@trishactive 3 weeks, 6 days ago
Pegi, This is extremely helpful information! I am so sorry for your husband’s pain and for the extra trouble the doctor has caused you. Sounds like you are on top of everything and being a fierce advocate. You have my love, hugs and admiration! <3
It sounds like you and your family are doing a great job in providing comfort and managing the decline and decisions during this final stage. As we all know and many of us have experienced, there is a transition from advocacy to comfort and you know when that time comes. Big hugs as you and your family navigate this transition.
There’s so much great information in this post – not just about you and your family but about how to navigate the medical system. What you shared with us in a short blog post is that caregivers and patients can refuse diagnostic tests or get second opinions; every decision is personal – there is no wrong decision; cherishing each moment…[Read more]
@denise, Thank you for hosting the 2nd Annual Virtual Caregiving Conference. I was honored to be a part of it and think you did a great job in putting it all together! I very much appreciate your sponsors as well and regularly use NorthShore Care Supply because they support your site. Thanks again!
Trish commented on the post, Tell Us: What’s the Most Insensitive Comment You’ve Received? 2 months, 4 weeks ago
Denise, I’m sorry your mom had to deal with that insensitive comment. People just don’t think sometimes. (Your example of your mom being insensitive gave me a chuckle – no one recognizes themselves!).
I think the most insensitive situation I have experienced is when people ask for details about my caregiving situation and I don’t think their…[Read more]
Hansologirl, I want to express my sympathy for the loss of your sister-in-law. You went through so much at the end but did so with strength. I am very happy things are falling into place for her celebration of life. It sounds like you are in a very good place. I love the idea of spreading her ashes by her friend and in view (hopefully) of the…[Read more]
Denise, I think you hit the nail on the head when you said, “we do our best within each moment.” Your dad was not the person he is today 11 years ago. He couldn’t have made any different decision. Lillie is absolutely right – there is no certainty in caregiving and that can be a frightening place to be. Thinking of all of you and sending much…[Read more]
This photo of Robert was taken this morning. We’ve made a “bedroom” out of our family room since we live in a two story home. We are putting the house on the market again so, hopefully, Robert will have a bedroom of his own very soon! Robert wakes up so early for Day Program through the week so he sleeps in on the weekend. This picture shows him…[Read more]
Trish commented on the post, A Merge! AfterGiving.com Now Part of CareGiving.com 4 months ago
Wonderful idea! I love keeping all the caregivers (present, future and past) in one space. Great thinking, Denise!
Trish commented on the post, Tell Us: Which Six Words Ruin Your Day (or Night)? 4 months, 3 weeks ago
Robert has a fever and cough.
What an ordeal! You showed great resolve and advocacy which is a requirement these days. My heart breaks when I think about people who do not have an advocate. My brother also goes to a world-class teaching hospital and while I have wonderful things to say about all of his specialists (he too has a whole hose of issues), the ER docs can be…[Read more]
@trish yes, yeah, I agree about having an advocate for sure, been told several times shed not be here without me, but the pressure is enormous! I’ve read some of your blogs..wow I do know the struggle of not being sure what’s best! For my SIL I know home is best only because I’ve seen the nursing homes here and what they’ve had to do in…[Read more]
Trish commented on the post, Which Is Harder on Your Marriage: Parenting or Caregiving? 4 months, 3 weeks ago
In our situation, I think it’s a tie. @kreisler & I raised three kids (a blended family) which has its own set of challenges. I think those challenges (the negotiations, the blending of styles, etc.), are similar to the challenges we face as co-caregivers to my brother.
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