I attended the American Society on Aging’s annual conference, Aging in America, last week. During the conference, AARP released its latest findings on the experiences of individuals providing complex care to a family member.

During the presentation about its findings, Susan C. Reinhard, RN, PhD, FAAN, Senior Vice President and Director, AARP, shared that the Caregiver Advise, Record, and Enable (CARE) Act, now law in 40 states, come into being because of the first report about family caregivers providing complex care released in 2012.

The CARE Act requires that hospitals:

  • Advise individuals of their opportunity to identify a family caregiver.
  • Record the caregiver’s name and contact information in the health record (with the patient’s permission).
  • Enable family caregivers by providing as much notice as possible about discharge timing, consulting with them about the discharge plan, discussing their role in carrying out that plan, and instructing them about the medical/nursing tasks they will handle at home.

I’m curious: What was your last hospital experience like? You can share about your caree’s hospitalization or your own. Let’s share our experiences in six-word stories, like:

  • Dad’s care plan delivered in hallway.
  • Nurse’s heavy accent caused communication problem.

Share as many six-word stories about a recent hospitalization as you’d like in our comments section, below.

I look forward to reading about your experiences.

About Denise

I began working with family caregivers in 1990 and launched Caregiving.com in 1996 to help and support them. Through my blog, I share words of comfort and offer coping strategies and tips. I also write opinion pieces about recent research, community programs and media coverage of caregiving issues. I've written several caregiving books, including "The Caregiving Years, Six Stages to a Meaningful Journey," "Take Comfort, Reflections of Hope for Caregivers" and "After Caregiving Ends, A Guide to Beginning Again." You can purchase my books and schedule a coaching call with me in our store.


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Cheryl GinningsKathy SteckTheresa RobertsonAimeeBirdie Recent comment authors
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Please notify me:

Voiced complaint resulting in policy change.


Long, painful, chaotic, a learning experience.



Kathy Steck

Speak up to make things happen.


Angry no one listened & heard!