In addition to running my business, I also have other jobs, including getting gigs through a speaker’s bureau for Employee Assistance Programs (EAP) and Work/Life Benefit companies. I often present Lunch and Learn seminars about caregiving, stress management and work/life balance on behalf of EAPs and Work/Life Benefit company for their clients, which are employers. During the fall, I will man booths for EAPs and Work/Life Benefit companies at employers’ wellness and benefits fairs.

Today, I manned a booth for an EAP at a large corporation headquartered in downtown Chicago. As usual, I chatted with the vendor next to me–a gentleman (“Bud”) who sold life insurance.

During the course of our conversation, Bud began talking about caregiving. I’m not sure what led to the discussion but he shared about the family meetings he had with siblings about his mother’s care, about his sister’s mistaken belief that their mother’s military insurance (TRICARE) would pay for nursing home care. And, then, he declared,

“Caring for an elderly parent will kill you faster than anything.”

He said it emphatically, with arm movements to drive home his point. “I really mean that,” he added.

He continued to talk although I had stopped listening because I was still thinking about his previous comment.

I’m always curious about your thoughts to a statement like this. What do you think? Will the caregiving experience do you in? Share your thoughts in our comments section, below.

About Denise

I began working with family caregivers in 1990 and launched Caregiving.com in 1996 to help and support them. Through my blog, I share words of comfort and offer coping strategies and tips. I also write opinion pieces about recent research, community programs and media coverage of caregiving issues. I've written several caregiving books, including "The Caregiving Years, Six Stages to a Meaningful Journey," "Take Comfort, Reflections of Hope for Caregivers" and "After Caregiving Ends, A Guide to Beginning Again." You can purchase my books and schedule a coaching call with me in our store.

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Linda
Member

It’s not “doing me in,” but it sure has altered my life. Some of that alteration is good, such as seeing death in a different way and learning more about how devastating my mother’s cancer is for everyone who contracts it (who knew a year ago I’d be deeply involved in a cholangiocarcinoma group?). While some of this support is heartbreaking, it’s also empowering. On the other hand, I’m getting wiped out financially going back and forth between two states, and I’m just tired. Plus, I’m not sure I like the new “patient” under my care. He’s changed a lot… Read more »

jackie connelly
Guest
jackie connelly

hi Linda,
hope your keeping well, know the feeling my mom 95 ……sharp as a razor & healthy as a trout…..but i have a life to live too …..but jesus girl tis diffuclt…….i live in co galway ireland.

take care and GodBless.
would like to hear from you….take care ………jackie.

Lillie
Member

I don’t feel like my role as caregiver is killing me faster than anything but it continues to change my life. I can understand how someone might feel that way though. For instance, caregiving might be more difficult for an only child, although I have 3 siblings who do not participate in my mom’s care. In my own situation my mom does not qualify for outside help and I do not qualify to receive pay for caring for my mom. I’m not able to go out to the gym, to go for a walk when I want to, to have… Read more »

Stephanie
Guest
Stephanie

Love can conquer all. I applaud you and see your love for your mother You appreciate the love and care she’s given you. If everyone could just truly love, then they could care and appreciate the love and care they were given when they were being cared for growing up. It’s basically the same thing but turned around. Thank God my mom wasn’t one to just throw me in the trash or anything else as such. There are some moms that feel the same caring for a baby as do some adult children feel caring for a parent when they… Read more »

roberta
Guest
roberta

Ok well that sounds great until they become bitter mean and nasty and not even your mom so no sorry love doesn’t conqyer it more like survival of the fittest

April Farnham
Guest
April Farnham

It ones thing to have that love and to give it back but, there are ways to maintain balance and you can just give up for your life. Our parents had help, so should we.

Carol Kotcheck
Guest
Carol Kotcheck

I know, my Mother kicked me out at Sixteen,went on to limit and sabotage my adult life. Now she remarried a man who at 89 has end stage dementia,and I’m going crazy taking care of them both when my brother who got the education, money, is nowhere around. I love her,but she abandoned me from 15 to 22 and I want to finally be free so sometimes I resent the fact that I adore her and she never did me.

Billie windsor
Guest
Billie windsor

Iam married to a wonderful man but after we were married he moved his 96 yr old mother in our house she has dimenisa said and is very bitter very mentally abuse I’ve to my husband and he treats her like a queen she has started physically abusing us now slapping us for no reason. I’m so stressed I hate the thought of a divorce over this he refuses to put her in a nursing home and I can’t live like this I don’t know what to do I’m so torn. Sad depressed and stressed to the max.

Jacqueline S. Setterlund
Guest
Jacqueline S. Setterlund

I took care of my fil 3 years bedridden patient lift worked full time, I swore I would never take care of my mil she is 81 living with us and I hate my life. She was never nice to me. I was sick and throwing up today and my husband took her out to dinner didn’t care about me. I hate this they thought my family was poor useless but let me tell you I had a great job great retirement and my family were saints compared to them. They would help my family at all yet I’m expected… Read more »

A K Peters
Guest
A K Peters

Jacqueline, this makes me so sad for you. I am glad you had good things in life as your job and family. But, it sounds like you are being taken advantage of. If you yourself are disabled, why are you the caregiver?

Sandy partain
Guest
Sandy partain

Unbelievable I have cared for my mom for the last 4 yrs. She lived 70 miles away and I went there once and twice a week. She became mean and abusive and accused me of stealing…After I had spent thousands of dollars on her over the years

JMP
Guest
JMP

When they get Dementia, their brain is not functioning at full capacity. One saying I have always kept “It is not them talking it is their mind” If the mind is telling them what to do, no decision making, just what their minds are telling them” I know, I take care of 83 yrs old w/ midstage Dementia. Abt a level 3.5 out of five. It is not the person it is what their mind is telling them what to say and do. Just remember the good times you had w/ this person before the Dementia set in. I will… Read more »

Babs
Guest
Babs

What if you haven’t really had any good times with them prior to dementia? That changes the perspective a bit, especially if they were not a good parent and have been narcissistic their entire life. Yet you’re thrust into the role of caregiver and supposed to just nod and accept it all because it’s dementia. Um….that’s really hard and not sustainable for the long term. It’s worse when you have NO family members sharing the load.

Carol
Guest
Carol

Babs, you just described my situation, ugh! It really does feel as though the blood life is being sucked right out of me. My mother has dementia, has had 2 strokes but, didn’t lose any physical abilities. I was there for both and got her to the hospital each time. (me – vet Army medic unit) The thing is, she behaves like an entirely differant person around other people and talks to my sister, who lives in another country, like she’s “normal”. Even used to deny she has dementia. That was only a few months ago. 24/7 I’m at her… Read more »

Dorothy
Guest
Dorothy

My mom was critical, controlling, condescending, and blamed everyone for her problems all of her life. My friends were never allowed to come over to our house when i was growing up. She had to go to court to get visitation rights to my deceased brother’s child because she was so mean to my brother’s widow. She complains viciously about anyone she hired to do work around the house so much so that I think she had been “blacklisted” by local handymen.I feel guilty for “talking trash” on my own mother but I have used all of my vacation and… Read more »

Axelle
Guest
Axelle

Please do vent. Because i know exactly hpw yuiu feel.

DAWN F
Guest
DAWN F

I can completely understand. My Mom, who is in a long term care facility, was always selfish and never showed what I would think a mom should. She sabotaged my happiness any way she could. She never got to know my children and is still mean and vindictive.Yet…she wants me to wait on her when I visit, be loving, and bring her things. This would be ok but when i bring her things that she requests or that I remember used to amuse her she rejects and criticizes. I would be fine calling once a week because I cry through… Read more »

Carmela Minor
Guest
Carmela Minor

I agree that it’s difficult if your relationship with your parent was difficult before they got sick. Especially if they were closed minded and didn’t prepare for the possibility that they could become incapacitated. My dad never disowned of life issues or did he prepare financially for any of this terrible situation
Now I’m doing everything he failed to do and I do it out of duty but I wish I didn’t have to be doing all this Medicaid applications, paying the facility etc

allison
Guest
allison

My dad didn’t prepare for anything. My mom is gone. My dad is in asstd living now, and I know how you feel Carmela! I have a hard time taking care of myself, let alone keeping up with dad’s stuff. You would think if he lived in AL facility, you don’t have to worry, but you still have to go there and make sure they are doing right by your relative. A lot of health care workers are lazy and don’t care. Very few seem to!

Linda
Guest
Linda

I went though that will my mother. She was an awful abusive women. I was so hard for me to go to that home. I was the sole caregiver but my father was also their. He acted so taken back because no one came to see her. SHE WAS A TERRIBLE PERSON!!!! This sounds so awful but I was actually relieved when she passed. But she did have the last laugh, she passed on Mothers Day.

Deborah
Guest
Deborah

I may sound mean….dont tske care of them. Youve spent your life being abused by them..now forced to choose to be abused. Narcissist never change…dementia never changes…love never equals abuse…not even with a parent…you owe that person nothing…God formed you…you are his….Value you and dont be the narcs supply anymore…..live the rest of your life…find trauma counselor….gain tools to not reattach to another narc….this is experience mixed with wisdom talking to you

KLM848
Guest
KLM848

You’ve nailed my situation too, Babs. I have two brothers but neither can be bothered to help at all. To compound my resentment are the vivid memories of watching my mother favor her 2 sons throughout childhood and adulthood. She had little for me other than anger, bitterness and judgment. But here I am, the one child who, in spite of the damage she caused me over many years, put my career and life on hold, and stepped up. I’m in way over my head, though, and I’ve finally admitted to myself that I cannot do this anymore. I know… Read more »

Ashely Graham
Guest
Ashely Graham

Hi! Wow!! I’m so happy that I found some peace of mind. I am a granddaughter living with my grandmother and I honestly just can’t do it anymore. Over the past 6 years I moved into my grandparents house along with my aunt and her son to get out of a really abusive relationship and as the years went by I realized why I had only known abuse. I dealt with it for so long Bc it’s all I have ever known but now that everyone had left the house and my grandfather passed away I realized that the abuse… Read more »

Moddemmom
Guest
Moddemmom

And yet, we’re supposed to take care of them..

Linda
Guest
Linda

I have been taking care of my father for 5 years. And my awful mother before that. I drive 45 miles one way to his home at least twice a week. Take him to all his appts, Cook for him. He refuses to move. He also accused me of stealing. That was the last straw!!!

Corrine
Guest
Corrine

I’m in the same situation in my home. My mother inlaw has been living with us for 2 years now. She lies about me to her sister. Saying things like “shes tring to poison me with antifreeze”. She is no longer aloud to watch CSI or any other criminal investigation tv shows. I told my husband she either goes to a home or to her sisters house in Texas. I will not deal with her hatefull words about our children or abusive actions on herself then blaming us. Im not one who can not get along with people but this… Read more »

Debra
Guest
Debra

Sounds like this man married you to have help with his mother. I would kick him out and tell him to take his mother with him.

StarDust2
Guest
StarDust2

You state: ”I can’t live like this.” and yet, you are. Being a care-giver is tough. No one tell you what to do. You might feel a certain way and then act another way and just keep plugging at it and endure it all.Or, you might want to say to your husband: ”Wednesdays are mine and mine alone. I will be taking off very early in the morning and I won’t be back until Thursday. Where I go and what I will do, that’s my business, but you won’t able to reach me for at least 24 hours.” Or, you… Read more »

Michelle
Guest
Michelle

He refuses? Then maybe it’s time for you to step back and let him take care of her. If he needs assistance, he can hire someone. Then start doing things for your own wellbeing.

CaughtBetwixt
Guest
CaughtBetwixt

To Billie Windsor – Go. Now. Pack your things and find a place – ANYPLACE – where you are safe. You may not be able to “save” your husband, but you can get out and be safe yourself, and then call for help for him.

Debkrah
Guest
Debkrah

Did she abuse him when he was a child? He appears to think this is the norm…if he thot she loved him at all he would know she wouldnt want him to put up with her illness induced abuse….you are more valuable then to live in abuse…I have 2 Sons we are very close…I love them and told them dont ever put up with anything like that…if im doing it..hitting cursing..or even causing stress between or for them or their wives..dont keep me with them…its not me… .they are to remember ….Ive never treated them this way…its a sickness and… Read more »

sarah
Guest
sarah

leave….why should your life be a hell…. if your hubby cant see your view then hes a jerk

Candice
Guest
Candice

Wow I can relate to your comment sooooooo much Carol! I’m looking after my mother with dementia and it’s driving me crazy and I’d like to be free and also feel resentment that I look after my mum better than she ever did me. My sister is also nowhere to be found and my mother was never much of a mother to me so I sometimes wonder why I am doing so much for her.

Babs
Guest
Babs

I hear you, Candice!! Me too! My one sibling does nothing and doesn’t want to be involved, certainly not caring how anything affects me. Rarely calls or visits and everything is just too stressful for her due to her damaged childhood (mine wasn’t so great, either).

Olivia
Guest
Olivia

Candice, I could have written the ame as you about my mother was never much of a mother to me so I wonder why I am doing so much for her. At my age, 70, I should not be doing it. Sibling does hardly anything. It’s so hard.

Suzi
Guest
Suzi

At 17 I was given a choice , Kill the child I was pregnant with or move out and don’t ever come home. I chose the later. I raised my son to a very successful adult, educated myself and became quite a successful business owner amisdt constant criticism and zero positive feedback. When my parents figured out I was “wealthy” they wanted us back in their lives. I am now burdened with my mother’s care since my father died. She is demanding , manipulative and plays on my guilt. My sister who was given everything , education, cars, a big… Read more »

karen blahey
Guest
karen blahey

suzi,,,,,you have over given long ago, mom will never change, she is a narc like my mom. them first and then first for the ones who gave then the breast pleasures or ego pleasures, they protect them and use you to climb that ladder on your back, leave detach, run for the hill and in the end sue her estate for unpaid care giver bills, keep receipts for fuel spent, a diary and fight like hell with a good lawyer, all of that love them more crap will have you reduced to a disposable paper cup, thats what youll get.

Deborah
Guest
Deborah

Love and adore her…love and adore you more

karen blahey
Guest
karen blahey

to carol kotcheck, Same thing is happening to me with a 90 year old mother who is has been running the show for the past 30 years of widowhood on my life because the other 3 siblings live 100 miles away mom has gone as far as protecting them and making all kinds of excuses for their neglect and has not to this day thanked me for the enormous aount of work and care given over the past 15 years, only has laughed at me and when I tell her why are you laughing she laughs more. Being infuriated I… Read more »

Lydia
Guest
Lydia

Thought I was the only one going through this.

Sandy partain
Guest
Sandy partain

Oh no…You are not alone. I love my mom and I am a nurse but I can’t take any more. I am setting boundaries ..My brothers are CEO’s and steer clear. I am done!

Kathy
Guest
Kathy

I see the same with some if my family members. They do t take on their share of helping with care of older parent. So frustrating

Shirley
Guest
Shirley

Join the discussion…

Abby
Guest
Abby

I agree. My Mother in law was nasty to me in my marriage. My husband was not emotionally close to her. She blamed me for his addiction issues even though he was in drug rehab while in her care at 13 and 16. She disrespected my parents often and lived large, drinking and playing cards on weekends. When I had my twins ( along with two other kids) my father was dying of work related lung cancer at 65 yrs old. She guilted me in hosting the family Christmas get together the night I found out my dad had 2… Read more »

Anthony
Guest
Anthony

Check out the book “stop caretaking the borderline / narcassist’. It sounds like your stuck in a classic family with NPD. All the best hope you read this!

Eddie
Guest
Eddie

I’ve been taking care of my 93 yr old mom for 20 years. I sometimes pray, Lord please take her or me one. There’s no getting away! No matter what you do, she complains. She’s continually trying to manipulate me. I work late, just so I don’t have to go home! I’m beginning to hate her!

Unga Bunga
Guest
Unga Bunga

That’s horrible. I would kill myself if I have to take care of my mom for 20 years. Can you guys afford help, just to relieve you sometimes? How about respite care, from a church or eldercare? Can you move away, get a one bedroom apartment so there’s no room for her? Do you have siblings?

Unga Bunga
Guest
Unga Bunga

Abby, Oh F no. Tell your husband you’ve done more than enough for him and his family. Don’t do one more thing for her. Screw your sister in laws. Just because their family is screwed up doesn’t mean yours has to be. Don’t drown in the whirlpool they’ve created.

sarah
Guest
sarah

im in that situation right now… grrrrrrr

Kat
Guest
Kat

Ahem, sister.

Marisa Monreal
Guest
Marisa Monreal

I cannot agree with you more

Breanna
Guest
Breanna

I have now taken care of my birth mother for 9 years and 9 months. My father left her and took my sister and I because of her abuse of us when I was 18 months old. I only saw her 3 times after that growing up. It was out of “love” that I took her and my stepdad in a decade ago. It has been hell! I thought my Christian self could change her if I just loved her enough. She has just about ruined my marriage. My husband has had a mental breakdown because he is working two… Read more »

Eileen Maldonado
Guest
Eileen Maldonado

U are not a bad person! It takes a real special person to even try to take care of a parent. And there are so many added ” deeds that go along with this position!! Im struggling out here with my Mom. There have been times we didnt talk for years. And look at me stepping up! I do love my Mom but we often didnt get along or speak. Im trying to figure this shit out & im kind of pissed at my siblings

Unga Bunga
Guest
Unga Bunga

It’s been almost a year since you wrote your post. I hope things are better. Please don’t choose this abusive lady over your husband. He could have a heart attack and die working 2 full time jobs. You’ve done more than your christian duty. Let her go to a home now

Flacamala
Guest
Flacamala

There are just some people. Who just can’t. I am overwhelmed, stressed, resentful, and miserable. I don’t even want to come home after working 10 hours…been feeling like this for the past 120 days . it’s just another job when I get home. I carry a lot of anger for my siblings dumping my mother onto me and the fact that I lived and organized, clean and peaceful home to now where none of that exists and it no longer is my sanctuary…. living without any other responsibilities but my dog. Thanks god my boyfriend it has stuck by me… Read more »

Junior
Guest
Junior

My siblings don’t care about anything but their own families. I’m the baby and I had a bad marriage to begin with but caring for Mom and hearing crap from the absent family and husband sucked. I’m divorced and now its Pop’s turn 6years of Mom was enlightening. She wanted to do before she died. Pop sleep and TV then gets angry he falls or his legs are weak. I’m alone 45 female trying to care for someone who won’t help himself to help me, he raised us harder than that, guess it was really Mom who did. My 2… Read more »

Guest
Guest
Guest

I can relate to all you say- keep the faith(in yourself) and keep fighting in the “school of hard knocks”.

MICHAEL
Guest
MICHAEL

My mother is a bitter grouchy old lady, and I lost my Master degree trying to take care of her, while my brother and sister just continue on as normal. Oh, they did recommend putting her away.

H. Samuel
Guest
H. Samuel

Pack you shit and move to another state, right now!

Terry
Guest
Terry

I get tired of doing everything for mom. While I love her and do get paid 3 hours a day that doesn’t really help because I am the only one that does things. She is bedridden and wears diapers and I know that I need to change them but sometimes I wish I didn’t have to. I do get headaches more often but no one cares enough to check on us. They never have. WE were in Texas and I was involved with a church, had to give that up but not one of them came back to check on… Read more »

Lea
Guest
Lea

I understand everything you are going through . Cast your cares on the lord , he will give u strength. I am in tha same situation and I cry everyday , and feel guilt. All I can do is keep the faith . god loves you and you will be blessed .

Eileen Maldonado
Guest
Eileen Maldonado

Im tired all the time!! Keep praying too. Nobody checks on us its sad this is such a challenge for me

Kathryn Chadima
Member
Kathryn Chadima

I am in a similar situation but don’t get paid to help mom and she is a little more mobile but fragile. You would find it helpful to look for a new church and a support group there or in your community. It is hard to be a caregiver without people to talk with. We were in a dinner group at church and a few of those people have helped mom or visited her in rehab, and a committee at church visits those in the hospital or rehab so she had support besides me. We also have a local caregiver… Read more »

Abby
Guest
Abby

No. You don’t have to be “thankful she is there with you.” I am not the least bit thankful that my Mom is still alive. She is nearing 96, I am nearing 69. First she made my childhood miserable and now she is destroying what should have been my retirement. Damn it, I never had a caring mother who did things like fix my hair or tell me I was pretty, I started working to earn my own clothing when I was 12 and left my parents’ house when I was 18. Since that time I never asked them for… Read more »

S Marie
Guest
S Marie

I am 63 taking care of my mother 93. It’s very difficult as she is demanding, immature and mean. I feel like I have no life of my own. Of my five siblings, 2 brothers want nothing to do with her, 1 sister causes nothing but trouble so it’s better to avoid her, the other sister and brother care but live in another state far away. So I’m basically on my own watching her24/7. I’m looking into getting some paid help but she hates strangers so I don’t know how that will work out. I just take it one day… Read more »

Heather Kell
Guest
Heather Kell

I’m really sorry everyone but you are choosing to be abused !
Don’t put up with it – take back control of your life and put them in a nursing home

JMP
Guest
JMP

I had explained my problem( this problem) to my m.d. He told me what I am feeling is totally normal. He said it is your brain and body telling you to stop. I would. You come first. Don’t give up anything you like to do on ur own time. If you are required to do more than you can, or ur health is not as good as before. You need that week off. If your own health is becoming victimized by this job, either quit or to be able to contact a person who can help you. You know how… Read more »

Starr Geary
Guest
Starr Geary

My mother keeps changing her mind as to what she wants. Therefore not giving me any piece of mind. She rants and raves about dying. She yells and is mean. Bears on headboard for me. She’s in hospital and refuses to let me rest. Yep after trip, phone call after phone call. Causing me to lose blood internally. I went for blood transfusion but had to sign ama that I was leaving hospital under life threatening condition. Mom insisted I be home. I said well they say good things come in 3’s and I’ll be your 3rd kid to go… Read more »

Carri
Guest
Carri

I (pessimistically) understand that statement. My situation was different though. I’ve been caregiving for my mother since I was 24, and maybe longer). This is where you can all judge me for not being an adult, and making poor life decisions. I moved out, got a job, failed and asked to come back home instead of living on the streets where I belonged. I became the caregiver for the next 15 years. My father certainly couldn’t care for my mother, and so I did it instead. I just couldnt escape, constantly reminded that if I left again, if I moved,… Read more »

Yvonne
Guest
Yvonne

I have been looking after my mom who is 86 with a broken neck for 9 months by myself. My sibling all live away but one and he doesnt participate at all. None of them do. Two of them control her finances and allow me to go out twice a week for 8 hrs at a time. The rest of the time I am in a small 2 bedroom apartment with my mom. I am losing it….I cant take it anymore. I’m not even able to run to the store if I need to. I love my mom more than… Read more »

loman
Guest
loman

tell your siblings you are moving they have to deal with mom.

Camille
Guest
Camille

Honey I understand what you are going through it’s the same for me and I am the only child who doesn’t get know help
And I have to do this 24/7 it’s time at night we’re I cry myself to sleep she accuse me of taking her money and everytime I do leave the house she messes up the house

Brenda H
Guest
Brenda H

I dont feel that either. Challenge to me yes. But she’s my moms

LilMagill
Member

I can only say I hope it isn’t true. I need hope.

Cindy
Guest
Cindy

I also am searching for hope & a piece of mind caring for my 83 y/o mom that lives with my husband & me. She moved in almost 9 yrs ago To be honest I really never KNEW my mom until she moved in ! I don’t understand why she is so spiteful, destructive to MY belongings including furniture & is always seeing EVERYTHING with a negative out look I gave up my career when she moved in because she did not want to be home alone After my father died 21 hrs ago mom started gambling very heavy to… Read more »

Jean
Member

Sometimes I feel it certainly might. After 10 years of caring for my mother-in-law, I feel it has taken a toll. It isolated me from friends and family, kept me from seeing my grandkids — the joys of my life — as often as I would have liked. I could have exercised more and ate better but I didn’t. I know our home health nurse said she frequently saw caregivers that took much better care of their caree than they did themselves. I knew I should take better care of myself, but… well I just didn’t. I’m working on that… Read more »

Judy
Guest
Judy

I know the feeling. Been taking care of my mother in law for 10+ years. She has been under hospice care for a year in January. She can only feed her self. Every 3 to 4 hours she needs to be taken to the bathroom. She can’t wipe herself, bathe herself, dress herself. We cannot do anything that is longer than 3 or 4 hours. I’m resenting her and my attitude is bad at best. I recently retired to help my husband take care of her. It takes both of us to take her to the bathroom, bathe her etc.… Read more »

Randy Pitrowski
Guest
Randy Pitrowski

I’m having to care for my mom who was horrible to me. She refuses to eat or drink and exercise and there is nothing wrong with her except she states she is 92. She is in diapers and is a bit mentally ill and bi-polar. She has too much money to get Medicaid and not enough to go to a decent home so I am stuck in hell. My brother lives far away. I am 60 with sciatica and Sarcoidosis a full time job I work from home now and it’s killing me. I have a husband, bees, 2 dogs… Read more »

Elly
Guest
Elly

Your brother lives far away? What if something happened to you, what would he do? As a bare minimum, he should be coming and staying at your house for a few weeks three or four times a year so you can leave and go “far away”.

Kate
Guest
Kate

Chances are, like many of us she can’t afford to go away somewhere far away a few times a year. My elderly father-in-law lives with us. So does my elderly mother. I’m double caretaking. Neither of them have any resources, so we are supporting them. There is no money for anything else. My life ended 5 years ago when they moved in. I’m an introvert. I’m a solitary kind of person and so is my husband. I haven’t had a single day where I have been alone in 5 years . I haven’t had a mammogram in 3 because I… Read more »

Katie
Guest
Katie

Kate — I am so sorry. I’m an introvert, too, and my 94 year old mother has moved in with us. Never being alone in my own house, having to respond to someone every minute of the day — it’s horrible.

Heather Kell
Guest
Heather Kell

You don’t have to have your parent living with you

Sadie
Guest
Sadie

OMG. Im so glad to know im not the only one who feels this way. Ive neen married for 2 years and my father in law moved in 3 months ago. He is blind and needs 24 hr care. I feel he needs to be in a home since we both need to work but my husband decided to quit his job to care for him. Meanwhile this is a financial burden since im the only one working. Any conversation about him leads to an immediate argument. I no longer can afford to do regular things like get nails and… Read more »

Gail Mcgaughey
Guest
Gail Mcgaughey

Sounds like my life.

Kelly Randall
Guest
Kelly Randall

I also am wondering if this is going to kill me. I’m caring for my father, by myself. My husband is stuck working out of the country and we live in a rural/small town area. I can barely breathe or function. Sounds like some of us could use an online support group or something similar. If any of you could use an “email pal” we can commiserate together and it might help to vent.

Kathy
Guest
Kathy

Dementia Caregivers Support Group on Facebook is wonderful! So much support there!

Bonnie Van Stone
Guest
Bonnie Van Stone

I could use an email pal 🙂 I am caring for my 83 yo mother, who also living in a rural town. I gave up my life in Colorado after my father’s sudden passing last year to care for my mother. I know what you mean about not being able to breathe or function. And the not knowing of how long this chapter of life will go for is the hard part, and also makes you feel guilty for even thinking about. My best girlfriend’s mother has passed, after being in a facility for many years. So, although she is… Read more »

Sadinroanoke
Guest
Sadinroanoke

Bonnie..You are not alone. I had no idea there are so many of us out there. I feel exactly the same..I wonder if I will outlive this chapter of my life. I am 68, divorced and helping care for my 86 yr old mom. I am her med nurse, MD scheduler, driver, social director , mental health counselor and will start this weekend assisting with her showers. My brother has her living in his home. His job is room and board which is very generous. When she is very down I am the one who feels the pain…she just told… Read more »

helenb63
Member
helenb63

Bonnie, I’d love to be your e-mail pal as we seem to be in a similar boat. Blessings and best wishes, Helen

Jazmin Padilla
Guest
Jazmin Padilla

I can use an email pal also. I have just started caring for my father this week & feel very overwhelmed. I have no support & no one to express myself too. This is so challenging.

Babs
Guest
Babs

Jazmin,
You might enjoy the Caregiving Chatroom, which is held every day at 8am CT and 8pm CT.

Roberta R
Member

Roberta R Hi Bonnie-I am a bit late to the conversation but, have recently become a part of this community. I know how it is to feel isolated, as I have been a caregiver the majority of my life. It began with caring for a grandmother who, by today’s standards and definitions, had Alzheimer’s, to caring for my mother and husband basically at the same time. Though my friends would try to understand what I was going through, listening to me as I vented, eventually they’re attitudes changed as this was not something they could understand. I do not live… Read more »

guest
Guest
guest

OMG I can relate- agreed to care-give my father when his health began to take a turn(Hodgekin’s Lymphoma, etc.). Luckily his health has improved but his mental state is like a spoiled 4 year old: spiteful, double-minded, gossipy-opinionated behind friends/family members & then different in their presence or on phone. A mid-range “hoarder” for years, so his house/garage is so full of junk can’t hardly move. Won’t help himself to help me- like making things 5 times worse to make me stress about it(for the hell of it). Three, not-to-distant half-siblings too wrapped up in themselves to be concerned(except what… Read more »

Lydia
Guest
Lydia

I’ve taken care of her for more than 15 years since I was a teenager, 15+ years of sacrifice, the siblings don’t help much, yet I’m still looked at with no gratitude and as if I’m the only one who owe her my whole life. I’m about done now and finally a family friend is willing to take her in and i may finally live a normal life, even if the person is only taking her in temporarily!! I need my sanity back and I need to be selfish and take care of myself because I know the more I… Read more »

Sharon
Guest
Sharon

My mom is in late stages of alzheimers. She has always been negative to me even when I was growing up. She is on hospice now, so a nurse comes 3 times a week and and aide comes 3 times a week. My husband helps me get her on bedside commode and sometimes in wheelchair to go in other room. She is demanding and says that I am cruel and hateful eventhough I am try8to keep her safe. My brother doesn’t help at all and my sister has cerebral palsy so she can’t lift on her. Both siblings complain that… Read more »

Donna L Forsyth
Guest
Donna L Forsyth

Get out and leave . Find a nursing home and let her live there.You need freedom from this situation. You are too guilt ridden and will suffer .

S T
Guest
S T

Best advice ever.

Leyla
Guest
Leyla

I’ve been taking care of my mom for 10 year now. She’ll be 101 in Sept. I understand what you mean by being isolated. Unfortunately soon after my husband’s death she moved to our place just because she is so selfish. She saw that I was giving good care to my husband and she wanted the same. I have lost all my friends and life activities. She never thank me for what I an doing for her and is never happy.

jack
Guest
jack

I am so sorry to hear about your plight. But you need to change your situation. You need tobe a good steward to your own life. You need to develop the life you have left. Hugs.

Bonnie
Guest
Bonnie

That’s easier said than done once you’re in this kind of situation. I felt the same way as Leyla and still resent having taken on the caregiving role. It sucked everything about “me” out of my life and even though my mom moved into an assisted living facility about 2 years ago, I am STILL trying to rebuild or redefine my life. I feel like 4 years were stolen from me. I know it won’t be a popular thing for me to say, especially since I’m a senior citizen myself, but the medical community in our country has gone too… Read more »

Laura
Guest
Laura

I hear you. I feel exactly the same. My mom is never happy no matter how much I visit or what I bring. She is in a beautiful place in independent living. It’s like a hotel. Said she is in prison hates food and is only happy when she makes me feel bad. Tells me she is in pain everyday with arthritis. She is 92 I feel so bad cause I come home miserable for my poor husband to put up with

Tammy
Guest
Tammy

I feel the same as well, my mom is never satisfied she is 85 and still wants to be on the go all the time, flee markets, second hand stores, garage sells etc. I have two siblings my brother (she lives in a house on his land) but he won’t help with her at all but he will go to her house if shes cooked just to eat. He didn’t even go to see her in the hospital so no help there and my sister she will take spells of helping maybe for a month then she completely stops helping… Read more »

Jan
Guest
Jan

I so relate to this. And having siblings who don’t help, are not supportive piles onto the built-in stress on caregiver. I do believe the stress is a killer. I’ve worked hard all my life and hoping someday I’ll get to enjoy the retirement I’m supposed to be enjoying.

jo davidson
Guest
jo davidson

thank heaven for this site! my angry, narcissistic mother is reducing me to tears every other hour. maybe we should introduce all of these mothers to one another and let them scream at each other.

guest
Guest
guest

Definitely can relate…when your common-sense kicks in & says “now- wait a minuet” after CONTINUAL verbal/mental abuse + “correction”(“You’re not doing it right!”) from an elderly parent with senile issues, it’s time to make a decision about your own well being.

Nancy
Guest
Nancy

I agree 100 percent. I will never do to my kids what my mother does to me!

S T
Guest
S T

Me neither!

Olivia
Guest
Olivia

Me neither!

Lydis
Guest
Lydis

Wow, I told my whole family similar. I told them to please pull the plug.. Do NOT save me if I’m going to end up disabled physically or mentally otherwise I warned them that I will end my own life. I don’t want to put my family through the caregiving role at all. I wholeheartedly agree with the fact the medical community should really advise the family on the difficulties of caregiving so that the family can come to a decision on whether or not to just let the family member go. It sounds cruel and selfish, but only to… Read more »

Suzanne
Guest
Suzanne

I agree on the issue of extending life. I’m all for quality over quantity. I am watching my mother slip away and suffer with Lou Gehrig’s and it is horrific. If there’s no hope of improvement or stabilization, I really hope that I can just pass quickly when it’s my time and not suffer like that.

Kara
Guest
Kara

I agree. I am an only child. I have been building my own business for 8 years and when I finally was able to have it all ready to build, my parents decided to finally move by me after 25 years of me begging them to move by me and my children. Their only grandchildren. My Dad finally said yes to moving because my Mom’s could no longer walk. That was 3 years ago. Now I am my dad and mom’s full time care givers and I am losing my business, missing out on my grandkids and so resentful now,… Read more »

Haze
Guest

I agree with you Bonnie. I can’t even make plans with my own life and I also feel that my dad is stealing time from me. He gave me a hard time growing up and now I am left to take care of him. He’s draining my finances. I don’t want the same thing to happen to my future children.

Sylvie
Guest
Sylvie

I moved in with my boyfriend and his mother who signed the house into his name. Personally I feel it is still her house as long as she lives. Six or seven years ago the mother, son and daughter had quite a falling out and did not speak to each other for 3 years. During that time the mother changed that her daughter was no longer POA and made her son POA and this apparently did not go well with the daughter. I was asked by my boyfriend to move in with them and I would not have to pay… Read more »

Peg
Guest
Peg

I’m so glad you got out of that situation. Please don’t ever look back. This was the first 2 years of my marriage. My husband felt too much loyalty to his mother to support me. When my mother in law got to a point of being beyond our ablility to care for her and the crap hit the fan the family did all they could to make me the fall guy. This was 15 years ago and I still am not at a point where I can forgive and forget this. Please… stay far away from this. It’s not worth… Read more »

PATTI STOWIE
Guest
PATTI STOWIE

I am so with you, Leyla. My mom is so selfish also, thanks for sharing.

Sara thompson
Guest
Sara thompson

Why are you putting up with it? You need some therapy to understand why you are willing to settle for so little. Rememer when she is gone and your life is in ruins you will have to live with the regret of that. You have one life and you are entitled to be happy. At 101 she has had hers. Time to let go and reclaim your future.

Olivia
Guest
Olivia

My mother is 95 and I am 70. She stays in her room most of the day and we have carers twice a day. She doesn’t have dementia but has a way of putting me down. She has never really loved me and doesn’t know how to love anyone in my opinion. Always talks about herself – as you say, Leyla, so selfish. She hardly ever thanks me or is grateful. She has no idea how tired and fed up I am with the whole situation.

Dancer
Member

Where is the “I can relate” button. Bless you!

Stacy Robinson
Guest
Stacy Robinson

Mrs Jean!!! Believe me when I say I can relate
..

JMP
Guest
JMP

I saw this happening before. My aunt took sole care of my uncle who was in a wheel chair he was strapped to a bunch of tubes. He had the appearance of death was on the rise. Not True! He outlived my aunt by 7 yrs. She gave a lot of herself to fully take care of my uncle. That is why the patient will feel in better health. Because the caregiver gives so much of her time to be able to do this. Always remember, you come first, they come 2nd.

jan
Member

The first thing that comes to mind is my grandmother caring for my great-grandmother, who had dementia. My grandmother brought her mom into her home and cared for her until “it was ruining her health” and she was forced to put her in a nursing home. This was 45-50 years ago, and I was too small to comprehend the implications of the decision. My great-grandmother lived another 5 years in the nursing home and my grandmother lived another 20 also, then with diabetes. I respect that decision, probably very difficult, in a different age as well.

LilMagill
Member

Both of my grandmothers spent the last years of their lives in a nursing home. I always respected the family’s decisions about that, too.

Ednola Martin
Guest
Ednola Martin

My sister and I have shared the care giving for our 100 year old mother for the last 16 years. I recently stopped after mother ‘s behavior and verbal abuse became too much for me to bear. I am being negatively treated as a result. Evidently a nursing facility is out of the question as is a person coming into the home. What other recourse is possible?

Joanna
Guest
Joanna

Do you belong to a church ? Very often parishioners will visit with no wish of intruding. and help you with laundry, shopping, emotional support . A friend of mine managed to keep her job and sanity with this kind of selfless help. Both her parents had cancer and dementia. Please, at least consider it.

Donna L Forsyth
Guest
Donna L Forsyth

Leave and don’t come back.

Elly
Guest
Elly

What about your sister? Is she having to go it alone now?