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Denise's Blog
Author:
denise
Blog URL:
http://www.caregiving.com/blogs/denise
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caregiving
Description:
Denise hopes her blog feels like a warm hug, a helpful smile and an encouraging nudge. She writes words of comfort, insight and hope. (And, once in awhile, she'll give you an update about the site.) And, keep up-to-date on the new articles and features on Caregiving.com with Twitter: http://www.twitter.com/caregiving. You can purchase Denise's book, Take Comfort, by visiting here: http://store.lulu.com/caregiving.
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Trust
OFFLINE
You may have found, the hard way, that when making decisions and taking on responsibilities, it seems that you really can only trust yourself.
 
The time will come, though, when you will have to trust others, either to step in and provide temporary care or to step in and provide long-term care.
 
Wow—trusting someone (or some facility) to do what you do can be absolutely terrifying.
 
Part of the trusting process means facing your fears. Verbalize those fears to your support system. Talking about those fears, no matter how small, can help you gain confidence in the decision to trust. You also can eliminate any fears, which when verbalized, show themselves to be unrealistic. And, once you’ve verbalized your fears, you can take steps to prevent those fears from becoming realities. For every Plan A, have a Plan B. And, for every new fear, communicate your worries and concerns.
 
You do make good and wise decisions. Trust yourself that your sound and well-researched decisions mean you can trust.
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Gift
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That you can love is a true gift.

Loving is the miracle of living.

Give your gift of love wisely, to those who treasure and appreciate it. Love, given and received between the right people, is the power of life.

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Share
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Sharing is an interesting concept because its one action nets so many positive returns.

Consider:
 
When you share your responsibilities, you open up your world and the world of your care recipient. Whether you share responsibilities with families, friends, or professionals (home health aides, financial planners, geriatric care managers, adult day center and nursing home staff), you afford yourself opportunities to step outside your role and gain healthy perspectives. And, you allow your care recipient opportunities to socialize and interact with others.
 
When you share your story, you unload some of your worries and concerns, whether you share your story to your best friend or your private journal. And, when you share your story, you set the stage for forgiveness and good will to grow in your heart and in your life.
 
When you share your gifts (and you have many), you bring a dimension to your community that fosters tolerance, diversity and wisdom. Your insights into what life is all about (insights gained in part from your caregiving role) amplify the beauty of your gifts. And, that beauty is meant to be enjoyed by all.
 
Consider this: Not sharing (keeping it all in) is just like carrying your care recipient on your back; you’ll always break under the strain of the weight.
 
Share. And welcome the results as a well-deserved pay-off for all your good work.
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Big
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I had a friend who married a man who bragged about his big house. To him, a big house made him a big man.

In our society, my friend’s husband isn’t the only one who measures bigness by the size of material possessions. Because of your caregiving role, you may feel that you’ve sacrificed one material possession after another, perhaps to the extent that you feel you have very little. The savings account for the summer house by the lake paid for the ramp over the front stairs of the house. The long-planned European vacation is long forgotten; now, any extra money will pay for a future bathroom remodel. Your closet, once full of the latest fashions, holds only clothes of comfort—jeans, t-shirts, sweat pants.

Some may wonder how you live without the summer house, the European vacation, the latest fashions.

In truth, our heart and our courage make us big. Our bigness can be measured not by our big possessions but by our big acts.

Someone needed care. You stepped up to the plate. You took on a big responsibility.

What you’ve replaced with your caregiving role--by being an advocate, a caregiver, an inspiration--will always dwarf the largest mansion, the sleekest car, the grandest jewelry.

Because you care, you are big.

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Merry
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Merry
 
During the holiday, we are told to Make Merry or Be Merry. We are wished a Merry Christmas.

Can we really have Merry in our life?

Yes. You actually already do. You have Merry when you hold your care recipient's hand, when you share a smile with a loved one, when you let peace live in your heart.

Merry is about transcending a care recipient's disease process, honoring what you love, and staying with forgiveness.  

You have Merry. Pass it on.
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An Advisory Board Puts It In Perspective
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Sometimes, you may feel like you run your own capitalistic empire; just like in the workplace, you supervise (schedules, home care workers, appointments), you create and implement budgets (sometimes for two households), you cope with uncooperative underlings (really, your siblings). The only difference between you and a corporation? A corporation has an advisory board--a system of support that backs it up. 

   As a caregiver how can you recruit your own advisory board? Some ideas on individuals who would make great board members:

1. Your spouse. Okay, I know, sometimes, it's hard to give such power to someone who lives in the same house as you, who may not like how much time your caregiving role takes. But, your spouse is someone who observes first-hand what works and what doesn't--that's a critical and important perspective.

2. A support group member. It's important to have someone who understands your challenges, the in's and out's of the experience. In return, offer to be on that member's advisory board.

3. A member of your house of worship, so you can keep your spiritual health in check.

4. A good friend, so you are reminded to keep some of your own life.

5. Your care recipient so you are aware of his or her wishes.

6. The home health aide or the adult day staff, so you can keep up-to-date with needed services.

7. Another family member, whose role is to remind you to take care of your health with regular exercise and a nutritious diet.

Ask your board to hear you out once in awhile, to review your care plan, tweak your goals, suggest improvements. You may feel sometimes that asking for input puts you in the front of the firing squad. However, it is important to hear the observations from others in your life. And, suggestions are just that: You can consider, mull, reflect—and then determine whether or not the suggestions are right for you.

   Caregiving is all-consuming--it's truly overwhelming. It's often difficult to see the forest through the trees. Ask your board to help you cut back some of the over-growth. Trimming away the brush will help you streamline your effectiveness as a caregiver. And, the more clearly you see, the more meaningful the experience.

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Hope
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Do you sometimes wonder if hope is friend or foe?

You hope, but your hopes don't seem to materialize. You hope a sibling will be more sensitive to all you do, you hope your care recipient will know more pain-free days, you hope your life will be easier. But, the hopes just seem to stay that--hopes.

Try these hopes:

Hope that you always be able to love.
Hope that you always be able to show your love.
Hope that you'll see the miracles that happen in the small moments.
Hope that your heart stays warm even when the world could make it cold.
Hope that your life stays three-dimensional, full of some pain, some joy and all wisdom.

 With these hopes, the rest falls in place. Hope is your friend.

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Smart
OFFLINE
During the holiday season, emotions can seem out-of-control. It also seems that with the holidays comes the need to make smart decisions. And, oh!, those decisions are tricky when emotions seem to rule. How do you take control of your emotions and stay smart in your decisions? Keep in mind this four-step process: 

1. Take time to reflect. Find a quiet five minutes. Find the time to reflect as many times as you need. You may just need five minutes. You may need five hours. That’s okay. 

2. Ask yourself:
  • What decision will make me proud in five years when I look back at this time?
  • What fears do I have about this decision?
  • Am I making this decision about me—when it’s not really about me?
  • Do I have all the information needed to make a decision?
3. Find:
  • The information you need.
  • The person (or persons) who can help you sort through the fears.
  • An objective perspective.
  • A supportive sounding board. 
4. Make, and communicate, your decision. Know your decision can be revisited if different information or resources become available.

Take comfort in knowing your decision was made with a good heart, the right spirit, the best intentions.
 Tough decisions require time, reflection and soul-searching. That’s what makes them--and you--smart.
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Organize Caregiving Voices!
OFFLINE

President Elect Barack Obama would like to hear from you about our country's health care. And, he wants you to lead a discussion.

Senator Tom Daschle, who has just been named Secretary-designate for Health and Human Services (HHS) has announced that the Obama team will be coordinating a series of “Health Care Community Discussion” around the country during the last two weeks of this month.  Those interested in health care policy at any level (micro, anecdotal, or macro) can sign up
to schedule locally based discussions.

The transition team says the community forums “are designed to help the Health Team flesh out key issues around health policy and give the Team fresh ideas about the best ways to promote the President-elect and Vice President-elect’s vision of quality and
affordable health care for all Americans.”

Over 10,000 people, many of them already involved in grass-roots efforts to push healthcare reform, have submitted comments on the website. By visiting www.change.gov you can sign up to lead one of these discussions in your own community. Once you sign up, they will send you a special moderator kit that will provide you everything you need to get the
discussion going. Senator Daschle will be choosing some discussions to attend in person and then report back to President-elect Obama.

Want to lead? Go here:
http://change.gov/page/s/hcdiscussion

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Wonderful
OFFLINE
Wonderful

Does "wonderful" describe your life?

Yes, it does!

It does because of you. You make it wonderful because you believe in yourself. Because you keep the faith in yourself, even on your rough days. Because your decisions reflect the respect you have for yourself, your family and your values. Because you know about the precious commodity called time--so you use your time wisely. Because you live fully in world that turns on forgiveness, love and kindness.

You are your wonderful life.
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