by Trish
Jun 12 2013 in Caring for Siblings, Trish's Blog by Trish
(This is reprinted from @Trish’s personal website www.robertssister.com) I have to break it to you: Co-Caregiving is not all roses, sunshine and success. Yep, there are bad days. On my good days, I will break down that bad day (or days) into moments and realize we had some bad moments. Of course, who wants to [...]
by Trish
Jun 5 2013 in Caring for Siblings, Trish's Blog by Trish
(Reprinted from Trish’s website www.robertssister.com) Our caregiving situation is not unusual. According to a 2009 study conducted by the National Alliance for Caregiving in collaboration with AARP, approximately one-third of caregivers care for two or more people. In our own situation, I am the primary caregiver for my brother, Robert, and Richard (@kreisler) is the [...]
by Trish
Apr 11 2013 in Caring for Siblings by Trish
“I was wondering if this would be too much for you.” Denise recently asked me this but she wasn’t referring to caring for Robert. She knows Richard and I can care for Robert and that bringing him into our home was the right decision for us. She was referring to an interview she asked me to [...]
by Trish
Apr 1 2013 in Caring for Siblings by Trish
No more rationing how many nights Robert can sleep over; No more arranging doctor appointments not only around my schedule, work and when Robert is sleeping over but New Home schedule; No more worry if he is wearing clean pants every day (and a dry brief) or if I have to change him before bringing [...]
by Trish
Mar 28 2013 in Caring for Siblings by Trish
Medication dispense times per day: 7 Total number of pills to give per day: 25 Medications to keep filled on time: 9 The consequences of screwing this up: severe (increased and/or prolonged seizures, physically hurt from increased falls, increased memory and balance problems). Worst case scenario: I don’t even want to think about it. My [...]
by Trish
Mar 21 2013 in Caring for Siblings by Trish
My checklists have checklists (and that’s on a normal day). Preparing for Robert moving in? Let’s just say my checklists are having a tough time keeping up. Preparations are well under way and tasks are being crossed off the list at pretty good clip! I started the move prep by creating a checklist (shocker). I [...]
by Trish
Mar 16 2013 in Caring for Siblings by Trish
On Tuesday, I announce that Robert is going to live with us starting in April. On Wednesday, the Wonderful New Home House Manager calls to tell me Robert is not feeling well and wanted to stay at New Home instead of going to Day Program. Robert has had a cold/flu all winter and has periodically [...]
by Trish
Mar 12 2013 in Caring for Siblings by Trish
by Trish
Jan 28 2013 in Caring for Siblings by Trish
by Trish
Dec 19 2012 in Caring for Siblings by Trish
by Trish
Oct 27 2012 in Trish's Blog by Trish
Affected by Epilepsy? I want to know your story. Everyone has a story and in honor of November Epilepsy Awareness Month, I want to help you tell it. (November is also National Family Caregivers Month and Denise has some exciting events planned). What Robert’s Sister will be doing in November is posting interviews of people who [...]
by Trish
Jul 18 2012 in Trish's Blog by Trish
The Good: For years, Robert was treated for his epilepsy at UCSF which has a prestigious epilepsy center. Robert tried out the Vegus Nerve Stimulator, participated in a study for the Deep Brain Stimulator study as well as underwent two brain surgeries by world-renowned surgeons. He really has received the best care by the brightest [...]
by roaringmouse
Jun 24 2012 in Disrupt, Roaringmouse's Blog by roaringmouse
by Trish
May 17 2012 in Trish's Blog by Trish
I know I tend to ramble but this is not one of those times. Robert is out of the hospital and I’m exhausted. I’ll fill you in more tomorrow. The important part is that Robert is out of the hospital and (keep your fingers crossed) infection free. Thank you for your prayers, thoughts, well wishes [...]
by Trish
May 16 2012 in Trish's Blog by Trish
by Trish
May 14 2012 in Trish's Blog by Trish
by Trish
May 11 2012 in Trish's Blog by Trish
I wanted to write a quick update and promise to update you more later. Yesterday, Robert and I were interviewed for a nationally-aired, AARP-produced-for-PBS TV program “Inside E Street.” Woohoo! It was exciting and nervewracking and I joked with Robert that he was a TV star. He loved it. During the interview and time with [...]
by Trish
Apr 19 2012 in Trish's Blog by Trish
by Trish
Mar 30 2012 in Trish's Blog by Trish
What would you do with $640 million? At 1 in 175.7 million, the odds of winning the lottery are ridiculously astronomical. (By comparison, the Institute of Medicine of the National Academies released their long-awaited “Epilepsy Across the Spectrum” report to the nation and estimates “approximately 1 in 26 people will develop epilepsy at some point [...]
by Trish
Mar 25 2012 in Trish's Blog by Trish
March 26 is the Global Day of Epilepsy Awareness (otherwise known as “Purple Day” thanks to the Purple Day Organization). Purple Day is about spreading awareness and education about epilepsy which, hopefully, leads to more research so this disorder can be cured. Yes, cured. The goal is to stop epilepsy in its tracks. On Monday, [...]
by Trish
Mar 16 2012 in Trish's Blog by Trish
by Trish
Mar 6 2012 in Trish's Blog by Trish
Robert enjoyed being interviewed this past weekend. He answered my questions while snacking on a few cookies and was happy people wanted to learn about his seizures and epilepsy. He was even happier when I let him have extra cookies since we had a lot of questions to answer! Because there were so many great [...]
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