Jane

  • chair-147653_640Nicole is on Medicaid through SSI. Tthe plan she has is Children’s Medical Services (CMS) which is specifically for chronically ill children up to their 21st birthday. The criteria for a primary care physician is that it must be a pediatrician and they must take CMS and see a child up to 21 years old.

    CMS gave us the name of a doctor which was…[Read more]

  • Denise read some of her comforts from her new book “Take More Comfort.” What an awesome show. This show was broadcast on 7/5.

    This isn’t a show you want to miss. Make sure to get your free copy of this book on Kindle for five days starting of 7/22. Be sure to leave your comments below.

    Hugs:o)
    Jane ~The Roving Reporter

    Discover…[Read more]

  • Ellen Rogin joined Denise on July 3rd to discuss how you can create a visual financial plan. Such an interesting show. Be sure to check out Ellen’s website at http://www.ellenrogin.com

    Be sure to listen below and as […]

  • Claire Day joined Denise on July 1st to talk about Managing a Dementia Care Crisis. Claire talked about the Alzheimer’s hotline and what services they offer.

    Be sure to listen below and as always leave a […]

  • Denise was joined on Table Talk by @G-J on June 28th. They discussed how coffee with a caregiver was born through G-J’s wanting to offer Kathy support while her husband was in hospice. G-J also shared about their […]

  • Denise talked with Holly on June 21st and talked about a possible diagnosis of ALS for her husband. Holly who is such an inspiration shares about finding the light. I am so sorry that Holly has to go through this […]

  • Be the change that you want to see.

  • Shirley:

    Thank you for the information about your husband’s disease. I know of pulmonary fibrosis but not FXTAS. You are more than welcome to post here. I care for my daughter but it isn’t just for children.

    Hugs:o)
    Jane ~ mom to Nicole, PH, Eisenmenger’s, VSD, PFO, BHJS, ITP

  • Ellen Rogin joined Denise on June 19th to discuss how to care for yourself and care for you money. As always, it was an excellent show.

    Be sure to listen below and as always leave your comments […]

  • Claire Day joined Denise on May 27th to discuss a blog post that Jan, who cares for her mom who suffers from dementia, posed in her blog post called “All Aboard the Love Boat.” I normally wouldn’t listen to this […]

  • Trish:

    My thoughts and prayers are with you, Richard, and Robert. I hope that the MRI is forthcoming quickly. I hope that you get the answers, theories and plans quickly. I hope you will be leaving the hospital soon. You are so amazing and a inspiration to all of us.

    Hugs:o)
    Jane

  • Jane commented on the post, A Slight Rant 4 weeks, 1 day ago

    I am so sorry. I know how you feel. My daughter, Nicole, has a rare lung disease as well as a rare heart condition and I took her to a new pediatrician when she was 17 years old and the doctor had never heard of her illness. Needless to say, we didn’t go back. You should have more than one option for a primary. We have to drive 35 minutes to…[Read more]

  • Jane posted an update in the group Group logo of Caregivers CreateCaregivers Create 1 month ago

    Nicole did this for an assignment in her last class. This is something that she never thought she could do and be good at.

  • Jane commented on the post, This Doesn’t Sound Good 1 month ago

    Trish:

    I am so, so sorry that you have been slammed with this. I know what it is like when we get bad or not so good news at the doctors. I know that you will get through this and you will find out as much as you can about this and make the best choices for Robert. He is so fortunate to have both you and Richard taking care of him.

    I…[Read more]

  • Jane commented on the post, Finding My Way 1 month, 2 weeks ago

    Hi Meghan:

    Thank you for your reply. I agree with what you are saying but Nicole isn’t very responsible especially when she has distractions. This doesn’t mean that I don’t have faith in her decisions or that she can’t do it because I do but she just doesn’t show this.

    My mom was the opposite and from 15 years old until I moved out at 21…[Read more]

  • Jane commented on the post, Finding My Way 1 month, 2 weeks ago

    Hi Heather:

    Thank you so much for your response. I have every faith that Nicole can do this. She has so much potential in many areas of her life but she just doesn’t put forth the effort. I hope that this will give her the confidence that she needs to realize that she can do whatever she wants to do with her life …. illness and all.…[Read more]

  • lost-116664_640I have really been struggling lately about this period in my life. A brief recap of my story for those who don’t know who I am. My 19-year-old daughter was diagnosed four years ago with two congenital heart defects, a rare heart condition that was caused by those heart defects not being diagnosed. The rare heart condition led to pulmonary arterial…[Read more]

  • Jane posted a new activity comment 1 month, 2 weeks ago

    Actually it was graphite pencil. She has done charcoal pieces and she isn’t fond of that medium..

  • Jane posted an update in the group Group logo of Caregivers CreateCaregivers Create 1 month, 2 weeks ago

    This is a drawing that Nicole did of our current and former animals. Top left is our dog Princess who we had from the time Nicole was a few months old until she was 12 years old; top right is Ridgely Nicole’s turtle, middle is Chelsea our pug, bottom right is Lucy our puggle, and bottom left is our cat, Spirit who we had to put down last year.

    [Read more]

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