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Climbing Everest for Family Caregivers

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By Kuntal Joisher Growing up not too far from the Himalayas, climbing Everest has always been a dream of mine. But, it wasn’t until five years ago that I decided to pursue the challenge and begin training for the journey of a lifetime. As expected, the physical training has been anything but easy. However, the emotional toll I have taken during this time often feels infinitely harder than climbing any mountain peak. Almost seven years ... Read More »

Because You Care, Wear Green Today

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I continue to think more about the loneliness and isolation that can be common when you care for a family member or friend. Wouldn’t it be great if you could somehow spot another family caregiver in the crowd? So, let’s try it. Today, wear green to bring awareness to the family caregiver experience. Use your green as a conversation starter. If you see a colleague or stranger or co-worker wearing green on April 11, strike ... Read More »

Health Care Happens in the Family; Let’s Tally Your Caregiving Years

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We think of the health care system as compromising hospitals, outpatient facilities, doctors, rehabilitation services. Sure, these are part of the health care system. Health care, though, happens in the family. Hospitals, outpatient facilities, doctors and rehab services provide once-in-awhile care. Family members, like you, provide all-the-time care, day and night, day after day. You change wounds, dispense medications, monitor health, provide activities, prepare special meals, keep health care professionals up-to-date, research options, advocate for ... Read More »

Because You Care, Wear Green on April 11

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I continue to think more about the loneliness and isolation that can be common when you care for a family member or friend. Wouldn’t it be great if you could somehow spot another family caregiver in the crowd? So, let’s try it. On Friday, April 11, wear green to bring awareness to the family caregiver experience. Use your green as a conversation starter. If you see a colleague or stranger or co-worker wearing green on ... Read More »

Video Chat: Caring for Mum

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During this video chat, Martyn ( @zkidookreativ ) joins me to talk about caring for his mum and how he uses social media to help other family caregivers. Related Articles Friday Video Chat: What If Employers Offered a Caregiving Leave? (caregiving.com) Video Chat: How Do We Define a Primary Family Caregiver? (caregiving.com) Vidoe Chat: Caregiving Then and Now (caregiving.com) Read More »

Tell Us: When Have You Deferred on a Doctor’s Recommendation?

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Recently, during one of our member chats, we discussed a doctor’s recommendation that you knew was not right for your caree. You may have understood the reason for the doctor’s recommendation and you knew you had a better solution. Which leads to quandary: Follow the doctor’s advice or follow your gut. So, I’m curious: When has a doctor made a recommendation that you knew wouldn’t work but you followed anyway? Or, when did a doctor ... Read More »

On November 8, Let’s Disrupt on Twitter

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You are a disruptor. Typically, disruption takes place from technology. I believe technology will impact our health care industry. It’s a group of individuals–like you–who will transform it. Because of your role in your caree’s care, you disrupt the health care system because you become the provider. You are as valuable in the health care industry as the doctors and nurses, as the hospitals, home care agencies, long-term care facilities. You provide a great value ... Read More »

Thank You And Our Winners

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This past week, we celebrated CareGiving.com’s 17th birthday. We also disrupted–by taking action to impact others, ourselves and each other. Thank you all for such a special week. I loved all your comments and tweets and Facebook posts and stories and risks. You made this week incredibly special. Here’s what our week looked like: –On Sunday, we disrupted by inviting others to join in our birthday celebration; –On Monday, we honored your carees by sharing ... Read More »

Birthday Celebration: Take a Risk

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating and breaking to disrupt our destiny by taking a risk. It could be a little risk or a giant one. It could be saying “hello” to a stranger or confiding in a trusted source what’s been weighing on your heart for way too ... Read More »

Birthday Celebration: Tell Your Story on Twitter

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating and breaking to disrupt on Twitter by sharing your caregiving stories; use this hashtag: #icare. You can share your story in several tweets, which could look like this: I began caring for my grandmother 10 years ago when she was diagnosed with cancer. ... Read More »

Birthday Celebration: Give Thanks for Family Caregivers

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating on Facebook by sharing a gratitude for family caregivers. Whenever you can today, share an update on your Facebook page that expresses thanks for all family caregivers. Your update could look like this: I care for my (insert information about your caree). It’s ... Read More »

Birthday Celebration: Forgive

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re breaking to disrupt our life with forgiveness. I think we all carry a regret or a shame. Maybe it’s not something we think about every day or every week, but once in awhile, the memory comes up. And, we can feel that memory begin ... Read More »

Birthday Celebration: Have Fun

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. Today, we’re celebrating by taking time to have fun. At some point today, do something fun, even if for only five minutes. You could take a break to play a game, enjoy your backyard, listen to your favorite music. However you define fun, take time today to enjoy it. Then, share how you had fun in ... Read More »

Birthday Celebration: Today, Honor Your Caree with a Story

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. Today, we’re celebrating in honor of your carees by sharing a favorite memory or story. What’s the memory of your caree, during good health, that you treasure the most? What’s your favorite story about your caree? What memory of your caree will you hold dear for years to come? Share your memory and stories in our ... Read More »

Birthday Celebration: Today, Invite Others to Join Us

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. Today, for a chance to win one of our daily prizes and one of our grand prizes, invite others to join in our birthday celebration. Some ways to spread the word: 1. Share our birthday quote box (like the one in this post) from our Facebook fan page to your Facebook page. 2. Tweet about our ... Read More »

When Have You Disrupted?

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You are a disruptor. Typically, disruption takes place from technology. I believe technology will impact our health care industry. It’s a group of individuals–like you–who will transform it. Because of your role in your caree’s care, you disrupt the health care system because you become the provider. You are as valuable in the health care industry as the doctors and nurses, as the hospitals, home care agencies, long-term care facilities. You provide a great value ... Read More »

A Revised ID Badge for You (Now and After)

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A few weeks ago, I wrote about an ID badge created by @ejourneys (EJ) that you can wear during your caree’s doctor’s appointments, care meetings and hospitalizations. The ID badge recognizes you as a critical member of your caree’s care team. Unfortunately, Larry (@kc9hdp) ran into problems wearing his badge to his mom’s doctor’s appointments. Because the badge includes your caree’s name, staff at the doctor’s office felt it violated HIPAA regulations. So, I’ve asked ... Read More »

An ID Badge Just for You

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On Saturday, we had our first chat for men in a caregiving role. Richard (@kreisler) and Chris (@thpurplejacket) joined for a really interesting discussion. At one point, I asked Richard if health care professionals often overlook his role as his mom’s family caregiver. Yep, he said. So, @ejourneys, who lurked during our chat (lurking means you’re simply reading the content of an online conversation), got to thinking. And, her thinking led to the creation of ... Read More »

Today: Richard and I on HuffPostLive

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This afternoon, Richard (@kreisler) and I appeared on HuffPostLive to talk about the future of eldercare. You can watch our appearance here. What do you think? How would you answer the questions asked during the discussion? Related articles The Future of Caregiving: A Community Care Squad? (caregiving.com) End-of-Life Conversations Even After Life (caregiving.com) The Future of Caregiving: A Designated Family Caregiver? (caregiving.com) Finding Your Fit with a Career and Caregiving (caregiving.com) Family Care Manager as ... Read More »

When Have You Staged a Caregiving Sit-In?

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Last night during our new member chat last night, @Kathy told us that she had staged a sit-in yesterday at Hubby’s doctor’s office. Which led @ejourneys to share when she had a sit-in. Where there’s two sit-ins, there’s more. So, I’d love to know: When have you staged a sit-in? It could a sit-in like Kathy’s and ejourneys, which involves a visit to the doctor’s office, a request to see the doctor and then taking ... Read More »

New Reports Explore Your Health Care Role

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The National Center on Caregiving at Family Caregiver Alliance has released two new reports that shine a light on the important roles of family caregivers in U.S. healthcare-and how those caregivers are often unrecognized and unsupported within medical and long-term service systems. Family Caregiving and Transitional Care: A Critical Review is an examination of the often ignored–yet absolutely essential–role of caregiving families as patients transition from one healthcare setting to another, for example discharge from ... Read More »

You Can’t Wait 10 Years

Because of your daily impact, you make waves in our health care system, our corporate culture and our community programs.

This afternoon, I watched an online discussion about The Caregiver Crisis sponsored by TEDMED Great Challenges. The event featured four experts sharing their thoughts about the challenges and problems in the caregiving experience. You can watch the video of the event below. During the discussion, Alan Blaustein, founder, CarePlanners, said that he believes that the solutions around caregiving, particularly those involving work and caregiving, will take ten years to resolve. His comment about ten years ... Read More »