General

  • Janet posted an update in the group Group logo of GeneralGeneral 2 days, 17 hours ago

    Sorry haven’t bren around much, mom has had to care for me this past week. The stress has finally gotten to me. Beside being down to 98 lb, I got a UTI this week which end me in the hospital for couple hours to rehydrate me. First time I was super glad my sister in law live so close.

    • I’ve been thinking of you, Janet. How was the cruise? I’m glad you had the support and care you needed this week.

  • steviedee posted an update in the group Group logo of GeneralGeneral 2 weeks, 1 day ago

    My buddy is back in the nursing home/rehab. He basically understands why he needs to be there, which is a huge improvement from last week when he was pulling his IVs out.

  • steviedee posted an update in the group Group logo of GeneralGeneral 2 weeks, 5 days ago

    Hi all. So my buddy’s doctor called and said he’d been asking when I was coming to visit. Right away, I said.
    He was glad to see me, and we had supper together. I feel so relieved!

    • Oh, Steve!! What good news!! I’m so glad to hear this. Phew!! It’s such a worry when we hit a sour note. So glad all is back on track.

  • steviedee posted an update in the group Group logo of GeneralGeneral 2 weeks, 6 days ago

    My buddy, who I’ve been helping since his stroke almost 6 years ago hit a very rough patch right before Christmas when he broke his leg. At the time he fell,he was also in kidney failure.
    Since then he’s been bouncing between the hospital and a nursing home.

    In recent times days I seem to have become the face of everything thats wrong in the…[Read more]

    • Oh, gosh, Steve, you’ve been through the ringer! I’m glad to see you but so sorry for all you’re been through. I wonder if @pushingpetals @keeppassingtheopenwindows @parkscoleman @janshriver and @lillie can share some helpful thoughts.

      Perhaps you could call the charge nurse in the hospital for updates but keep your distance for a few days.…[Read more]

    • I’m keeping a low profile. I Expect to hear from the case Mgr before too long. In the meantime, I’m getting some long overdue house workdone!

      • Great idea! He’s in good hands so you can focus on the house. :) I always feel better when the house is clean.

        • I certainly agree with Denise. There comes a time when other people with a more clinical view can accomplish something new and helpful. You are doing the best thing as far as I can see. Allowing yourself some space will help him the most in the long run, anyway.

    • I, too agree with Denise and Jan. He is in good hands and it is a good time to take a little time to breathe and focus on something else, get some distance and clear your head. In my own experiences, sometimes a little space has worked very well for me in similar situations, especially when my mom/dad was in good hands with hospital or nursing…[Read more]

  • Janet posted an update in the group Group logo of GeneralGeneral 1 month, 1 week ago

    Ok a quick note wr had a celebration of my hubby life today, but it’s still hard. I will try to write a sit might help me.

  • Janet posted an update in the group Group logo of GeneralGeneral 1 month, 1 week ago

    My world is broken right now, John, my hubby of 34 years was killed in a one RV accident. Right now I have more questions then answer. Will write more when I know more.

    • Janet–I posted a comment and because I can’t give you enough comfort, wanted to write to you here, too. I’m just so sorry. What a horrible tragedy. We are all thinking of you, praying with you and holding you close.

  • Bruce joined the group Group logo of GeneralGeneral 2 months ago

  • Mamadanz posted an update in the group Group logo of GeneralGeneral 2 months ago

    Hi everyone! I’m new here and thought I would take a moment to introduce myself – where I’m currently at and just start to explore the site more…

    My husband and I have been married 40 years (how did that time go by so quickly?) and we have five adult children – four of which still live with us. We are animal lovers and have pretty much all…[Read more]

    • Hi MD–I’m so glad to learn more of your story. Oh, gosh, the worries seem multiplied for you. I wish I could take a few off your shoulder. :) We totally understand the fears, especially the fear of finding a caree dead. It’s the reality of the day, which just sucks. If you’re up to it, please feel fee to start blogging. It can be a huge relief…[Read more]

    • Mamadanz — thank you for sharing your story. Clearly you have a heavy burden to shoulder. It is difficult enough to be a caregiver for one caree, let alone two. I completely understand the feeling of being in a financial pressure cooker. We constantly struggle to make ends meet on my income. You are so right that critters help keep you sane.…[Read more]

  • Mamadanz joined the group Group logo of GeneralGeneral 2 months ago

  • MimbyNYC posted an update in the group Group logo of GeneralGeneral 2 months, 1 week ago

    Juggling all the parts of my life–caregiving, new boss and construction at work, repairs at my mom’s house, arranging for my mom’s car repair, and, oh yeah, getting ready for knee surgery next week, cleaning my home–it’s totally exhausting. Making the holiday for my mom and other family members is a nice idea, and much appreciated, but I realize…[Read more]

    • It is completely exhausting. Are you having knee surgery next week?

      And, Merry Christmas!! Always great to see you. :)

  • isabella posted an update in the group Group logo of GeneralGeneral 2 months, 1 week ago

    Thank you for the invite into your group. I have been a caregiver since July 2014 to my mother. She suffered a severe stroke in April 2014 and I have dedicated my life to help her back to hopefully full recovery. She is 79 years old and is making a remarkable recovery. I am so proud of her. I have been using “thought-therapy” as I noticed…[Read more]

  • MM posted an update in the group Group logo of GeneralGeneral 2 months, 3 weeks ago

    Hi, I’m new. SO glad to have found this site! So here’s my story:
    My hubby has C-PTSD, and stomach issues. We’ve been married 23 years. I new something was wrong after we got married, but I had no idea, and life went on. Our first pregnancy was with Identical triplets that were stillborn at 6 1/2 months. He did ok, took care of me.
    Anytime we…[Read more]

    • Also I found another really great site for “personality disorders”, OutoftheFog.net.

    • I’m so glad you stopped by! I just read more of your story. I would imagine you often feel like a referee. You must worry so much. Feel free to vent and share as often as you need here. We understand. :)

  • Maria posted an update in the group Group logo of GeneralGeneral 2 months, 3 weeks ago

    SO glad to be here again! I will never go MIA for so long again

  • Jamie posted an update in the group Group logo of GeneralGeneral 2 months, 3 weeks ago

    Hi everyone…My name is Jamie. I have been caring for my wife Valerie for the last 6 years of our 12-year marriage.

    Valerie has a very long list of health problems. Her major illness is called Dysautomina, which is a disease of her autoimmune system. She also has Orthostatic Hypotension (low blood pressure), chronic renal failure (no dialysis)…[Read more]

    • Hi Jamie–Welcome! I’m glad you’ve reached out to us. Has Valerie qualified for Medicaid (based on her low income. (Does she also qualify for Medicare because of her renal failure?) You may be able to qualified as her caregiver and receive payment though Medicaid. You can find more here:…[Read more]

      • I know if she goes on dialyisis that she will auto qualify for medicare in 3 months. I would also talk to one of the social workers at the hospital as many of them are very good resorces for what she may qualify for given her medical history and also may be able to help with the paperwork. I got qualified to be paid for taking care of mom because…[Read more]

    • Thanks for the info Denise.

      When Val applied for disability. We didn’t apply for Medicade or Medicare since she was on my insurance through work but that is something we are going to do.

      We live in Plano, IL. Which is outside Chicago near Aurora.

      If you saw the movie “Man of Steel” Plano was used for downtown Smallville.

    • You also could contact your county (Kendall) to see about any help. It’s so much red tap that it can really feel like a web. Is your profile picture a photo of your dog? So cute! (I’m in Park Ridge, by O’Hare.)

      • Yeah…That’s our late dog Dakota. That was the picture that came up. I was having issues trying to put a new picture from my IPhone and IPad.

        It will be two years Sunday when Dakota passed away.

        Ironically, Dakota passed away the same day as the school shooting at Sandy Hook in Newton.

    • Hi–I just had the same problem uploading photos from my iPad. I’ll see if I can figure out what’s causing the problem.

      I had one more thought about getting help for you guys. If your wife qualifies for Medicaid, then she may qualify for help. With more help, perhaps it will be easier for you to go back to full-time hours.

    • That’s going to be my next step. Getting Val on Medicade. I have to find out if her doctors accept it first

    • @jvnewell – It is nice to meet you, Jamie. I apologize for the delay. I wrote a long summary about some of the programs Illinois has regarding assistance. I hope it helps. Before I post it, I would like to say I am so sorry about the loss of your dog, Dakota. I lost my dog almost two years ago. I miss him daily.

      I live in Chicago, not far from [Read more]

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