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After the Diagnosis, What Did You Need?

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We’re in the process of creating a product and perhaps a program to help family caregivers new to caregiving because of their caree’s recent hospitalization or diagnosis. In order to develop the most effective material, we’d love to know about your experiences. Please feel free to share your answers to any or all of these questions in our comments section below: 1. What type of support from doctors, hospital staff or other health care professionals ...

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You’re the CEO: How Would You Help Family Caregivers?

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On Wednesday, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You are the CEO of a Fortune 500 company. How ...

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You’re the Researcher. How Do You Spend Research Dollars?

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Yesterday, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You run the National Institutes of Health. How would you spend ...

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You’re the Mayor. How Do You Help Family Caregivers?

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Today, I moderated the bi-monthly chat on Twitter I co-sponsor with Michelle Seitzer (@seniors4living). Our discussion focused on a variation of this question: How can the government, corporations and researchers help family caregivers? Over the next few days, I’ll pose the questions to you that I asked during our chat. I’d love to know your thoughts and insights. So, for today, here’s your question: You are mayor of your town or city. How would you ...

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What’s Your Advice? Amy Says Stay

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You may know Dear Amy–she writes an advice column which appears in many newspapers across the country. Her column appears in my daily copy of Chicago Tribune. Amy regularly answers questions relating to caregiving and does so again today. “Bothered Boyfriend” asks for advice about, and on behalf of, his girlfriend, who helps her elderly mom. BB writes: “She has to purchase food and supplies for her almost on a daily basis. Her mom is ...

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$153,000,000 for 600,000?

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As you know, I’m working to get the word out on our volunteer initiative; we’re recruiting former family caregivers to volunteer to help today’s family caregivers. We’ve got a press release, here, which G-J and Bette have been helping to distribute. (Wanna help, too? Send me an email and I’ll send you the details.) In the press release, I explain how hard it can be to find help. To prove my point, I checked out ...

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When It’s Just You and Your Caree, How Do You Celebrate a Holiday?

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Tammy, one of our Facebook fans, posed a question on our page: As usual, no one will be up for Thanksgiving. Any ideas on how to make it seem like an actual holiday for my folks? It’s the same with Christmas, Easter, Fourth of July. What do you suggest? When it’s just you and your caree, how do you celebrate a holiday so it feels like a holiday? Please share your thoughts and suggestions in ...

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Does Sharing Make You a Better Caregiver?

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On Saturday, Jennifer, who cares for her husband, Paul, joined me for Table Talk. You can listen to our show via the player at the bottom of the post. During our conversation, Jennifer spoke about the feeling of camaraderie she feels from reading and sharing with fellow family caregivers. Her comments, as well as a recent post from Kristin, gave me a deeper insight about the power of sharing about a difficult life experience. Both ...

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Do They Know Your Name?

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Carol Levine, a former family caregiver, wrote an opinion piece yesterday called “Health Care Typecasting—”Nobody Knows My Name!”. She writes: I’ve been professionally and personally involved in caregiving for the past 20 years. In that time many family members have told me, “I’m invisible in the hospital/nursing home/rehab facility.” “Invisible,” that is, until it’s time for discharge, payment, or major decisions. Then the family member morphs into someone with a name, except it’s not a ...

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