@trishactive 4 days, 15 hours ago
Hi, Ray, Welcome! I’m happy you started blogging. Denise runs a terrific site and I have found everyone to be extremely supportive. There is much similarity in our stories as I also take care of my younger brother.
I’m glad you had a good day today. I understand how difficult it is to not be a helicopter caregiver!
Keep us posted…[Read more]
Trish commented on the post, At Some Point, Create a Plan to Avoid Hospitalizations 1 week, 6 days ago
Denise, I’m sorry about your father’s friend. End of life is already difficult without extra chaos (and unnecessary pain!). I completely agree about avoiding hospitalizations if possible which I am sure sounds pretty funny coming from me – Robert has been hospitalized numerous times! Fortunately, his pulmonary doctor is working with us to avoid…[Read more]
657!? That must be an all-time high! Well done, @Denise. See you in the finals.
I have something very special planned for Epilepsy Awareness Month this year and I hope you are as excited as I am!
For years I have had the dream of creating a reality show about caregiving as well as making a […]
What a great project. I love that you are following your gut. And how interesting that Epilepsy Awareness Month and National Family Caregivers Month are both November! I’ve never shot video, but have done some video editing for work projects… that is such fun for me, you might find that fun also. Here is a website (if you are interested)…[Read more]
Thanks, @jmkeslin! I appreciate the tip. We’re having fun with the videos and I am already learning some things about Robert that even I didn’t know.
So glad you’re making a dream come true! Looking forward to your videos.
This is so exciting! I can’t wait for the documentary. So happy you have an opportunity to try something new that’s been on your list. I look forward to getting Robert’s take on life.
It’s Wednesday but we’re letting Robert sleep in a little bit before getting ready for Day Program. This means I will be late to work but Robert doesn’t seem to be feeling well and I’m concerned he is getting sick again. His last round of antibiotics ended Saturday night and his breathing difficulties, cough and sneezing has returned. Hoping a bit…[Read more]
I am grateful for my employer who is flexible and understanding about my caregiving situation.
I am grateful for Robert’s Easter Seal’s Day Program. They do not have a non-ambulatory space available which wasn’t much of a problem when he was walking again after the stay in a SNF. However, I need the flexibility to send him in a wheelchair if that’s the safest thing for him (and lately, that’s what he needs). The director is working with me…[Read more]
Pegi, This was beautiful and raw and honest. My heart aches for the loss of your normal but can hear your resolve to make the most of “now.” You are always in my heart as is your husband. Sending love, hugs, prayers and above all hope for more miracles. <3
I can vouch for Denise and her presentations. She was terrific when speaking with the SVALA (was it really that long ago?! Wow, time flies!). I love this idea of a wellness fair for caregivers. Some employers have wellness fairs but caregiving is not usually a part of the agenda! I’ll help spread the word, Denise.
Trish commented on the post, In Six Words: What’s Your Title for Your Caregiving Movie? 1 month ago
Finding a Purpose through Purposeful Caregiving
Robert’s Story: The Magic of Excellent
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