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Finally brought my husband home from hospital, again! So happy to have him home. Hope he stays for awhile this time. Can’t remember when I ‘ve been this tired…must be getting sift.
Ways I know my husband has been in the hospital too frequently:
1. The parking valet opens my car door and simply and compassionately says ” I’m sorry”
2. Security guard knows my name
3′ On my way to floor 9, elevator door opens on 6 and a nurse waves and asks where and what is going on with my husband now.
A really good day today. We celebrated our 44 wedding anniversary and he was feeling OK enough for us to go out to dinner at a restaurant! I am so grateful. We must seize the moment and enjoy it with no thought of tomorrow or what will be next on this journey we all share.
Another trip to the Emergency Room with my husband at 7am. It wasn’t life threatening for a change – just a cut on his leg that bled without stopping for 3 days. He is on a blood thinner for his A.Fib heart problem. They stopped the bleeding and all is well. Having had so much experience with getting him to the hospital under stress over the…[Read more]
I’m beginning to see this for myself, Sue. Last week my husband had to go to the ER because he was bleeding into his colostomy bag. He was understandably freaked out. I felt surreally calm. There have been many trips to the ER and I expect there will be many more down the road. I can totally relate to your feeling of not wanting to expend all…[Read more]
Hi Tee — I just read your profile and can totally appreciate your frustration re: school. Don’t give up on grad school! It may take you longer to complete your degree or you may have to consider doing it online, but it can be done. My husband was diagnosed with pancreatic cancer last year and I wondered if I would have to drop out of grad…[Read more]
Thank you. Reading your situation and you were still able to graduate gives me hope.
Just regrouping from cajoling my husband to take a shower. It is exhausting. He is convinced he already took a shower early in the day – but of course he didn’t. Furthermore he was still in his dirty cloths from yesterday – this is a man who used to be so fastidious in his person. It is so sad. He got angry at me and then later said “what…[Read more]
These are such difficult moments–you’re gripped by the sadness at the same time you’re struggling with frustration. I hope writing to us and that deep breath helped. It’s just hard.
Sue, I hear you on the Jekyl & Hyde aspects of caregiving. My husband can go from grateful and loving to Mr. Crankypants-On-Steroids at the drop of a hat.
Sue, am sorry you have to deal with this frustration, but at least you know it is nothing personal, just an aspect of the condition. Not that knowing that helps at the moment of rejection and nastiness, but after you calm down a bit.
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