@donnaactive 1 day, 6 hours ago
@frustrated, welcome to our group! We are all here to support you in any way we can. I read your profile, and can certainly understand your frustration. My husband is also on dialysis, and has a doctor’s appointment this week. I will ask if the doctor or nurses have encountered similar issues with any of their patients. You and your husband have…[Read more]
So sorry to hear about the issues John is facing with dialysis. It sure seems like a crazy balancing act, doesn’t it? We need to be sure they get enough protein and potassium, but limit phosphorus. Is John already taking Renvela, a phosphorus binder? My husband takes 2-3 pills per meal to help bind the phosphorus together, so it’s…[Read more]
Hi, Michael…welcome! My husband has been doing peritoneal dialysis for a year now. It has definitely been the right choice for us. I’m glad to hear that it’s going well for John, too. I know that travel is certainly possible while on PD. This is one of the advantages of doing this type of dialysis. Our dialysis nurses have always…[Read more]
donna commented on the post, Our Events In Honor of National Family Caregivers Month 10 months, 4 weeks ago
Kiss A Caregiver Day? Sounds interesting! How am I just now hearing about this?
It is very difficult to push through the guilt in order to take time for ourselves. I’ve learned that it truly is essential to my mood, energy, and health. For the past couple of years, my sister has insisted that I get away for a few days. I flew to Houston two years ago to visit my parents and brothers. Last year, I rode the train to visit…[Read more]
donna commented on the post, Video Chat: When So Much Changes, Can Love Stay the Same? 1 year ago
This was extremely uplifting to me. Thank you, Janet, for being so open and honest about such a difficult situation. You were clearly a blessing to your husband.
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