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Home > Tag Archives: alzheimer’s

Tag Archives: alzheimer’s

Seth Rogen Shares His Story About Alzheimer’s

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Seth Rogen, famous for his part in the movie, “Knocked Up,” testified before a Senate subcommittee yesterday; I thought you’d like to hear his remarks. Unfortunately, he spoke to just a few Senators, as 16 got up and left. Rogen did call out the Senators on Twitter, writing, “All those empty seats are senators who are not prioritizing Alzheimer’s. Unless more noise is made, it won’t change.” Related Articles Goodbyes, Hello, and Love (caregiving.com) Dementia ... Read More »

Goodbyes, Hello, and Love

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The two hardest things to say in life are hello for the first time and goodbye for the last — Moira Rogers I read the above quote this week and thought it a perfectly fitting expression. Several members of our caregiving family are dealing with the saying of goodbye and I know from past experience, this isn’t easy. My heart goes out to each and every one of you.  My only encouragement is to be ... Read More »

Podcast: Dementia Care Talk Show

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Claire Day joined Denise on Tuesday, Feb. 4th, for their monthly chat. Claire answers a listener’s question. Want to know what that question is? You will have to listen to find out. Make sure to listen below and as always leave your comments below. Hugs:o) Jane ~ The Roving Reporter More Caregiving Podcasts at Blog Talk Radio with Denise Brown on BlogTalkRadio Related Articles Dementia Care: How Do You Make It? (caregiving.com) Dementia Care: How ... Read More »

Not Jeannie or a Genie

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I am not Jeannie, as in I Dream of Jeannie, nor am I a genie. I do not grant wishes, I don’t look like Barbara Eden, I don’t live in a bottle or a lamp, and I don’t have a master. I think I’ve given the wrong impression that I might be a genie, though. Either that, or my husband thinks he is Captain Picard from Star Trek: The Next Generation. Many times during the ... Read More »

The Alien in Our House

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My husband has dyslexia, so he’s never been a reader. He peruses the newspaper (yes, we still get a daily paper) and if he reads anything, it’s an article in the business section. My husband doesn’t like to swim. He grew up in a house with a pool, was certified as a diver, was even a lifeguard, but has always told me he doesn’t like to swim. Over the years I’ve seen him lounge in ... Read More »

Post-Holiday Relief Syndrome: We Survived!

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This past holiday season my mom and I were recipients of gifts that made us both  stare into space in wonder. What kind of wonder? Well, it wasn’t wonderful. I know people mean well. You’re saying, “It’s the thought that counts.” Right? Wrong! If my mom has really bad arthritis and dementia where is she going to wear  sparkly scarves and low cut sweaters? Back in the day mom was a fashionista. She was more ... Read More »

GOTCHA!

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Things have been going very well here since Steve moved to a lower dose of one of his medications. He has been reading, his spirits are better, he seems to be remembering things, he’s napping less and he planned ahead and purchased a Christmas card and gifts. In the past when this has happened, I have wondered, Is he better? Has it really been something other than MCI all along? Yeah, I know, wondering if ... Read More »

The Energy Crisis

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Steve lives with an energy crisis – his own. If he does too much one day, he isn’t able to do much the next. The catch is what defines “too much” and how and when it will impact him. Sometimes it’s obvious when Steve’s done too much. Last week, Steve attended a meeting at his former employer’s. After the meeting he visited with people for a couple of hours. He told me he knew he ... Read More »

Dementia, Drumsticks and Dressing

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Dealing with Dementia During the Holidays As a caregiver to a mom with dementia for the past 15 years, I have found ways to make it easier on my husband, myself and Mom during the holidays. Here are a few of my suggestions for family caregivers and their carees with Alzheimer’s and other dementias during this season. I hope at least one of these will make your lives  bit easier. First, try to have family ... Read More »

The Memories You Save

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“The memories you save could be your own.” Can you think of any better reason to do everything you can to help advance Alzheimer’s prevention research through education, advocacy and study participation?  There is a way that you, and everyone 18 and older can help. On November 13th, I participated in a webinar with Banner Alzheimer’s Institute to learn about the Alzheimer’s Prevention Registry.   First, a quick education about Alzheimer’s disease and dementia because ... Read More »

Where to Next?

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On November 2nd, my husband, a friend and I joined a few thousand people to participate in the Walk to End Alzheimer’s in Huntington Beach, CA. Our team, Where to Next?, raised $2,440. It was an incredibly beautiful morning; the type that you picture when you think of Orange County, California. The weather was perfect! It was warm, but not hot, with no breeze which is so unusual! Often it’s cold and windy at the ... Read More »

Podcast: My Caree Doesn’t Remember Me

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Denise spoke with Claire Day who had suggestions for caregivers when their caree doesn’t remember them in some way. This made me think of my grandmother who had Alzheimer’s and the last time I spoke to her she didn’t know who I was. I remember how much this hurt me. Make sure to listen to the show and as always leave your comments below. How do you cope when your caree no longer remembers? Hugs:o) Jane ... Read More »

Speechless

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“My goal is to live until our son turns 18.” “13 months from now? Is there something you’re not telling me?” “Well, I didn’t expect to be on disability at 55, and I think it’s important for a child to have their parents until they are 18, don’t you?” I was quite a sight with my mouth open like a fish’s and tears spilling out of my eyes. “Frankly, I’m speechless. My goal is to ... Read More »

World Alzheimer’s Month 2013

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I wrote a letter to the editor of our community paper about World Alzheimer’s Month. They published it Friday. Here it is for you to read. September is World Alzheimer’s Month, making this a good time to talk about the stigma of Alzheimer’s and all dementias. First, to clarify, according to the 2012 World Alzheimer Report 2012, “Dementia is a syndrome that can be caused by a number of progressive illnesses that affect memory, thinking, ... Read More »

Magical Mystery Tour

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(Editor’s Note: We welcome Kirsty to our blogging team today. I connected with Kirsty on Twitter and asked her to post a book review of You Say Goodbye and We Say Hello by Tom and Karen Brenner. You can follow Kirsty, who cares for her grandmother, on Twitter: @WandererKirsty.–Denise) I have recently been reading You Say Goodbye and We Say Hello by Tom and Karen Brenner. They embrace the Montessori method and this great book ... Read More »

How Do I Answer Those Questions I Don’t Want to Answer?

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Dear Denise, I care for my husband who has early stage Alzheimer’s disease. I’ve learned that others who ask me how my husband is doing really don’t want to know. Usually, I just tell those who ask that he’s doing amazingly well for someone who is almost 90. I also do not want to talk about my problems that I face every day because it seems disloyal to him, it’s none of their business and ... Read More »

Caregiving Bloopers: George Michael and Graceldoor Return to the 80′s

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We  live in a two-story house. Things that are upstairs should stay upstairs. One reason is it is too heavy to bring downstairs or if I put it downstairs it will get lost. Our downstairs is the Bermuda triangle for missing socks, earrings, abandoned neighborhood pets and dementia patients. (More on that later and also keep reading you’ll see why there is a picture of Wham over there.) My husband who is not superstitious or ... Read More »

Easy Breezy Summertime

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I’m experiencing a unique time in my life. For the first time in over six years, there is no immediate, pressing, red-letter emergency brewing. I haven’t been to the Emergency Room in months. No one is in the hospital. No rushed trips home, only a few urgent phone calls. It’s been weird. Mind you, I remain as busy as ever. Mom is still a dementia patient residing full time in an Alzheimer’s facility. Mom readily ... Read More »

Graceldoor and the Three Bedrooms: Someone’s Been Sleeping in My Bed

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As a daughter of a mom with dementia the day-to-day routines for my mom can be a challenge. Things like finding the right bedroom or knowing that we have two bathrooms in the house. My husband Shon and I are big Lord Of The Rings fans. Most of the characters have names like Isildor or Galandria, and  other cool Middle Earth names. It never fails that when we are on the couch together my mom ... Read More »

Caregiver Bloopers: Mom’s Appointments, Vicodin, Viagra and Volkswagens

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As a family caregiver you probably spend more time at your caree’s hospital than they do. You are also wondering why a image of Julio Iglesias is on this post. Just keep reading. I hope this brightens your day and makes you laugh. You are the one that has to go get medications when they run out. You have to take forms to the correct department. You have to resolve billing errors. You are also ... Read More »

Dementia Care: How Do You Make It?

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This morning, Claire Day, our dementia care expert, joined me for our monthly dementia care show on Your Caregiving Journey. You can listen to our show via the player below. Today, we spoke about making it through caregiving, from the beginning to the middle to the end. Claire shared her thoughts about the priorities to focus on throughout the experience to make it for the long haul. During our show, Claire spoke about the middle–when ... Read More »

Promotion to Potted Plant

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One of the realities of dementia is the loss of language.  It’s clear my mom recognizes that there is a connection between her and I but she gets very creative in describing what that connection is.  She has at times identified me as either her father or her husband although her most common descriptor of me is brother.  Only rarely and always only briefly does she correctly identify me as her son. I like to ... Read More »