As I posted in November 2011, I told my then husband and the person who I took care of the past six years, that I couldn’t be married anymore, and I couldn’t take care of him anymore. As of November 18, 2011 we were separated and he moved out. Feb 3, 2012, our divorce was [...]

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I have been unhappy for a long time. I have been pushed away, put down, ignored, turned down, disrespected, and giving all I have, but given nothing back. No appreciation and so much more. I have cared for my husband since 2005, been married since 2001. I gave my all, and gave my heart, but [...]

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Tuesday night when I called my mom, my Dad was in ICU on a strong dose of the nitro patch. He was doing better—BP had come down and his pain was subsiding, heart attack was stopped. They were going to do a stress test Wednesday to see if he can be stepped down from the [...]

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My Mom called me yesterday about 3:15 my time/central time. She and my dad live in Toas, New Mexico, up in the mountains, so they are an hour behind me. She took my dad to the Toas local hospital and he had a full blown heart attack. They life flighted him to Albuquerque, New Mexico’s [...]

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My husband’s appeals court disability judge decision came on paper, the medical records and exams, CT Scans and MRI’s, show more than I ever knew or the disability evaluation doctors never shared for me to know. Claimant has the following disabilities/diseases: Thoracic Spina Bifida-post repair, hydrcepholus – status post – ventriculo peritoneal shunt chronic headaches [...]

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I really need to bounce back and get my energy back, and my body needs to stop betraying me, I don’t have time to be ill and not have my organs functioning properly. I am so exhausted and feel like I have no energy. Got out of the hospital Aug 5th. Doc  wasted my time [...]

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Chuck and I have been fighting since 2007 for SSD, and I got the call from the lawyer on Aug 2nd that my husband was approved. We had been denied 3 times, we were waiting to go to an appeals judge, and that was the last step in the road. Lawyer said sometimes they can [...]

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I was at the ER on Wed evening and was admitted about 2:15 a.m. on Thursday; I have bleeding in my small intestines/ lower GI. Colonoscopy today, I have Hydronephrosis of my right kidney, and a spot on my liver that showed up on the CT Scan. My liver enzymes on my blood work are [...]

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Please say some prayers that our family can get through this next month, meaning the rest of July and into the middle of August. My last paycheck for my current job is tomorrow, and my salary is considerably deducted because of HR not asking if I wanted insurance premiums taken out, they just did it [...]

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I have been working at my current company for 4 and a half years. I work in Oil and Gas as a senior cartographer/drafter for offshore Oil Drilling in the Gulf of Mexico and offshore Africa, and other over seas work. I interviewed with Shell Oil Company on June 28th for a position in their [...]

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Thank you all for being such wonderful and caring friends. I haven’t been able to get on here much, or even catch up on all the blogs posted, but I hope things calm down soon, and I can come in to say hello. Just so you know, I am thinking of everyone. (((hugs)))

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Chuck and I met on June 17, 2001, and will be married 10 years on Dec 21, 2011. We never had a wedding, just did the justice of the peace at the courthouse. Neither set of parents could make it either, so we Renewed our Vows and had a small wedding on Saturday, June 18, [...]

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So…….ya ready for this? I am sure it will seem like I am just over reacting, but this is how I feel, or how this situation makes me feel. Apparently – I am incapable of “relaxing” or “chilling out” according to Ill Husband. I try to work on it, but it seems it is impossible? [...]

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My little Princess, Amber Renee, is seven years old today! I was 21 yrs old in June 2004, and had just come home from the Air Force in Sept 2003. I didn’t know I was pregnant with our second child/first girl till January 2004. My body was still in shock from the physical demands of [...]

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Went upstairs last night after coming home from work. Husband was not in his usual spot downstairs and the kids were at their stations either coloring or making a craft. After saying hello to the kids, I go upstairs and find hubby in the bath tub, tried to initiate some type of intimacy, but he [...]

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Nine years ago today I was 19-years-old, Chuck was 25 -years-old and he had not become ill/disabled yet. We had been married just a few days shy of six months. I gave birth to and we became parents to our very first child, our only boy, Dylan Alexander I was a senior in high school [...]

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There’s a Mom, who everyone knows, her kids are her life. She strives to give them the most normal childhood possible, but Daddy’s always sick and they never understand why, Mommy works all the time, and is always tired, the kids always hear: “No we can’t do this,” “Not this time, but I will make [...]

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As you have read, I’m a spousal caregiver to my husband. However, in September of 2010, I found out that my three children have Celiac Disease. My son was in 3rd Grade, my Daughter in 1st, and my youngest daughter starting her first year in pre-school. Celiac Disease is an allergy to gluten, so anything [...]

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I wrote this for people to read when they don’t bother to think about the lives of spousal caregivers, or those who care for their sick loved ones. Think about this: “You don’t look sick” answer: “No, I don’t, maybe not to you” It’s hard to explain to someone when they have no clue. It’s [...]

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When we applied for my husbands disability in late 2007, no one ever contacted us. (Online portion wasn’t submitted, like it was supposed to be, their fault). So I filled everything out again in mid 2009; we weren’t contacted till January 2010. He goes for the SS Doctor evaluation in February 2010, and he falls [...]

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Hello My Fellow Caregivers, I’m Debbie, I’m 28-years-old and my husband, Chuck, is 34. We married in December 2001 and he became ill in 2005. He was born with Hydrocephalus and Spina Bifida in March 1977, which are brain and spine birth defects. Hydro is fluid around the brain; in his case, it was due [...]

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