November 10 Agenda

Denise
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Tracts



Health Care System Tract


Each session in this tract will take place in Grand Ballroom 5, Each Session is 50 Minutes. These sessions will be recorded and available in our conference recordings package.

9 a.m. A Caregivers Voice with Gael Chiarella Alba

This workshop will practically apply some exciting new principles from Organizational and Leadership Development to the role of Family Caregiver. Did you ever hear the adage "you are the one you've been waiting for?" Never more true than here. Referencing a physician-authored NY Times article titled "Informed Patient: Don't Bet On It" we will consider an alternative in health-care to "informed consent that is commonly not-so-well informed," and become familiar with successful practices of Adaptive Teams as we ourselves become effective in promoting healthy, comprehensive, and well-informed communication with all concerned. This includes your Caree, the medical staff, and other helping care team members. Since you may be the one to have to shape this up amidst a group of staff members, you can't know what that looks like until you realize what it's not. In this workshop you will walk away with specific skills for Adaptive Leaders (that's you!) that maximize the effectiveness of your Caregiving role. We will take time to review questions, concerns, and practical applications, and you'll walk away with some resources for continued learning.


Bio: Author Gael Chiarella Alba E-RYT, C-IAYT, CCC is best known as a meditation teacher and yoga therapist. Gael experienced the joy of family throughout childhood in a Brooklyn walkup with her beloved grandparents living just steps away. She also witnessed enormous everyday stress in both her Grandmother and her Mother as they cared for their spouses through many years of illness, leading her to research the relationship between caring for self and caring for others through psychology, spirituality and the healing arts. In mid-life, her holistic toolbox became the container for managing the traumatic injury care of her own adult son. Her path as a therapist intersected over and over again with her own experience of how we return to balance in caregiving, and ultimately this brought her to the question of how we use our voice. As she walked this path herself, she turned her direction toward Leadership Development for Caregivers. As founder of The Yokibics Institute, she developed mindful trainings for individuals and teams through SelfCareOasis.com. With a mind, body, spirit embrace, those who care for others are given a framework for engaging this essential role with a peaceful, present, and embodied approach.


10 a.m. The Caregiver's Guide to Surviving Hospital Stays with Terry Prince

Hospital stays and visits are part of the caregiver's routine. Learn how to be better prepared, and resourceful in this day of hospitalists and the insurance driven health care world. Terry Prince, CPO-CD will discuss how the various types of visits cause unique stress. She will explain the Hospital Visit Scale from the caregiver's perspective and how understanding your caree's rights ahead of hospitalization and discharge can reduce your stress and improve your experience.


Bio: Terry Prince, CPO-CD is a former caregiver for her aging parents with 15 years of hands-on experience. She initially provided long distance caregiving, before moving her parents cross country to California. She was a sandwich generation caregiver, providing care while raising her her two school-age children. Her father was an amputee from WWII with ongoing mobility and kidney issues and her mother had COPD and utilized oxygen for the last 5 years of her life. Terry experienced countless hospital visits and developed the Hospital Visit Scale to identify various stress levels she and others experience when entering the hospital.


Terry Prince runs an organizational and coaching business. She is a member of the International Coaching Federation and the National Association of Professional Organizers and Master Trainer for the Institute for Challenging Organization. She is an author or co-author of several ICD publications including Working with Elderly Clients, The Clutter-Hoarding Scale, Working with Physically Challenged Clients. Terry hopes her caregiving experience and The Hospital Visit Scale will help give caregivers and medical professionals insight to the wide variation of stress levels the caregiver experiences.


11 a.m. Making Empowering Care Choices with Long Term Care with Lee Moriarty and Priya Soni

The pledge to care for a loved one can often cause significant strain when you think about the many overwhelming choices associated with it.


Making a long term care choice is often met with navigating an intricate personal process and a review of multiple care services. But what if there was an option where one could learn how to turn the this often challenging experience into one where all parties felt valued and the continuum of care was grounded in practical and emotional needs? In this session, we will share five main areas to help you understand what your loved one will need and constructive techniques that lead to powerful and impactful choices.


Objectives:
• Defining the different avenues of care
• Recognizing when there is need for more concentrated care
• Communicating with loved ones about long term care
• Providing solutions and tools to help on the journey
• Getting comfortable feeling empowered with the logistical planning piece and the emotional adjustments


Bio: Lee Moriarty, BS/CTRS has been working in long term care for over 30 years. Her Long-Term Care experience includes working for the Quality Improvement Organization for the State of IL where she was involved in the National Person Directed Care Collaborative that helped bring the vision of person centered care to the forefront. She has also worked as a Management Consultant for several different Nursing Home corporations. More recently, Lee has assisted Nursing Homes throughout Chicago by providing consultation in quality of life, Activities, Dementia Special Care Units and mentoring services on team building, staff retention, and culture change. She has written several long-term care manuals and has taught continuing education programs and seminars through long-term care professional organizations both statewide and nationally. This includes teaching the State compliant Alzheimer’s Unit Director and Activity Director Courses. Lee has been appointed by the Governor to the Illinois Council on Aging, which is the advisory council for the Department on Aging and is also a founding Board member for the Illinois Pioneer Coalition where she serves as the Vice President and is the Project Manager for the Grant-funded Consumer Project to promote awareness to the Illinois Consumer on person-centered practices in long-term care. Lee’s latest project for the IPC is to develop Statewide Regional Coalitions to promote bringing culture change practices to communities throughout the state.


Bio: Priya is the Founder and CEO of The Caregiving Effect LLC, a platform and service launched to create a space for adults who have cared for their parent(s)/parental figures due to aging, illness and/or disability. She has developed a mission to build a movement of mentors, caregiver visionaries, who are utilizing their stories as a tool to help the many who will or are walking the path of caregiving. As a coach and certified caregiving consultant, she aids adults in turning the unexpected role of being a caregiver into a role of a lifetime—The Caregiving Effect- a term she coined.


Priya has earned a B.S. in Theatre and Psychology from Towson University and M.A. in Disability Studies from City University of New York's School of Professional Studies. She has worked in a variety of settings including working with women who have substance abuse; women who have been affected by domestic violence; and with children and adults with disabilities. One of her greatest passions is creating community. Reach out to Priya at www.priyasoni.net.


1 p.m. Improving Care with Patient Family Advisory Councils with Heather Slutzky

Patients and family caregivers can share healthcare experiences in a way that changes care at hospitals. Step into your Boldest moments by investigating your opportunities to participate in partnerships with hospitals and family caregivers. Specifically, learn the role of the hospital and the caregiver in a patient family advisory council, learn how to focus personal stories for policy impact in healthcare settings, and learn how having advisers enriches hospital work while impacting transitions of care.


Bio: Inspired by personal events, Heather transitioned into a healthcare career in 2003. Working with all level of healthcare professional from executives to volunteers across a variety of settings Heather is anchored by her conviction that family caregivers are the bridge that brings healthcare home.


2 p.m. Managing Family Conflicts with Denise Brown

You could tolerate family members when you only had to interact on Christmas Day and the annual family picnic. Now, however, you’re interacting regularly–in the emergency room, at your caree’s house, during a caregiving crisis. Tempers flare, opinions fly, fingers point. The drama of caregiving can create family conflicts that seem too overwhelming to overcome. In this 40-minute webinar, we’ll share tips to manage the family conflicts.


Bio: In 1996, Denise M. Brown launched Caregiving.com, the first website to add online caregiving support groups, daily caregiving chats and blogs written by family caregivers. Through its blogs posts, podcasts and video chats, Caregiving.com holds one of the largest online libraries of caregiving stories. In 2016, Denise created and hosted the first National Caregiving Conference, now an annual event for family caregivers, former family caregivers and professionals. Denise's insights have been featured in The Wall Street Journal, The New York Times, US News & World Report, USA Today, SmartMoney.com, Time magazine and Chicago Tribune. Her books, including "Caregiving Lists of Your Courage, Hope and Resilience " and "Take Comfort, Reflections of Hope for Caregivers," provide insights, inspirations and information to those who


3 p.m. Clinical Trials Panel

The cure comes from the research. Clinical trials are a critical part of the research. In this panel discussion, learn about the importance of clinical trials, what it's like to participate in one and how you can get involved.


Panelists:




  • Elizabeth Mascherino, Advisor, Clinical Innovation, Eli Lilly and Company (moderator)

  • Leigh Anne Naas, Community Manager, Clinical Innovation, Eli Lilly and Company

  • Erin Moore, Consultant, Clinical Innovation, Eli Lilly and Company

  • Steve Satek, President / Co-Founder, Great Lakes Clinical Trials

  • Nick Cozzi, Clinical Study Liaison, Investigator Support Services


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Practical Tract


All sessions in this tract will happen in the Grand Ballroom. Each Session is 50 Minutes. These sessions will be recorded and available in our conference recordings package. This session also will be live streamed as part of our virtual broadcast.

9 a.m. Technology Panel

What technology is currently available to help you during caregiving? Our panelists will share an overview of what's available as well as offer suggestions as to the technology you need but cannot find.


Panelists:




  • Claudia Cook

  • Carl Hirschman

  • Andrew Koch

  • Jackie Schwabe


10 a.m. Judgment-Based Decision Making for Caregivers with Tyler Ludlow and Liz Mascherino

Caregivers take on a lot of responsibility and burden. This includes having to make difficult choices, whether it’s due to medical complexity, balancing life demands, or simply emotionally-charged situations. This workshop will help equip caregivers with a framework, tools, and techniques to approach decisions in a structured manner that helps ease burden, worry and stress. Rooted in decision science, Tyler Ludlow and Liz Mascherino will walk participants through a framework that enables us to judge a decision as good or not without having to wait to know the outcome. This framework of “structured thinking for making choices” can also be used to guide our effort during the decision-making process, ensuring that we have addressed each of the elements of a high quality decision. During the workshop, Tyler and Liz will zero-in on techniques for how to start gaining clarity in a muddy context where a choice is required. Participants will learn the structural components of decision making, and how they fit together to create both tension, and in the end, clarity around the best choice.


The workshop acts as an exercise to explore the practical and emotional decision-making processes around their own scenario. Participants will organize variables and considerations into three buckets:




  • Decisions: the alternatives we choose that are under our control

  • Uncertainties: ambiguity and outcomes that may be out of our control

  • Values: the constraints and criteria, including conflicting or competing values, and consideration for the impact of a decision on family


After mapping decisions, uncertainties and values, Tyler and Liz will lead participants in an exercise to help apply that knowledge toward aligning treatment options that resonate with those values. In this exercise, participants will learn:




  • How to identify trusted resources

  • Where to find trusted resources

  • How to sift through large amounts of information


Participants will gain a new way of approaching the decision-making process as a caregiver. They’ll learn strategies to help them break down care decisions into more accessible conversations. They’ll also learn how to align care options and resources for care with the values that resonate most with them, empowering them as informed, active participants as caregivers.




Vivian Geary, Andrew Koch and Colleen Kavanaugh on their way to a workshop at the First Annual National Caregiving Conference. Photo credit: Lillie Fuller.


11 a.m. Caregiving 101: Boldly Surviving with Carolyn Grant, Andrew Koch, Lisa Riggi

Carolyn, Andrew and Lisa will share tips, techniques, information and insights to help those just beginning their caregiving experience.


Andrew will his humor and heartaches as well as three essentials for the caregivers toolkit: 1. "S.T.O.P Technique" 2. "Visual-Verbal-Touch" 3. "Hand - Over – Hand.”


Bio Andrew: Andrew is a graduate student at Naropa University studying Mindfulness-Based Transpersonal Counseling in Boulder, Colorado. He specializes in supporting student caregivers. His mission is to help support the physical, functional, energetic, emotional, social, intellectual, spiritual, and transpersonal wellness of caregivers and their carees. Andrew has been a caregiving educator for four years. He has a special interest in supporting individuals with Alzheimer’s Disease and Progressive Motor Neuron Diseases.


Carolyn will be explore the complex emotions that new caregivers face and present the keys to survival through the ups and downs: humor, humility, gratitude and forgiveness.


Bio Carolyn: It is with over 10 years of experience, genuine empathy and respect that I help my clients successfully maneuver life as a family caregiver. My clients benefit from the knowledge that I gained helping multiple family members learn, plan, adapt, cope and accept a medical diagnosis and living with disease. I understand the struggle of worrying, fulfilling needs for sick family members while simultaneously balancing the needs of my own family. Since my experience encompasses both long distance and local care, I learned how to have those difficult conversations with immediate and extended family. The caregiving years can be extremely challenging as family caregivers are thrust into a world filled with new medical jargon, emotional chaos that ensues and feeling like their own life is unraveling. I walk the journey with family caregivers to ease the process, collaborate to develop plans that ensure their family member is getting the care that they need and provide support for whatever the family caregiver requires.


“Mom isn't paying her bills?”
“I noticed dad isn't taking care of the yard like he use too.”
“Did you notice the bruise on Aunt Sue's arm? I wonder how that happened.”


Have you said these comments to yourself? Or, maybe a spouse or friend? This is the first stage of caregiving.


Based on Denise Brown's book, The Caregiving Years: Six Stages to a Meaningful Journey, Lisa will introduce you to the first two-stages of the Caregiving Years: the Expectant and the Freshman Caregiver.


Step boldly into family caregiving with information and tools. You are not alone and there is lots of support!


Bio: Lisa was raised in a caregiving home since birth. Her maternal grandmother lived with her parents since their wedding and she witnessed them care for several family members either in their home or at a facility. They became her carees in 2006 when they moved in with Lisa and her family. Lisa experienced a “Is this all there is in life?” moment after her dad passed away in 2014. Struggling to keep her focus on her home-based business, she Googled caregiving support and found Caregiving.com and Denise Brown. She immediately connected with Denise and completed the Certified Caregiving Consultant and Certified Caregiving Educator training classes. She has opened her caregiving consultant business, The Serene Harbor, which offers caregivers and their families a place of peace and safety as they navigate their caregiving journey. She also presents Denise Brown's book, The Caregiving Years: Six Stages to a Meaningful Journey. Lisa's mission is to help as many family caregivers know that there is support and help available. She only wishes she found Denise and Caregiving.com sooner. Currently, Lisa cares for her elderly mother, an adult daughter who suffers from Fibromyalgia and cardiac issues and her adult son who has Type 1 diabetes.


1 p.m. Health & Wellness for a Vibrant Life in a Tiny Home with Carol Papini

Carol will share her story of overcoming adversity in a subject that most people would not attempt: How to live a Vibrant Life in Tiny Home as a Caregiver. Their tiny house happens to be on wheel; Carol has been driving her husband around the country for nearly five years. How to do this on wheels or just down size to a Tiny or smaller home. It's the small steps each day that makes a difference. Carol will provide tips, resources and tricks on she does it and teach how anyone can do it too. She shares details on how to create a healthy non-toxic life in a Tiny home, how to catch the dreams of your desires and much more. If you feel.like time is running out to fulfill your dreams and desires, this fun and interactive workshop will leave you excited and filled with love, joy and hope.


Bio: Hi, my name is Carol Papini and I’m a positive, outgoing, independent woman who, ever since the summer of 2012, has been crisscrossing the continental United States in a 31-foot Motor Coach. I’ve been driving all over the country while caring for my husband Bill, who in 2011 was completely disabled by a massive left-brain stroke. I am also an Intuitive Energy Healer, and a Health and Wellness Mentor. My main focus is assisting caregivers & caregivees and other individuals in releasing the feeling of being stuck and imprisoned within their mind, body and soul; helping them find balance, love and joy in their life. I also love to inspire, balance and connect Caregivers and Caregivees to self and/or each other through Health, Wellness and Intuitive Energy Healing. My passion is helping those who want to create a balanced life with ease and joy, giving them hope and greater possibilities


2 p.m. Hands On Caregiving with Pastor Bruce Hanson and Penny Patnaude

Caregiving is one of the most difficult, yet important roles an individual can have. During this presentation, individuals will learn the most effective ways to care for and communicate with persons diagnosed with a cognitive deficiency. The importance of a Caregiver Contract and how to illicit assistance from others while using the Caregiver Contract.


Some key take aways:




  • Some patients can be assisted in managing complex medication needs with a spread sheet. Microsoft’s Excel program has a medication spreadsheet template (Bruce developed his own utilizing macros limiting the need to add information multiple times). Other templates are available (here again Bruce designed his own to his particular needs).

  • The time and organizational stress involved with multiple medications may include needing to coordinate refills on different days from different vendors. To the extent refills and vendors may be limited and coordinated, the ability to manage the medications may improve.

  • Many beneficiaries and caregivers not only must manage ordering and tracking medications, they may also need to order and manage an inventory of various medical supplies and equipment. This may add to their burden and become a barrier to positive self-management of their situation.

  • Keeping track of all testing and intake / output on a spreadsheet along with logs of the patient’s vital signs and personal and wound care at home that can be taken with to appointments and emergency care is greatly helpful.

  • Maintaining a care notebook with information about all of a patients/Loved one’s providers including physicians, therapists and home health aides is helpful in speeding up necessary care in a emergency situation at home or in the emergency room.


Bio Pastor Bruce
Pastor Bruce Hanson has been a Caregiver for his wife for the past forty-seven plus years. During the past ten years, this task has become a full time calling due to multiple medical issues (diabetes, Kidney failure and subsequent kidney transplant, major debilitating Stroke, Breast Cancer, and Seizures) that his wife has encountered. As a result of this calling Pastor Bruce has become extensively involved in Patient Advocacy locally as well as nationally, serving on several National Boards (ABIM Critical Care sub Committee, PCORI Patient Engagement sub Committee, NAM Multiple Medical Issues sub Committee, Pastors4PICOR Board, Gap-Bridging LLC, as well as on multiple SCM sub Committees as a Patient Advocate Consultant). Pastor Bruce has a BS in Counseling Psychology and a Masters of Divinity with a minor in Family Counseling. During the years of caring for his wife Pastor Bruce has developed various strategies that have enabled him to navigate the Federal, State and Insurance health systems as well as the various medical systems that have been involved in the care of his wife. Pastor Bruce Hanson (Caregiver on Steroids)


Bio Penny: Penny Patnaude is the Caregiver Strategist. Penny is a Dementia Care Practitioner, A Certified Alzheimer's Disease and Dementia Care Trainer, and an Excellence in Care Specialist with the Alzheimer's Foundation of America. Penny offers family caregivers personalized plans for assisting their loved ones suffering from Dementia. As a caregiver for over a decade, Penny understands the difficulties families endure when caring for loved ones with Alzheimer's and dementia. Penny's mission is to assist the caregiver with strategies to ease the caregiving responsibilities, to assist front-line personnel in understanding the needs of the caree while providing education about dementia. Penny holds a Masters of Arts Degree in Education and Training and a Bachelors of Arts degree in Psychology.


3 p.m. Challenges, Changes, and Choices: Caregiving for People with Movement Disorders, a panel discussion of family caregivers with Diane Breslow

Panelists:




  • Jean Anderson

  • Karen Benn

  • Judy Kiehm

  • Claire Pensyl

  • Linda Pulik


During the workshop, participants will: 1) learn basic educational information about Movement Disorders: diagnosis, medications, treatments; 2) understand how Movement Disorders affect all levels of one’s functioning; 3) become aware of the family impact of these diseases throughout their progression; 4) gain a deep awareness of and appreciation for the role of caregiver: what it means to be a “partner in care,” how to build your team and to extend your own support network; caregiving stresses and rewards, practical pointers, and resources. After a brief introduction, panelists will respond to questions related to their personal experiences of caring for someone with a Movement Disorder. Issues will range from the most basic, concrete aspects of daily caregiving and community resources, to the deeper emotional, relationship, and spiritual realms; and from early diagnosis and a variety of interventions, to advanced disease, hospitalization, and longer-term care planning; and long-distance family caregiving. Audience members will also have an opportunity to ask questions of the moderator and panelists.


Bio: Diane Breslow, MSW, LCSW (Illinois Licensed Clinical Social Worker) is an educator, support group leader, consultant, program development specialist, and psychotherapist. Diane received her BA with Honors in Psychology from the University of Missouri. She holds a Master’s Degree in Social Work, with a specialty in Family Therapy, from the University of Maryland. Diane has worked in her Profession since 1970, largely with people affected by Parkinson’s disease. Colleagues, patients, and family members have observed that Diane brings a keen insight into, and sensitivity about, the impact of disease not only on the diagnosed person, but also on the entire family.


Diane has collaborated with numerous Chicagoland retirement homes, assisted living facilities, and nursing homes in establishing Parkinson’s programming and holistic care. She served as the first Coordinator of Northwestern University Parkinson’s Disease and Movement Disorders Center, where, for over 10 years, she developed programs and counseled patients and families. Among many passions, Diane champions multidisciplinary care and caregiver recognition and rights. Diane feels blessed to have chosen Social Work, a Profession that offers a diversity of roles, personal growth, immeasurable rewards, stimulating challenges, and enriching relationships.


4 p.m. Getting Real: The Low Down on Depression and What You can Do with Deb Kelsey-Davis, Warren Hebert and April Koontz

Depression. We see the term everywhere, but often miss it when it’s staring us right in the face. Isn’t it time we talk more about it, and wipe away the stigma to see depression for what it really is and what it is teaching us? Depression is easily misunderstood and misdiagnosed. People who suffer from it are sometimes accused of being lazy, unfriendly and/or overly dramatic. They may have a difficult time completing a task or making a decision and can seem edgy, over- reactive, and preoccupied with ‘aches and pains’. They often visit multiple physicians and undergo a variety of medical procedures because of their unexplained physical symptoms. It’s estimated that one third of people with a chronic disease have depression. And, the Family Caregiver Alliance conservatively estimates that 40% - 70% of family caregivers suffer from it.


Are you or your loved one – one of them?


Join Warren Hebert, RN, Deb Kelsey-Davis, RN and April Koontz, MSW, three family caregivers who happen to be clinicians, and get the low-down on depression. Through their own personal stories, Warren, Deb and April will provide insights into the hidden ways depression appears in our lives and challenge us to consider the ‘gift’ depression has to offer. They’ll also share a simple exercise that will strengthen your resilience muscle and help you better cope with depression if and when it appears.


In this session, you’ll learn:


• How to recognize depression in both yourself (the caregiver) and your loved one (the caree).
• What depression may be trying to tell you.
• When to seek professional help (and what to expect).
• Where to find ongoing support.
• Why shattering the stigma of depression is a critical component of healing.


Bio: Deb is an author, national speaker, and caregiver to her parents. With caregiving as the most important role of her lifetime, her mission is to focus on what really matters. She launched Soul2Soul Solutions with Nourish™, a faith-based program for family caregivers. Then, co-founded Sagacity.Care™ to meet consumer demands for credible, personalized health content.


Register to join us in person or virtually.

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Coping Tract


Each session in this tract will take place in Chicago Ballroom G. Each Session is 50 Minutes. These sessions will be recorded and available in our conference recordings package.

9 a.m. Be Bold in Your Career Advancement with Lauren Milligan

If you’re looking to land your next job, campaign for a promotion, or make a career transition, Lauren is your best secret weapon. Lauren’s clients come to her for resume development, LinkedIn profile creation, networking and interview skills coaching, and crafting a multi-tier job search campaign. She’s written so many resumes, she dreams in bullet points!


In addition to her coaching practice, Lauren teaches a multitude of workshops and classes at College of DuPage, Harper College, workNet, IDES and dozens of business and employment support groups throughout Chicagoland. She has contributed to hundreds of career-related features on WGN Morning News, ABC News, WLS and WGN radio and in the Wall Street Journal, CNN, Washington Post and dozens of other media outlets.


EVERYONE, not just the unemployed, should have an updated and polished resume. You never know when that perfect opportunity is going to come your way. Participants are walked through each component of a Professional Caretaker's resume in an engaging and interactive way, using real-world examples and class exercises. Lauren also shares her #1 trade secret that will drastically improve anyone’s resume in 30 seconds or less, as well as employment industry secrets that employers and recruiters won’t share. Everyone comes out with a better resume than when the presentation started.


Bio: Lauren has worked with thousands of professionals in all stages of career advancement for the past 15 years. She has developed tools and exercises that have enabled emerging leaders to take that next crucial career step, and has empowered established leaders to reach previously insurmountable goals. Simply put, when it comes to getting your next job, Lauren knows what you need to do to get there.


10 a.m. You Are Here: Facing the Future by Defining the Present with Beth Scibienski

Through personal journaling, and meditation along with group reflection, participants will recognize and define the needs, dynamics and concerns we face as caregivers. Every time we face a change as a caregiver, we are confronted with physical needs, emotional dynamics and spiritual concerns. For example, when my husband needed to begin using a wheelchair full time, we were faced with the specific physical needs – a wheelchair and a house equipped for a wheelchair. But with the wheelchair came emotional dynamics like the changes in our relationship if we no longer could walk hand in hand. And then in addition, spiritual concerns rose, like how I was beginning to see the world around me as inhospitable to people with disabilities. Every caregiver can play out a scenario like the one above. Maybe you are caring for a parent or a child. Maybe your care receiver has a chronic illness; maybe your care receiver has an acute illness. Your emotional fortitude may seem strong right now or maybe you are worn incredibly thin. The thing all caregivers have in common is the constant changes before us and the need to adapt to and provide for those changes.


Adapting and providing can be overwhelming. Together we will face our present in order to move into our future.


Specifically, we will:
* Name some of the changes we are face.
* Describe the physical, medical, emotional and/or spiritual aspects of the changes.
* Discuss possible solutions together.
* Discover 2-3 first steps in implementing the needed changes.


Bio: Beth Scibienski provided care for her husband (Secondary Progressive Multiple Sclerosis) for 12 years. She has written extensively on grief and vulnerability. She is the pastor of a Presbyterian Church, a writer, a Reiki Master and the co-host of the Two Pastors’ Podcast. As an entrepreneur and a visionary, Beth is uniquely skilled at imagining creative ways forward, mobilizing people to create venues that result in love, justice and kindness. She plays the guitar, loves to sing and enjoys cooking local food from local farms. She lives in central NJ, near her children and grandchildren. She blogs at www.bethscib.com.


11 a.m. Masterminds: The Power of Peer Support with Lorna Scott

Two things I learned as a caregiver: one, time is limited, and two, caregivers, as a group, have a lot of collective wisdom. While the medical community is designed, ready, and willing to help the patient, caregivers often become invisible. At the end of the day, there is little time left for self-care, and often there are more questions than answers. Who are the experts to help caregivers? Most of the time, it is other caregivers. They may have already found the best member of the medical team to answer to your questions, where to go for help, and how to save time. Peer support, in the form of a mastermind group of caregivers, brings together the expertise of their experience and a safe place to share their wisdom, and receive guidance and support.


Participants will learn a specific system to positively support each other to identify questions and challenges, brainstorm ideas, and support each other with total honesty, respect, and compassion. During this process group members will gain insight, receive support, and get suggestions on the answers to their questions and solutions for their current challenges. Members leave this session with a renewed sense of energy, possible solutions to what’s troubling, and accountability on an action plan.


With this proven process, you will discover how:
• To quickly and efficiently get answers, ideas and solutions.
• To get the benefit and wisdom of sharing with others who have had similar experiences and challenges.
• To receive support and accountability to get real progress and results in your caregiver role and personal life.
• To be part of an instant and valuable support network.
• To experience a sense of shared experiences- you are not alone.
• How you can take charge of your life, and have time for you.


Bio: Caregiver expert, Lorna Scott, works with individuals and organizations that want to help family caregivers have a higher quality of life and avoid caregiver burnout and after careigiving, helps people through the transition of letting go of the past in order to step in the future. She is the author of the best selling book, Walking the Journey Together … Alone, Finding Peace, Hope, and Joy in the Middle of the Sh** and has helped many caregivers learn how to be aware of subtle changes they can make that will take them off autopilot and get back into the driver’s seat of their life. She has become a go-to expert in the caregiving community. Her personal philosophy is to have a positive outlook on life with a focus on solutions, not problems. She firmly believes that with the right information, attitude, focus and a belief in oneself, anyone can achieve their highest goals. Scott lives in Medicine Hat, Alberta, Canada where she enjoys playing flute in the community band, attending Toastmasters and spending time with her family, especially the three loves of her life – her two grandsons and her faithful dog Pepper.


1 p.m. Finding Your Own Path through Grief and Loss: Strategies to Boldly Cope throughout your Caregiving Journey with Carolyn Grant

Attendees at this presentation and discussion will learn:
1. The different types of loss including ambiguous and anticipatory loss.
2. To identify and acknowledge loss throughout the stages of caregiving beginning with diagnosis day through treatment, repeated hospitalizations, further decline and acceptance when the end is near. Including discussion on how to be bold during each stage.
3. An overview and discussion of suffering. How do we endure witnessing the pain and suffering of our caree? How do we watch our caree decline? How spirituality can be a means to understanding and coping with suffering. For the purpose of this presentation, spirituality will be referenced in a nondenominational way. It is defined as a sense of connection to something bigger than ourselves and typically involves a search for meaning in life.
4. An explanation and discussion of the stages of grief and the importance of not minimizing the grief that we feel.
5. Peppered throughout the presentation will be specific strategies to cope with loss and grief at different stages of the caregiving journey.
6. A discussion on what it means to live boldly during caregiving and post caregiving.


Bio: It is with over 10 years of experience, genuine empathy and respect that I help my clients successfully maneuver life as a family caregiver. My clients benefit from the knowledge that I gained helping multiple family members learn, plan, adapt, cope and accept a medical diagnosis and living with disease. I understand the struggle of worrying, fulfilling needs for sick family members while simultaneously balancing the needs of my own family. Since my experience encompasses both long distance and local care, I learned how to have those difficult conversations with immediate and extended family. The caregiving years can be extremely challenging as family caregivers are thrust into a world filled with new medical jargon, emotional chaos that ensues and feeling like their own life is unraveling. I walk the journey with family caregivers to ease the process, collaborate to develop plans that ensure their family member is getting the care that they need and provide support for whatever the family caregiver requires.


2 p.m. Keep YOU in the Circle of Care with Gael Chiarella Alba

This interactive presentation will tailor traditional Holistic Healthcare with mindfullness tools specifically for your needs as a busy Caregiver. Our touchstones will integrate each practice with awareness of the present circumstances you are working with. Each will bring you in, rather than stress you out even more.


Our fundamentals will include:




  • Working the outbreath and why this helps calm us. Enlarging the inbreath and why this energizes us.

  • Slowing the breath down to slow down time.

  • Body awareness and individual ways you can use what you've got: physical stance, posture, body adjustments and personalized reminders.


Bio: Author Gael Chiarella Alba E-RYT, C-IAYT, CCC is best known as a meditation teacher and yoga therapist. Gael experienced the joy of family throughout childhood in a Brooklyn walkup with her beloved grandparents living just steps away. She also witnessed enormous everyday stress in both her Grandmother and her Mother as they cared for their spouses through many years of illness, leading her to research the relationship between caring for self and caring for others through psychology, spirituality and the healing arts. In mid-life, her holistic toolbox became the container for managing the traumatic injury care of her own adult son. Her path as a therapist intersected over and over again with her own experience of how we return to balance in caregiving, and ultimately this brought her to the question of how we use our voice. As she walked this path herself, she turned her direction toward Leadership Development for Caregivers. As founder of The Yokibics Institute, she developed mindful trainings for individuals and teams through SelfCareOasis.com. With a mind, body, spirit embrace, those who care for others are given a framework for engaging this essential role with a peaceful, present, and embodied approach.


3 p.m. Feel your Fear and Do It Anyway! Shirley Riga

Shirley’s life changed dramatically in 1981 when her youngest daughter was born with two pediatric liver diseases. Shirley spent half of her life as the main caregiver, advocate, supporter and cheerleader for her daughter. For her own sanity, she continually searched for tools that she could use to help her and her family survive and thrive. In 2016, she was able to bring these experiences together into a self-help memoir entitled Tools for the Exceptional Parent of a Chronically-Ill Child. At present, Shirley is a Feel the Fear and Do It Anyway® trainer in the Boston area teaching workshops and classes on going beyond fear to live a happier and more fulfilling life. She is a hospice singer and a practitioner of Psychosynthesis, a holistic form of counseling. A sought-after speaker in the caregiving community, Shirley facilitates a caregiver support group and is currently seeking certification as a Spiritual Director.


Bio: Shirley Riga is a Feel the Fear trainer in Boston, Massachusetts. In today's world we can't waste a moment being unhappy or stifled when the world itself is offering so little support for our happiness. You see what you want and your fear stops you from going after it. Until I found Feel the Fear and Do It Anyway, I felt lost and lived my life in fear of people, situations, and decisions. Now I help people feel happier, be more at peace. Some people have physical limitations that leave them with no confidence. Others deal with familial chronic illness. There are also those that want to break away from negative role models. After taking my workshops, people leave with tools they have seen work. They gain confidence and find more peace in their lives. Wherever you are in your life, this course will help you change your life. Shirley is a Certified Psychosynthesis Practitioner and a hospice singer. She facilitates caregiver workshops in the Metrowest area.


4 p.m. Restore Joy in the midst of grief and loss with Joy Lucinda

Family caregivers go through various levels of loss including losing or giving up a job, no free time, increased problems with relationships, as well as taking care of a loved one while grieving that they are dying or ill. However, despite the loss and grief, joy can be found here and there. I will present various simple strategies that can be incorporated immediately to help you see your caregiving and grief experience in a different light while easily freeing your self of negativity, guilt, apathy, anger, and resentment. The results are moments of peace, joy, forgiveness, and ease. I will also share the simple R.E.S.T. to restore protocol to use everyday or throughout each day for resetting your mind, body and soul as you give your loved one love through caregiving.


Bio: Joy Lucinda has helped over 1000 caregivers professionally through innovative senior care programs, hospice and dementia care. Most recently, she trains formal and informal caregivers how to use 10 second to 3 minute alternative therapy protocols on the hands, feet and body for their loved ones' symptom management as well as self-care with love. In addition, Joy has developed a Restore Joy After Loss program to address the grief caregivers experience while caring for loved ones. This program employs simple strategies that can be utilized immediately to help a caregiver see their loved one and grief experience in a new way and find joy along the way even as they grieve.


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Dementia Care Tract


Each session is this tract will take place in Chicago Ballroom F. Each Session is 50 Minutes. These sessions will be recorded and available in our conference recordings package.

9 a.m. World Changer Memory Engagement Interactions with Marti Hannon

Unsure if you are making a difference during interactions with your caree? Spending time with an individual with advanced memory loss is a unique opportunity and often challenging experience. Are you willing to learn, grow, and find a renewed perspective? You can still connect with the person in front of you. By igniting the senses to both calm and awaken, the person within, we create moments of connectedness. Come prepared to reflect on your own feelings, ways you communicate, your self-care practices, and what you are willing to do differently. We will practice using tools of engagement; I find the most helpful and are well researched for effectiveness. Opportunities for discussion and problem solving will be provided.


Marti Hannon, C.T.R.S, C.C.C., is the founder of World Changer Consulting. She strives to stand beside family and professional care teams as they serve individuals with memory loss. Marti is specialized in using games, activities, and leisure interests to bring fun with purpose. Providing tools to help caregivers connect to the heart and soul of their caree while working on engagement and memory functioning. Marti holds certifications as a Certified Therapeutic Recreational Specialist, Certified Caregiving Consulting, and Certified Nursing Assistant. She began her journey as a small child visiting friends in nursing homes. At 17 she was the primary caregiver to her mother, battling with cancer. After her mother’s passing, she began her professional journey in various hospital setting as a nurse’s aide/patient care technician, and then transitioned into activities. In 2015 Marti graduate with her degree as a Certified Therapeutic Recreational Specialist. She first applied her C.T.R.S. credentials in psychiatric centers and in healthcare settings serving individuals with memory loss. She is actively involved in community outreach and partnership, and has been a featured presenter at various conferences throughout the Midwest. She spreads a message of love, joy, adaptability and connectedness in every interaction.


10 a.m. Innovative Approaches to Activating and Engaging Family Caregivers in Dementia Care Management Panel Discussion

In 2015, nearly 16 million caregivers provided over 18 billion hours of unpaid care to those with Alzheimer’s and related dementias. Despite these staggering figures, a majority of caregivers lack training and adequate skills in dementia care. Recent reports cite that 75% of caregivers feel frustrated and overwhelmed, 92% need information related to the use of non-medication approaches for managing behavioral symptoms2, and that training in communication and person-centered approaches are required3. Despite the availability of numerous training and educational programs, less than 3% of person-centered intervention and training manuals are evidence-based.


In this discussion, panelists will explore innovative approaches to activating caregivers of people living with dementia early in their caregiving journey. Solutions to activate these caregivers should provide value not only to those who receive care but also protect caregivers against burnout, stress and mental health concerns, such as depression and anxiety.


Three learning objectives:
1. Understand the various challenges caregivers confront in supporting those with dementia
2. Discuss an evidence-based approach to activating caregivers that positively impacts dementia care
3. Learn about innovative approaches and therapies in dementia care


Panelists:




  • Jay V. Patel, Clinical Transformation Officer, Seniorlink (moderator)

  • Ted Fisher, Vice President of Business Development, Hasbro

  • Sharon Hall, Caregiver and Blogger at Caregiving.com


11 a.m. Handling the Challenges of Frontotemporal Degeneration, A Panel Discussion with Sharon Hall, Lisa Yost, Cecelia Thomas-Isenman, Richard Milne and Dr. Borna Bonakdarpour

This will be a panel of current family caregivers in various degrees of progression, as well as medical professionals from Northwestern. This will be a time for FTD caregivers to ask questions. Each panelist will give a brief introduction, then the floor will be open to discussion.


Register to join us in person or virtually.

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Family Tract


Each session in this tract will take place in Chicago Ballroom F, Each Session is 50 Minutes. These sessions will be recorded and available in our conference recordings package.

1 p.m. How Family Caregiving Affects a Marriage: Tips for Bold Couples with Frank and Lisa Riggi

Frank and Lisa Riggi will bring their years of family caregiving experience and share tips and tools in helping married couples survive family caregiving. They often refer to it as the “Caregiving Love Triangle:” Caree; Family Caregiver(s); and doctors, aides, extended family/friends, etc.


Many times we just want to be heard and understood. Listening and communication techniques will be shared so attendees will walk away boldly and confidently in their ability to address marital challenges before they become a bigger issue.


Just like a GPS will often “recalculate” based on a change in direction, a day in the life of a caregiving family can change as quickly. No two days are alike. Having a “Marital GPS” (or Marriage Caregiving Covenant) will keep you focused on your partner without compromising the attention to your caree.


The family caregiving journey is a trip. A trek. It isn’t a destination. And it is better traveled with a spouse by your side that is committed to your marriage and the family caregiving passage.


Bios: Frank and Lisa have been family co-caregivers since their marriage in 1992. Lisa was raised in a caregiving home since birth. Her maternal grandmother lived with her parents since their wedding and she witnessed them care for several family members either in their home or at a facility. They became her carees in 2006 when they moved in with Lisa and her family. Lisa is a Certified Caregiving Consultant and Certified Caregiving Educator; her caregiving consultant business, The Serene Harbor, offers caregivers and their families a place of peace and safety as they navigate their caregiving journey.


Frank grew up in a traditional Italian household. His grandmother lived with his uncle and the family was responsible for helping in her care, even when she was moved into a nursing home facility. Frank has been co-caregiving for his in-laws since they moved in with their family. During the day Frank is Sterile Processing Chief at the local Veterans Administration Hospital.
Frank and Lisa currently care for Lisa's mom, their adult daughter who suffers from Fibromyalgia and cardiac issues and a son who has Type 1 Diabetes.


2 p.m. Legal Issues that Can Affect Even Uncompensated Family Caregivers with Barry Kozak

Oftentimes, when an elderly individual needs assistance with the Activities of Daily Living, and other long term care services, family members stand up to voluntarily become the caregiver, and quite often without any compensation. While this new inter-familial relationship might be out of love, or simply because of economic realities, each state has a unique set of laws that govern the caregiver relationship – some that provide support, education and respite services for the caregiver; and others that protect the vulnerable individual caregiving recipient from harm, abuse, or even irrelevance. Barry will use laws enacted in Illinois to demonstrate what family caregivers (and other family members who are not caregivers) in any state should become aware of.


Bio: Barry Kozak is a Consultant at October Three Consulting, LLC. His primary responsibility is the development of a new practice area, which will deliver financial wellness and retirement planning education, materials, and services. Barry holds academic appointments at The John Marshall Law School, Chicago, where he teaches classes in Estate Planning, and at Loyola University Chicago School of Law, where he teaches classes in Elder Law, and where he has been named a Distinguished Scholar in Residence for 2017. Barry has earned a BS (in Applied Statistics) from The University of Albany, State University of New York; a JD and a LLM (in Employee Benefits) from the John Marshall Law School, Chicago; and, a MPP (in Public Finance and Taxation) from the University of Chicago Harris School of Public Policy Studies. Barry is an Attorney, Enrolled Actuary, Chartered Financial Consultant, and Certified Pension Consultant. Barry is President‐Elect of the Greater Chicago chapter of the Society of Financial Service Professionals; and, is the co‐chair of Chicago Sister Cities International, China Committee’s Shanghai Social Exchange Subcommittee, where he will be co‐leading a delegation of 8 Chicagoan professionals to Shanghai in October 2017, to discuss how each city supports its elderly populations.


3 p.m. Preparation for a Death Vigil with Leslie Cottrell Simonds

Each of us has the tools within us to be a unique channel of support to a loved one that is preparing to die. Yes, anticipatory grief is filled with emotions that can seem overwhelming, but when we approach this time with intention, it can be the most loving and enlightening journey we have ever taken. There are ways to prepare ourselves practically, emotionally and spiritually to be able to set our grief aside to accompany our loved one to their final moments on this earth. In this presentation, we will talk about anticipatory grief and how to best manage our own emotions. Then we will learn how to help our loved one create their own vigil plan so we, their loved ones can carry out their wishes. Intentionality and preparation are key ingredients for what I call a good death. A good death simply means one that is approached with care and planning to create an environment of peace and love. When facing the end of a terminal illness our family members often wonder if their life has had any meaning. As they struggle with worsening physical symptoms, their emotional turmoil also increases as they not only worry about how they will cope with their last days but also about how their loved ones will cope after their death. We'll look at how to lovingly address their worries and our emotions as we compose a support system that fits the unique needs of our loved one. This is good not only for the loved one that is approaching death but for everyone that will be present.


Bio: With a resume resembling a crazy quilt from the events and hospitality industry, Leslie Cottrell Simonds realized in her thirties she has an unusual bond with the dying. Life put opportunities before her to be present for several people as they approached their last hours in her early years. She was well into her forties before realizing not everyone experiences the comfort and peace she feels in the presence of someone in their last moments. Intuitive presence is something that everyone can employ as they vigil with a loved one. We all have the necessary tools within us; it just requires tapping into the soul to be able to transcend our personal pain to truly be present for the person preparing to die. Leslie's Dad was the catalyst for her book, “I Want You to Know,” a straight from the heart planning guide for all of life’s eventualities. A second book about preparing for death vigils will be published late summer 2017. Leslie is a death and grief coach, author, speaker, and artist. She has trained with INELDA as a death doula, Sue Fredericks as a grief coach, and Denise Brown as a Caregiving Consultant, to name just a few.


4 p.m. Let's Kill Caregiving Stress

Caregiving stress is the overlooked epidemic in our communities. To raise awareness of caregiving stress, we've asked family caregivers to rate their stress level and indicate the source(s) of their stress in our simple caregiving stress survey. In this session, Denise will share the current results of our ongoing survey, discuss how a caregiving experience became so stressful and share thoughts about what's needed to minimize the stress.


In 1996, Denise M. Brown launched Caregiving.com, the first website to add online caregiving support groups, daily caregiving chats and blogs written by family caregivers. Through its blogs posts, podcasts and video chats, Caregiving.com holds one of the largest online libraries of caregiving stories. In 2016, Denise created and hosted the first National Caregiving Conference, now an annual event for family caregivers, former family caregivers and professionals. Denise's insights have been featured in The Wall Street Journal, The New York Times, US News & World Report, USA Today, SmartMoney.com, Time magazine and Chicago Tribune. Her books, including "Your Caregiving Lists of Courage, Hope and Resilience " and "Take Comfort, Reflections of Hope for Caregivers," provide insights, inspirations and information to those who care for family members. She currently helps her parents and her aunt.


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Family Tract 2


Each session in this tract will take place in Grand Ballroom 6. Each session is 50 Minutes. These sessions will be recorded and available in our conference recordings package.

9 a.m. Planning for Caregiving: Having Those Difficult Conversations with Jodi Hempel and Debbie Howard

No one wants to talk about aging and dying, but it’s so much better if we can find ways to be open and honest about it! Join us to fast forward your ability to initiate and navigate sensitive conversations with your loved ones about their wishes, and to make concrete plans together based on those conversations. In this action-packed session, we will address:




  • the importance of starting your discussions BEFORE your loved one needs your assistance

  • common resistance points and how to overcome them

  • tips for planning, framing, and asking questions in a positive way


Bio Jodi: When Jodi was just 19 years old, her mother had a massive stroke and required care for the next 20 years. As an only child, Jodi instantly become her mother’s caregiver. Jodi’s mother had not prepared for a health event like this and Jodi was left to figuring everything out for herself. Later in her mother’s recovery, they were able to have conversations and put plans in place so they were ready for the next health event. Jodi combines her experience as a caregiver and a former corporate trainer to help others along their caregiving journey. She is the founder and owner of Peace of Mind by Design. She is the co-author of the book “Life: The Next Phase. Navigating the Issues of Caring for Your Aging Parent or Loved ones.” She is also the creator and facilitator of the “Walking the Path with Your Aging Loved One” and “Retirement by Design” programs. Visit her website, www.jodihempel.com, to learn more.


Bio Debbie: Debbie Howard is a former caregiver who had her own series of difficult conversations with her Mom, starting with general planning before she was diagnosed with Stage 4 lung cancer, and moving onward to "end-of-life" planning to fulfill her Mom’s wish to die at home. She has also interviewed over 200 caregivers as part of the research for her recently-published book, titled "The Caregiving Journey: How to Survive and Thrive One Step at a Time," which guides caregivers in a straightforward and heartfelt manner, advocating for self-care and making your caregiving journey a transformative experience. Visit her website, www.thecaregivingjourney.com, to learn more.


10 a.m. Men who Care Panel Discussion with Christopher-Charles Chaney

Typically, when most people think of a caregiver, they picture a woman. It’s 2017 and men do care. Caregiving men, although fewer in number, are just as dedicated, diligent and determined to help their loved ones live the best possible life. This panel provides support, guidance, and direction for men and the people who love them. Join our discussion as men who care share their candid stories of overcoming challenges to reap the rewards of being "winning" frontline caregivers.


Panelists:




  • Bruce Hanson

  • Frank Riggi

  • Jolyon Hallows


Bio: Christopher-Charles Chaney, MBA, MDiv, CCC, CCE
Christopher-Charles Chaney, family caregiving expert, national speaker, award-winning author, and CEO of Family CareLIVING, knows firsthand the benefits and challenges of being a family caregiver.


Christopher spent years caring for his mother, Mama Peaches, who passed in 2016 after suffering from dementia. His love and struggles as a caregiver inspired him to journal his experiences on Facebook in 2015. The popularity of Mama Peaches Facebook postings created a social media frenzy and the subsequent release of his award-winning book, Mama Peaches and Me.


Through his caregiving book series, radio talk show appearances, speaking engagements, and growing Mama Peaches Facebook group, Christopher provides essential information to family caregivers. Family CareLIVING, a division of the Christopher-Charles Chaney, Inc, offers CEUs for healthcare professionals. His company also offers caregiving plays and caregiving art exhibitions designed to inspire community dialogue around the growing public health crisis of family caregiving. His resume includes working with the federal government for over twenty years, as well as working with local, state and national non-profit organizations to increase the awareness of family caregiving. Being widely sought after by organizations and media outlets, Christopher is quickly becoming a recognizable face for family caregiving.


Bio: Pastor Bruce Hanson
Pastor Bruce Hanson has been a Caregiver for his wife for the past forty-seven plus years. During the past ten years, this task has become a full time calling due to multiple medical issues (diabetes, Kidney failure and subsequent kidney transplant, major debilitating Stroke, Breast Cancer, and Seizures) that his wife has encountered. As a result of this calling Pastor Bruce has become extensively involved in Patient Advocacy locally as well as nationally, serving on several National Boards (ABIM Critical Care sub Committee, PCORI Patient Engagement sub Committee, NAM Multiple Medical Issues sub Committee, Pastors4PICOR Board, Gap-Bridging LLC, as well as on multiple SCM sub Committees as a Patient Advocate Consultant). Pastor Bruce has a BS in Counseling Psychology and a Masters of Divinity with a minor in Family Counseling. During the years of caring for his wife Pastor Bruce has developed various strategies that have enabled him to navigate the Federal, State and Insurance health systems as well as the various medical systems that have been involved in the care of his wife. Pastor Bruce Hanson (Caregiver on Steroids)


11 a.m. Be Bold With Your Time with Elizabeth Miller

Elizabeth has a simple solution to help family caregivers find time for what they love. Time for reading, playing an instrument, painting, gardening, exercising, or just hanging with friends. Family caregivers know they need to take care of themselves but often don't know how to start...so they don't start. Continuing down this path may lead to caregiver burnout. In this hands-on interactive presentation, Elizabeth will teach family caregivers to identify and assess how they currently spend their time and walk them through techniques to streamline their activities, organize their time, and delegate responsibilities. We will also identify the personal activities for which they wish to have more time. Each participant will leave with a personalized plan for their time that will include time for the activities they love


Bio: In 2014, Elizabeth’s world was completely flipped upside down when her mother-in-law was in her fourth year of battling lung cancer and both her parents were fighting for their lives. Her father passed away in August 2014 putting her in an immediate position to move her chronically ill mom and become her primary Caregiver. Elizabeth had to learn how to integrate caregiving with her already demanding family and work responsibilities and not lose herself in the process. Elizabeth’s business, Happy Healthy Caregiver, helps family Caregivers integrate caregiving with their personal lives. She offers 1-on-1 private consulting sessions, group workshops, and leads the Atlanta Daughterhood Circle meetups. Elizabeth’s website (happyhealthycaregiver.com) has free resources available such as ‘Help I need more Me Time’ and ’30 Days to be a Happy Healthy Caregiver’. Elizabeth facilities a private online community of caregivers who are interested in prioritizing their own health & happiness while caring for others. Her complimentary online community offers an Action Plan that walks family caregivers through the steps to go from overwhelmed to happy and healthy. Elizabeth lives in Marietta, GA with her husband and two teenagers. She also works full-time as an IT Product Manager.


1 p.m. Millennial Caregiving Adventures with Grandma with Rachel Hiles

On May 23, 2015, my grandma fell and fractured her T11 Vertebrae. She went from being 100% independent to needing support to stay safe in her home. I have been supporting my grandma to age in place as her primary caregiver since then. It has been quite the journey. I’ve learned more than I ever want to know about what it’s like to grow old in today’s world.


Come to this presentation to hear about my personal caregiving trajectory and how external pressures, generational differences, personality clashes, and the complexity of everyday life have impacted our path to the good life for the both of us. I will share the strategies I have used to help her stay safe and healthy, have quality of life, and cope with my caregiving role as a ‘millennial’ family caregiver.


Rachel Hiles is a 30 year old aspiring local celebrity do-gooder in Kansas City, MO. She has been the primary caregiver for her grandmother for over two years, and has used the knowledge and experiences gained over the past twelve years building a career helping disabilities at the individual, organizational, and systems levels to help her grandma have a good life and age in place. She has her Master's in Public Administration with an emphasis in nonprofit management. She is proud to be a second generation AmeriCorps member! Her passion is where social justice and technology meet. Her specialty is making projects, programs, and organizations look good.


2 p.m. Finding Humor and Grace in the Caregiver Sandwich with Breeda Miller

A dynamic one-hour program that engages audience members with stories and creative solutions to the everyday challenges of caring for the elderly. The Sandwich Generation refers to those caring for elderly parents and children at home, along with a full-time job—all at the same time. Finding humor in days filled with dementia, incontinence, insomnia, and pain management is not for the faint of heart. Add to this the parent-child dynamic and the experience becomes a roller coaster like no other. Breeda tackles these challenges head on and guides her audiences to seek out helpful resources as well as look within for a fresh perspective. If you don't know which is worse - handing over your car keys to your new 16-year-old driver on a Friday night or thinking about ways to take away the car keys from your 90-year-old driver, you are in the Caregiver Sandwich.


Bio: Breeda Miller has a passion for helping caregivers and others deal with the stress in their lives and to use humor as coping strategy. Breeda helps people find ways to care for themselves so that they can better care for others. Finding your own humor and grace can make all the difference.


In addition to her work as a professional speaker, Breeda works for Michigan Medicine at the University of Michigan where she produces major events for the Medical School and Hospitals. She is a graduate of the University of Detroit and has worked in Detroit radio and television for many years. She has appeared on The Moth Story Hour on NPR. But her most important and rewarding role has been caring for her three children – all adopted, two with special needs and her mother – whom she cared for right up to the end of her life.


3 p.m. It's More Than "Just" Parenting - It's Caregiving

Join three moms who found themselves going above and beyond "just" parenting for their children. Share in their story and learn the strategies they used for success... or just to cope!


Panelists:




  • Lisa Riggi

  • Michele Rosner

  • Jackie Schwabe


Lisa Riggi
Lisa was raised in a caregiving home since birth and watched her parents care for their immediate and extended family members. She too, became a caregiver for her parents (her mom still lives with their family) and several aunts and an uncle. However, when her 16 year old daughter was diagnosed with the H1N1/Swine Flu nothing could prepare their family for what came next. Never fully recovering, their daughter became home-bound and almost bedridden and the doctor's were baffled. After 11 months and an enormous amount of testing and specialists, she was diagnosed with Fibromyalgia; a result of the Swine Flu. Caring for their daughter, Lisa and Frank, her husband, believe they were "just" parenting. When their son was diagnosed at 13 with Type 1 Diabetes, their family dynamics changed significantly. It was overwhelming and they sought out a support group with other T1D families and it was there they learned they were family caregivers to their children.


Michele Rosner
Michele is the mother of four kids, ranging in age from 11 to 17. Her 15-year-old daughter Julia is her connection to the world of caregiving. Julia has been diagnosed with Aicardi Syndrome, which involved intractable seizures, a vision impairment, significant global delays, scoliosis and spinal fusion surgery, GI challenges and respiratory issues. Over the years, Michele has become adept with dealing with care management while balancing her professional and family life, at least most of the time. Her outlook is both optimistic and realistic, with a focus on self-empowerment and problem-solving. Michele and her husband are committed to keeping a sense of normalcy for both themselves and their children in spite of the difficult and stressful circumstances they frequently face.


Jackie Schwabe
Jackie Schwabe is VP of Leadership Research at North of Center and CEO of Mindlight, LLC. She is a certified Caregiving Presenter and will soon complete her Caregiving Consultant and Certified Caregiving Educator certifications. She has been a caregiver for her Autistic daughter for 6 years and her parents the last few years. She received her BA in Management Computer Systems from the University of Wisconsin – Whitewater and MBA in Technology Project Management at the University of Phoenix. She has been active in the area of healthcare integration, healthcare IT, telemedicine, and product management for over 20 years. She has been a cross-sector, cross-discipline leadership practitioner her entire career.


Jackie wakes up motivated to help others. Her mission, to provide the tools, opportunities, and connections people need to be their best self. A career in Health IT allowed her to figuratively and literally connects thousands of systems and people. A mother of four children — one with Autism — she often says different is not less and communication happens in more ways than verbally.


4 p.m. Book it! How to Self-Publish your Caregiving Story! with Christopher-Charles Chaney

Every family caregiver has a unique story. So, what’s your story? This exciting workshop is a must for first-time authors seeking actionable step-by-step strategies and practical tools to get started, stay focused, and realize the dream of writing a book. Join award-winning author and founder of Project What’s Your Story (ProjectWYS.com), Christopher-Charles Chaney as he shares his proven system to help you finally write and self-published your caregiving legacy. Here’s what you can expect to learn:
• How to assemble your book project team (editor, cover designer, etc.) without breaking your budget
• Tips to combat fear and writer’s block
• How to manage your time effectively
• Leveraging the power of editing and writing tools
• Steps to getting your book on Amazon
• Marketing and promotional tips for your book
• And much more!


Bio: Christopher-Charles Chaney, MBA, MDiv, CCC, CCE
Christopher-Charles Chaney, family caregiving expert, national speaker, award-winning author, and CEO of Family CareLIVING, knows firsthand the benefits and challenges of being a family caregiver.


Christopher spent years caring for his mother, Mama Peaches, who passed in 2016 after suffering from dementia. His love and struggles as a caregiver inspired him to journal his experiences on Facebook in 2015. The popularity of Mama Peaches Facebook postings created a social media frenzy and the subsequent release of his award-winning book, Mama Peaches and Me.


Through his caregiving book series, radio talk show appearances, speaking engagements, and growing Mama Peaches Facebook group, Christopher provides essential information to family caregivers. Family CareLIVING, a division of the Christopher-Charles Chaney, Inc, also offers CEUs for healthcare professionals. Christopher’s company provides caregiving plays and art exhibitions designed to inspire community dialogue around the growing public health crisis of family caregiving. His resume includes working career of over twenty years with the federal government, as well as working with local, state and national non-profit organizations to increase the awareness of family caregiving. Being widely sought after by organizations and media outlets, Christopher is quickly becoming a recognizable face for family caregiving.


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Coping Tract 2


Each session is this tract will take place in Grand Ballroom 7. Session length is 50 minutes unless otherwise indicated. These sessions will not be recorded.

1 p.m. Think About It. Change Everything with Grit, Grace and Gratitude with Deb Kelsey-Davis and Colleen Kavanaugh

Deb and Colleen measure their caregiving years in decades and agree that they were not prepared for the emotions, stress, and life-changing circumstances that went with the job. They discovered their resilience came from the similar characteristics of tenacity, tenderness, and acceptance. Deb and Colleen now combine their diverse sets of professional and personal caregiving experience to help others realize the tools to get through any situation intrinsically exist within each of us through their program, My Grit, Grace + Gratitude.


Join us in a fun and interactive session and understand how cultivating Gratitude and uncovering Grace generates the Grit needed to face the challenging circumstances of family caregiving. Discover your caregiving style/type, while engaging in a short exercise to identify who you are as a family caregiver. You may just be surprised by your results! Through our original assessment tool, you will gain insight into how your style of caregiving can be leveraged to accentuate your strengths and cultivate the areas you wish to grow to best support your individual care situations. Learn the practical approaches we’ve personally used to build our tools to help reshape your perspective and thinking to more quickly find the Gratitude in even the most difficult moments. We believe the key to handling the stress of caregiving and more fully treasuring the gifts of the moment in the present comes directly from these principals. We call these tools Our Secret Weapons.


We’ll help you identify the key behaviors, thoughts, and actions needed to build resilience. You’ll see how the combination of self-awareness, optimism acceptance, and the capacity to set goals and carry them out creates the ability to change course and discover your inner strength. Designed to help family caregivers adapt and bounce back, our strategies help you realize you can proactively move from surviving to thriving in any circumstance life sends your way. In short, you will know how to Grab Grit, Get Grace, and Gain Gratitude!


Bios: Deb Kelsey-Davis, RN, MHSA / S2S.Care
Colleen Kavanaugh, CCC, CDCS, CDP / TheLongestDance.Com


Deb is an author, national speaker, and caregiver to her parents. With caregiving as the most important role of her lifetime, her mission is to focus on what really matters. She launched Soul2Soul Solutions with Nourish™, a faith-based program for family caregivers. Then, co-founded Sagacity.Care™ to meet consumer demands for credible, personalized health content.


Colleen cared for her parents for a decade, and she now works to empower family caregivers across the country via one-on-one consulting, national speaking, podcasting, and blogging. Specializing in dementia care and Eckhart Tolle's teachings on presence, Colleen, brings a unique perspective to clients where practicality meets spirituality.


2 p.m. Can You Be Bold At Work While Caregiving? with Liz O'Donnell

This presentation will tackle how caregivers can continue to be bold and lean in to their careers even in the midst of caregiving. Yes you can lean in at work while you are a caregiver - but be prepared your career path may not look like you expected it to. We will discuss the challenges of working while caring including missing work and dealing with critical coworkers. We will address the guilt that comes from saying yes to your career when family member needs you. We will look at the practical reasons caregivers need to earn a living and we will review a framework for deciding when to lean in and when it makes sense to hit cruise control on your career. This session will include inspiring stories about caregivers who changed careers and started new ventures post-
caregiving.


Key learning objectives include:




  • how-to prepare at work for a crisis at home,

  • what working caregivers can do to career-proof their careers,

  • how to recover from a caregiving-induced career setback.


Bio: Liz O’Donnell is an author, speaker and award-wining blogger who helps women balance and blend their personal and professional lives. Liz’s book Mogul, Mom & Maid: The Balancing Act of the Modern Woman, and her website WorkingDaughter.com, are lifelines for women balancing family and career.


3 p.m. Understanding Communication in Dementia Care

This workshop will aim to highlight the importance of understanding the impact dementia related illness has on a person's ability to communicate. As a result, care partners may need to shift their communication and gain insight into the variety of ways individuals living with dementia may communicate. Through this workshop, we will look to reframe typical “problem behaviors” sometimes exhibited by individuals living with dementia as expressions of need and explore the myriad ways individuals with dementia commonly communicate their needs, especially as the illness progresses. Participants will explore strategies to proactively meet needs, as well as develop tools to de-escalate and diffuse situations if they arise.


Molly Fogel, LCSW is the Director of Educational and Social Services at the Alzheimer’s Foundation of America (AFA). In the field for 10 years, Molly has spent her career working to educate and improve best practices within organizations, focusing on improving clinical skills in all staff, despite their background, and ensuring the community served is provided the opportunity to improve overall health and wellness, emotionally, mentally, & physically. In her current position, Molly is able to work with a dynamic interdisciplinary team providing education, resources, and support to individuals living with dementia, their families and care professionals. Molly has had variety of clinical positions, starting her work in New York City on the Bowery serving the homeless then shifting to community health work focusing on substance use and mental health, ultimately finding a home in the on medical wellness and aging community. Molly received her bachelor’s degree in Criminal Justice from American University in Washington DC, and went on for her Master’s in Social Work from New York University. Molly finds her most rewarding work has been teaching professionals and paraprofessional staff clinical techniques to improve the quality of services being provided within the populations they serve.


4 p.m. Your Business: Boldly and Beautifully Branded Colleen Kavanaugh
Session Length: 1 hour, 50 minutes

Learn how to present your business in the most beautiful and professional way and watch sales and customer engagement increase. You will learn how consistent colors, fonts, and imagery affect the perception of your business, impart information, and imply intrinsic value. Understand why you are your brand and how to develop a clearly defined mission statement through your tagline. See how the unspoken “look” of your work can best speak to your area of expertise and the clients you hope to attract. Do you feel intimidated by creating and managing a website on your own? Don’t be, because there are resources to make creating websites and beautiful content as easy as clicking a mouse pad. As a small business, money is often at a premium, and there are simple, economical ways to create without needing to hire a professional designer. Learn the little things that signal a professional versus an amateur when it comes to email addresses and legally protecting your business, website and intellectual property. Take away resource lists and check sheets that will enable you to get right to work in creating and fine-tuning your boldly beautiful business brand.


Bio: Colleen Kavanaugh, CCC, CDCS, CDP was, in a previous pre-caregiving lifetime, the manager of a graphic design and marketing firm, product designer, high-end retail buyer and merchandiser. Then she became a family caregiver to her parents. Goodbye stilettos, hello sweatpants! She always had an “eye” for graphic design but not the technical know-how to execute her visions. However, thanks to the internet, she has created every pixel and printout of content on her own. And, being technically challenged, she firmly believes that if she can do it, anyone can! Proof can be seen on her website, TheLongestDance.com and Instagram + Facebook pages @TheLongestDance. Colleen now works alongside family caregivers across the country via one-on-one consulting, national speaking, podcasting, and blogging to empower caregivers to love, prepare, and thrive.


Register to join us in person or virtually.

Evening Entertainment


Caregiving, A Six-Act, 24-Minute Performance
We'll watch two, six-act performances. Lisa and Frank Riggi will share caregiving story through the lens of their marriage. In our second performance, six family caregivers and former family caregivers will each share a four-minute story.


Caregiving Quiz Show
Contestants will vie for prizes by answering questions about current events, the caregiving experience and our caregiving conference.

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