys

I owe letters to people. Once upon a time at this time of year, my partner and I put together newsy annual letters complete with photographs and sent them to dozens of contacts. It was a tradition that I had kept since before we met. After we became a couple I did the initial drafting [...]

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A Great “Blind Date”

Dec 9 2012 in by ejourneys

My partner was out of sorts on Friday night — the night before our first attendance of the local MS support group. “It feels like a blind date,” she said. “Like someone else is picking my friends out for me.” I thought she meant me, and assured her that I wasn’t forcing her to go [...]

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What Is Best For Me, The Caregiver?

Dec 1 2012 in by Chris

While making Blueberry Pancakes  recently for ‘The Little One,’ I was reminded of a blog post that I wrote last year right after he completed his round of radiation and chemotherapy treatments. I wrote this post titled ‘The Tumor Extractor’ for just $19.99! This is one of my very first blog post  (which is copied [...]

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Full Circle

Nov 28 2012 in by ejourneys

First the good news — the podiatrist didn’t find an infection in my partner’s toe on Monday. We are back to soaking it in saline solution, still (well, again) twice a day. Also good: the big bruise on that toe from her kicking (a startle response reported in this entry) doesn’t seem to be serious. [...]

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