by Trish
Jun 12 2013 in Caring for Siblings, Trish's Blog by Trish
(This is reprinted from @Trish’s personal website www.robertssister.com) I have to break it to you: Co-Caregiving is not all roses, sunshine and success. Yep, there are bad days. On my good days, I will break down that bad day (or days) into moments and realize we had some bad moments. Of course, who wants to [...]
by Trish
Jun 5 2013 in Caring for Siblings, Trish's Blog by Trish
(Reprinted from Trish’s website www.robertssister.com) Our caregiving situation is not unusual. According to a 2009 study conducted by the National Alliance for Caregiving in collaboration with AARP, approximately one-third of caregivers care for two or more people. In our own situation, I am the primary caregiver for my brother, Robert, and Richard (@kreisler) is the [...]
by Trish
Jun 3 2013 in Caring for Siblings, Trish's Blog by Trish
(Reprinted from Trish’s personal website/blog www.robertssister.com) My husband (@kreisler) and I work pretty well as a team. We first blended our families together (me with my daughter and him with his daughter and son) and raised these three kids the best we could. They have all turned into productive citizens and wonderful human beings. Not [...]
by Trish
May 10 2013 in Caring for Siblings, Trish's Blog by Trish
It is sometimes difficult to believe in the goodness of the human race when there is such evil, violence and despicable acts splashed across most news sites. It can be difficult to see the goodness even for a Pollyanna like me, especially if I’m feeling under the weather – which I am due to a [...]
by Lycee
May 7 2013 in Caring for Siblings by Lycee
Today is a new day, and I am so thankful for the possibilities that exist! Some days I struggle with the caregiver role, even though I couldn’t live with myself if I didn’t “do what I can.” Today especially I want to give thanks for what I hope is a breakthrough. Last night I spoke [...]
by Trish
May 5 2013 in Caring for Siblings by Trish
I love the word “discombobulated.” (If I remember correctly, someone recently posted here about the same topic – it must be going around!) Just hearing the word conveys its meaning: confusion. The word bounces around your mouth as if in a state of confusion itself. Whenever I say it out loud it takes so long [...]
by Lycee
Apr 22 2013 in Caring for Siblings by Lycee
I hate to admit, but if I’m honest with myself, sometimes I feel trapped in my caregiver role. Like if I weren’t here, my sister and brother would have no one. And sometimes I do feel like I wish I could just move away and not care, especially when things seem the worst, and that [...]
by Trish
Apr 11 2013 in Caring for Siblings by Trish
“I was wondering if this would be too much for you.” Denise recently asked me this but she wasn’t referring to caring for Robert. She knows Richard and I can care for Robert and that bringing him into our home was the right decision for us. She was referring to an interview she asked me to [...]
by Lycee
Apr 8 2013 in Caring for Siblings by Lycee
(Editor’s Note: Today we welcome @alyceev to our blogging family.) Hi, my name is Lycee, and though I’ve been part of the caregiving community for years, I just found this out for myself today. I have been providing care for both of my siblings for quite some time, but never termed it as such until [...]
by Trish
Apr 1 2013 in Caring for Siblings by Trish
No more rationing how many nights Robert can sleep over; No more arranging doctor appointments not only around my schedule, work and when Robert is sleeping over but New Home schedule; No more worry if he is wearing clean pants every day (and a dry brief) or if I have to change him before bringing [...]
by Trish
Mar 28 2013 in Caring for Siblings by Trish
Medication dispense times per day: 7 Total number of pills to give per day: 25 Medications to keep filled on time: 9 The consequences of screwing this up: severe (increased and/or prolonged seizures, physically hurt from increased falls, increased memory and balance problems). Worst case scenario: I don’t even want to think about it. My [...]
by Trish
Mar 21 2013 in Caring for Siblings by Trish
My checklists have checklists (and that’s on a normal day). Preparing for Robert moving in? Let’s just say my checklists are having a tough time keeping up. Preparations are well under way and tasks are being crossed off the list at pretty good clip! I started the move prep by creating a checklist (shocker). I [...]
by Trish
Mar 16 2013 in Caring for Siblings by Trish
On Tuesday, I announce that Robert is going to live with us starting in April. On Wednesday, the Wonderful New Home House Manager calls to tell me Robert is not feeling well and wanted to stay at New Home instead of going to Day Program. Robert has had a cold/flu all winter and has periodically [...]
by Trish
Mar 12 2013 in Caring for Siblings by Trish
by Trish
Jan 28 2013 in Caring for Siblings by Trish
by Trish
Jan 12 2013 in Trish's Blog, Your Caregiving Journey by Trish
As a Legal Administrator (manager of a mid-size law firm), I have had many situations in which I have had to keep a cool head: firm closures, office moves and lay-offs as well as the routine tasks of preparing the annual budget, conducting reviews and hiring or terminating employees. Panic, freaking out, emotional breakdowns (by [...]
by Trish
Dec 19 2012 in Caring for Siblings by Trish
by Trish
Oct 31 2012 in Trish's Blog by Trish
by Trish
Oct 27 2012 in Trish's Blog by Trish
Affected by Epilepsy? I want to know your story. Everyone has a story and in honor of November Epilepsy Awareness Month, I want to help you tell it. (November is also National Family Caregivers Month and Denise has some exciting events planned). What Robert’s Sister will be doing in November is posting interviews of people who [...]
by Trish
Oct 9 2012 in Trish's Blog by Trish
I debated about posting this here but then realized, we all deal with grief eventually (sometimes unexpectedly) and thought it might be helpful. Even though I’m not a member of AfterGiving, it may even be an appropriate post for that section. I’ll let Denise be the judge of that. This past week was rough. When [...]
by Trish
Sep 30 2012 in Trish's Blog by Trish
by Trish
Sep 24 2012 in Trish's Blog by Trish
I had an amazing vacation (and can’t thank Other Brother enough for his help in “underwriting” this trip). If only I could have brought back one of these delicious and artful gelatos for all of you! (Who am I kidding – I wouldn’t have because this deliciousness was too wonderful!). I did miss everyone though! [...]
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