Jane

  • Denise was joined by @Trish, who cares for her brother, Robert, with an update on how Robert’s been doing as well as an update on holiday preparations.

    Be sure to listen below and as always leave your […]

  • It is only five words…….

    A cure for Pulmonary Hypertension…..

    Hugs:o)
    Jane

  • ThumbnailI am looking for some advice. Every night I sit down with Nicole and ask her a bunch of questions which we refer to as her daily log. Nicole’s old physical therapist came up with these questions and we started […]

    • Evernote is “in the cloud,” so you can gain access to it from any computer. If you need paper copies, you can always print out what you’ve uploaded to your different files online. Make breathing room for yourself. Toss the papers. Just my two cents…

    • Hi Jane–You’re keeping a log so you can track trends. I think it’s difficult to track trends on paper so you’d want to use something that makes it easy to search and track. Can you do this on Evernote? (I don’t use so I’m not sure how it works.) I would suggest using something, whether it be Evernote or a spreadsheet or some other tool, that…[Read more]

  • Hi DarcieJane

    I really need to do this also… to many other things that are more pressing. It wasn’t a “forum” I posted it on but my page I have on facebook that chronicles the struggles with Nicole’s illness but I knew I should have only posted it here.

    Hugs:o)
    Jane

  • Trish, your right…. I know it does and I started to respond to her comment and then thought why bother she will just come back with more of how negative I am.

    I have pared down my gift list and am only giving (for the most part) calendars to people outside of family except for the PH girl I sponsored for Christmas. I always every year bake…[Read more]

  • Hi Pegi:

    I love your ideas!!!!!!!! It is all about materialism. Nicole has her Christmas list and right now it has two things on it. Nicole isn’t materialist at all. I consider myself way more materialistic there is always something that I want :)

    I have scaled back with gifts this year. I don’t like buying for my brother-in-law, his…[Read more]

  • Thank you for your response. When Nicole was younger I did have a lot more excitement than I do now.

    I think it is healthy to blog and write about all emotions whether they are positive or negative also.

    Hugs:o)
    Jane

  • Hi Linda:

    Thank you for your response. I didn’t think of it as negative either it is just real for a lot of people and I know this is especially true for caregivers and for the chronically ill as well.

    I would love virtual coffee with you….

    Hugs;o)
    Jane

  • ThumbnailI wrote this on ” A Day in the Life” page on facebook and I got a response about how negative I am and how my whole life revolves around Nicole’s diagnosis and I should be more positive and happy. The response is […]

    • Oh, Jane. I started having those feelings even before I was a caregiver. My daughter really has two families, and both grandparents and her “other” parents celebrate Christmas, so I thought I’d give her an alternative…the “non-holiday” Christmas. Sometimes she enjoys just being invisible (like me) during the holidays, so I’m glad I’ve given her…[Read more]

      • Jane replied 2 weeks ago

        Hi Linda:

        Thank you for your response. I didn’t think of it as negative either it is just real for a lot of people and I know this is especially true for caregivers and for the chronically ill as well.

        I would love virtual coffee with you….

        Hugs;o)
        Jane

    • Between the year my dad died (’98) and the year my son was born (’03), the holidays were awful! Even before, when I wasn’t a child and didn’t have a child, it seemed like more trouble than anything else. Now my son is young and still excited about Christmas, so it brings some life to the holiday. But I can see us really minimizing it once his…[Read more]

      • Jane replied 2 weeks ago

        Thank you for your response. When Nicole was younger I did have a lot more excitement than I do now.

        I think it is healthy to blog and write about all emotions whether they are positive or negative also.

        Hugs:o)
        Jane

    • It is often hard to feel the “Holiday” spirit in the midst of all that daily caregiving involves. Can you cut down your list of things you have to do? Eliminate some from the “most” give list? The real spirit of Christmas has really taken such an unhealthy turn. All about the materialism. The last few years, as things got more difficult for…[Read more]

      • Jane replied 2 weeks ago

        Hi Pegi:

        I love your ideas!!!!!!!! It is all about materialism. Nicole has her Christmas list and right now it has two things on it. Nicole isn’t materialist at all. I consider myself way more materialistic there is always something that I want :)

        I have scaled back with gifts this year. I don’t like buying for my brother-in-law, his…[Read more]

    • Jane, Your feelings are your feelings. It’s easy to judge another person as being too negative or telling a person “you should feel this way” but that says more about that person than you. The reality is money is tight – if it wasn’t you are generous and kind enough to buy everyone what they wanted. I wonder if you could come up with some…[Read more]

      • Jane replied 2 weeks ago

        Trish, your right…. I know it does and I started to respond to her comment and then thought why bother she will just come back with more of how negative I am.

        I have pared down my gift list and am only giving (for the most part) calendars to people outside of family except for the PH girl I sponsored for Christmas. I always every year bake…[Read more]

    • Jane, my Christmas spirit took a hike years ago, for multiple reasons I won’t go into here. As Pegi says, I “slashed” the shopping and to-do lists down to the bare bones. Start now so you don’t have the same expectations staring you in the face next Christmas. And for Pete’s sake, stop posting on forums where you are judged and not supported!

      • Jane replied 2 weeks ago

        Hi DarcieJane

        I really need to do this also… to many other things that are more pressing. It wasn’t a “forum” I posted it on but my page I have on facebook that chronicles the struggles with Nicole’s illness but I knew I should have only posted it here.

        Hugs:o)
        Jane

    • Hi Jane–It is incredibly frustrating to share what’s in your heart on your page and then get criticized for it!

      I’ll just share one perspective: Nicole is with you and that’s always worth a celebration.

      :)

    • Jane, I didn’t find your post negative at all. There are a lot of us who feel this way about Christmas. Tough tiddly to those who don’t want to hear it. We don’t all have to feel the same way about the holidays — or anything else for that matter. It sounds as though your critic has some kind of a chip on her shoulder.

    • I am glad you wrote about your feelings. As caregivers, there are many reasons why we don’t seem to “fit” into the holiday festivities. Recognizing there are others who struggle, really helps validate some of our own feelings. Elly doesn’t want to decorate for Christmas this year, she says I can do what I want. This isn’t a positive reaction…[Read more]

    • Jane, thank you for giving everyone permission to admit our holiday stressors. What a gift.

      The best holiday gift anyone ever gave me (aside for the Kentucky Derby game as a kid) was when, one by one, my sister, mother, stepkids and a few friends asked if I’d mind if we stopped exchanging holiday gifts. That was even before I started…[Read more]

  • Denise:

    I’m so sorry for your dad to get this diagnosis but I am glad that because of your statement your mom was prepared to get the news.

    I hope that the best possible outcome comes from this.

    Hugs:o)
    Jane

  • Jane replied to the topic Great Deals in the forum Holidays 2 weeks, 3 days ago

    Cyber Monday, Pampered Chef is having a sale on my website. Check out my website at http://www.pamperedchef.biz/janenorthrop and get free shipping off $100 as well as a free gift.

  • Denise was joined by Bruce McIntyre for Carebreak on Nov. 26th to talk about What Keeps You Full? As always with Bruce, it was a good show. I liked his three tips for keeping you full. Denise also mentioned a […]

  • I shared it on my wall on facebook.

    Hugs;o)
    Jane

  • I am grateful that I was able to provide a need to a fellow support group member. I am also grateful for her gratitude and I know how much it meant to her.

  • I struggle with this… I either try to fill too early and wait too late. I like the running list lookingheavenward…do you keep it on computer/phone or on paper? I have a daily pill box with four compartments and they fit into a case. I fill them on Sundays also. I have a separate weekly pill case that Nicole keeps her vitamins in and she…[Read more]

  • Wishing you the same Pegi!!!!!!

    Hugs;o)
    Jane

  • That Nicole had her site change yesterday…. I don’t like to see her in pain but she had a dentist appointment this morning and I had to reschedule it yesterday because she wasn’t going to be able to go. I am grateful that we did …. the weather here today has been nasty and we have had over 5 inches of rain. We would have been out in that…[Read more]

  • Denise was joined by Ellen Rogin on Monday, Nov. 17th to discuss Giving on a Budget. What an awesome show. I never thought of giving in the sense of emotionally and practically as well as financially. This is what […]

  • I am grateful that Nicole’s infusion site wasn’t as infected as it normally is when she changes it. :)

    Hugs:o)
    Jane

  • Denise was joined by Holly on Nov. 15th for Table Talk. Holly updated us about her husband, Dave, and what the last month has been like. I enjoy Holly’s shows so much and I am also in awe of her. She is such an […]

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