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Tag Archives: difficult decisions

EXTREME Caregiving: A New Approach


magA few days ago I was at such a low point. SIL (as shared previously) was falling and we figured out it was attention seeking. I got so hurt and confused. I usually take things in stride, but I’m sorry to say I didn’t this time. The pressures of the situation caught up I guess. I was so sad, so disheartened by that. Just WHY when I do everything I can to help her? SIL ...

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A Day in the Life Of


Earlier today, I posted this prayer/poem on my status update.  It’s the SH Prayer and it has been one of my favorites for many years, I think since I was in middle school which was the early 70’s, or maybe around the same time as the Desiderata, another personal favorite of mine. Live Each Day to the Fullest Live each day to the fullest. Get the most from each hour, each day, and each age ...

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EXTREME Caregiving Day 2: Trying to Take Care of Me


As I’m stepping back a little,I’m realzsing everything I’ve been doing. I’m still here for my sister-in-law, but this weekend I’m support staff lol, not head caregiver while we try and forge ahead and try and find balance especially for me. Hospice is a weird thing, for most it is a few weeks as you say goodbye to your loved one, hopefully at home. I was prepared for that with SIL but I really didn’t ...

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The Many Faces and Ages of Caregiving

many faces of caregiving

Many times I think our society thinks  of caregivers as middle aged with aging parents or spouses .Although that is true there are many children and young adults who are thrown into caregiving roles. My kids who are now in their early 20’s have helped me care for my grandmother when she was alive and now my mom as well.They have over ten years of experience with medications, food prep,laundry care and companionship. Of course ...

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Tell Us: What’s Been Your Toughest Choice?


Your comments on the post, “Caring for an Elderly Parent Will Kill You Faster Than Anything,” have been fascinating. A comment from @bootsie stuck with me. In part, she wrote: I have a dear friend who I worked with for 8 years who lost her job and has taken care of a sibling and both of her parents. This took her away from her husband most of the time. Her Mom is her only caree ...

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Handling Caregiving, Career and Canines


Although I am glad that I am excited about starting a new job today, as a caregiver you know it is hard to handle caregiving and a career. I was giving Mom a bath last night and she actually didn’t need help for once getting out of the tub. Her arthritis wasn’t as bad as usual. She didn’t complain about the clothes I laid out and she was pleasant. That put me in a good ...

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Decisions, Part 2

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(Editor’s Note: You can view Decisions, Part 1 here ( I always knew that I wanted to get married and have children someday. However, now there was the very real possibility that I would someday be responsible for my disabled brother, and did I want to bring innocent children and a husband in to that picture? Could I adequately give everyone the attention they deserved? Was that arrangement fair to them? I first focused solely ...

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Decisions, Part 1


In the months after Dave’s accident, as he went from an ICU to eventually a skilled nursing facility all the while lying in a persistent vegetative state, it became clear that there wasn’t going to be a miracle recovery. We slowly began to realize and accept that the Dave we knew and loved from before was gone. He was never coming back. We had to learn to live with our new reality of caring for ...

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New Medication – Take Two


The decision to take Robert off of Trileptal (Oxcarbazepine) was very difficult. It felt as if I was saying, “Why no, Robert, you can NOT have seizure control.” Robert has tried his entire life to achieve seizure control. Our parents did what they could in order to reach that goal when he was a child. When Robert lived on his own, he signed up for any and all drug trials possible (by this time, against ...

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