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  1. Jane

    PH Awareness Day

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    10
    | Jane's Blog
    July 8, 2011
    Today was PH (pulmonary hypertension) Awareness Day. I asked my facebook friends to wear purple today in honor of my daughter, Nicole, who has this disease. In the caregiving class last night Denise asked me to take a picture of myself (don’t like my picture taken) wearing my PHAssociation t-shirt....
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  2. Jane

    Update on Post on Feelings…

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    6
    | Jane's Blog
    July 6, 2011
    Thank you all for the wonderful responses of my post the other day regarding Rick’s cousin Deb. I did tell her that I agree with her that Nicole does need exercise but going to the mall and walking around is too much exercise for her. She said, “I know she...
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  3. Jane

    Feelings of….

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    8
    | Jane's Blog
    July 4, 2011
    I have feelings but not sure how to categorize or say what they are.Rick’s (my hubby) cousin is visiting from Michigan. Rick and Deb should be siblings and not cousins. They are very close and she comes down at least three times a year and stays with us. I think...
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  4. Jane

    Exciting News for Me

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    9
    | Jane's Blog
    July 1, 2011
    I belong to a PH group on facebook. A group (PHAmerica Honors) whose mission is “to implement new and exciting news to reach others with information about PH. And, to give PH patients, caregivers and their families opportunities for positivity” posted about their writing contest that picks who will be...
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  5. Jane

    Talked to Doctor

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    1
    | Jane's Blog
    July 1, 2011
    This I posted on facebook: Well, I talked to the doctor this afternoon. I knew that the nurse was going to make him call me or she would have called me back. Nicole is definitely anemic. She will be taking iron supplements until further notice and the hope is she...
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  6. Jane

    Frustration…

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    Comment
    | Jane's Blog
    July 1, 2011
    I posted this on Facebook yesterday. It seems like this is the emotion that I feel the most these days. Nicole had her July blood work on Tuesday. Yes, I know July doesn’t start until tomorrow but I wanted to get her started on iron in case she turned out...
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  7. Jane

    Hard Choices…

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    7
    | Jane's Blog
    June 28, 2011
    I had to make a hard choice today and it was also Nicole’s choice. Nicole has volunteered, once a month, in a teen program at our local zoo since she was 13 years old. Today, I had to write an email to the coordinator of the program that Nicole would...
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  8. Jane

    Question Regarding Caregiving Class

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    2
    | Jane's Blog
    June 22, 2011
    I don’t know if this should be an open question. It might be only for Denise. I am reading the Stage I handout for the class tomorrow night. I see that there’s free download form from elder industry. Even though I’m a caregiver it isn’t for a parent at this...
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  9. Jane

    Something I’ve Been Thinking About…

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    8
    | Jane's Blog
    June 19, 2011
    I had thought about this awhile back but when I heard G-J on Table Talk I started thinking about it again. Nicole has always wanted to see Alaska and I feel she would probably live there if it was so far away from Florida. Anyhow, there’s an organization called Make-A-Wish...
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  10. Jane

    Blood Tests

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    6
    | Jane's Blog
    June 16, 2011
    I had been waiting on a call from Nicole’s cardiologist office regarding her blood levels being low. Her doctor there relocated to California in May as he wife got a job out there. ( There are two other doctors in the practice and Dr. Appleton had referred her to the...
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  11. Jane

    Organizational Skills…

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    11
    | Jane's Blog
    June 15, 2011
    I was reading the blog Bette did on her journal for the family and caregivers that would be attending to her mom while she goes away. I was just responding to it on her blog but thought why not just write a blog on it myself. Bette, I love your...
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  12. Jane

    I Feel So Bad…

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    5
    | Jane's Blog
    June 13, 2011
    Yesterday, was our annual end of the year homeschool celebration. We were riding with another family and was going to be picked up about 1:15 p.m. so I planned Nicole’s medication schedule according to this. She took her second dose of Tyvaso at 1:00 p.m. I thought she was feeling...
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  13. Jane

    Why Can’t Anything Come Easily?

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    1
    | Jane's Blog
    June 13, 2011
    It just seems like nothing in my life comes easily and I have to fight for every little thing for the most part. My husband called on Saturday to report my debit card lost. I called the bank today to confirm this and to find out if he can use...
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  14. Jane

    What a Week ….

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    10
    | Jane's Blog
    June 11, 2011
    What a week it has been…. I know it could be worse, always could be worse. The week started off frustrating. We have really known for a while that we would have to file bankruptcy after my husband was laid off. I have asked him and asked him to find...
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  15. Jane

    Worried…

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    17
    | Jane's Blog
    June 8, 2011
    Well, yesterday I was frustrated and today I am worried… hopefully, tomorrow it will be a better emotion. I got the results of Nicole’s monthly blood work and her platelet count (this is what makes your blood clot so you don’t bleed to death from a cut) is just a...
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  16. Jane

    Frustration….

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    14
    | Jane's Blog
    June 7, 2011
    I am going to really vent this morning. I am so frustrated. First, let me say how much I love my family because it may not sound like I do. ) We have to file bankruptcy because we have a couple of debts we can’t pay and haven’t for six...
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  17. Jane

    Interview

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    8
    | Jane's Blog
    June 5, 2011
    Just wanted to post an update on my phone interview on Friday evening regarding becoming a peer mentor for one of the medications that Nicole takes. It was 1 1/2 hours long and I was asked a lot of questions and asked a little about Nicole’s illness and story. As...
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  18. Jane

    A New Chapter in my Life????

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    11
    | Jane's Blog
    June 2, 2011
    My life and the life of my family changed forever on January 22, 2010 with Nicole’s diagnosis. Prior to this, I didn’t know what my purpose was or what I was called to do. I believe that my purpose is to be an advocate and voice for Nicole and for...
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  19. Jane

    Nicole’s Writing Assignment

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    2
    | Jane's Blog
    May 28, 2011
    Nicole had to do a short essay called a character sketch for school that has to be sent in to the accredited school that Nicole does her curriculum through. She had to pick someone she knew and do a character sketch. She wanted to do it on one of our...
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  20. Jane

    A New Normal

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    6
    | Jane's Blog
    May 24, 2011
    I will be finishing a wonderful Bible study this week by Priscilla Shirer called Jonah. I have really learned a lot during this study. Priscilla mentioned during one of the video sessions about a book by Carol Kent called A New Kind of Normal. I went to the library and...
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  21. Jane

    Thank You

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    11
    | Jane's Blog
    May 10, 2011
    I just wanted to take a moment to express my gratitude to Denise for choosing me as the CareGifters recipient this month. I believe that this was another sign from God that I am following His will and not my own. I have had a very hard time the last...
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  22. Jane

    My Mother’s Day

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    9
    | Jane's Blog
    May 8, 2011
    I’m not big on Mother’s Day. It’s just another holiday that the retailer’s try to make money. I know this is a bad attitude. I think that you should show your mom everyday how wonderful she is. My mom is gone so the day is always a little hard even...
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