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What Do You Think?

After the Diagnosis, What Did You Need?

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We’re in the process of creating a product and perhaps a program to help family caregivers new to caregiving because of their caree’s recent hospitalization or diagnosis. In order to develop the most effective material, we’d love to know about your experiences. Please feel free to share your answers to any or all of these questions in our comments section below: 1. What type of support from doctors, hospital staff or other health care professionals ... Read More »

You’re the CEO: How Would You Help Family Caregivers?

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On Wednesday, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You are the CEO of a Fortune 500 company. How ... Read More »

You’re the Researcher. How Do You Spend Research Dollars?

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Yesterday, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You run the National Institutes of Health. How would you spend ... Read More »

You’re the Mayor. How Do You Help Family Caregivers?

When you announce your caregiving initiatives, you'll stand behind a podium like this one.

Today, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You are mayor of your town or city. How would you ... Read More »

What’s Your Advice? Amy Says Stay

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You may know Dear Amy–she writes an advice column which appears in many newspapers across the country. Her column appears in my daily copy of Chicago Tribune. Amy regularly answers questions relating to caregiving and does so again today. “Bothered Boyfriend” asks for advice about, and on behalf of, his girlfriend, who helps her elderly mom. BB writes: “She has to purchase food and supplies for her almost on a daily basis. Her mom is ... Read More »

$153,000,000 for 600,000?

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As you know, I’m working to get the word out on our volunteer initiative; we’re recruiting former family caregivers to volunteer to help today’s family caregivers. We’ve got a press release, here, which G-J and Bette have been helping to distribute. (Wanna help, too? Send me an email and I’ll send you the details.) In the press release, I explain how hard it can be to find help. To prove my point, I checked out ... Read More »

When It’s Just You and Your Caree, How Do You Celebrate a Holiday?

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Tammy, one of our Facebook fans, posed a question on our page: As usual, no one will be up for Thanksgiving. Any ideas on how to make it seem like an actual holiday for my folks? It’s the same with Christmas, Easter, Fourth of July. What do you suggest? When it’s just you and your caree, how do you celebrate a holiday so it feels like a holiday? Please share your thoughts and suggestions in ... Read More »

Does Sharing Make You a Better Caregiver?

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On Saturday, Jennifer, who cares for her husband, Paul, joined me for Table Talk. You can listen to our show via the player at the bottom of the post. During our conversation, Jennifer spoke about the feeling of camaraderie she feels from reading and sharing with fellow family caregivers. Her comments, as well as a recent post from Kristin, gave me a deeper insight about the power of sharing about a difficult life experience. Both ... Read More »

A Film About Alzheimer’s

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Jo shared this video with me, which won Best Short Film of the Year – 2007 YouTube Awards. What do you think about the film? And, what kinds of films you would like to see about caregiving? Please share in our comments section, below. Read More »

Do They Know Your Name?

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Carol Levine, a former family caregiver, wrote an opinion piece yesterday called “Health Care Typecasting—”Nobody Knows My Name!”. She writes: I’ve been professionally and personally involved in caregiving for the past 20 years. In that time many family members have told me, “I’m invisible in the hospital/nursing home/rehab facility.” “Invisible,” that is, until it’s time for discharge, payment, or major decisions. Then the family member morphs into someone with a name, except it’s not a ... Read More »

When Your Caree Is Just Mean, What Do You Do?

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Over the past two days, two visitors have asked for our help. Here’s what they said: 1. “What if your recipient does not have Alzheimers?? What if Grama is just spoiled and mean and spiteful to you and other family members. How do we handle this? She is 92. Sharp as a tack..Has all her marbles. She has been spoiled all her life. Was spoiled by our grandfather. Never worked a day in her life. ... Read More »

When We Age, Do We Evolve from Doing to Just Being?

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The New York Times New Old Blog featured an interview yesterday with Lars Tornstam, a Swedish sociologist. Dr. Tornstam provides a glimpse into life at eighty, reports Paula Span: An increased need for solitude, and for the company of only a few intimates, is one of the traits Dr. Tornstam attributes to this continuing maturation. So that elderly mother isn’t deteriorating, necessarily — she’s evolving. Dr. Tornstam’s theory of gerotranscendence also includes an explanation for ... Read More »

What Are Your Questions for an Alzheimer’s Researcher?

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If you could ask an Alzheimer’s researcher anything, what would you ask? Well, now you get the chance! We’ve been offered the opportunity to send seven questions to an Alzheimer’s researcher, who will then send back his answers for us to share on Caregiving.com. The researcher is Dr. Michael Rafii, MD, PhD, co-director of the Memory Disorders Clinic at UCSD Perlman Ambulatory Care Center in La Jolla, Calif., and Assistant Professor of Neurosciences at the ... Read More »

Take a Short Survey for a $10 Barnes & Noble Gift Card

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Evantage Consulting is conducting an independent research with family caregivers to understand how you manage your caree’s health records and to evaluate if the existing online tools meet your needs effectively. The company has a created a 15-question survey to capture your experiences. The questionnaire asks how you organize and manage your caree’s medical appointments and health records. In appreciation for completing the survey, you’ll receive a $10 Barnes and Noble gift card. You can ... Read More »

A SOS for SSS Sufferers

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Jeana Lee Tahnk wrote in her Huffington Post blog this week about Self-Sufficiency Syndrome, “an inability and unwillingness to ask for help or delegate because of the belief that no one can do it as well as you can.” It seems Self-Sufficiency Syndrome (SSS) starts off innocently enough. We do, and do it alone, because we net compliments, career advancement and others’ admiration. In other words, doing it all helps us succeed. Doing it all ... Read More »

A Different Kind of iPod

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Every once in awhile I see a quote that is too good to not share. Here’s one I read yesterday: “Is it a good idea to throw people into a storage container and put them in your back yard?” said Fairfax County Supervisor Jeff C. McKay (D-Lee). “This is the granny pod. What’s next? The college dropout pod?” Mr. McKay shared his thoughts in a recent Washington Post article about a new product called MEDCottage, ... Read More »

What Do You Think? My Grandmother Complains Constantly

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(Editor’s Note: A few weeks ago, we launched a new section on the site, “What Do You Think?” In the section, you can ask for suggestions and advice from other family caregivers. Today, a family caregiver to his grandmother would like your input on his situation. Would you like to post your story in order to get suggestions and advice? Simply send an email to Denise.) I’m my grandmother’s caregiver, and I can tell that I’m reaching a ... Read More »

What Do You Suggest? Her Mom Can’t Swallow Her Food

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(Editor’s Note: A visitor just sent us a request for your suggestions. Feel free to share your thoughts and ideas in our comments section. Her note to us follows.) My mother-in-law has entered a stage where she won’t swallow her food. Usually she eats well in the mornings but by lunch and supper she can’t swallow no matter what food we offer. Does anyone have any suggestions? Wondering how long this can last before it ... Read More »