@jbones1961active 3 days, 2 hours ago
Denise and Bruce:
What an awesome show this was. I had tears just from listening. I still have tears telling my/our story. I think for me I get stuck with the guilt. The guilt that my daughter was misdiagnosed for (from what one of her former doctors said) about 9 years but personally I think it was more like 2 years old (when I really…[Read more]
Trish joined Denise on Saturday, August 9th for Table Talk. Trish updated us about what has been happening with Robert. I am amazed at all the things that Trish juggles she is so inspiring. I’m so glad that Robert is improving.
Make sure to listen below and has always leave your comments below.
Jane ~ “The Roving Reporter”
Holly joined Denise on July 19 to give an update on her husband. The diagnosis of ALS has been confirmed. My heart is so sad for Holly that she has to deal with this also. I know that she will do the right thing when she needs to make difficult decisions because she already has to this point.
I love listening to Holly and hope someday that I…[Read more]
Jane commented on the post, Birthday Celebration: Today, Tell Us a Fun Fact About Yourself 2 weeks, 2 days ago
I love making shampoos, face cream, lotions, salves, cleaners and other remedies with herbs and essential oils. It is all natural and it saves me a lot of money.
Thank you so much Jan for the kind words. I would think I shouldn’t have to compromise in either aspect but I have left doctors before because of office staff. As my dad says…. most employees are just getting in out of the weather.
This is the first time Trish that nobody has helped us. I don’t know why a doctor’s office would be…[Read more]
Nicole is on Medicaid through SSI. Tthe plan she has is Children’s Medical Services (CMS) which is specifically for chronically ill children up to their 21st birthday. The criteria for a primary care physician is that it must be a pediatrician and they must take CMS and see a child up to 21 years old.
CMS gave us the name of a doctor which was…[Read more]
Denise read some of her comforts from her new book “Take More Comfort.” What an awesome show. This show was broadcast on 7/5.
This isn’t a show you want to miss. Make sure to get your free copy of this book on Kindle for five days starting of 7/22. Be sure to leave your comments below.
Jane ~The Roving Reporter
Thank you for the information about your husband’s disease. I know of pulmonary fibrosis but not FXTAS. You are more than welcome to post here. I care for my daughter but it isn’t just for children.
Jane ~ mom to Nicole, PH, Eisenmenger’s, VSD, PFO, BHJS, ITP
Jane wrote a new post, Podcast: Caring for Yourself, Caring for Your Money 1 month, 1 week ago
Ellen Rogin joined Denise on June 19th to discuss how to care for yourself and care for you money. As always, it was an excellent show.
Be sure to listen below and as always leave your comments […]
Claire Day joined Denise on May 27th to discuss a blog post that Jan, who cares for her mom who suffers from dementia, posed in her blog post called “All Aboard the Love Boat.” I normally wouldn’t listen to this […]
My thoughts and prayers are with you, Richard, and Robert. I hope that the MRI is forthcoming quickly. I hope that you get the answers, theories and plans quickly. I hope you will be leaving the hospital soon. You are so amazing and a inspiration to all of us.
I am so sorry. I know how you feel. My daughter, Nicole, has a rare lung disease as well as a rare heart condition and I took her to a new pediatrician when she was 17 years old and the doctor had never heard of her illness. Needless to say, we didn’t go back. You should have more than one option for a primary. We have to drive 35 minutes to…[Read more]
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