Several years, I released a free ebook called “After the Diagnosis.” The booklet included tips and suggestions from family caregivers on how to manage after a family member’s diagnosis as well as information about navigating the health care system.

I’m updating the ebook and would love to hear your suggestions in order to make the resource truly helpful. What kind of information, if any, did you and your caree receive? What kind of information would have been helpful for you to receive the day off the diagnosis? What did you need in the days and weeks afterward? Which resources would have been helpful for you to have?

Please share any thoughts and requests in our comments section, below.

About Denise

I began working with family caregivers in 1990 and launched Caregiving.com in 1996 to help and support them. Through my blog, I share words of comfort and offer coping strategies and tips. I also write opinion pieces about recent research, community programs and media coverage of caregiving issues. I've written several caregiving books, including "The Caregiving Years, Six Stages to a Meaningful Journey," "Take Comfort, Reflections of Hope for Caregivers" and "After Caregiving Ends, A Guide to Beginning Again." You can purchase my books and schedule a coaching call with me in our store.

2

avatar
2 Comment threads
0 Thread replies
0 Followers
 
Most reacted comment
Hottest comment thread
2 Comment authors
MichelleDenise Recent comment authors
  Subscribe  
newest oldest most voted
Please notify me:
Michelle
Member

What I needed most would have been to have had the diagnosis two years earlier. My family and I had two years of expecting my husband to recover from his stroke and wondering why he was getting worse instead. After two years we finally met a doctor who said he had vascular dementia, like her grandmother.
At that point I could have used all the information I have gained and am still gaining.