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Tag Archives: support

New: Canadian Groups

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On Tuesday, @jeff sent me a tweet suggesting that I add a section for family caregivers who live in Canada. Oh, my. I have no idea why I didn’t think of that. We have a few members from Canada (@oscargal @jeff and @dkridingshotgun) and have room for as many more who would like to join us. So, I’ve added groups for our Canadian members, one general group (Canada) and one for each of the provinces. ... Read More »

The Alien in Our House

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My husband has dyslexia, so he’s never been a reader. He peruses the newspaper (yes, we still get a daily paper) and if he reads anything, it’s an article in the business section. My husband doesn’t like to swim. He grew up in a house with a pool, was certified as a diver, was even a lifeguard, but has always told me he doesn’t like to swim. Over the years I’ve seen him lounge in ... Read More »

So Far, What’s the Biggest Caregiving Problem You’ve Resolved?

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Over the weekend, I had an interesting discussion with my brother-in-law about his parents, who’ve had health issues the past few years. He said his dad is feeling much better now that his doctor adjusted one of his meds. For about a year, his dad was winded walking from one end of the house to the other. He saw his primary care doctor and his specialists, none of whom could pinpoint the cause or solve ... Read More »

The Memories You Save

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“The memories you save could be your own.” Can you think of any better reason to do everything you can to help advance Alzheimer’s prevention research through education, advocacy and study participation?  There is a way that you, and everyone 18 and older can help. On November 13th, I participated in a webinar with Banner Alzheimer’s Institute to learn about the Alzheimer’s Prevention Registry.   First, a quick education about Alzheimer’s disease and dementia because ... Read More »

On a Serious Note (Hug a Loved One), Part III

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On a Serious Note (Hug a Loved One) III: Mom’s little Princess Taffy decided that 3:30 (a.m.) was the perfect time to need to go out and patrol the perimeter of the backyard, after she had already used my office/spare bedroom. I received an update on Vincent and they were correct in determining that Vincent does have a defect with his heart that when he exerts himself it can cause the heart tissues to expand ... Read More »

Tonight: #mencarechat on Twitter

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Please Join Us for Today’s #mencarechat on Twitter Our #mencarechat on Twitter takes place tonight at 8 p.m. ET (7 p.m. CT, 5 p.m. PT). We will start by discussing: “Why are more men becoming caregivers?” and go from there. #mencarechat begins at 8 p.m. ET, 7 p.m. CT and 5 p.m. PT. Our chat is open to any and all family caregivers, male and female. To join in, go to twubs.com, log into your ... Read More »

Tomato Soup and Starbucks

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Robert has been in the hospital since Saturday (9/14) with pneumonia and sepsis. So far he has been on an IV or liquid diet. Today they expanded his diet to include liquids. ?? What’s the difference? He can now have tomato soup and Starbucks Double Chocolate Chocolate Frappuccino. Yea!! When I arrived, Robert was up and walking with orthopedics for the first time since he arrived. Of course he only made it 10- to 12-feet ... Read More »

Keeping the Light On

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When Judy moved in with her dad because of his diagnosis of early stage Alzheimer’s, she thought she’d do a little extra to help him out. What was a little extra now consumes her day. It’s not just the laundry, cleaning and meals. It’s the doctor appointments, the continual reminders to her dad that he can’t drive, the constant organizing of medications. And, then, of course, there’s the patience required in living with someone who ... Read More »

Back to…

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It’s back to school time! If you are raising a child, they have either started school or will be returning to school very soon. With the start of the school year comes excitement, anxiety, new clothes, new school supplies, the outlay of a lot of money, and a busier schedule. If you’re also a family caregiver, you may be wondering how you will juggle everything. You might be an experienced family caregiver who has been ... Read More »

We’re All the Same

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No matter how brave, strong or levelheaded we are, sometimes we all get scared. - Author Unknown Sometimes a quote, poem or saying comes along that just can’t wait for you to publish later; this is one of those saying. Everyone can use a boost of confidence or just to know that they’re not the only one in a tough spot. What they should know is that it will change, just like the weather storm ... Read More »

Crown Of Thorns (Running for Cover)

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“May the ‘God’ of your understanding richly bless you and stay well” @rainbow. As it’s Sunday while I type this post after last night’s chat and my post about losing my temper with my father, I found that I got devoured by the Tiger of Dementia. That Beast of Depression took over last night and it’s not quite gone yet.  I haven’t slept well for days.  There is only so much yelling I can take and ... Read More »

Shelter

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This community has provided me with a sense of shelter from so much trauma.  You have helped me see that I can handle so much more than I thought. You have made me laugh when I thought I had no laugh in me.  You have helped me cry when I thought I was unable to cry.  You have thanked me for things that you do.  You have helped me feel worthy. I can’t believe (yet) ... Read More »

Tell Us: Your Advice to a Friend New to Caregiving

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Earlier today, I wrote about a new guide that’s now available called A Caregiving Survival Guide. In the guide, you share your best suggestions, tips and resources with a friend, colleague or family member who is new to a caregiving role. You pass along your wisdom, your lessons learned and your best solutions to help a friend caring for a family member with a chronic illness. So, I’d love know: What advice would you offer ... Read More »

Now Available: A Guide from a Caring Friend

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A few weeks ago, I spent the afternoon with two of my nieces and my sister. My oldest niece lives in an area of a Chicago suburb that includes lots of fun shops. As we browsed through a gift store, I happened upon a book for moms to give their daughters. The title was something like, “Words of Wisdom from a Mom to her Daughter.” OHHHH!! I thought. Wouldn’t it be great for family caregivers ... Read More »

The Test

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Tomorrow I’m having a colonoscopy. From here on out we’re referring to it as The Test because c-o-l-o-n-o-s-c-o-p-y is too much to type. This has been scheduled since early last month. I let Steve and our son know and had already arranged for a friend to take me for the appointment. She’s not a morning person, yet, she’s picking me up at 7:15 tomorrow morning. What a friend! Most of the time, Steve’s memory issues ... Read More »

Tell Us: What Will You Stop?

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Last month, while preparing our free webinar, Moving from Sacrifice to Compromise, I ran across Dr. Phil’s 10 Life Laws. In an article about his Life Laws, he suggested questions we can ask ourselves in order to make positive changes in our day. I can’t recall all the questions because I can only remember one: What will you stop doing today? For some reason, this idea of stopping really hit me. I’m always starting–a new ... Read More »

How Others Rationalize Away Helping

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My neighbor’s wife has cancer. I found out around Christmas when I went to their house to deliver the trail mix that we make for them each year. The cancer was in her jaw and she had to have reconstructive surgery. I didn’t know his wife was ill, and neither did the other neighbors. I did the usual thing and asked if he needed anything and of course he didn’t. I told him to let ... Read More »

What Dementia Cannot Do

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There is an inspirational poem entitled, “What Cancer Cannot Do” which you may have seen on the internet.  I started a list of What Dementia Cannot Do and would love to have you add to it.  (Dementia is being used here as that umbrella term encompassing dementia as well as Alzheimer’s, Frontal Temporal Dementia, Lewy-Body Dementia, Mild Cognitive Impairment and every other diagnosis that falls into this category.) - Take away your accomplishments - Remove ... Read More »

Music to Comfort

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Today, on CBS Sunday Morning, Bill Flanagan of MTV shared songs which can bring hope and solace. He recommended: Leonard Cohen’s “Hallelujah”; Simon and Garfunkel’s “Bridge Over Troubled Water”; The Beatles’ “Let It Be”; James Taylor’s “Fire and Rain”; The Melodians’ “Rivers of Babylon”; Bob Dylan’s “Every Grain of Sand.” I would add: “Lullaby” by the Dixie Chicks; “Next Year” by the Foo Fighters; “In the Sun” by Michael Stipe and Coldplay; “In My Life” ... Read More »

Next: Way, Light, Noise

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Jane and I discussed last week’s three words in our Three-Word Journaling class (part of our CarePASS membership) this morning. We realized that we can go through life in a sleep. When we wake–and face our days–we can move forward and together with others who understand. When we stay asleep, we stay alone. Our next three words for our Community Caregiving Journal are: Way Light Noise You can write about each separately in three separate ... Read More »

Next: Sleep, Forward, Together

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Jane and I discussed last week’s three words in our Three-Word Journaling class this morning. We put all the three words together to create this sentence: When we’re frank about how we glitter, we keep our bounce. Our next three words for our Community Caregiving Journal are: Sleep Forward Together You can write about each separately in three separate posts. You can write about all three in one post. You can write sentences using all ... Read More »

Next: Glitter, Bounce, Frank

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We’re heading into our second week of our Community Caregiving Journal. Create a blog post by next Wednesday, December 12, and write about these three words: Glitter Bounce Frank (you can write about the Franks in your life or just about being frank or any other definition of frank (like a hot dog) you’d like) You can write about each separately in three separate posts. You can write about all three in one post. You ... Read More »