• jill and Profile picture of ValerieValerie are now friends 5 months, 4 weeks ago

  • Oh my Go Pegi I am so sorry for what you are going through. You are both one my prayers. I wish I could be there to give you more support

  • Hi Meghan I wish I could give you a big hug in person. Hope everything goes well today I’ll be thinking of you. I know how scary it is. My husband did his first dialysis treatment a year ago today so I have already been down the road your on. And it’s ok to be feeling the way you do I know I was a nervous wreck. Keep us posted.

  • Hi Meghan I will be thinking of both of you today. I send you a big hug I wish I could be there for you in person. I know what you are going through. It was one year ago today my husband did his first dialysis treatment we were both terrified. It is ok to be scared. Please keep us posted. Again big hugs.


  • jill commented on the post, Rough Day 7 months, 2 weeks ago

    meghan i am sorry you are having
    such a rough time. i have been there done that. my husband is also end stage renal they say that mood swings are part of it. is there anyway you could talk to his nephrologist. or maybe one the nurses at dialysis can talk to the doc. just know ypu are not alone

    • Thanks jillybean. I will probably take your advice and talk with his doctors. Hopefully someone can help.

  • jill and Profile picture of MeghanMeghan are now friends 7 months, 3 weeks ago

  • jill and Profile picture of TinaTina are now friends 8 months ago

  • I need money and a day off.

  • Thank you so much for the help. Your ideas are not quirky they’re great. And you hit the nail on the head about him feeling as if he is loosing the role as man of the house. I know it kills him to see me have to […]

  • Thank you Cathy for the advice I haven’t spoken to the doctor yet but I am going to make a point to attend the next patient care meeting at the dialysis center and bring it up to his doctor then and hopefully they […]

  • Hi Donna thank you for reaching out it really helps to have other people who understand you. I am sorry to hear that you husband is on Dialysis. I hear you about getting on the list I have come to the conclusion […]

  • HI Denise. Thank-you for your help. You are right I am that there is an underlying reason for his anger and I can’t blame him. First his sci and then kidney failure he ahs been through alot and I don’t know which […]

  • jill posted an update 1 year ago

    Ok guys Ineed you advice.For the past few weeks my husband has been having really bad mood swings. I realize that this is common for people with endstage renal failure. Plus considering all he has been through in the last year and half I can’t blame him for being cranky. But he is not only taking things out on me he accuses me of doing all sorts…[Read more]

    • Hi Jill–I hope you don’t mind that I turned your request for help into a blog post. (If you mind, please let me know!!). We’re sharing suggestions for you here: http://www.caregiving.com/2014/01/request-for-help-a-cranky-caree/

      We’re thinking of you and grateful for the opportunity to help you. :)

    • Hi Jill — I understand the frustration. I was/am going through the same frustration with Gharveyn at times. (OCD with him) He could be cranky due to his levels could be out of whack; and needs to be dialysised more often. How often is he going now? Plus as a fellow CNA, you know how cranky they can get when they are on fluid restrictions; and…[Read more]

    • Hi Jill, I too understand your frustration.. I’m going thru the same thing with my husband. It is very painful and hurtfull to be yelled at when you are devoting your whole life to help him. When he gets very cranky and starts an argument, i just say ok, keep my voice very calm, and ask him how do you want me to do this or that, i try not to…[Read more]

    • Hi Jill.
      I completely understand your frustration. I’m also going through something similar with my mom and dad. It hurts so much to be on the receiving end of this. We have all been there to some degree. In the moment I have found that it helps me to be “mindful” by really focusing in on something else (i.e. how a blanket feels in my fingers,…[Read more]

  • Casandra. You are such an inspiration to me you and Marc will both be in my prayers now and for the weeks to come

  • Hi Pegi
    I am.praying for.you guys it was not long ago we were you are.now. it is scary as hell. I am thinking of you both

  • Oh Pegi how awfull I know that fear. There are times after dialysis tom is so weak he can barely walk it reminds me of when he first got hurt. He also gets depressed and feels like giving up. I don’t know how […]

  • jill posted an update 1 year, 3 months ago

    Hello everyone Hope you all are well. I just finished reading Cassandra’s blog I am happy for her things seem to be going on the right direction for them. Everything is OK here tom is tolerating dialysis well and we are in the beginning process of getting him on the donor list so there is lots to do and lots to learn.

  • jill posted an update 1 year, 5 months ago

    Good morning everyone. hope all of you are doing well. Sorry it has been a while since I have been in touch.between work and running tom to dialasys I have been going crazy. So tomorrow will be one year since tom’s spinal fusion. The beginning of my year from hell. It has been one year since I have been able to hold hands while we are walking. One…[Read more]

    • Ah, this is a tough anniversary. Hard to imagine having a more difficult year than you’ve had.

      I’m always glad to see you. I hope you are holding up okay.

    • I think we all can relate. I’ve only been at it 6 months, but what I miss most is Richard’s smile – he can’t do that anymore. Can barely talk, and walking is out of the question. Hang in there Jill.

  • jill posted an update 1 year, 6 months ago

    Hi everyone hope you all are well. Tom is now at the end of his second week of dialysis. He doesn’t seem to mind it as much as I thought he would. But there is so much information to learn. Now I guess we have to get used to the new normal again.

    • I’m so glad to hear from you. The adjustments to the changes can be sooo exhausting.

      How are you? Were you able to work a full week?

  • jill posted an update 1 year, 6 months ago

    Hi guys things are still getting worse here. Tom has just gotten home from an eight day hospital stay. He is now on dialysis. He was in full blown kidney failure and refusing dialysis until Monday. He still doesn’t feel well so I don’t know how long he is going to stay on it. I am so afraid right now I am slowly loosing the love of my life.not to…[Read more]

    • What do you need? A hug? (((((hug )))). Flowers you go it . . . .. Hold on . . . I’m so glad you posted this . . . Is your husband still refusing treatment? I can’t say breathe through this but it sometimes helps in a crisis . . . all I know to say is “I get the fear and the feeling like you’re going to implode or explode at any minute” . .…[Read more]

    • Oh, Jill. I am so sorry. It’s awful to have a worry about your love–you shouldn’t have to worry about money, too.

      I’m so glad you keep us posted. When you can, let us know how you’re doing tomorrow.

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