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    3 days, 11 hours ago

    Bob

    Bob Posted an update in General 3 days, 11 hours ago

    Having difficulties with our live-in for some time. She has in many ways focused more on making things cushy for herself than her focus on my wife. She and her agency are difficult to deal with. We’ve been looking into other agencies but the cost is more than we can afford. Other times she can be very responsive. Somewhat like a Jekyll and…[Read more]

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    4 days, 7 hours ago

    Bob

    Bob replied to the forum topic Welcome! Please Introduce Yourself in General 4 days, 7 hours ago

    Hi all. I’m Bob. I’m 59 y.o. and taking care of my 61 year old wife who has critical care neuropathy and a history of 4 back surgeries. I’m glad I found this on-line community. I’m very exhausted. We are […]

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    6 days, 5 hours ago

    Eldee

    Eldee replied to the forum topic Welcome! Please Introduce Yourself in General 6 days, 5 hours ago

    New to this site, providing emotional support to my mother, who has stage 4 kidney cancer. I am wondering how to start my own blog about our experiences as mother and daughter dealing with end-of-life issues. […]

    • Profile picture of Denise
      Denise 5 days, 22 hours ago

      Hi Eldee–I’d love for you to blog on the site. You have a few options: You can join our team of bloggers, whose post are featured on the site. You also can post updates on your own profile. You also can do both–writing blog posts a few times a week and then posting updates on your profile daily. You can share your profile with family and…[Read more]

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    1 week, 4 days ago

    Chris

    Chris Posted an update in General 1 week, 4 days ago

    I just finished meeting with the field supervisor and the new aide we hired for my motherinlaw for the next 4 weeks while I am gone back home to visit my family. I have a good feeling about it. I know it will allow me to be gone without as much worry/guilt. I didn’t realize how bad I need this vacation/break. My last “break” was 2…[Read more]

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    2 weeks, 5 days ago

    Pam

    Pam Posted an update in General 2 weeks, 5 days ago

    Hi,
    New to the forum. I know I need support, just not sure what sort of support I really need. My biggest problems are that my husband refuses to cooperate with his medical team(s) and gets extremely abusive and combative (verbally) with me when I won’t do what HE wants.
    I am 66 and retired, my husband is 72 and was on disability for years…[Read more]

    • Profile picture of Old Billy
      Old Billy 2 weeks, 5 days ago

      Hi Pam, I’ve never had to deal with an abusive Caree. Put as far as reality checks….

      My Dad was a cardiac patiend having bypass surgery when he was in his late 50′s.
      When he was about your husbands age is when his hospitalizations started being accompanied with Institutional Dementia. The symptoms sound very much like your Husbands and the…[Read more]

      • Profile picture of Pam
        Pam 2 weeks, 5 days ago

        That’s an interesting thought, his oxygen levels do fluctuate so I will ask them to check it – it would be so much easier to accept/deal with if I knew the reason. He was in pretty good spirits today and pretty much with us most of the time :)
        I’v never heard the expression “institutional Dementia” before either, I think it might be worth my…[Read more]

        • Profile picture of Old Billy
          Old Billy 2 weeks, 5 days ago

          Institutional Dementia is a form af demetia that comes on when a patient is moved to unfamilar surroundings such as a Hospital or rehab facility. With my Dad I noticed it was usually acompanied with erratic sleep patterns and low oxygen levels. Once he returned home the symptoms would disapear.

  • 3 weeks, 5 days ago

    Stephanie

    Stephanie Posted an update in General 3 weeks, 5 days ago

    I am caring for my mom who is having memory problems. And… seems to be getting worse lately. I have been trying everything I can, including researching different supplements to try to see if they can help/improve her memory. Getting more concerned and worried.

    • Profile picture of ittibittinurse
      ittibittinurse 3 weeks, 5 days ago

      Welcome Stephanie,

      You concerns are valid. My father has become very forgetful this year. He has multiple health problems, which I am sure contribute to his forgetfulness and memory loss. I worry about him also. I take him to the doctor today. These issues are going to be addressed at our visit today. Not sure what to expect, but wanted you to…[Read more]

      • Profile picture of Stephanie
        Stephanie 3 weeks, 5 days ago

        Thank you. It is nice to know that someone else understands what you are going through.

    • Profile picture of Karen
      Karen 3 weeks, 5 days ago

      Stephanie,
      Can I suggest you get a medical checkup? Keep in mind that there could be underlying health issues you may not know about which are causing memory problems.

      Also, if this is any form of dementia, it’s best to know about it early. When my brother had a stroke, his doctor prescribed one of the Alzheimer’s medications. It helped. I also…[Read more]

      • Profile picture of Stephanie
        Stephanie 3 weeks, 5 days ago

        Karen,
        Thank you for your advice. I had my mom go to a specialist, who tested for dimentia and alzheimers, about a year ago, when the problem first started. Unfortunately… they did diagnose her with dimentia. The doctor put her on Aricept, which we tried for several months. But, the aricept altered my moms personality. It did not help her…[Read more]

        • Profile picture of Karen
          Karen 3 weeks, 5 days ago

          Sorry to hear that. I wish that I knew more about supplements that might help.

          • Profile picture of Old Billy
            Old Billy 3 weeks, 4 days ago

            We disscussed medications for memory with my parents primary doctor last year. He specializes in geriatrics. His opininion was that the field of memory medications was too new at the time to have any conclusive evidence of their effectiveness. While he’s seen them be helpful to some patients he’s seen adverse side effects in others. He also…[Read more]

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