Well, there has been a whole lot of nothing going on with Marc’s health lately… which is very good. Still, there has been a whole lot of everything else. Being back in Arizona, away from his dreaded family and distancing myself from my own, has been very helpful. People give a whole lot of opinions…

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I’ve been struggling to decide whether to blog or not. Things with Marc have been going well. He’s doing good with his recovery. There are some things that I worry about but nothing so much that I’m overly stressed about it. I keep an eye on him, as always, making sure he’s doing what he…

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I have been having a rough couple of weeks. Actually, I’ve been having a rough couple of months. Marc has been doing really well with his recovery until I got sick. If I am not cooking and making sure he is eating every day and drinking fluids regularly then it doesn’t get done. In the…

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It’s officially 2014 and it doesn’t feel like much to me. Holidays, birthdays, and all other special occasions have pretty much been lost on me for a few years now. I celebrate them for the sake of others but inside, I’m always wondering, “Who really cares?” Yes, it is a very cynical way to be,…

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It’s no surprise to anyone that Marc and I have been going through some major issues with our hospital and his doctors. Marc has been doing pretty great in regards to his health. I consider it a success story at this point that his pain level is almost non-existent and there’s been no major brain…

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I’ve been keeping my head down and making bracelets for the craft fair. Marc seems to be doing exceptionally well but I’ve developed some sinus issues from some pretty bad allergies. Not to mention, it is unrealistically cold right now. I still haven’t had the time or money to clean the vents so that we…

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Sleep… There is very little. Me time… Is non-existent. Marc… Is doing pretty great, considering. All of my hours in my day are wrapped up into finding resources (which I know have a couple more options thanks to @Trish), administering medication, eight hours of IV therapy every single day, and cat naps because sleeping a…

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No Thanksgiving for us. After dealing with an aggravating first week out of the hospital, we are headed back in for the week. They want to change his IV medication and monitor it in the hospital to make sure it doesn’t cause issue to his kidneys. Although, had they actually followed the plan set forth…

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Things since Marc have been out of the hospital have definitely been stressful. Although he is doing quite well but could definitely be doing better. It’s an uphill battle dealing with his care. We’ve had a major medication change, he’s on IV drip antibiotics which takes up to five hours of our time each day…

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I’ve learned that when I do not agree with a diagnosis to get a second opinion. I’ve learned to make the doctors who delivered that diagnosis to be their own second opinion and if it was based on the test then I make them retake the test. In the last month I’ve had to do…

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I find myself weirdly calm, although we are over 4 hours into the surgery. I was able to have them call and check on him to make sure everything was okay. I’d gotten the okay from the surgeons beforehand because they knew it’d be a difficult case and a LONG wait. I was more nervous…

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This week has been stressful. Everything seemed to be coming together and then BAM! Things turned left and I got stressed. But they’ve been resolved. It’s funny how things can get misinterpreted in the chaos of a moment. However, I do have hotel reservations and my roommate’s parents wanted to do something to help, so…

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Dear Marc, In life we are all faced with challenges. Some people’s challenges look a little easier than others. They are shorter and at the end they may reap some great reward for their endurance in getting past that setback. In our lives, it seems like we have nothing but challenges. Many people always say…

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We found a mattress that we loved and it will be delivered on Tuesday. Yay! Well, actually, we found one that I loved because as Marc expressed to me he is comfortable on the floor which is why we’ve been sleeping on a futon mattress like we’re college students. It’s the only way I could…

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