Even though I had to spend almost an hour and a half throughout the day on the phone with Nicole’s specialty pharmacy I hopefully got a lot of issues (current and future) resolved.
Jane replied to the topic Caregiving Cookbook: What's your favorite "makeahead" for one of those days? in the forum Caregiving Cookbook 2 weeks, 6 days ago
Lillie my crockpot Minnestrone Soup is almost the same as yours. I leave out the zucchini because I don’t like it. I don’t think mine had potatoes in it either.
Jane replied to the topic Caregiving Cookbook: What are your caree's special food needs? in the forum Caregiving Cookbook 2 weeks, 6 days ago
My daughter just got diagnosed with some food allergies…. the main ones are gluten, wheat, eggs and milk.
I would love to have any input on gluten, wheat free recipes as well as things that are non-dairy.
I am so excited to have found this forum.
I probably could contribute some recipes if you have some in particular.
I’m sure it’s discouraging for her to have new foods to adjust to — there are so many great gluten free foods/recipes now, it’s not as hard as it once was. You are determined Mom, and maybe this can become a fun experiment with new foods to try (a little at a time?) Maybe she’ll enjoy the flavor of rice milk, almond milk, coconut milk? …[Read more]
Oh Jane, I feel so bad for you and Nicole. For her, yet more challenges to add to so many. And for you, to know and watch your child going through all this. I was so lucky my kids were always healthy. But I did watch the agony my parents went through with all my brother’s lifetime of issues after encephalitis at age 4 left him with permanent brain…[Read more]
I’m so sorry, Jane, for yet another diagnosis to manage. It must feel like you guys can’t get a break.
I hope that a change in the diet will help Nicole feel better. Hopefully that’s the pay off for the additional work
Oh Jane, there is so much in life to deal with. . . for Nicole more diagnosis may mean changes that will make her feel better?? But, like you said, she has the choice to deal with it. I have to say, it sounds like you are trusting her more? It’s so hard and she’ll probably disappoint you at times too. I would like to think that once she feels…[Read more]
Bruce McIntyre joined Denise for Care Break on Thursday, April 9th. They discussed the question, “If there’s so many of us, why is caregiving so lonely?”
I can only speak from personal experience. I don’t know […]
I’m not sure if I do… if it were me and this is what I did. I would go to UNOS.org (I believe). The center where the patient is had should have a website and this is a good place to find out information. Also, there are some facebook groups for Lung Transplant that I joined when Nicole was first being considered. I am still a member of them…[Read more]
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