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  • Thank you so much for the help. Your ideas are not quirky they’re great. And you hit the nail on the head about him feeling as if he is loosing the role as man of the house. I know it kills him to see me have to […]

  • Thank you Cathy for the advice I haven’t spoken to the doctor yet but I am going to make a point to attend the next patient care meeting at the dialysis center and bring it up to his doctor then and hopefully they […]

  • Hi Donna thank you for reaching out it really helps to have other people who understand you. I am sorry to hear that you husband is on Dialysis. I hear you about getting on the list I have come to the conclusion […]

  • HI Denise. Thank-you for your help. You are right I am that there is an underlying reason for his anger and I can’t blame him. First his sci and then kidney failure he ahs been through alot and I don’t know which […]

  • jill posted an update 2 months, 3 weeks ago

    Ok guys Ineed you advice.For the past few weeks my husband has been having really bad mood swings. I realize that this is common for people with endstage renal failure. Plus considering all he has been through in the last year and half I can’t blame him for being cranky. But he is not only taking things out on me he accuses me of doing all sorts…[Read more]

  • Casandra. You are such an inspiration to me you and Marc will both be in my prayers now and for the weeks to come

  • Hi Pegi
    I am.praying guys it was not long ago we were you it is scary as hell. I am thinking of you both

  • Oh Pegi how awfull I know that fear. There are times after dialysis tom is so weak he can barely walk it reminds me of when he first got hurt. He also gets depressed and feels like giving up. I don’t know how […]

  • jill posted an update 6 months, 2 weeks ago

    Hello everyone Hope you all are well. I just finished reading Cassandra’s blog I am happy for her things seem to be going on the right direction for them. Everything is OK here tom is tolerating dialysis well and we are in the beginning process of getting him on the donor list so there is lots to do and lots to learn.

  • jill posted an update 7 months, 3 weeks ago

    Good morning everyone. hope all of you are doing well. Sorry it has been a while since I have been in touch.between work and running tom to dialasys I have been going crazy. So tomorrow will be one year since tom’s spinal fusion. The beginning of my year from hell. It has been one year since I have been able to hold hands while we are walking.…[Read more]

  • jill posted an update 9 months, 1 week ago

    Hi everyone hope you all are well. Tom is now at the end of his second week of dialysis. He doesn’t seem to mind it as much as I thought he would. But there is so much information to learn. Now I guess we have to get used to the new normal again.

  • jill posted an update 9 months, 2 weeks ago

    Hi guys things are still getting worse here. Tom has just gotten home from an eight day hospital stay. He is now on dialysis. He was in full blown kidney failure and refusing dialysis until Monday. He still doesn’t feel well so I don’t know how long he is going to stay on it. I am so afraid right now I am slowly loosing the love of my life.not…[Read more]

  • jill posted a new activity comment 10 months ago

    Thank you Denise. Right now just having you guys to vent to means so much and is such a big help

  • jill posted an update 10 months ago

    Things are getting worse here by the day. Toms legs seem to be getting weaker since pt has stopped. His kidney function isn’t getting any better and he feels like crap. He is getting very depressed says he is tired of living like this and wishes he would die. Not to mention that he keeps shutting me out instead of letting me help him. I seriously…[Read more]

  • jill and Profile picture of Diane are now friends 10 months ago

  • jill posted an update 10 months, 1 week ago

    Hey guys hope everybody is well. We had appointments with two doctors and still don’t know much more now than we did three days ago. Hubby kidney levels are still off the charts still not sure what the solution for that is. All we do know is that is not a kidney stone that is causing it. And to ad insult to injury he has been feeling lousy.…[Read more]

  • jill posted an update 10 months, 1 week ago

    I’m really having a bad day today. I got a copy of hubby lab results yesterday and his kidney functions are off the charts. He has an appointment with the kidney specialist tomorrow so there is no official word but with levels that high if he is not already in kidney failure he is not far from it. And I am really afraid cause foe the last month…[Read more]

  • jill posted a new activity comment 10 months, 1 week ago

    Your right this is the first time in my life I really wished I had a lot of money just so I could help Tom get better and be able to take time off from work to bring him to appointments and not have to worry we won’t have enough money to pay the bills

  • jill posted an update 10 months, 1 week ago

    So yesterday after going round and round with both of hubbys insurance companies he is officially finished with pt has used up the allotted amount of visits he can have for the year. Even though his physical therapist and the doctor thinks he will still improve with more therapy. I was so upset and angry. It is really sad that my husband…[Read more]

  • Peg you should write as much as you feel you need to. Especially with everything you have had to deal with I don’t know where you get your strength. I admire you so much.

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