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Tag Archives: disrupt

Bob Makes His Television Debut

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Bob (@bobmarcotte) made his television debut yesterday!! He appeared on a local television station to promote an upcoming conference for cancer survivors and family caregivers. He’ll speak at the conference and, based on his comments during yesterday’s appearance, he will be awesome!! If you live near Fresno, Calif., register to attend the free conference, Cancer Survivorship Conference on May 2. Related Articles Podcast: Table Talk with Bob (caregiving.com) Tell Us: Has Caregiving Cost You Your ... Read More »

Climbing Everest for Family Caregivers

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By Kuntal Joisher Growing up not too far from the Himalayas, climbing Everest has always been a dream of mine. But, it wasn’t until five years ago that I decided to pursue the challenge and begin training for the journey of a lifetime. As expected, the physical training has been anything but easy. However, the emotional toll I have taken during this time often feels infinitely harder than climbing any mountain peak. Almost seven years ... Read More »

Because You Care, Wear Green Today

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I continue to think more about the loneliness and isolation that can be common when you care for a family member or friend. Wouldn’t it be great if you could somehow spot another family caregiver in the crowd? So, let’s try it. Today, wear green to bring awareness to the family caregiver experience. Use your green as a conversation starter. If you see a colleague or stranger or co-worker wearing green on April 11, strike ... Read More »

Health Care Happens in the Family; Let’s Tally Your Caregiving Years

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We think of the health care system as compromising hospitals, outpatient facilities, doctors, rehabilitation services. Sure, these are part of the health care system. Health care, though, happens in the family. Hospitals, outpatient facilities, doctors and rehab services provide once-in-awhile care. Family members, like you, provide all-the-time care, day and night, day after day. You change wounds, dispense medications, monitor health, provide activities, prepare special meals, keep health care professionals up-to-date, research options, advocate for ... Read More »

Because You Care, Wear Green on April 11

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I continue to think more about the loneliness and isolation that can be common when you care for a family member or friend. Wouldn’t it be great if you could somehow spot another family caregiver in the crowd? So, let’s try it. On Friday, April 11, wear green to bring awareness to the family caregiver experience. Use your green as a conversation starter. If you see a colleague or stranger or co-worker wearing green on ... Read More »

Seth Rogen Shares His Story About Alzheimer’s

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Seth Rogen, famous for his part in the movie, “Knocked Up,” testified before a Senate subcommittee yesterday; I thought you’d like to hear his remarks. Unfortunately, he spoke to just a few Senators, as 16 got up and left. Rogen did call out the Senators on Twitter, writing, “All those empty seats are senators who are not prioritizing Alzheimer’s. Unless more noise is made, it won’t change.” Related Articles Goodbyes, Hello, and Love (caregiving.com) Dementia ... Read More »

I Am Going to Yelp!

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Now that work is back to the “usual busy” instead of the “I’m losing my mind busy,” I am catching up on the non-urgent appointments for Robert. We finally got his new helmet – just in time too.  Robert and I had gone to pick it up a few weeks ago but the wrong helmet was ordered so we had to wait for the right one to come in. (Robert needs a hard shell helmet, ... Read More »

Friday Video Chat: The Power of Advocating

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In this video chat, Tami (@tneumann) joins me to discuss the uphill battle she faced and ultimately won in order for her son to receive an insulin pump. Related Articles Friday Video Chat: What If Employers Offered a Caregiving Leave? (caregiving.com) Our Caregiving Year in Review (caregiving.com) Tell Us: Has Caregiving Cost You Your Job? (caregiving.com) Advocating Can Be a Dirty Job or I Went Kaboom (caregiving.com) Tell Us: When Have You Deferred on a ... Read More »

17 Reasons Why Caregiving Makes You Awesome

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Caregiving can make you weary and, well, crabby. It also makes you awesome. And, I’ve got 17 reasons why caregiving makes you awesome. 1. You’re a best friend. Because of your caregiving responsibilities, you’ve lost some friends which means you know how to be a great one. You support and encourage and you stick by a friend when a friend needs one most. Your friends are very lucky to have you. 2. You are open ... Read More »

Video Chat: Caring for Mum

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During this video chat, Martyn ( @zkidookreativ ) joins me to talk about caring for his mum and how he uses social media to help other family caregivers. Related Articles Friday Video Chat: What If Employers Offered a Caregiving Leave? (caregiving.com) Video Chat: How Do We Define a Primary Family Caregiver? (caregiving.com) Vidoe Chat: Caregiving Then and Now (caregiving.com) Read More »

Tell Us: When Have You Deferred on a Doctor’s Recommendation?

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Recently, during one of our member chats, we discussed a doctor’s recommendation that you knew was not right for your caree. You may have understood the reason for the doctor’s recommendation and you knew you had a better solution. Which leads to quandary: Follow the doctor’s advice or follow your gut. So, I’m curious: When has a doctor made a recommendation that you knew wouldn’t work but you followed anyway? Or, when did a doctor ... Read More »

You Mean, Besides the Cancer?

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As a doctor walks through a hospital, he is master of all he surveys. He‘s the Lion, and everyone in the pride defers to him. The nurses, the technicians, hospital staff and pharmacists, all well educated themselves, await his arrival, follow his “orders”. And the hospital itself is spread over acres. Most hospitals offer complimentary valet parking, because it‘s cheaper than sending out search parties for patients who have lost their cars. The complex is ... Read More »

Where Are We Headed?

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Where are we headed? I need to start this post off with, “I’m not talking about everyone, just the _?_%.” And what am I talking about? The people who see someone, be they elderly, pregnant, disabled, hands full, having a medical issue and clearly they are in need of some assistance with a door, picking something up, whatever it is and these people just sit or stand there and do absolutely nothing. Yesterday Robert and I met up ... Read More »

Where to Next?

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On November 2nd, my husband, a friend and I joined a few thousand people to participate in the Walk to End Alzheimer’s in Huntington Beach, CA. Our team, Where to Next?, raised $2,440. It was an incredibly beautiful morning; the type that you picture when you think of Orange County, California. The weather was perfect! It was warm, but not hot, with no breeze which is so unusual! Often it’s cold and windy at the ... Read More »

On November 8, Let’s Disrupt on Twitter

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You are a disruptor. Typically, disruption takes place from technology. I believe technology will impact our health care industry. It’s a group of individuals–like you–who will transform it. Because of your role in your caree’s care, you disrupt the health care system because you become the provider. You are as valuable in the health care industry as the doctors and nurses, as the hospitals, home care agencies, long-term care facilities. You provide a great value ... Read More »

World Alzheimer’s Month 2013

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I wrote a letter to the editor of our community paper about World Alzheimer’s Month. They published it Friday. Here it is for you to read. September is World Alzheimer’s Month, making this a good time to talk about the stigma of Alzheimer’s and all dementias. First, to clarify, according to the 2012 World Alzheimer Report 2012, “Dementia is a syndrome that can be caused by a number of progressive illnesses that affect memory, thinking, ... Read More »

Thank You And Our Winners

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This past week, we celebrated CareGiving.com’s 17th birthday. We also disrupted–by taking action to impact others, ourselves and each other. Thank you all for such a special week. I loved all your comments and tweets and Facebook posts and stories and risks. You made this week incredibly special. Here’s what our week looked like: –On Sunday, we disrupted by inviting others to join in our birthday celebration; –On Monday, we honored your carees by sharing ... Read More »

Birthday Celebration: Take a Risk

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating and breaking to disrupt our destiny by taking a risk. It could be a little risk or a giant one. It could be saying “hello” to a stranger or confiding in a trusted source what’s been weighing on your heart for way too ... Read More »

Birthday Celebration: Tell Your Story on Twitter

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating and breaking to disrupt on Twitter by sharing your caregiving stories; use this hashtag: #icare. You can share your story in several tweets, which could look like this: I began caring for my grandmother 10 years ago when she was diagnosed with cancer. ... Read More »

Birthday Celebration: Give Thanks for Family Caregivers

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re celebrating on Facebook by sharing a gratitude for family caregivers. Whenever you can today, share an update on your Facebook page that expresses thanks for all family caregivers. Your update could look like this: I care for my (insert information about your caree). It’s ... Read More »

Birthday Celebration: Forgive

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. We’re mingling our birthday celebration with our ability to disrupt. Today, we’re breaking to disrupt our life with forgiveness. I think we all carry a regret or a shame. Maybe it’s not something we think about every day or every week, but once in awhile, the memory comes up. And, we can feel that memory begin ... Read More »

Birthday Celebration: Have Fun

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Every day this week, we’re celebrating CareGiving.com’s 17th birthday with activities and prizes, including a grand prize of $300. Today, we’re celebrating by taking time to have fun. At some point today, do something fun, even if for only five minutes. You could take a break to play a game, enjoy your backyard, listen to your favorite music. However you define fun, take time today to enjoy it. Then, share how you had fun in ... Read More »