NCC18 Agenda: November 10

Denise

NCC18 Agenda: November 10

Denise
Our Third Annual National Caregiving Conference will take place at Chicago Marriott O’Hare, 8535 W. Higgins, Chicago, IL. For our latest and most up-to-date agenda, please download our NCC18 app.

Register to join us in Chicago or virtually.

We're so grateful to our NCC18 sponsors that make our conference possible.



Saturday, November 10, Agenda
Chicago Marriott O’Hare, 8535 W. Higgins, Chicago, IL (Our National Caregiving Conference room rate is $119.)

8 a.m. Keynote: The Transformative Power of Caregiving with Nicole Rochester


9 a.m. – 5 p.m: Conference Sessions (See below for Tracks and session details.)


Noon Lunch


1 p.m. Fashion Show


What I Wear When I Care


1:15 Certified Caregiving Consultant Overview


1:50 p.m. Door Prizes


8 a.m. – 5 p.m.: Exhibits


5 p.m. Mix and Mingle at the Bar


7 p.m.: Dine Around



Tracts




General Track and Virtual Broadcast


Grand Ballroom
These sessions also will be broadcast live.

8 a.m. The Transformative Power of Caregiving
Dr. Nicole T. Rochester is a board-certified pediatrician, Clinical Assistant Professor, and the CEO of Your GPS Doc, LLC, an innovative  company that helps aging individuals and their family caregivers navigate the healthcare system.

While helping to care for her late father, who had multiple chronic illnesses including dementia, Dr.Rochester witnessed the disjointed healthcare system from the other side of the stethoscope. Despite her medical expertise, she often struggled  to ensure her father received the care he needed. She realizes most  patients and families do not have access to this inside knowledge and has made it her personal mission to educate and empower others. Dr. Rochester was moved so deeply by her caregiving experience that she left clinical medicine in July 2017 to focus on being a professional health advocate, consultant, speaker, and business owner.

Dr. Rochester has written numerous blog articles on her website, www.yourgpsdoc.com, and also shares her knowledge and insight through social media, workshops, seminars, and speaking engagements. She has contributed to a variety of national online publications and has been interviewed on several podcasts, including AgeWyz, the On-Air Advocate, and On the Front Lines of Caregiving.

Dr. Rochester received her Bachelor of Arts degree in Biology from Johns Hopkins University. She obtained her Doctorate in Medicine from the University of Maryland School of Medicine and completed her pediatric residency training at Children's National Medical Center in Washington, DC. Dr. Rochester serves on the Board of Trustees for the Maryland Health Education Institute, an organization devoted to developing health care leaders throughout the state of Maryland. She is a member of the Alliance of Professional Health Advocates, the American Academy of Pediatrics, and the American Association for Physician Leadership. She is married and the proud mother of two daughters.

9 a.m. The Male Perspective Panel Discussion with Jolyon Hallows, Patrick Egan, Danny van Leeuwen and Ben Carter
Jolyon Hallows was the primary caregiver for his wife, Sandra, who had Parkinson's disease. For over twenty years, he cared for her as the disease progressed. In the last few years of her life, she remained at home and she needed total care. In those years, Jolyon learned how to be a caregiver. How to do the physical tasks such as dressing or feeding. How to modify the home environment to make his and Sandra’s life easier, and how to deal with the inevitable negative emotions that accompany caregiving. He has recently published a book on Sandra's and his life together. The book, A Parkinson's Life: And a Caregiver's Roadmap, is part memoir and part "how-to” guide for caregivers. Jolyon is a published author of two management books, Information Systems Project Management, first and second edition, and The Project Management Office Toolkit, both published by AMACOM in New York. An accomplished speaker and seminar leader, he is on the faculty of a university certificate program in project management and regularly makes presentations for the local Parkinson's disease society on the disease and on caregiving.

Patrick lives in Boulder, Colo., with his husband and a dog named Molly. He is the caregiver for his parents who live in a Senior Community nearby. He has a passion for using technology in a way that enhances and adds fun to the caregiver experience. As an informal "family tech help" guy, he understands the huge benefits digital tech can provide, while at the same time helping others grapple with the overwhelming number of issues that technology can present. He has a leadership background in Human Resources within the Medical Device field, and has provided training and consulting services for numerous Technology and Start-Up companies both in the US and internationally. As stated on his Twitter account, he is well-versed in "acronym speak" and is a CO-LGBT-HR-BOHO-MBA-HSP-ENFP-MAC kind of guy. Bottom line, he like to use humor and empathy to help others transition from technical overwhelm to using tech that cares - both for the caregiver and the caree.

Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. As a patient and caregiver activist, Danny focuses on learning what works for people: informed decision-making, patient-centered research, communication at transitions of care & technology supporting solutions created by and for people. Danny has presented about caregiving at the National Caregiving Conference, HIMSS, and the Medical Informatics World Conference. Danny serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Danny is active in the Society for Participatory Medicine and is editor of their newsletter. He is a technical expert for the CMS-funded Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ and JoPM.

Born and raised in Newark, New Jersey, Ben Carter is a professionally trained Life Coach, Speaker and Corporate Instructor who believes that all experiences, whether opposition or opportunity are life lessons. Ben incorporates his personal and professional experience to inspire individuals to acknowledge “life problems” by solving them with the “life purpose”. Ben’s personal story involves him rebuilding a relationship with his mom and sharing the responsibility of caring for her in the last months of her life. Ben used the experience of her untimely death as motivation to inspire others. Ben believes in the power of motivating and inspiring everyone to achieve excellence in their lives beyond the challenges that they may face by using their inherent skills, gifts and talents.

10 a.m. What's Right? What's Wrong? How to Make a Decision With Joy Loverde
Joy Loverde has a reputation for being a path carver and visionary. Joy is the author of the Who Will Take Care Of Me When I’m Old? and the best-seller, The Complete Eldercare Planner. The American Medical Association says, “It’s the best book we’ve seen.” Over 30 years’ experience as a media spokesperson, Joy's appearances include the TODAY Show, Good Morning America, CBS Early Show, ABC News, Fox News, National Public Radio, SiriusXM, and others.

11 a.m. Turning the Struggle into the Purpose: Finding Meaning Through Caregiving Panel Discussion
Our Caregiving Visionary Award winners share how they find purpose during their caregiving experiences.

Sheila Warnock is the Founder & President of ShareTheCaregiving (aka Share The Care) and co-author of Share The Care, How To Organize, A Group To Care For Someone Who Is Seriously Ill.

Bruce McIntyre serves as the Executive Director of the Parkinson Foundation of Oklahoma. As a 14-year caregiver for his wife, Kathy, and as the author of Thrive Anyway, Parkinson Positive, Graceful Transitions, and Resilient Life, Bruce shares his expert guidance and warm humor with thousands of people each year.

Bev Foster is the founder and executive director of the Room 217 Foundation, a community health arts organization that uses music to change the care experience. Compelled by her own caregiving journey, Bev and her team deliver music care products, programs, and educational services to healthcare providers, family and volunteer caregivers across Canada.

Priya Soni is the Founder and CEO of The Caregiving Effect LLC, a platform and service launched to create a space for adults who have cared for their family members due to aging, illness and/or disability. She has developed a mission to build a movement of mentors, caregiver visionaries, who are utilizing their stories as a tool to help the many who will or are walking the path of caregiving. As a coach and certified caregiving consultant, she aids adults in turning the unexpected role of being a caregiver into a role of a lifetime—The Caregiving Effect, a term she coined.

Amanda Singleton is the owner of Singleton Legal, a caregiver-centered law firm.  Through her experiences as a family caregiver, she was led to become an advocate for all caregivers.  Her vision is to see her clients plan to care and be cared for, so that they are prepared and supported when the time comes.

2 p.m. Coaches Corner: Five essential strategies that build endurance, joy and rejuvenation with Saran Craig
This session examines lessons learned from a unique project that paired an expert dementia coach with caregivers of people with dementia over a thousand miles away. Real Caregiving stories about what being your "best self" looks like along the dementia journey will validate and inspire participants. Participants will leave the session with five specific strategies to build endurance, joy, and rejuvenation into everyday life.


Saran has been involved in caregiving journeys since the age of 14, when her grandfather began his battle with Frontotemporal Dementia, and her grandmother and family stood by his side and accepted the roles of “caregivers.” Saran was witness to the trials, tribulations, joys and sorrows of caregiving first hand, which set in motion her life’s goal to support family caregivers through their own journeys. Saran received her Bachelor’s Degree in Sociology/Gerontology from Lynchburg College, and her Master’s Degree in Gerontology/Counseling from Appalachian State University. Saran has supported caregiver’s through her career with roles at AAA, Assisted Living, and most recently at Seniorlink serving as a Manager of Structured Family Caregiving and VOICE for Dementia care as a Dementia Coach. Saran lives in Carver, Massachusetts with her son and 2 daughters.

3 p.m. The Future of Caregiving
Since 1996, Denise M. Brown, founder of Caregiving.com, has taken the temperature of the family caregiver experience through annual surveys. She'll pull her research together to predict what will be hot in terms of products and services for family caregivers. She'll also share a weather forecast for the future of family caregiving.

4 p.m. Love, Loss and the Journey to Lasting Peace: Finding Your Best Self During and After Caregiving Panel Discussion
Lisa B Capp is a dementia caregiving survivor who shared a journey of transformation as dementia consumed her mothers life over 18 years. Professionally Lisa's been a Transformation & Organizational Change Consultant, now she's a dedicated blogger and activist focused on Alzheimer's and dementia caregivers.

Penny Patnaude is a Caregiver Strategist, certified Dementia Care Practitioner, an Alzheimer disease and dementia care Trainer and a Dementia Care Partner with the Alzheimer's Foundation of America. As a former family caregiver for over a decade Penny understands the difficulties families endure when caring for a loved one with Alzheimer's and dementia.

Dannelle LeBlanc is a Certified Caregiver Consultant, Certified Caregiver Educator and Certified Senior Advisor based in McKinney, Texas. She has 20+ years experience in patient support and health care. Dannelle offers purposeful training, support, and educational resources for family caregivers and senior care professionals in her home state of Texas, nationwide, and online.

Dannelle was a caregiver for her father-in-law who had Parkinson’s disease for 12 years. During this time her beloved mother passed away unexpectedly, and her own health became compromised. Through these life changing experiences Dannelle became inspired to help other family caregivers.

Dannelle specializes in offering self-compassionate and practical tools that nurture wellness and purpose for family caregivers. Her passion for training and education brings unique opportunities for family caregivers to find what works for them throughout the stages of caregiving. In addition, Dannelle is training to become a trainer in our Certified Caregiving Consultant™ program.

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Family Caregiver Track


Chicago Ballroom E, Each Session is 50 Minutes

9 a.m. My Aching & Tired Body: Taking Care of the Caregiver Using Practical & Research Proven Techniques to Ease the Care
Doctor of Occupational Therapy & Blaine Robinson, Certified Aging in Place Specialist, CAPS Dr. Robinson has 30 years of experience providing customized care for a variety of age groups and their caregivers throughout nearly all care settings.  She is passionate about people being able to participate in those things that are most important to them, including their caregivers -- whether it's helping come up with strategies to live at home, caring for a loved one, or advocating for access to services in order to live a full and meaningful life. She is currently an assistant professor for a Masters & Doctorate Occupational Therapy Program in the College of Health Sciences at Midwestern University and holds professional licenses in four states as an occupational therapist  She has lectured locally and nationally on topics of community based practices, treatment methods, and healthcare approaches. Her research focuses on the home environment, including caregivers in the home. Blaine Robinson is a certified aging in place specialist. Pursuing this specialization was due to observing the challenges aging family members encounter in order to live a quality life. He addresses the needs of all who live at home and their physical access needs. Both Blaine and Monika now face meeting the caregiving needs of their aging family members and their future care.

10 a.m. Freedom, Faith and Forgiveness in Caregiving
Cheryl Crofoot Knapp is passionate about using life experiences to encourage others. She is a devoted wife, mother, daughter, sister, friend, speaker, author, blogger, and Mrs. Minnesota-America 1996. With grace and humor, she was a primary caregiver and life manager for her parents through their battles with Alzheimer’s. She is an intentional speaker and blogger—sharing God’s grace in the storms, and affirming caregivers for those with a terminal disease that they aren’t alone in wondering if life can return to a place of peace.

11 a.m. Self-Care for Parents & Caregivers - Tools for Making SHIFT HAPPEN
Becky Henry’s belief that allowing waves of sorrow and joy to co-exist gives caregivers more calm, compassion and confidence. Her work has guided caregivers across the globe and they are having SHIFT HAPPEN, reclaiming joy, calmness and peace...even those who have lost a loved one. Becky uses her skills as a Certified, Professional Co-Active Coach (CPCC) and ICF Certified ACC to guide families to let go of fear and panic, practice self-care skills and become effective supporters for their loved one.

Becky founded Hope Network, LLC in 2003 to change the way parents are supported when caregiving someone with an eating disorder. While caregiving a loved one with a life threatening eating disorder, she saw a huge gap in supporting families and she’s being the change. As a mom who has walked this journey since 2000, Becky created services to support families.

A National Award Winning Author, Henry published, "Just Tell Her To Stop; Family Stories of Eating Disorders" in 2011 to reduce caregiver isolation, expose the reality of eating disorders, and reduce stigma. Becky has expanded her services to include all caregivers who need to fill the holes in their quickly emptying cups and get their oxygen masks firmly in place.

2 p.m. Finding My Best Self During Caregiving Panel Discussion

3 p.m. Mindfulness and Caregiving: Facing What Is
Karen Laing is the Founder of Birthways, one of the first and largest doula services in the country and the originator of the WisdomWay method of mindful caregiving. She is an MBSR (Mindfulness Based Stress Reduction) teacher and has brought the tools of mindfulness to meet the needs of individuals and families and to support and mentor those who care for them. In 2017, Karen launched WisdomWay Institute, a continuation of her life’s work supporting mindful and sustainable caregiving. The methods she now shares return to some of her roots in caregiving elders and those facing illness. She has cared for those at the beginning and the end of life both personally and professionally. Karen believes that we have a basic goodness and desire to be in caring relationships with one another and that the skills of awareness and self-compassion, when tended, make us more resilient and effective in those relationships. From being with friends in their final days, serving as a family caregiver, and parenting a child through a life-threatening eating disorder and depression, she has cultivated ways to be a 'midwife' to others. In her view, both care-giver and care-receiver hold the potential for healing and transformation and touch on the beauty of our shared humanity when given these opportunities. Since 1994, Karen has cared for families in a variety of ways. She has worked as a midwife and lactation consultant, served as a perinatal educator, and has trained and mentored hundreds of providers. She served on the board of the National Association of Postpartum Care Services, where she helped to establish the first national standards for postpartum doulas. She is a blogger, a presenter at national conferences and has led mindfulness retreats for parents and for professional caregivers. Karen and her family live in Madison, Wisconsin.

4 p.m. How to Champion a Caregiving Cause Panel Discussion

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Beginning and Former Family Caregiver Tract


Chicago Ballroom F, Each Session is 50 Minutes

9 a.m. What Do I Do Now? – Rebuilding Your Life and Relationships
Bobbi Carducci was a caregiver for her father-in-law, Rodger, for seven years. His diagnoses included, dementia, Parkinson’s disease, C.O.P.D., congestive heart failure, Dysphagia, and schizophrenia for which he had been treated since 1947. Bobbi is now a caregiver support group leader, author, blogger, and national speaker in caregiving issues. Her book, Confessions of an Imperfect Caregiver (Open Books Press), tells the story of her family dealing with one of the fastest growing, most important issues of our day. While it reads like a novel, every word is true.

10 a.m. 3 Ways to Reclaim Your Life After Caregiving Ends
Tandy Elisala is passionate about helping family caregivers go from being overwhelmed and stressed to empowered and calm. Tandy went through cancer four times and learned how to heal using conventional, complementary, and alternative therapy. Tandy left her 23 year corporate executive career to take care of both parents simultaneously while raising three kids as a single mom. She took care of both parents for 2 1/2 years until their respective deaths almost four months to the day of each other. She shares her caregiving journey in her first book, Healing Through the Chaos: Practical Caregiving, and gives other family caregivers a guide to navigate the often challenging journey. Tandy now teaches what she learned on her journey. Tandy is a family caregiver coach, a multiple best-selling author, inspirational speaker and mom to three adult kids, one angel dog and one diva cat.

11 a.m. Advice for the New Caregiver
Jolyon Hallows was the primary caregiver for his wife, Sandra, who had Parkinson's disease. For over twenty years, he cared for her as the disease progressed. In the last few years of her life, she remained at home and she needed total care. In those years, Jolyon learned how to be a caregiver. How to do the physical tasks such as dressing or feeding. How to modify the home environment to make his and Sandra’s life easier, and how to deal with the inevitable negative emotions that accompany caregiving. He has recently published a book on Sandra's and his life together. The book, A Parkinson's Life: And a Caregiver's Roadmap, is part memoir and part "how-to” guide for caregivers. Jolyon is a published author of two management books, Information Systems Project Management, first and second edition, and The Project Management Office Toolkit, both published by AMACOM in New York. An accomplished speaker and seminar leader, he is on the faculty of a university certificate program in project management and regularly makes presentations for the local Parkinson's disease society on the disease and on caregiving.

2 p.m. Becoming the Best Version of Yourself with Toni Gitles
As a loving caregiver to her mother for 14 years, Toni understands the physical, emotional and spiritual challenges of the caregiver’s journey. Toni’s mother passed away in February 2017, just short of her 100th birthday. Toni started Heart Light Enterprises, LLC to help family caregivers overcome the stress and negativity of caregiving to find meaning and resilience in this life changing journey.
With over 40 years in the healthcare industry, Toni Gitles is both a Certified Caregiving Consultant ™ and Certified Caregiving Educator™, in addition to holding a Master’s Degree in Audiology. A member of several professional speaker organizations, Toni is also an author, dynamic speaker and well recognized Distinguished Toastmaster. As a former instructor for Baylor College of Medicine, Toni has extensive experience working with physicians and patients in hospital and crisis environments.

3 p.m. There May be a Book in You: Writing about Your Caregiving Experience as a Way of Healing
Debbie Howard is a former caregiver who helped her mom in her final 1.5 years, after she was diagnosed with Stage 4 lung cancer. In the first few months after her mom’s passing, the world experienced “global financial meltdown” (late 2008-early 2009), and she almost lost her then nearly 20-year-old, Tokyo-based business. After 2 years of frantically re-building the business (while grieving), Japan’s triple disaster (earthquake x tsunami x nuclear meltdown) occurred in Spring 2011 … and she was “back to square one” again. She rebuilt the business (still while grieving) and then found a business partner in 2012 to help her move things forward, and she lives to tell the tale today. She has spent the last 10 years since her mom passed away working hard to relaunch herself – both personally and in her career. Debbie has also interviewed over 200 caregivers (many of them in the “relaunch” stage”) as part of the research for her book, The Caregiving Journey: How to Survive and Thrive One Step at a Time. It’s taken longer than she expected to pull herself together and move forward, but slowly and surely, she has made progress.

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Professional Track


Grand Ballroom 5, Each Session is 50 Minutes

9 a.m. Starting or Running a Side Hustle While Working and/or Caregiving
While Working and/or Caregiving Elizabeth Miller is a wife, mother, full-time employee, family caregiver and Certified Caregiving Consultant. She obtained in B.A. in Journalism from Penn State University and has worked in IT software development for over 17 years. Elizabeth’s personal experiences caring for aging parents with chronic and terminal illnesses as well as caring for a sibling with developmental disabilities inspired her to create Happy Healthy Caregiver in 2015. Through her consulting services, resources and online community, Elizabeth helps family caregivers integrate caregiving with their busy lives. Elizabeth has been a presenter at the 2016 and 2017 National Caregiving Conferences. Her story has also been featured in Woman’s Day and the Marietta Daily Journal. She is also the host of the Happy Healthy Caregiver podcast on the Whole Care Network, a freelance writer, and facilitates an Atlanta support group for family caregivers called the Atlanta Daughterhood Circle.

10 a.m. The Role of Family of Choice in Caregiving and Care Planning
Jacqueline Boyd is a long time aging specialist and LGBTQI advocate. Jacqueline’s passion for health and aging started when she was a Certified Nursing Assistant in college. Working in nursing homes gave her a deep appreciation for the struggles many face throughout the aging process. The swift physical and cognitive changes, the lack of clear resources and advice left many families in the dark about how to best support their loved ones, and at times guilty for the choices they had made. It was here that seeds for The Care Plan were planted, in an empathy for the pain and uncertainty many clients and their families experienced. Jacqueline spent much of her professional career providing care management services in her 9 years with a private duty caregiving agency. Providing guidance and advocacy for people in need illuminated time and again the need for earlier interventions and planning. She saw how a comprehensive approach can avoid common crisis along the path to aging, yet no real solution existed which led her to launch her company, The Care Plan.

11 a.m. Owning a Small Business and Your Caregiving Experience Panel Discussion
Denise M. Brown, owner of Caregiving.com, and Amy Goyer, AARP Caregiving Expert, share how they manage their small businesses and their caregiving responsibilities.


Practical Track


Grand Ballroom 5, Each Session is 50 Minutes

2 p.m. Four Keys to Making a Difference in a Family Caregiving Challenge
Keith Piscitello is a CERTIFIED FINANCIAL PLANNER™ and Chartered Retirement Planning Counselor who has over a decade of experience helping seniors and their adult children navigate the financial and legal transition from full independence to a higher level of care.

3 p.m. Protecting Carees from Scams
Steve Wollack brings a unique combination of education and professional experience to his clients. He is an attorney, CPA and member of the Chicago Mercantile Exchange where he was a former Vice Chairman, Treasurer and Board Member. He was a past instructor in taxation at Roosevelt University. In addition, he is an arbitrator for FINRA and the National Futures Association. He received his law degree from Northwestern University Law School and a B.S. in accounting with honors from the University of Illinois.

4 p.m. Reading the Room and Yourself
Danny van Leeuwen, an action catalyst empowering people traveling together toward best health, wears many hats in healthcare: patient with Multiple Sclerosis, care partner for several family members’ end-of-life journeys, a nurse for 40 years, an informaticist and a QI leader. As a patient and caregiver activist, Danny focuses on learning what works for people: informed decision-making, patient-centered research, communication at transitions of care & technology supporting solutions created by and for people. Danny has presented about caregiving at the National Caregiving Conference, HIMSS, and the Medical Informatics World Conference. Danny serves on the Steering Committee of AHRQ’s Patient-Centered Clinical Decision Support (PCCDS) Learning Network and as patient expert for CDS Connect. He reviews PCORI research funding applications and serves as co-chair of PCORI’s Clinical Effectiveness and Decision Science (CEDS) Advisory Panel. Danny is active in the Society for Participatory Medicine and is editor of their newsletter. He is a technical expert for the CMS-funded Supporting Efficiency and Innovation in the Process of Developing CMS Quality Measures. Danny blogs weekly (www.health-hats.com) and was recently published in BMJ and JoPM.

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Coping Track


Chicago Ballroom G, Each Session is 50 Minutes

9 a.m. Learning to Redefine Normal and Loving Life
Although Wendy Andersen is an accomplished author, speaker, coach, and mentor, she is a wife and mother first. Having a special needs child taught Wendy the critical importance of setting up her world to fit the current expectations of her own family over those delivered by the expectations of others. For most of us, life doesn’t go as we planned. It didn’t for Wendy and her husband. In less than 36 hours, their seemingly normal life was turned upside down when their oldest son was diagnosed with Tuberous Sclerosis Complex (TSC), epilepsy and four years later autism. When it happened, she and her husband chose to rise in love. They agreed to redefine normal with three broad actions—Loving, Embracing, and Redefining Normal Life. Wendy’s experience created a deep desire to redefine what normal looks like in her own life, and instilled in her a passion to help others Redefine Normal for themselves.

10 a.m. Session details to come.

11 a.m. Coping with the Holidays
Shirley Riga, author, teacher and speaker, knows fear having survived the life and death stress of coping with a daughter with chronic illness for over 30 years. As a sought-after speaker, she brings a warmth of truth into a room. She is a licensed trainer for Feel the Fear and Do It Anyway and offers individual and group classes in the Boston area.

2 p.m. Meditations with Sarah Griebler

3 p.m. Curiosity and Learning: Evidence you are Doing a Good Job Caregiving
During her mother’s fifteen-year journey with Alzheimer’s, Barbara Ivey made every mistake possible learning to care for her Caregiver Dad from two-hours away. Caregiver-to-the-Caregiver is a distinct role from Caregiver. Through trial and error, Barbara learned to stay in her lane, while consoling, loving and persuading a Caregiver under tremendous stress. Juggling a relationship with a sister, her professional clients and a husband she later learned has Asperger’s, made this an eventful season of life. Barbara relied on Lean Process Improvement tools to manage the chaos, and to give herself the appreciation she needed to keep going. A dynamic speaker and panelist, Barbara earned her corporate chops at Microsoft, and her voice in the Alzheimer’s conversation through her leadership in Rotary’s Coins for Alzheimer’s Research Trust grants (www.CARTFUND.org). Barbara’s superpower is simplifying. In her writing, her publishing, and speaking, Barbara weaves complex information into memorable stories. In 2017 Barbara published Patterns in Time: One Family’s Journey. This visual reference for family members of Alzheimer’s Caregivers is elegantly designed and filled with original illustrations. It shares the key moments of 10 years of her family’s journey graphically - in a timeline with illustrations. Included are the behaviors to expect, why Caregivers need a break, and advise for adult children – especially for those who live out of town – on how to care for a caregiver.

4 p.m. Self- Care for Caregivers, Top- Down, Bottom- Up, and Sideways
Stephanie Antoine came to the US from the UK as a Fulbright Scholar, and is the founder of YnspyrTM, a Wellness Company that offers stress resilience and self- care programs. Stephanie has developed self-care strategies for over twenty-five years to cope with her own chronic pain, asthma, compulsive eating, grief and burnout. She uses Experiential Anatomy, Awareness Training and Directed Meditation in her work as a stress resilience and self- care coach. As a professional violinist, and later as a mother, far from family, the primary caregiver for her two children with special needs and a busy travelling husband she has learned that self- care becomes exponentially more important as the stress and chaos of life increases. Stephanie believes that making space for self- care, rest and rejuvenation builds resiliency, efficacy and the capacity for happiness even in the most extreme life circumstances. Stephanie is a Qualified Practitioner in Mindfulness Based Stress Reduction (MBSR) from the Center for Mindfulness at the University of Massachusetts, an ACSM Certified Personal Trainer, and also trained at the Iyengar Yoga Institute in San Francisco in the Advanced Studies Teacher Training Program where she studied with Judith Lasater, Elise Miller, Janet Macleod, Kathy Alef and Ramanand Patel. She is a meditation practitioner in the Vipassana (Insight) Tradition and attends regular silent retreats at the Spirit Rock Meditation Center and the Insight Meditation Center in Felton, California. Her meditation teachers include Gil Fronsdal, Ruth King, Bob Stahl, Pawan Bareja and Will Kabat- Zinn.

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Coping Track 2


Grand Ballroom 6, Each Session is 50 Minutes

9 a.m. Hospice Care - It's About How You LIVE!
Tina Ketchie Stearns has worked in the hospice industry for 13 years educating medical professionals and the community at large about hospice/end of life care, advance care planning, care giving, and grief. She has educated over 50,000 people from 25 countries. Along with her two siblings, Tina cared for her mother and father, one under hospice care and one not. The difference in the two end of life experiences was amazing, which is why she is so passionate about educating people about hospice care. Her father died in the hospital after they were faced with the heart wrenching decision to take him off life support. Her mother was in hospice care for five months and died in her home, where she wanted to be, peacefully and comfortably. The support hospice can offer not only the patient, but the care giver and family as well, is tremendous. Tina also emphasizes the importance of advance care planning, which ideally is done long before a serious diagnosis, or the unexpected. Tina has an MBA from Wake Forest University and lives in Winston-Salem, NC.

10 a.m. The Path to the Diagnosis Panel Discussion
Presenters share how they worked through the health care system to get the appropriate diagnosis for their carees. In addition, they'll share insights into how to ensure their carees receive the right diagnosis and the right treatment. Panelists also will share how they kept their best selves during the challenges of finding the right diagnosis.


11 a.m. How to Help your Loved One in the Hospital: You Can Make a Difference
Beth Rooney Suereth, BA, CCC, End-of-Life Doula lovingly cared for her elderly father through five years of hospitalizations, dementia, and diabetes. She’s passionate about sharing the expertise that kept him out of the hospital through his cancer and the entire last year of his life. Beth is the former national director of marketing for infusion and home care provider BioScrip. She is now a Certified Caregiving Consultant and End-of-Life Doula, and she works with patient families at a caregivers center in a NJ hospital to help them manage the hospital stay.

2 p.m. When the Care Plan Becomes an End-of-Life Plan
Beth Rooney Suereth, BA, CCC, End-of-Life Doula lovingly cared for her elderly father through five years of hospitalizations, dementia, and diabetes. She’s passionate about sharing the expertise that kept him out of the hospital through his cancer and the entire last year of his life. Beth is the former national director of marketing for infusion and home care provider BioScrip. She is now a Certified Caregiving Consultant and End-of-Life Doula, and she works with patient families at a caregivers center in a NJ hospital to help them manage the hospital stay.

3 p.m. Updates in Geriatrics to Help Caregivers Advocate for their Loved Ones
Dr. Lindquist is a Geriatrician and the Section Chief of Geriatrics at Northwestern University Feinberg School of Medicine, Chicago. She is a graduate of Northwestern University Feinberg School of Medicine and has also completed her Masters in Public Health and MBA from Kellogg School of Business at Northwestern. She has lead multiple research studies focusing on supporting caregivers and enabling older adults to successfully age in place. She is federally funded by PCORI, NIH, AHRQ, and CMS. Dr. Lindquist has been published in many diverse journals both in the medical and non-medical realms. Most notably, Dr. Lindquist has been sought as an expert for the New York Times, Harper’s, Boston Globe, Wall Street Journal, and multiple other regional sources. Appearing on CNN, MSNBC, and national syndicated talk shows, she has been tapped by multiple news sources to cover health topics related to aging. She is listed in Who’s Who in America, Who’s Who among Women, and has been selected for the First Edition of Who's Who of Emerging Leaders which features 25,000 men and women under the age of 40 who represent the best of a new generation of leaders worldwide.On a personal note, she has first-hand experience being a caregiver for her grandparents who had Alzheimer’s and who moved in with her.

4 p.m. Long Distance Caregiving: Strategies for Success, Whether You Live Three States Away, or Even as Far Away as Japan!
Debbie Howard is a former caregiver who served as both a long distance and live-in caregiver and for her mom after she was diagnosed with Stage 4 lung cancer, enabling her to die at home as she wished. Debbie was running a Tokyo-based market research company at the time of her mom’s diagnosis, and spent one year traveling back and forth multiple times to help her with chemotherapy, etc. Her two younger sisters (one who lived nearby and the other who lived several states away) worked together with her to meet their mom’s needs during that first year. Then, as the disease progressed and her needs became greater (and her sisters' comp time ran out!), she moved from Tokyo back to South Carolina live in and provide 24/7 support. She ran her business off the dining table her family had eaten at since she was in the 3rd grade, utilizing time zone maximization, Kinko's, Office Depot, and anything else she could to make it work. Nowadays, Debbie find herself in a support role to many family and friends who are coming to their caregiving years. Her book (The Caregiving Journey: How to Survive and Thrive One Step at a Time) advocates for self-care while caregiving, and for viewing the caregiving journey overall as a transformative experience.


Healing Room


Grand Ballroom 7, Each Session is 50 Minutes

9 a.m. Ageless Grace - 21 Simple Tools for Brain and Body Fitness
Marti Hannon has a passion to educate, equip, empower and encourage families, and professional care teams in taking care of themselves while serving others. She started her caregiving journey as a 16 year old providing care to a mother dying of cancer. She went on to carry out numerous personal and professional caregiving roles over the past 25 years. Her primary focus now is to provide coaching and educational services to nurture families. She is constantly growing in learning how to live out self care practices, compassionate communication, and showing grace to herself and others. Marti loves adventures, challenging and encouraging others to grow, and being creative. Professionally, she is a Certified Therapeutic Recreational Specialist, Certified Caregiving Consultant Educator, Certified Ageless Grace Educator, and a Certified Nursing Assistant.

Andrew talks a lot and smiles often. He listens deeply. He prefers he/him/his, and you can call him Andrew. Andrew has been caregiving professionally for seven years and cares for two of his uncles and one of his grandmas, long-distance from Boulder, Colorado. He pursues a Master of Arts in Clinical Mental Health specializing in Mindfulness-Based Transpersonal Counseling. As a freshman family caregiver, Andrew is asking questions and finding answers within, cultivating loving-kindness for himself so that he may support his carees, spread compassion to the healthcare system and be the change that he wants to see in the world.

10 a.m. Moving for Self Care
Erica Hornthal is a licensed professional clinical counselor and board-certified dance/movement therapist. She received her MA in Dance/Movement Therapy and Counseling from Columbia College Chicago and her BS in psychology from University of Illinois Champaign-Urbana. Erica is the founder and president of Chicago Dance Therapy. Dance/movement therapy concentrates on the mind-body connection and that we all have an innate need to express. As a psychotherapist in private practice, Erica specializes in working with older adults who are diagnosed with dementia and movement disorders. She utilizes a somatic approach to engage clients of all ages in talk therapy. Erica is also passionate about working with caregivers to enhance communication with their careers as well as for personal health and well-being. Her work has been highlighted in the Chicago Tribune as well as on WCIU and WGN.

1 p.m. to 4 p.m. Dementia Live
Dementia Live is an unforgettable experience that immerses participants  into what life might be like living with cognitive impairment and sensory change. Utilizing specialized gear that simulates dementia specific changes, care partners gain a first- hand understanding of the  anxiety, frustration, confusion and more that accompanies dementia  symptoms. Dementia Live uniquely walks participants from the “AHA” moment to empowering care partners with tools to improve communication, care processes and to make positive environmental changes for their loved ones. After experiencing life with dementia, participants will cultivate a deeper sense of empathy, understanding and these together will lead to more sensitive care partnering. You will not want to miss this enlightening experience!

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