@roaringmouseactive 2 days, 5 hours ago
Having handled pregnancy and my spouses newly acquired paralysis with no assistance because insurance felt we did not need it I understand on a very small scale.
Here are my thoughts:
As VA issues are a Hot Button topic,have you thought of approaching your congressmen.?
Look for your local I independent living center…[Read more]
Just because you perceive that they don’t know you are there…understand that “they” do know you are there. My spouse did not pass away until my daughter and said our last goodbyes. It was only seconds after he passed. Thus don’t think for someone …give them the opportunity to hear you even if the brain won’t allow the body muscles to…[Read more]
Spike and I endured a similar experience when he claimed asylum at hospital B from hospital A for bad treatment (a gross understatement). I had so much mistrust for the system and having been escorted by security at B…I didn’t trust that A would help. While sick he had to do it himself. While it was not death…unlike the story noted…[Read more]
Dear Looking Heavenward,
I started out on Caregiving.com, and moved to Aftergiving a few years ago. But I still keep on eye on the former as I like to share information that I have collected over the years.
The title of your blog caught my eye and I had to read it! As I got 1/2 way in your story about the doctor’s (ehem!) antics…[Read more]
I am now an Aftergiver but started out on Caregiving.com about 4 years ago. Saw the title, had to read your article and say THANK YOU! I am so (bittersweet of course!) happy that you shared this frustration. I had been there too!
I was caregiver for my SCI/3 rare disorder spouse. In the six years of being the baptized caregiver…[Read more]
It is down right scary, the lack quality care/training/ethics in some of the workers.
I have talked with the ADRC (Ageing and Disability Resource Center) for the state, the economic assistance consortium that oversees Medicaid for our county, and the county office on aging, they have all referred me back to the MCO. There are 2 MCO’s in this county. The one MCO is loosing clients left and right as they say you can take who we give…[Read more]
Roaring Mouse commented on the post, Tell Us: What Are Your Seven Significant Caregiving Moments? 2 months, 2 weeks ago
I just want to note that I agree that it is important to share your experiences. First because there is no class and you end up being both the ambassador and the teacher for your situation. Second, because there is no education into the world of caregiving and disabilities unless it is shared. – Roaring Mouse
You poor thing! You are working to hard. I’d offer to help but I have to get XYZ done!
What do you mean that’s not done yet? You are just not managing your time well!
–You should have decided not to have children knowing that your spouse was going to be in accident. Now look you can’t juggle both of them. Shame on you for…[Read more]
Prayers have been sent, and hugs are coming to you now. I went through that once with Spike too! But his was a reaction to beta-blockers. Your husband is blessed to have such strong love with him through this and you have an amazing husband who strength to survive is because of yours. If you ever want to talk…you know how to find…[Read more]
Dear Shirley, Welcome to the site! I have been with it for about 4 or 5 years now and even though my spouse has passed on, I come here because I have met the best people in life that I ever could. You’ll find the support and encouragement here amazing!
To follow up on your note…yes it’s frustrating when you have fellow family members…[Read more]
Thank you for your post and for your very good information I will make sure the ambulance , police and anyone else who might be able to help in am emergency know our situation !!
Please feel free to contact me directly too [email protected]
I couldn’t imagine telling someone to divorce a spouse just because they are no longer healthy , is that…[Read more]
You are in a really tough spot. But I agree with Denise and Pegi. Maybe find within your heart the time to have a self discussion and reason out what you are feeling. It does sound like thought that your friend is having a hard time facing the future.
When I went through that, I was told to not tell my daughter anything or even let…[Read more]
Roaring Mouse commented on the post, Recap of Support Group Meeting: Emergency Preparedness and Special Needs 6 months ago
I just saw your post! I might be able to accomplish this for you! I will catch you offline!
Does Caregiving.com have a listing of all Caregivers who have blogs, vlogs, websites, FB, etc. accounts that people can turn to for resources? I’d love to add it to what I do.
Hi RM–I added a directory in March; this article includes more information: http://www.caregiving.com/2014/03/new-a-directory-of-caregiving-services-products-and-companies/
Would love for you to add your information to the Directory.
@adrianna: Welcome to Caregiving.com! Of all of the sites I have ever seen on the net…this site I call home because it’s not about telling you how to do things….it’s about support, cheerleading and offering suggestions on how you might do things. Through most of my journey…they have never left my side and still continue to do so to this…[Read more]
This popped up on my radar again. Thanks @Trish for doing this.
As I looked at Denise’s comments, yours and others…and as I recalled the caregiving awards I received…I don’t see how you can be a successful caregiver if you put your life on hold. The awards I received were because I continued to live in the community while simultaneously…[Read more]
Roaring Mouse commented on the post, Now Available: After Caregiving Ends, A Guide to Beginning Again 7 months, 1 week ago
Denise…This is an awesome idea and should be more readily available. Lord knows I could have used the extra information at that time. What I didn’t expect was to acquire as many unique stories after his passing that I did in his life. I still want to write my book and am hoping over the summer to do it.
Your book (at least from the…[Read more]
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