This group is open to all members. Please feel free to introduce yourself, ask for suggestions and share a solution. Check our group’s calendar to keep up-to-date on the events and talk shows happening on Caregiving.com.
Thank you for the invite into your group. I have been a caregiver since July 2014 to my mother. She suffered a severe stroke in April 2014 and I have dedicated my life to help her back to hopefully full recovery. She is 79 years old and is making a remarkable recovery. I am so proud of her. I have been using “thought-therapy” as I noticed…[Read more]
Hi, I’m new. SO glad to have found this site! So here’s my story:
My hubby has C-PTSD, and stomach issues. We’ve been married 23 years. I new something was wrong after we got married, but I had no idea, and life went on. Our first pregnancy was with Identical triplets that were stillborn at 6 1/2 months. He did ok, took care of me.
Anytime we…[Read more]
Hi everyone…My name is Jamie. I have been caring for my wife Valerie for the last 6 years of our 12-year marriage.
Valerie has a very long list of health problems. Her major illness is called Dysautomina, which is a disease of her autoimmune system. She also has Orthostatic Hypotension (low blood pressure), chronic renal failure (no dialysis)…[Read more]
Hi Jamie–Welcome! I’m glad you’ve reached out to us. Has Valerie qualified for Medicaid (based on her low income. (Does she also qualify for Medicare because of her renal failure?) You may be able to qualified as her caregiver and receive payment though Medicaid. You can find more here:…[Read more]
I know if she goes on dialyisis that she will auto qualify for medicare in 3 months. I would also talk to one of the social workers at the hospital as many of them are very good resorces for what she may qualify for given her medical history and also may be able to help with the paperwork. I got qualified to be paid for taking care of mom because…[Read more]
Thanks for the info Denise.
When Val applied for disability. We didn’t apply for Medicade or Medicare since she was on my insurance through work but that is something we are going to do.
We live in Plano, IL. Which is outside Chicago near Aurora.
If you saw the movie “Man of Steel” Plano was used for downtown Smallville.
You also could contact your county (Kendall) to see about any help. It’s so much red tap that it can really feel like a web. Is your profile picture a photo of your dog? So cute! (I’m in Park Ridge, by O’Hare.)
Yeah…That’s our late dog Dakota. That was the picture that came up. I was having issues trying to put a new picture from my IPhone and IPad.
It will be two years Sunday when Dakota passed away.
Ironically, Dakota passed away the same day as the school shooting at Sandy Hook in Newton.
Hi–I just had the same problem uploading photos from my iPad. I’ll see if I can figure out what’s causing the problem.
I had one more thought about getting help for you guys. If your wife qualifies for Medicaid, then she may qualify for help. With more help, perhaps it will be easier for you to go back to full-time hours.
That’s going to be my next step. Getting Val on Medicade. I have to find out if her doctors accept it first
@jvnewell – It is nice to meet you, Jamie. I apologize for the delay. I wrote a long summary about some of the programs Illinois has regarding assistance. I hope it helps. Before I post it, I would like to say I am so sorry about the loss of your dog, Dakota. I lost my dog almost two years ago. I miss him daily.
I live in Chicago, not far from [Read more]
Good day to all. With the Thanksgiving holiday and all this is the first time I have had time to post anything. I hope you all had a good holiday with the least amount of stress.
Wishful thinking for some I guess.
I visited my daughter and granddaughter up in North Georgia for Thanksgiving. My grand daughter is turning three and is a bundle of…[Read more]
Hello Russ, While you ar a bit ahead of me we are dealing with the same symptoms in our spouses. Please let me know if there is anything I might help you with. I may not have all the answers but you will be talking to another spouse taking care of their wife.
Hello to all. I am Doxiedad and I found you all while looking for people who are spousal care givers. Do take offense but at 61 I don’t feel old and other sites I have looked into appear to be populated by those 20 years my senior. I know there have to be people in my age group that have found themselves in a position they never thought they would…[Read more]
@g-j Meant to include you but my fingers flew too fast. Feel free to jump in and share about caring for a spouse when you’re young.
Of course I never thought I would be 34 helping my husband fight for his life and missing out on things that I see my friends doing. I used to be jealous. Now, I am grateful to just have my husband still with me.
Wow and I thought I was young having to deal with the whole shebang. It is tough when friends ask you to do something or you just want a minute to yourself and you can’t. I hope I can contribute to the group
Hi! Being a caregiver for my spouse at this age sure wasn’t what I expected in life! I was 49 when my 55-year-old husband was diagnosed with mild cognitive impairment, a possible alzheimer’s precursor, five years ago. Our son just turned 18 and is in his first year of college.
My husband was immediately put on disability and had to retire a year…[Read more]
Thank you for the reply.
I to have went through all of those things, especially with family. After her stroke and then being diagnosed with dementia my wife was put on disability as well. Friends (the ones we did have) slowly went on with their lives and stopped calling. I do work because even though your world has been turned upside down the…[Read more]
I knew going into my relationship with my husband (I was 24) that he had health issues (blood disorder), but we sure didn’t expect him to have so many complications at the age of 40. I didn’t think that at the age of 36 (he’s 45) this is where we would be. I work full time and he is home on disability. It’s been a hard go with him feeling left…[Read more]
Thank you for your reply and encouragement. Finding a place where other people know what you’re going through is great.
Hi, I am 52 and I never dreamed my husband (who is 53) would be on disability, unable to work. People see him walking around and they think “he’s doing pretty well.” Well, no, actually he’s dying of cancer and there’s nothing I can do about it. We’ve only been married five years and I thought I was going to have a lot more time with him.
The most important thing to do is enjoy the time you have and keep in your heart those things that you share.
Hi, I almost didn’t comment when you said you were looking for younger spouses who are caregivers. Glad to see I’m right in the same age range as you! I’ve been full time caregiver to my husband for awhile now. I am newly retired, and yes, this is not how we planned to spend our retirement. Glad you found this site, you will find this…[Read more]
Pegi, thank you for your words of encouragement. For as much as I do do, I don’t like to think of my age as being a old. I am a thirty year old stuck in a sixty year body. I am sure your can identify with that.
- Load More